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Does anyone have the MEK mutation?
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Does anyone have the MEK mutation?

› Forums › General Melanoma Community › Does anyone have the MEK mutation?

  • Post
    • January 12, 2016 at 1:05 pm
    scots
    Participant

      I'm looking for anyone with a MEk mutation. What treatments/drugs are you taking. Any experience with this mutation.

      scot

    Viewing 5 reply threads
    • Replies
        • January 15, 2016 at 1:02 am
        scots
        Participant

          another name for this mutation MAPK.  the pathology report say MAPK12 mutaion and the doctor called it a MEK mutain.

          • January 15, 2016 at 1:02 am
          scots
          Participant

            another name for this mutation MAPK.  the pathology report say MAPK12 mutaion and the doctor called it a MEK mutain.

            • January 15, 2016 at 1:02 am
            scots
            Participant

              another name for this mutation MAPK.  the pathology report say MAPK12 mutaion and the doctor called it a MEK mutain.

              • January 15, 2016 at 7:38 am
              kylez
              Participant

                Maybe that one hasn't been in the testing for long? BRAF and NRAS seemed to be the ones tested for at least back when mine was sequenced. They found the NRAS G12A mutation in my case. But I hadn't heard of the MAPK/MEK mutation till your post.

                • January 15, 2016 at 7:38 am
                kylez
                Participant

                  Maybe that one hasn't been in the testing for long? BRAF and NRAS seemed to be the ones tested for at least back when mine was sequenced. They found the NRAS G12A mutation in my case. But I hadn't heard of the MAPK/MEK mutation till your post.

                    • January 15, 2016 at 12:54 pm
                    scots
                    Participant

                      The actual mutation is MAP2K1 K57N. I was told by the doctor that it is very rare so no trials have been done yet. I was trying to find out if anyone else had the mutation and what they were doing.  IPPI and NIVO did not work for me so I'm looking at trial with glembatumumab vedotin and the ACT/TIL at NIH.

                      scot

                      • January 15, 2016 at 12:54 pm
                      scots
                      Participant

                        The actual mutation is MAP2K1 K57N. I was told by the doctor that it is very rare so no trials have been done yet. I was trying to find out if anyone else had the mutation and what they were doing.  IPPI and NIVO did not work for me so I'm looking at trial with glembatumumab vedotin and the ACT/TIL at NIH.

                        scot

                        • January 15, 2016 at 12:54 pm
                        scots
                        Participant

                          The actual mutation is MAP2K1 K57N. I was told by the doctor that it is very rare so no trials have been done yet. I was trying to find out if anyone else had the mutation and what they were doing.  IPPI and NIVO did not work for me so I'm looking at trial with glembatumumab vedotin and the ACT/TIL at NIH.

                          scot

                        • January 15, 2016 at 7:38 am
                        kylez
                        Participant

                          Maybe that one hasn't been in the testing for long? BRAF and NRAS seemed to be the ones tested for at least back when mine was sequenced. They found the NRAS G12A mutation in my case. But I hadn't heard of the MAPK/MEK mutation till your post.

                      Viewing 5 reply threads
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