› Forums › General Melanoma Community › Need some opinions from others please read my story
- This topic has 12 replies, 2 voices, and was last updated 8 years, 6 months ago by
gregor913.
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- December 8, 2016 at 9:07 pm
In Nov 2015 I was diagnosed 3 b melanoma on back. SLNB and CLND under armit done. Things were going fine until I noticed a small freckle on my scar area. Hard to tell if its on it or near it the way it healed. Went to derm and had it removed. The pathology came back as melanoma in situ. My dermatologist told me she never seen melanoma that small and sends all the samples out to a dermapathologist.
My oncologist said he wanted to get a second opinion at the cleveland clinic on pathology just to make sure. So Ive been waiting 2 weeks for this second opinion. I finally called today and the receptionist told me that cleveland doesnt want to give a final diagnoses until they see the whole block.
I asked politely whats the whole block and she says the whole specimen. I guess they only sent out the slides. My stomach dropped. This all happened thursday (today). Im wondering why they cant give out a diagnoses on the initial slides they received?
I just seen my surgeon on tuesday and he looked at initial path. He said we can do up to 1cm but we usually do .5cm for in situ. I told him I would be more comfortable with the 1cm and he said that was ok. Now my question is do I have to wait for the second pathology or can I go along with this surgery. In my path the dermis was clear but the peripherals were still positive. I just want it out. My surgery is scheduled for monday.
I mean can this pathology from cleveland change my course of surgery? ( the number one question i liked answered or get opinions from others) I had a WLE in that area would they do another SLNB on me. Would anything else need to be done beside excision? I have no swollen nodes just this initial in situ path. The sample taken was .4 mm deep and .2 x.2 wide.
This is just so crazy I have a 2 year old at home and another on the way.
Thanx Greg
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- December 9, 2016 at 12:44 pm
Greg, for an In Situ, they usually just do a wide excision.
Good luck,
Ann
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- December 9, 2016 at 4:39 pm
Thanx for the reply. Im keeping my surgery scheduled for monday. I only had
1 spot that was stage 0 in situ. There sending it out for a second opinion to see if its in transit disease. If it turn out to be intransit is there any follow up for 1 intransit. Medicine? Greg -
- December 10, 2016 at 12:05 am
Yes I had a follow up pet/ct and it was clear after the initial biopsy. The waiting on stuff is the worst part. I keep trying to tell myself that nothing should really change from the first path and I could just have my surgery and enjoy my Christmas time with my family for now. Greg -
- December 10, 2016 at 12:05 am
Yes I had a follow up pet/ct and it was clear after the initial biopsy. The waiting on stuff is the worst part. I keep trying to tell myself that nothing should really change from the first path and I could just have my surgery and enjoy my Christmas time with my family for now. Greg -
- December 10, 2016 at 12:05 am
Yes I had a follow up pet/ct and it was clear after the initial biopsy. The waiting on stuff is the worst part. I keep trying to tell myself that nothing should really change from the first path and I could just have my surgery and enjoy my Christmas time with my family for now. Greg -
- December 9, 2016 at 4:39 pm
Thanx for the reply. Im keeping my surgery scheduled for monday. I only had
1 spot that was stage 0 in situ. There sending it out for a second opinion to see if its in transit disease. If it turn out to be intransit is there any follow up for 1 intransit. Medicine? Greg -
- December 9, 2016 at 4:39 pm
Thanx for the reply. Im keeping my surgery scheduled for monday. I only had
1 spot that was stage 0 in situ. There sending it out for a second opinion to see if its in transit disease. If it turn out to be intransit is there any follow up for 1 intransit. Medicine? Greg
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