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IIIC to NED!
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IIIC to NED!

› Forums › General Melanoma Community › IIIC to NED!

  • Post
    • October 20, 2016 at 1:27 am
    WithinMySkin
    Participant
      Hello fellow fighters! I just got some great news that I wanted to share. Recent PET scan came back clear! I’m suddenly NED! Holy crappola I can’t even believe it. My second (and last) infusion of Ipi/Nivo was waaaay back on May 6th which started the cascade of side effects, steroids, weening, more side effects, and finally that wonderful 3 letter word.

      Was the journey worth it?! Absolutely. I’m still dealing with some lymphedema in my leg from the CLND and some lingering endocrine/girlie issues but every day is a blessing. Every day I get to wake up and be grateful for the day ahead. Another day to enjoy the people I love. Another day to make a difference in other people’s lives. Another day to enjoy the life I’ve lived. Another day to dream about tomorrow.

      I know everyone on this board has tough days and sometimes it’s hard to see the good through all the bad. But there is always tomorrow, and we never know what tomorrow will bring! It may seem miniscule, but tomorrow is the first step in your future. Dream big!! So to help me celebrate my new status (woohoo!) and help your heart smile a little, I want everyone to list what another day means to you. What do you want tomorrow to bring?

      OK so I’ll start. Tomorrow is another day to…enjoy a glass of wine and a bubble bath. At the same time 🙂

      Lauren

    Viewing 35 reply threads
    • Replies
        • October 20, 2016 at 1:49 am
        vickiaa0529
        Participant

          I'm so happy for you and will hold you in my prayers 

          Enjoy your bubble bath and wine

          Hugs

          Vicki

          • October 20, 2016 at 1:49 am
          vickiaa0529
          Participant

            I'm so happy for you and will hold you in my prayers 

            Enjoy your bubble bath and wine

            Hugs

            Vicki

            • October 20, 2016 at 1:49 am
            vickiaa0529
            Participant

              I'm so happy for you and will hold you in my prayers 

              Enjoy your bubble bath and wine

              Hugs

              Vicki

                • October 21, 2016 at 6:36 pm
                WithinMySkin
                Participant

                  Thanks, Vicki! I know you're going though a crazy time right now, and you've been in my thoughts!

                  Lauren

                  • October 21, 2016 at 6:36 pm
                  WithinMySkin
                  Participant

                    Thanks, Vicki! I know you're going though a crazy time right now, and you've been in my thoughts!

                    Lauren

                    • October 21, 2016 at 6:36 pm
                    WithinMySkin
                    Participant

                      Thanks, Vicki! I know you're going though a crazy time right now, and you've been in my thoughts!

                      Lauren

                    • October 20, 2016 at 1:54 am
                    laulamb
                    Participant

                      Awesome!!!!  YAY!!!  WOOT WOOT!!  

                      So happy for you!!!  

                      • October 20, 2016 at 1:54 am
                      laulamb
                      Participant

                        Awesome!!!!  YAY!!!  WOOT WOOT!!  

                        So happy for you!!!  

                        • October 20, 2016 at 1:54 am
                        laulamb
                        Participant

                          Awesome!!!!  YAY!!!  WOOT WOOT!!  

                          So happy for you!!!  

                            • October 20, 2016 at 2:14 am
                            SOLE
                            Participant

                              That is awsome! Funny enough I was reading your blog today and was telling myself that I thought you were so inspirational! Saw another post of you about letting the good people of this board ask you questions concerning anasthesia and surgery. You are a real darling! Congrats on your NED! Keep the good news coming!

                              • October 21, 2016 at 6:50 pm
                              WithinMySkin
                              Participant

                                Thank you! I was surprised at how much fear and anxiety I had when first diagnosed. I find sharing information and stories a great way to help others deal with the anxiety that I know all too well. All the best to you in your battle!

                                Lauren

                                • October 21, 2016 at 6:50 pm
                                WithinMySkin
                                Participant

                                  Thank you! I was surprised at how much fear and anxiety I had when first diagnosed. I find sharing information and stories a great way to help others deal with the anxiety that I know all too well. All the best to you in your battle!

                                  Lauren

                                  • October 21, 2016 at 6:50 pm
                                  WithinMySkin
                                  Participant

                                    Thank you! I was surprised at how much fear and anxiety I had when first diagnosed. I find sharing information and stories a great way to help others deal with the anxiety that I know all too well. All the best to you in your battle!

                                    Lauren

                                    • October 20, 2016 at 2:14 am
                                    SOLE
                                    Participant

                                      That is awsome! Funny enough I was reading your blog today and was telling myself that I thought you were so inspirational! Saw another post of you about letting the good people of this board ask you questions concerning anasthesia and surgery. You are a real darling! Congrats on your NED! Keep the good news coming!

                                      • October 20, 2016 at 2:14 am
                                      SOLE
                                      Participant

                                        That is awsome! Funny enough I was reading your blog today and was telling myself that I thought you were so inspirational! Saw another post of you about letting the good people of this board ask you questions concerning anasthesia and surgery. You are a real darling! Congrats on your NED! Keep the good news coming!

                                        • October 21, 2016 at 6:40 pm
                                        WithinMySkin
                                        Participant

                                          Thanks, Laura! I totally let out a little "woop" when I got the results!!

                                          Lauren

                                          • October 21, 2016 at 6:40 pm
                                          WithinMySkin
                                          Participant

                                            Thanks, Laura! I totally let out a little "woop" when I got the results!!

                                            Lauren

                                            • October 21, 2016 at 6:40 pm
                                            WithinMySkin
                                            Participant

                                              Thanks, Laura! I totally let out a little "woop" when I got the results!!

                                              Lauren

                                            • October 20, 2016 at 2:09 am
                                            snow white
                                            Participant

                                              FANTASTIC!

                                              • October 20, 2016 at 2:09 am
                                              snow white
                                              Participant

                                                FANTASTIC!

                                                • October 20, 2016 at 2:09 am
                                                snow white
                                                Participant

                                                  FANTASTIC!

                                                    • October 21, 2016 at 6:41 pm
                                                    WithinMySkin
                                                    Participant

                                                      Thanks, Jennifer! So glad you're dad's on the up and up as well!!

                                                      Lauren

                                                      • October 21, 2016 at 6:41 pm
                                                      WithinMySkin
                                                      Participant

                                                        Thanks, Jennifer! So glad you're dad's on the up and up as well!!

                                                        Lauren

                                                        • October 21, 2016 at 6:41 pm
                                                        WithinMySkin
                                                        Participant

                                                          Thanks, Jennifer! So glad you're dad's on the up and up as well!!

                                                          Lauren

                                                        • October 20, 2016 at 3:10 am
                                                        Mamapegela
                                                        Participant

                                                          What great news Lauren!  Thank you for sharing- it gives everyone hope and I am so happy for you.  

                                                          As for me, tomorrow I will be heading to northern Michigan to stay in a cabin for the weekend, hike and enjoy the colors which are peaking right now.  It is supposed to be quite chilly so there will be a lot of sitting by the fire too.  

                                                          We are alive today!

                                                          Peggy

                                                            • October 21, 2016 at 6:53 pm
                                                            WithinMySkin
                                                            Participant

                                                              Sounds LOVELY, Peggy! I agree, we are alive today and sometimes we have to sit back and soak in all of life's wonderful colors! (Around a fire and sharing moments with our families is the cherry on top! 🙂

                                                              Enjoy every moment of your weekend!

                                                              Lauren

                                                              • October 21, 2016 at 6:53 pm
                                                              WithinMySkin
                                                              Participant

                                                                Sounds LOVELY, Peggy! I agree, we are alive today and sometimes we have to sit back and soak in all of life's wonderful colors! (Around a fire and sharing moments with our families is the cherry on top! 🙂

                                                                Enjoy every moment of your weekend!

                                                                Lauren

                                                                • October 21, 2016 at 6:53 pm
                                                                WithinMySkin
                                                                Participant

                                                                  Sounds LOVELY, Peggy! I agree, we are alive today and sometimes we have to sit back and soak in all of life's wonderful colors! (Around a fire and sharing moments with our families is the cherry on top! 🙂

                                                                  Enjoy every moment of your weekend!

                                                                  Lauren

                                                                • October 20, 2016 at 3:10 am
                                                                Mamapegela
                                                                Participant

                                                                  What great news Lauren!  Thank you for sharing- it gives everyone hope and I am so happy for you.  

                                                                  As for me, tomorrow I will be heading to northern Michigan to stay in a cabin for the weekend, hike and enjoy the colors which are peaking right now.  It is supposed to be quite chilly so there will be a lot of sitting by the fire too.  

                                                                  We are alive today!

                                                                  Peggy

                                                                  • October 20, 2016 at 3:10 am
                                                                  Mamapegela
                                                                  Participant

                                                                    What great news Lauren!  Thank you for sharing- it gives everyone hope and I am so happy for you.  

                                                                    As for me, tomorrow I will be heading to northern Michigan to stay in a cabin for the weekend, hike and enjoy the colors which are peaking right now.  It is supposed to be quite chilly so there will be a lot of sitting by the fire too.  

                                                                    We are alive today!

                                                                    Peggy

                                                                    • October 20, 2016 at 3:12 am
                                                                    Casitas1
                                                                    Participant

                                                                      CHEERS!

                                                                      • October 20, 2016 at 3:12 am
                                                                      Casitas1
                                                                      Participant

                                                                        CHEERS!

                                                                        • October 20, 2016 at 3:12 am
                                                                        Casitas1
                                                                        Participant

                                                                          CHEERS!

                                                                          • October 20, 2016 at 3:56 am
                                                                          jennunicorn
                                                                          Participant

                                                                            Woo!! SO happy for you Lauren!

                                                                            For me, tomorrow is another day to snuggle my pup!

                                                                            Hugs & cheers,

                                                                              • October 21, 2016 at 6:57 pm
                                                                              WithinMySkin
                                                                              Participant

                                                                                Thanks, Jenn! Puppy snuggles are the BEST!! Keep us updated on your treatment and I can't wait to see your NED post soon!!

                                                                                Lauren

                                                                                • October 21, 2016 at 6:57 pm
                                                                                WithinMySkin
                                                                                Participant

                                                                                  Thanks, Jenn! Puppy snuggles are the BEST!! Keep us updated on your treatment and I can't wait to see your NED post soon!!

                                                                                  Lauren

                                                                                  • October 21, 2016 at 6:57 pm
                                                                                  WithinMySkin
                                                                                  Participant

                                                                                    Thanks, Jenn! Puppy snuggles are the BEST!! Keep us updated on your treatment and I can't wait to see your NED post soon!!

                                                                                    Lauren

                                                                                  • October 20, 2016 at 3:56 am
                                                                                  jennunicorn
                                                                                  Participant

                                                                                    Woo!! SO happy for you Lauren!

                                                                                    For me, tomorrow is another day to snuggle my pup!

                                                                                    Hugs & cheers,

                                                                                    • October 20, 2016 at 3:56 am
                                                                                    jennunicorn
                                                                                    Participant

                                                                                      Woo!! SO happy for you Lauren!

                                                                                      For me, tomorrow is another day to snuggle my pup!

                                                                                      Hugs & cheers,

                                                                                      • October 20, 2016 at 5:29 am
                                                                                      Bubbles
                                                                                      Participant

                                                                                        Wonderful news, Lauren! Enjoy! As for me, another day with family and friends will be beautiful. C

                                                                                        • October 20, 2016 at 5:29 am
                                                                                        Bubbles
                                                                                        Participant

                                                                                          Wonderful news, Lauren! Enjoy! As for me, another day with family and friends will be beautiful. C

                                                                                            • October 21, 2016 at 6:59 pm
                                                                                            WithinMySkin
                                                                                            Participant

                                                                                              Thanks, Celeste! Family and friends make the world go 'round!

                                                                                              Lauren

                                                                                              • October 21, 2016 at 6:59 pm
                                                                                              WithinMySkin
                                                                                              Participant

                                                                                                Thanks, Celeste! Family and friends make the world go 'round!

                                                                                                Lauren

                                                                                                • October 21, 2016 at 6:59 pm
                                                                                                WithinMySkin
                                                                                                Participant

                                                                                                  Thanks, Celeste! Family and friends make the world go 'round!

                                                                                                  Lauren

                                                                                                • October 20, 2016 at 5:29 am
                                                                                                Bubbles
                                                                                                Participant

                                                                                                  Wonderful news, Lauren! Enjoy! As for me, another day with family and friends will be beautiful. C

                                                                                                  • October 20, 2016 at 2:02 pm
                                                                                                  jenny22
                                                                                                  Participant

                                                                                                    Lauren- That is absolutely wonderful news…..I am so happy for you, and hope you are done with MEL for good.

                                                                                                    Enjoy everyday…..

                                                                                                    Again, wishing you all the best.

                                                                                                    Jenny

                                                                                                    • October 20, 2016 at 2:02 pm
                                                                                                    jenny22
                                                                                                    Participant

                                                                                                      Lauren- That is absolutely wonderful news…..I am so happy for you, and hope you are done with MEL for good.

                                                                                                      Enjoy everyday…..

                                                                                                      Again, wishing you all the best.

                                                                                                      Jenny

                                                                                                        • October 21, 2016 at 7:10 pm
                                                                                                        WithinMySkin
                                                                                                        Participant

                                                                                                          Thanks, Jenny! You're always so supportive on this board, even with your own long battle – so thank you!!!

                                                                                                          Lauren

                                                                                                          • October 21, 2016 at 7:10 pm
                                                                                                          WithinMySkin
                                                                                                          Participant

                                                                                                            Thanks, Jenny! You're always so supportive on this board, even with your own long battle – so thank you!!!

                                                                                                            Lauren

                                                                                                            • October 21, 2016 at 7:10 pm
                                                                                                            WithinMySkin
                                                                                                            Participant

                                                                                                              Thanks, Jenny! You're always so supportive on this board, even with your own long battle – so thank you!!!

                                                                                                              Lauren

                                                                                                            • October 20, 2016 at 2:02 pm
                                                                                                            jenny22
                                                                                                            Participant

                                                                                                              Lauren- That is absolutely wonderful news…..I am so happy for you, and hope you are done with MEL for good.

                                                                                                              Enjoy everyday…..

                                                                                                              Again, wishing you all the best.

                                                                                                              Jenny

                                                                                                              • October 20, 2016 at 4:42 pm
                                                                                                              youngann
                                                                                                              Participant

                                                                                                                Fantasic news!!

                                                                                                                • October 20, 2016 at 4:42 pm
                                                                                                                youngann
                                                                                                                Participant

                                                                                                                  Fantasic news!!

                                                                                                                    • October 21, 2016 at 7:18 pm
                                                                                                                    WithinMySkin
                                                                                                                    Participant

                                                                                                                      Thanks, Ann! Hope its smooth sailing for you through the rest of your Ipi treatment!

                                                                                                                      Lauren

                                                                                                                      • October 21, 2016 at 7:18 pm
                                                                                                                      WithinMySkin
                                                                                                                      Participant

                                                                                                                        Thanks, Ann! Hope its smooth sailing for you through the rest of your Ipi treatment!

                                                                                                                        Lauren

                                                                                                                        • October 21, 2016 at 7:18 pm
                                                                                                                        WithinMySkin
                                                                                                                        Participant

                                                                                                                          Thanks, Ann! Hope its smooth sailing for you through the rest of your Ipi treatment!

                                                                                                                          Lauren

                                                                                                                        • October 20, 2016 at 4:42 pm
                                                                                                                        youngann
                                                                                                                        Participant

                                                                                                                          Fantasic news!!

                                                                                                                          • October 20, 2016 at 9:19 pm
                                                                                                                          Polymath
                                                                                                                          Participant

                                                                                                                            Hi Lauren,

                                                                                                                            What fabulous news!  You go girl.  You are proof that a positive attitude can translate to a healthy body.

                                                                                                                            For me, every day is one day closer to the goal I set when diagnosed.  Just to see my last child graduate high school.  If I make it, I'll even see her enter college two years from now.  Yep, one day at a time.  Again, my very best to you.

                                                                                                                            Gary

                                                                                                                            • October 20, 2016 at 9:19 pm
                                                                                                                            Polymath
                                                                                                                            Participant

                                                                                                                              Hi Lauren,

                                                                                                                              What fabulous news!  You go girl.  You are proof that a positive attitude can translate to a healthy body.

                                                                                                                              For me, every day is one day closer to the goal I set when diagnosed.  Just to see my last child graduate high school.  If I make it, I'll even see her enter college two years from now.  Yep, one day at a time.  Again, my very best to you.

                                                                                                                              Gary

                                                                                                                                • October 21, 2016 at 7:24 pm
                                                                                                                                WithinMySkin
                                                                                                                                Participant

                                                                                                                                  Thanks so much, Gary! One day at a time, one step at a time, and we can reach our goals! Some days are real stinkers, but we have to focus on the good days and the good times ahead – like seeing extra special graduations! 🙂

                                                                                                                                  Lauren

                                                                                                                                  • October 21, 2016 at 7:24 pm
                                                                                                                                  WithinMySkin
                                                                                                                                  Participant

                                                                                                                                    Thanks so much, Gary! One day at a time, one step at a time, and we can reach our goals! Some days are real stinkers, but we have to focus on the good days and the good times ahead – like seeing extra special graduations! 🙂

                                                                                                                                    Lauren

                                                                                                                                    • October 21, 2016 at 7:24 pm
                                                                                                                                    WithinMySkin
                                                                                                                                    Participant

                                                                                                                                      Thanks so much, Gary! One day at a time, one step at a time, and we can reach our goals! Some days are real stinkers, but we have to focus on the good days and the good times ahead – like seeing extra special graduations! 🙂

                                                                                                                                      Lauren

                                                                                                                                    • October 20, 2016 at 9:19 pm
                                                                                                                                    Polymath
                                                                                                                                    Participant

                                                                                                                                      Hi Lauren,

                                                                                                                                      What fabulous news!  You go girl.  You are proof that a positive attitude can translate to a healthy body.

                                                                                                                                      For me, every day is one day closer to the goal I set when diagnosed.  Just to see my last child graduate high school.  If I make it, I'll even see her enter college two years from now.  Yep, one day at a time.  Again, my very best to you.

                                                                                                                                      Gary

                                                                                                                                      • October 21, 2016 at 2:15 pm
                                                                                                                                      Momofjake
                                                                                                                                      Participant

                                                                                                                                        Awesome!!

                                                                                                                                        they want Jake to try ipi after Mek/Taf. He doesn't want to….but look at you!! Maybe he will and have your great outcome!! 

                                                                                                                                        Go party!! 

                                                                                                                                        Kerri

                                                                                                                                        • October 21, 2016 at 2:15 pm
                                                                                                                                        Momofjake
                                                                                                                                        Participant

                                                                                                                                          Awesome!!

                                                                                                                                          they want Jake to try ipi after Mek/Taf. He doesn't want to….but look at you!! Maybe he will and have your great outcome!! 

                                                                                                                                          Go party!! 

                                                                                                                                          Kerri

                                                                                                                                          • October 21, 2016 at 2:15 pm
                                                                                                                                          Momofjake
                                                                                                                                          Participant

                                                                                                                                            Awesome!!

                                                                                                                                            they want Jake to try ipi after Mek/Taf. He doesn't want to….but look at you!! Maybe he will and have your great outcome!! 

                                                                                                                                            Go party!! 

                                                                                                                                            Kerri

                                                                                                                                              • October 21, 2016 at 7:41 pm
                                                                                                                                              WithinMySkin
                                                                                                                                              Participant

                                                                                                                                                I think about you and Jake all the time, Kerri! I hope that Jake finds what will work best for him and beats this thing down for good!

                                                                                                                                                Lauren

                                                                                                                                                • October 22, 2016 at 2:26 pm
                                                                                                                                                dmturner
                                                                                                                                                Participant

                                                                                                                                                  That is awesome!!  You are so supportive to us!  So glad you got some GREAT news!! heart

                                                                                                                                                  Donna

                                                                                                                                                  • October 22, 2016 at 2:26 pm
                                                                                                                                                  dmturner
                                                                                                                                                  Participant

                                                                                                                                                    That is awesome!!  You are so supportive to us!  So glad you got some GREAT news!! heart

                                                                                                                                                    Donna

                                                                                                                                                    • October 22, 2016 at 2:26 pm
                                                                                                                                                    dmturner
                                                                                                                                                    Participant

                                                                                                                                                      That is awesome!!  You are so supportive to us!  So glad you got some GREAT news!! heart

                                                                                                                                                      Donna

                                                                                                                                                      • October 22, 2016 at 2:26 pm
                                                                                                                                                      dmturner
                                                                                                                                                      Participant

                                                                                                                                                        That is awesome!!  You are so supportive to us!  So glad you got some GREAT news!! heart

                                                                                                                                                        Donna

                                                                                                                                                        • October 22, 2016 at 2:26 pm
                                                                                                                                                        dmturner
                                                                                                                                                        Participant

                                                                                                                                                          That is awesome!!  You are so supportive to us!  So glad you got some GREAT news!! heart

                                                                                                                                                          Donna

                                                                                                                                                          • October 24, 2016 at 1:27 pm
                                                                                                                                                          WithinMySkin
                                                                                                                                                          Participant
                                                                                                                                                            Thanks, Donna! Hoping all goes well with your second excision so you’ll have some good news soon!!
                                                                                                                                                            Lauren
                                                                                                                                                            • October 24, 2016 at 1:27 pm
                                                                                                                                                            WithinMySkin
                                                                                                                                                            Participant
                                                                                                                                                              Thanks, Donna! Hoping all goes well with your second excision so you’ll have some good news soon!!
                                                                                                                                                              Lauren
                                                                                                                                                              • October 24, 2016 at 1:27 pm
                                                                                                                                                              WithinMySkin
                                                                                                                                                              Participant
                                                                                                                                                                Thanks, Donna! Hoping all goes well with your second excision so you’ll have some good news soon!!
                                                                                                                                                                Lauren
                                                                                                                                                                • October 22, 2016 at 2:26 pm
                                                                                                                                                                dmturner
                                                                                                                                                                Participant

                                                                                                                                                                  That is awesome!!  You are so supportive to us!  So glad you got some GREAT news!! heart

                                                                                                                                                                  Donna

                                                                                                                                                                  • October 21, 2016 at 7:41 pm
                                                                                                                                                                  WithinMySkin
                                                                                                                                                                  Participant

                                                                                                                                                                    I think about you and Jake all the time, Kerri! I hope that Jake finds what will work best for him and beats this thing down for good!

                                                                                                                                                                    Lauren

                                                                                                                                                                    • October 21, 2016 at 7:41 pm
                                                                                                                                                                    WithinMySkin
                                                                                                                                                                    Participant

                                                                                                                                                                      I think about you and Jake all the time, Kerri! I hope that Jake finds what will work best for him and beats this thing down for good!

                                                                                                                                                                      Lauren

                                                                                                                                                                    • October 23, 2016 at 11:57 pm
                                                                                                                                                                    Mark_DC
                                                                                                                                                                    Participant

                                                                                                                                                                      Great news, am happy for you (very)

                                                                                                                                                                      thanks for your website and encouragement and advice to all of us here

                                                                                                                                                                      • October 23, 2016 at 11:57 pm
                                                                                                                                                                      Mark_DC
                                                                                                                                                                      Participant

                                                                                                                                                                        Great news, am happy for you (very)

                                                                                                                                                                        thanks for your website and encouragement and advice to all of us here

                                                                                                                                                                        • October 23, 2016 at 11:57 pm
                                                                                                                                                                        Mark_DC
                                                                                                                                                                        Participant

                                                                                                                                                                          Great news, am happy for you (very)

                                                                                                                                                                          thanks for your website and encouragement and advice to all of us here

                                                                                                                                                                            • October 24, 2016 at 1:30 pm
                                                                                                                                                                            WithinMySkin
                                                                                                                                                                            Participant
                                                                                                                                                                              Thanks, Mark! I’ve been thinking about you and hoping your new treatment finally kicks your Mel to the curb!!
                                                                                                                                                                              Lauren
                                                                                                                                                                              • October 24, 2016 at 1:30 pm
                                                                                                                                                                              WithinMySkin
                                                                                                                                                                              Participant
                                                                                                                                                                                Thanks, Mark! I’ve been thinking about you and hoping your new treatment finally kicks your Mel to the curb!!
                                                                                                                                                                                Lauren
                                                                                                                                                                                • October 24, 2016 at 1:30 pm
                                                                                                                                                                                WithinMySkin
                                                                                                                                                                                Participant
                                                                                                                                                                                  Thanks, Mark! I’ve been thinking about you and hoping your new treatment finally kicks your Mel to the curb!!
                                                                                                                                                                                  Lauren
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