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Keytruda and back pain
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Keytruda and back pain

› Forums › Cutaneous Melanoma Community › Keytruda and back pain

  • Post
    • January 25, 2016 at 12:09 pm
    Sfern5
    Participant

      about a week ago I had my third infusion of Keytruda.  After the first two treatments I felt great and could see subcutaneous tumors disappearing. My only side effect was constipation. I am now experiencing some lower back pain. Has anyone else had that? Do you know what causes it? Could it just be the constipation is worsening? I also did Develop a cold sore for the first time in my life. The doctor immediately ordered a course of  anti-viral medication. Otherwise I feel great! Just concerned about the back pain.

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    • Replies
        • January 25, 2016 at 7:24 pm
        JuTMSY4
        Participant

          Hi Sfern,

          I'm also on Keytruda and have had a similar experience.  You should definitely bring it up to your doctor.  That is not meant to scare you though as I have and I believe many others report back and/or joint pain w/ Keytruda.  I have some back bone mets so this is nothing in comparison to that.  

          Also, I take a daily course of metamucil for digestive concerns.  Obviously run it by your doc, but it has worked fine for me.  

          -justin

          • January 25, 2016 at 7:24 pm
          JuTMSY4
          Participant

            Hi Sfern,

            I'm also on Keytruda and have had a similar experience.  You should definitely bring it up to your doctor.  That is not meant to scare you though as I have and I believe many others report back and/or joint pain w/ Keytruda.  I have some back bone mets so this is nothing in comparison to that.  

            Also, I take a daily course of metamucil for digestive concerns.  Obviously run it by your doc, but it has worked fine for me.  

            -justin

              • January 27, 2016 at 1:53 pm
              Sfern5
              Participant

                 Thank you for your reply. The pain actually has gone away now. I'm wondering if it maybe was related to the cold sore virus. But who knows!? Anyway, I will definitely let my doctor know. And I appreciate your help and insight . Keep fighting the good fight.

                • January 27, 2016 at 1:53 pm
                Sfern5
                Participant

                   Thank you for your reply. The pain actually has gone away now. I'm wondering if it maybe was related to the cold sore virus. But who knows!? Anyway, I will definitely let my doctor know. And I appreciate your help and insight . Keep fighting the good fight.

                  • January 27, 2016 at 1:53 pm
                  Sfern5
                  Participant

                     Thank you for your reply. The pain actually has gone away now. I'm wondering if it maybe was related to the cold sore virus. But who knows!? Anyway, I will definitely let my doctor know. And I appreciate your help and insight . Keep fighting the good fight.

                  • January 25, 2016 at 7:24 pm
                  JuTMSY4
                  Participant

                    Hi Sfern,

                    I'm also on Keytruda and have had a similar experience.  You should definitely bring it up to your doctor.  That is not meant to scare you though as I have and I believe many others report back and/or joint pain w/ Keytruda.  I have some back bone mets so this is nothing in comparison to that.  

                    Also, I take a daily course of metamucil for digestive concerns.  Obviously run it by your doc, but it has worked fine for me.  

                    -justin

                    • January 27, 2016 at 2:04 pm
                    Momofjake
                    Participant

                      My 18 yr old son has very bad lower back pain. He has been on keytruda for 7 months. I had no idea others had this! He has spine tumors so we never know! Thanks for sharing. 

                      Kerri-mom of jake

                      • January 27, 2016 at 2:04 pm
                      Momofjake
                      Participant

                        My 18 yr old son has very bad lower back pain. He has been on keytruda for 7 months. I had no idea others had this! He has spine tumors so we never know! Thanks for sharing. 

                        Kerri-mom of jake

                        • January 27, 2016 at 2:04 pm
                        Momofjake
                        Participant

                          My 18 yr old son has very bad lower back pain. He has been on keytruda for 7 months. I had no idea others had this! He has spine tumors so we never know! Thanks for sharing. 

                          Kerri-mom of jake

                          • January 28, 2016 at 11:44 pm
                          geriakt
                          Participant

                            I am on Opdivo similar to Keytuda. I had lower back pain. One day so bad I could not walk.  I took Percocet for a few days and it got better. After one month the back pain went away. I also changed my mattress to a stiffer one which also helped me. 

                            Tom

                            • January 28, 2016 at 11:44 pm
                            geriakt
                            Participant

                              I am on Opdivo similar to Keytuda. I had lower back pain. One day so bad I could not walk.  I took Percocet for a few days and it got better. After one month the back pain went away. I also changed my mattress to a stiffer one which also helped me. 

                              Tom

                              • January 28, 2016 at 11:44 pm
                              geriakt
                              Participant

                                I am on Opdivo similar to Keytuda. I had lower back pain. One day so bad I could not walk.  I took Percocet for a few days and it got better. After one month the back pain went away. I also changed my mattress to a stiffer one which also helped me. 

                                Tom

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