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Trying to find a new normal after being diagnosed

Forums General Melanoma Community Trying to find a new normal after being diagnosed

  • Post
    lisa joy
    Participant

      Hi everyone, 

      I was diagnosed with Stage 1A Melanoma – .75mm, non-ulcerated, very low mitotic rate. I located it on my stomach (left flank). I do once per year to my dermatologist for skin/mole check. I grew up on the beaches of Destin, Florida. Growing up we didn't know about sunblock or at least we didn't care about it. We never knew about skin cancer. I would also visit tanning beds here and there before school proms or events. Ugh…so stupid!

      I had a WLE and one lymph node removed as well. I always thought with a stage one diagnosis that I wouldn't have to have a lymph node removed. My doctor (melanoma specialist) is VERY proactive and did not want to risk "guessing" if it spread or not. All Margins were widely clear and lymph node was clear – no evidence of metastatic melanoma. 

      I also had a brain MRI and PET scan. Again, so scary to go through all these tests and didn't realize with a Stage One diagnosis that I needed them. But, I'm thankful now that I had them. All scans are clean and clear. Thank God! 

      This entire process took 10 days. All of it went by so fast and I'm still trying to process it all. I have two young girls and  so scared. I still am scared because of all the scary stories I've read on the internet. I should probably stop searching on the internet. I still feel like a cat with claws stuck on the ceiling and I'm afraid to come down. Now I look at every spot on my body afraid that it's Melanoma. My doctor tells me that we are in prevention mode now and I will go see him every three months to check my skin. He tells me to be thankful that we caught it at an early stage. I am thankful but I'm also afraid. I'm trying to find my new normal without being afraid. 

      My goal is to become an educator on Melanoma and teach our youth about how to protect their skin. I will also preach to my adult friends about getting their skin checked. Another goal of mine is to change the tanning bed business in our country. I know it's a big hill to climb but I'm up for the challenge. 

      Thank you for reading my post. Knowing that there are so many Melanoma friends out there helps. 

       

    Viewing 5 reply threads
    • Replies
        Janner
        Participant

          Yes, you had WAY more tests than any stage 1a person has – all that has done is add additional fear in my eyes.  But it is done.  STAY OFF THE INTERNET.  Time and not reading bad stories are the best way to move on.  I've seen thousands of early stages diagnosed over the 15+ years I've been on the site and you have to realize that they aren't still here.  And that is not in the bad connotation.  They have moved on.  Melanoma no longer rules their life.  They have no reason to check in here daily and read all the stories.  They moved on.  You need to work on moving on too.  And my final word is PICTURES.  Take pictures.  Watch for CHANGE.  Look for the UGLY DUCKLING or new and different.  Take control so you don't operate in fear mode,  you watch your moles and monitor monthly and take care of business.  YOU are your own best advocate.  You know your body best, not your derm.  So watch for change and be in control.  Cancer gives us a feeling of not being in control and the way to counter that is by careful observation (monthly) of your body using pictures – an independent eye.  Regular derm visits and sun safety.  Take control of the things you can control and let go the rest.

          As for the tanning bed industry, search in FB for Donna Helm Regen.  She lost her daughter to melanoma – her daughter was an avid tanning bed user.  She has now become a powerful advocate for shutting them down along with other melanoma advocacy.

           

          Janner
          Participant

            Yes, you had WAY more tests than any stage 1a person has – all that has done is add additional fear in my eyes.  But it is done.  STAY OFF THE INTERNET.  Time and not reading bad stories are the best way to move on.  I've seen thousands of early stages diagnosed over the 15+ years I've been on the site and you have to realize that they aren't still here.  And that is not in the bad connotation.  They have moved on.  Melanoma no longer rules their life.  They have no reason to check in here daily and read all the stories.  They moved on.  You need to work on moving on too.  And my final word is PICTURES.  Take pictures.  Watch for CHANGE.  Look for the UGLY DUCKLING or new and different.  Take control so you don't operate in fear mode,  you watch your moles and monitor monthly and take care of business.  YOU are your own best advocate.  You know your body best, not your derm.  So watch for change and be in control.  Cancer gives us a feeling of not being in control and the way to counter that is by careful observation (monthly) of your body using pictures – an independent eye.  Regular derm visits and sun safety.  Take control of the things you can control and let go the rest.

            As for the tanning bed industry, search in FB for Donna Helm Regen.  She lost her daughter to melanoma – her daughter was an avid tanning bed user.  She has now become a powerful advocate for shutting them down along with other melanoma advocacy.

             

              lisa joy
              Participant

                Thank you so much, Janner. Your words mean SO much to me. I will take all of your advice. I'll look for Donna as well and see how I can help in any way. 

                I have a feeling you help a lot of people on this site. I appreciate it. 

                –Lisa

                lisa joy
                Participant

                  Thank you so much, Janner. Your words mean SO much to me. I will take all of your advice. I'll look for Donna as well and see how I can help in any way. 

                  I have a feeling you help a lot of people on this site. I appreciate it. 

                  –Lisa

                  lisa joy
                  Participant

                    Thank you so much, Janner. Your words mean SO much to me. I will take all of your advice. I'll look for Donna as well and see how I can help in any way. 

                    I have a feeling you help a lot of people on this site. I appreciate it. 

                    –Lisa

                  Janner
                  Participant

                    Yes, you had WAY more tests than any stage 1a person has – all that has done is add additional fear in my eyes.  But it is done.  STAY OFF THE INTERNET.  Time and not reading bad stories are the best way to move on.  I've seen thousands of early stages diagnosed over the 15+ years I've been on the site and you have to realize that they aren't still here.  And that is not in the bad connotation.  They have moved on.  Melanoma no longer rules their life.  They have no reason to check in here daily and read all the stories.  They moved on.  You need to work on moving on too.  And my final word is PICTURES.  Take pictures.  Watch for CHANGE.  Look for the UGLY DUCKLING or new and different.  Take control so you don't operate in fear mode,  you watch your moles and monitor monthly and take care of business.  YOU are your own best advocate.  You know your body best, not your derm.  So watch for change and be in control.  Cancer gives us a feeling of not being in control and the way to counter that is by careful observation (monthly) of your body using pictures – an independent eye.  Regular derm visits and sun safety.  Take control of the things you can control and let go the rest.

                    As for the tanning bed industry, search in FB for Donna Helm Regen.  She lost her daughter to melanoma – her daughter was an avid tanning bed user.  She has now become a powerful advocate for shutting them down along with other melanoma advocacy.

                     

                    stars
                    Participant

                      Wow. You have been through hte mill! Eitehr you have a very, VERY proactive doctor OR very good health cover because normally with a 0.75mm melanoma – stage 1 – you would not even have a SLNB let alone a MR/CT. Anyway, you can now rest assured, and I mean REALLY rest assured, that you are in the clear and have no need to stress or worry. I know it's one thing to hear this, it's another thing to feel it – I love your desription of a cat with claws stuck  in the ceiling – that's a perfectly normal reaction (especially as you are a parent, thinking of your young kids) and the only cure for that anxiety – in my experience – is time. Over time you will calm down and put things into perspective. Time heals all wounds. It's been a year since my diagnosis and only in the last few months (I'm a worry wart) have I calmed down about it all.

                      stars
                      Participant

                        Wow. You have been through hte mill! Eitehr you have a very, VERY proactive doctor OR very good health cover because normally with a 0.75mm melanoma – stage 1 – you would not even have a SLNB let alone a MR/CT. Anyway, you can now rest assured, and I mean REALLY rest assured, that you are in the clear and have no need to stress or worry. I know it's one thing to hear this, it's another thing to feel it – I love your desription of a cat with claws stuck  in the ceiling – that's a perfectly normal reaction (especially as you are a parent, thinking of your young kids) and the only cure for that anxiety – in my experience – is time. Over time you will calm down and put things into perspective. Time heals all wounds. It's been a year since my diagnosis and only in the last few months (I'm a worry wart) have I calmed down about it all.

                        stars
                        Participant

                          Wow. You have been through hte mill! Eitehr you have a very, VERY proactive doctor OR very good health cover because normally with a 0.75mm melanoma – stage 1 – you would not even have a SLNB let alone a MR/CT. Anyway, you can now rest assured, and I mean REALLY rest assured, that you are in the clear and have no need to stress or worry. I know it's one thing to hear this, it's another thing to feel it – I love your desription of a cat with claws stuck  in the ceiling – that's a perfectly normal reaction (especially as you are a parent, thinking of your young kids) and the only cure for that anxiety – in my experience – is time. Over time you will calm down and put things into perspective. Time heals all wounds. It's been a year since my diagnosis and only in the last few months (I'm a worry wart) have I calmed down about it all.

                            lisa joy
                            Participant

                              Thank you so much for your response. I hope I can SOON calm my nerves a bit. As you said, over time it will happen. I just have to not listen to the negative/scary stuff. I had one "friend" tell me that I am at a super high risk for breast cancer now. What? My mom was diagnosed with Melanoma In Situ at 65 and she is now 80. There is no cancer in my family but I know these days it doesn't matter…everyone is at risk. 

                              I know I will be scared every time I go in for skin checks, but it's all about catching it early. 

                              I wish you much happiness. 

                               

                              Thank you!

                              Lisa

                              lisa joy
                              Participant

                                Thank you so much for your response. I hope I can SOON calm my nerves a bit. As you said, over time it will happen. I just have to not listen to the negative/scary stuff. I had one "friend" tell me that I am at a super high risk for breast cancer now. What? My mom was diagnosed with Melanoma In Situ at 65 and she is now 80. There is no cancer in my family but I know these days it doesn't matter…everyone is at risk. 

                                I know I will be scared every time I go in for skin checks, but it's all about catching it early. 

                                I wish you much happiness. 

                                 

                                Thank you!

                                Lisa

                                lisa joy
                                Participant

                                  Thank you so much for your response. I hope I can SOON calm my nerves a bit. As you said, over time it will happen. I just have to not listen to the negative/scary stuff. I had one "friend" tell me that I am at a super high risk for breast cancer now. What? My mom was diagnosed with Melanoma In Situ at 65 and she is now 80. There is no cancer in my family but I know these days it doesn't matter…everyone is at risk. 

                                  I know I will be scared every time I go in for skin checks, but it's all about catching it early. 

                                  I wish you much happiness. 

                                   

                                  Thank you!

                                  Lisa

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