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Why go to a specialist?

Forums General Melanoma Community Why go to a specialist?

  • Post
    specka
    Participant
      Why do you suggest going to a specialist for melanoma? Do you typically just have that specialist do the surgery and give you a plan and never go back? Or do you follow through with that specialist to the end? Are there any of you who do a combination of home town and specialists?
    Viewing 5 reply threads
    • Replies
        jennunicorn
        Participant

          I have a melanoma oncologist and a dermatologist who specializes in melanoma. They are at UCSF Melanoma Center. The only non-melanoma doctor I have right now is my obgyn. I am grateful to have a specialized center only 40 minutes from home. The reason I go to melanoma specific doctors to treat my melanoma is because it is a cancer that does not act like other cancers. It can be tricky and it can act very differently for different people. It doesn't follow general cancer rules in a sense. Plus, melanoma specialists will be very on top of the newest research, treatments, and clinical trials. They know the ins and outs of this crappy cancer, unlike a general oncologist who probably doesn't see very many melanoma patients and might miss things or not know about things the way a melanoma oncologist would. If you want the best possible care with a doctor that can really give you the best options for your melanoma it is always recommended to have a melanoma specialist as a part of your health team. 

          I am sure if you don't live close enough to a melanoma specialist, you can find one somewhere near you and sort of "add them" to your team. Have them consult with your regular oncologist so that they are getting the best information they can get to help treat you. When I was first diagnosed I had Kaiser insurance, had a regular oncologist, immediately found out about UCSF Melanoma Center and for the month and a half before I could change health insurance I had authorization from Kaiser to see the melanoma specialists and they consulted with the Kaiser oncologist until the first of this year when I was able to go to UCSF full-time. 

          All the best,

          jennunicorn
          Participant

            I have a melanoma oncologist and a dermatologist who specializes in melanoma. They are at UCSF Melanoma Center. The only non-melanoma doctor I have right now is my obgyn. I am grateful to have a specialized center only 40 minutes from home. The reason I go to melanoma specific doctors to treat my melanoma is because it is a cancer that does not act like other cancers. It can be tricky and it can act very differently for different people. It doesn't follow general cancer rules in a sense. Plus, melanoma specialists will be very on top of the newest research, treatments, and clinical trials. They know the ins and outs of this crappy cancer, unlike a general oncologist who probably doesn't see very many melanoma patients and might miss things or not know about things the way a melanoma oncologist would. If you want the best possible care with a doctor that can really give you the best options for your melanoma it is always recommended to have a melanoma specialist as a part of your health team. 

            I am sure if you don't live close enough to a melanoma specialist, you can find one somewhere near you and sort of "add them" to your team. Have them consult with your regular oncologist so that they are getting the best information they can get to help treat you. When I was first diagnosed I had Kaiser insurance, had a regular oncologist, immediately found out about UCSF Melanoma Center and for the month and a half before I could change health insurance I had authorization from Kaiser to see the melanoma specialists and they consulted with the Kaiser oncologist until the first of this year when I was able to go to UCSF full-time. 

            All the best,

            jennunicorn
            Participant

              I have a melanoma oncologist and a dermatologist who specializes in melanoma. They are at UCSF Melanoma Center. The only non-melanoma doctor I have right now is my obgyn. I am grateful to have a specialized center only 40 minutes from home. The reason I go to melanoma specific doctors to treat my melanoma is because it is a cancer that does not act like other cancers. It can be tricky and it can act very differently for different people. It doesn't follow general cancer rules in a sense. Plus, melanoma specialists will be very on top of the newest research, treatments, and clinical trials. They know the ins and outs of this crappy cancer, unlike a general oncologist who probably doesn't see very many melanoma patients and might miss things or not know about things the way a melanoma oncologist would. If you want the best possible care with a doctor that can really give you the best options for your melanoma it is always recommended to have a melanoma specialist as a part of your health team. 

              I am sure if you don't live close enough to a melanoma specialist, you can find one somewhere near you and sort of "add them" to your team. Have them consult with your regular oncologist so that they are getting the best information they can get to help treat you. When I was first diagnosed I had Kaiser insurance, had a regular oncologist, immediately found out about UCSF Melanoma Center and for the month and a half before I could change health insurance I had authorization from Kaiser to see the melanoma specialists and they consulted with the Kaiser oncologist until the first of this year when I was able to go to UCSF full-time. 

              All the best,

              Polymath
              Participant

                Ditto on what Jenn said above.  Ironically I too travel to UCSF although for me it requires a 2500 mile plane ride, hotel stay, and obviously thousands of dollars a year in expenses.  Why would I do that you ask?  It really does matter, that's why.  I do continue to be treated at home by my regular onc as per your question.  But the local doc, god bless him…just does not understand this disease like my specialist.  After completing so-called "standard of care" and continuing to be a non-responder, he just kind of shrugged, as he had no idea what to do next.  My specialist on the other hand operates with a much larger toolbox.  He always has a "plan B" and almost more than anything else, he told me "I want to save your life".  That attitude has provided the strength to carry on, and continue the fight.  If there was any one piece of advice I thank this board for the most, was to employ the use of a melanoma specialist.  There is zero ambiguity in this assessment.

                Gary

                  browneyes16
                  Participant

                    This site has a list and a forum to find specialists where you live:  www.melanomainternational.org

                     

                    browneyes16
                    Participant

                      This site has a list and a forum to find specialists where you live:  www.melanomainternational.org

                       

                      browneyes16
                      Participant

                        This site has a list and a forum to find specialists where you live:  www.melanomainternational.org

                         

                        jennunicorn
                        Participant

                          Wow Gary, what a ride you have to do! You're in Hawaii right? I guess SF is the closest mainland specialist to get to. I am glad you've had good experiences with your UCSF onc. It has been a wonderful place to be treated and I am grateful every single day that I live so close to it!

                           

                          Polymath
                          Participant

                            Hi Jenn,

                            Yes, the level of care, at every stage of treatment, has been wonderful.

                            Aloha, Gary

                            Polymath
                            Participant

                              Hi Jenn,

                              Yes, the level of care, at every stage of treatment, has been wonderful.

                              Aloha, Gary

                              Polymath
                              Participant

                                Hi Jenn,

                                Yes, the level of care, at every stage of treatment, has been wonderful.

                                Aloha, Gary

                                jennunicorn
                                Participant

                                  Wow Gary, what a ride you have to do! You're in Hawaii right? I guess SF is the closest mainland specialist to get to. I am glad you've had good experiences with your UCSF onc. It has been a wonderful place to be treated and I am grateful every single day that I live so close to it!

                                   

                                  jennunicorn
                                  Participant

                                    Wow Gary, what a ride you have to do! You're in Hawaii right? I guess SF is the closest mainland specialist to get to. I am glad you've had good experiences with your UCSF onc. It has been a wonderful place to be treated and I am grateful every single day that I live so close to it!

                                     

                                  Polymath
                                  Participant

                                    Ditto on what Jenn said above.  Ironically I too travel to UCSF although for me it requires a 2500 mile plane ride, hotel stay, and obviously thousands of dollars a year in expenses.  Why would I do that you ask?  It really does matter, that's why.  I do continue to be treated at home by my regular onc as per your question.  But the local doc, god bless him…just does not understand this disease like my specialist.  After completing so-called "standard of care" and continuing to be a non-responder, he just kind of shrugged, as he had no idea what to do next.  My specialist on the other hand operates with a much larger toolbox.  He always has a "plan B" and almost more than anything else, he told me "I want to save your life".  That attitude has provided the strength to carry on, and continue the fight.  If there was any one piece of advice I thank this board for the most, was to employ the use of a melanoma specialist.  There is zero ambiguity in this assessment.

                                    Gary

                                    Polymath
                                    Participant

                                      Ditto on what Jenn said above.  Ironically I too travel to UCSF although for me it requires a 2500 mile plane ride, hotel stay, and obviously thousands of dollars a year in expenses.  Why would I do that you ask?  It really does matter, that's why.  I do continue to be treated at home by my regular onc as per your question.  But the local doc, god bless him…just does not understand this disease like my specialist.  After completing so-called "standard of care" and continuing to be a non-responder, he just kind of shrugged, as he had no idea what to do next.  My specialist on the other hand operates with a much larger toolbox.  He always has a "plan B" and almost more than anything else, he told me "I want to save your life".  That attitude has provided the strength to carry on, and continue the fight.  If there was any one piece of advice I thank this board for the most, was to employ the use of a melanoma specialist.  There is zero ambiguity in this assessment.

                                      Gary

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