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Need some opinions from others please read my story

Forums General Melanoma Community Need some opinions from others please read my story

  • Post
    gregor913
    Participant

      In Nov 2015 I was diagnosed 3 b melanoma on back. SLNB and CLND under armit done. Things were going fine until I noticed a small freckle on my scar area. Hard to tell if its on it or near it the way it healed. Went to derm and had it removed. The pathology came back as melanoma in situ. My dermatologist told me she never seen melanoma that small and sends all the samples out to a dermapathologist.

      My oncologist said he wanted to get a second opinion at the cleveland clinic on pathology just to make sure. So Ive been waiting 2 weeks for this second opinion. I finally called today and the receptionist told me that cleveland doesnt want to give a final diagnoses until they see the whole block.

      I asked politely whats the whole block and she says the whole specimen. I guess they only sent out the slides. My stomach dropped. This all happened thursday (today). Im wondering why they cant give out a diagnoses on the initial slides they received?

      I just seen my surgeon on tuesday and he looked at initial path. He said we can do up to 1cm but we usually do .5cm for in situ. I told him I would be more comfortable with the 1cm and he said that was ok. Now my question is do I have to wait for the second pathology or can I go along with this surgery. In my path the dermis was clear but the peripherals were still positive. I just want it out. My surgery is scheduled for monday.

      I mean can this pathology from cleveland change my course of surgery? ( the number one question i liked answered or get opinions from others)  I had a WLE in that area would they do another SLNB on me. Would anything else need to be done beside excision?  I have no swollen nodes just this initial in situ path. The sample taken was .4 mm deep and .2 x.2 wide.

      This is just so crazy I have a 2 year old at home and another on the way.

      Thanx Greg

       

       

    Viewing 2 reply threads
    • Replies
        youngann
        Participant

          Greg, for an In Situ, they usually just do a wide excision.

          Good luck,

          Ann

            gregor913
            Participant
              Thanx for the reply. Im keeping my surgery scheduled for monday. I only had
              1 spot that was stage 0 in situ. There sending it out for a second opinion to see if its in transit disease. If it turn out to be intransit is there any follow up for 1 intransit. Medicine? Greg
              youngann
              Participant

                If it's determined to be intransit, they may want you to have some scans done. PET/CT and a brain MRI. Just to be sure that it hasn't travelled elsewhere. Good luck on Monday.

                Ann

                gregor913
                Participant
                  Yes I had a follow up pet/ct and it was clear after the initial biopsy. The waiting on stuff is the worst part. I keep trying to tell myself that nothing should really change from the first path and I could just have my surgery and enjoy my Christmas time with my family for now. Greg
                  gregor913
                  Participant
                    Yes I had a follow up pet/ct and it was clear after the initial biopsy. The waiting on stuff is the worst part. I keep trying to tell myself that nothing should really change from the first path and I could just have my surgery and enjoy my Christmas time with my family for now. Greg
                    gregor913
                    Participant
                      Yes I had a follow up pet/ct and it was clear after the initial biopsy. The waiting on stuff is the worst part. I keep trying to tell myself that nothing should really change from the first path and I could just have my surgery and enjoy my Christmas time with my family for now. Greg
                      youngann
                      Participant

                        If it's determined to be intransit, they may want you to have some scans done. PET/CT and a brain MRI. Just to be sure that it hasn't travelled elsewhere. Good luck on Monday.

                        Ann

                        youngann
                        Participant

                          If it's determined to be intransit, they may want you to have some scans done. PET/CT and a brain MRI. Just to be sure that it hasn't travelled elsewhere. Good luck on Monday.

                          Ann

                          gregor913
                          Participant
                            Thanx for the reply. Im keeping my surgery scheduled for monday. I only had
                            1 spot that was stage 0 in situ. There sending it out for a second opinion to see if its in transit disease. If it turn out to be intransit is there any follow up for 1 intransit. Medicine? Greg
                            gregor913
                            Participant
                              Thanx for the reply. Im keeping my surgery scheduled for monday. I only had
                              1 spot that was stage 0 in situ. There sending it out for a second opinion to see if its in transit disease. If it turn out to be intransit is there any follow up for 1 intransit. Medicine? Greg
                            youngann
                            Participant

                              Greg, for an In Situ, they usually just do a wide excision.

                              Good luck,

                              Ann

                              youngann
                              Participant

                                Greg, for an In Situ, they usually just do a wide excision.

                                Good luck,

                                Ann

                            Viewing 2 reply threads
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