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jvictoria – wondering how your CLND went and how you are doing

Forums General Melanoma Community jvictoria – wondering how your CLND went and how you are doing

  • Post
    brewgirl68
    Participant

      Hi, there- 

      I just wanted to check in with you and see how you are doing. I think your CLND was scheduled for this past Friday.

      Thoughts and prayers – 

      Sheila

    Viewing 8 reply threads
    • Replies
        jvictoria
        Participant

          Thanks for checking in Sheila… I'm doing really well… Much much better than I expected. I hope it continues in this fashion. Surgery pain is almost gone except for some basic soreness and arm movement challenges. The drain is a pain and sleeping with it is a huge challenge and somewhat scary, I keep thinking I'm going to yank it out in my sleep. But, that hasn't happend yet… I have created pillow motes on either side of me to prevent the desire of turning to one side or the other and I'm sleeping in an almost upright postiion which make things better but not ideal. Showering was easy also, thanks to the laynard concept.

          But good news came today with none of the nodes that were removed having any signs of cancer…

          Juan

            Marianne quinn
            Participant

              Great news!! So happy for you.

              Marianne quinn
              Participant

                Great news!! So happy for you.

                Marianne quinn
                Participant

                  Great news!! So happy for you.

                  Linny
                  Participant

                    Glad to hear things went well and that you are not in discomfort. The drain definitely is a pain in the butt, but manageable. Just remember to keep changing the position of any medical tape you are using to keep the tuning in place. This will help keep your skin from getting irritated.

                    If you haven't done so already, you may want to consider seeking out a physical therapist who specializes in lymphedema. Your arm is at risk for swelling now due to lymph nodes having been removed. This individual should be able to teach you how to keep the swelling risk at a minimum as well as fit you for a compression sleeve, which you can wear while cycling. You probably already have hand protection and may want to get elbow protection for the affected arm because with the missing lymph nodes, you are also at risk for infection in the event you sustain a fall and  get a cut on your arm. It sounds daunting, but actually it's not all that bad.

                    Again, congratulations on the NED (No Evidence of Disease) status!!!!

                    Linny
                    Participant

                      Glad to hear things went well and that you are not in discomfort. The drain definitely is a pain in the butt, but manageable. Just remember to keep changing the position of any medical tape you are using to keep the tuning in place. This will help keep your skin from getting irritated.

                      If you haven't done so already, you may want to consider seeking out a physical therapist who specializes in lymphedema. Your arm is at risk for swelling now due to lymph nodes having been removed. This individual should be able to teach you how to keep the swelling risk at a minimum as well as fit you for a compression sleeve, which you can wear while cycling. You probably already have hand protection and may want to get elbow protection for the affected arm because with the missing lymph nodes, you are also at risk for infection in the event you sustain a fall and  get a cut on your arm. It sounds daunting, but actually it's not all that bad.

                      Again, congratulations on the NED (No Evidence of Disease) status!!!!

                      Linny
                      Participant

                        Glad to hear things went well and that you are not in discomfort. The drain definitely is a pain in the butt, but manageable. Just remember to keep changing the position of any medical tape you are using to keep the tuning in place. This will help keep your skin from getting irritated.

                        If you haven't done so already, you may want to consider seeking out a physical therapist who specializes in lymphedema. Your arm is at risk for swelling now due to lymph nodes having been removed. This individual should be able to teach you how to keep the swelling risk at a minimum as well as fit you for a compression sleeve, which you can wear while cycling. You probably already have hand protection and may want to get elbow protection for the affected arm because with the missing lymph nodes, you are also at risk for infection in the event you sustain a fall and  get a cut on your arm. It sounds daunting, but actually it's not all that bad.

                        Again, congratulations on the NED (No Evidence of Disease) status!!!!

                      jvictoria
                      Participant

                        Thanks for checking in Sheila… I'm doing really well… Much much better than I expected. I hope it continues in this fashion. Surgery pain is almost gone except for some basic soreness and arm movement challenges. The drain is a pain and sleeping with it is a huge challenge and somewhat scary, I keep thinking I'm going to yank it out in my sleep. But, that hasn't happend yet… I have created pillow motes on either side of me to prevent the desire of turning to one side or the other and I'm sleeping in an almost upright postiion which make things better but not ideal. Showering was easy also, thanks to the laynard concept.

                        But good news came today with none of the nodes that were removed having any signs of cancer…

                        Juan

                        jvictoria
                        Participant

                          Thanks for checking in Sheila… I'm doing really well… Much much better than I expected. I hope it continues in this fashion. Surgery pain is almost gone except for some basic soreness and arm movement challenges. The drain is a pain and sleeping with it is a huge challenge and somewhat scary, I keep thinking I'm going to yank it out in my sleep. But, that hasn't happend yet… I have created pillow motes on either side of me to prevent the desire of turning to one side or the other and I'm sleeping in an almost upright postiion which make things better but not ideal. Showering was easy also, thanks to the laynard concept.

                          But good news came today with none of the nodes that were removed having any signs of cancer…

                          Juan

                          brewgirl68
                          Participant

                            Yay for no further node involvement!  Great news indeed!!

                            It sounds like things are progressing as well as could be expected, which I'm so happy to hear. Keep moving that arm as much as possible and be aware of any changes that could signal lymphadema. 

                            Very best wishes to you for a great recovery and (hopefully) putting melanoma in your rear-view mirror 🙂

                            Sheila

                            brewgirl68
                            Participant

                              Yay for no further node involvement!  Great news indeed!!

                              It sounds like things are progressing as well as could be expected, which I'm so happy to hear. Keep moving that arm as much as possible and be aware of any changes that could signal lymphadema. 

                              Very best wishes to you for a great recovery and (hopefully) putting melanoma in your rear-view mirror 🙂

                              Sheila

                              brewgirl68
                              Participant

                                Yay for no further node involvement!  Great news indeed!!

                                It sounds like things are progressing as well as could be expected, which I'm so happy to hear. Keep moving that arm as much as possible and be aware of any changes that could signal lymphadema. 

                                Very best wishes to you for a great recovery and (hopefully) putting melanoma in your rear-view mirror 🙂

                                Sheila

                                jvictoria
                                Participant

                                  Thanks everyone for the good wishes…

                                  Does anyone know of somewhere to research for Therapist for Lymphedema?

                                  jvictoria
                                  Participant

                                    Thanks everyone for the good wishes…

                                    Does anyone know of somewhere to research for Therapist for Lymphedema?

                                    jvictoria
                                    Participant

                                      Thanks everyone for the good wishes…

                                      Does anyone know of somewhere to research for Therapist for Lymphedema?

                                  Viewing 8 reply threads
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