keytruda and purpura
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keytruda and purpura

› Forums › General Melanoma Community › keytruda and purpura

  • Post
    • January 8, 2017 at 3:36 am
    bayoulily
    Participant

      my husband has stage 4 maligant metatistic melanoma and dorment CLL ….

      2mm in lung…. MDA started him on keytruda…. 3 weeks later, he had mild itching, a rash then purpura (bleeding under skin due to lowered platlets)  … we were out of town and took him to the ER in Santa Fe… we had a wonderful oncologist who gave him IVIG which drastically improved his platlets and we returned home days later…. he warned us not to let the MDA oncologist take my husband off of keytruda as it will be his saving grace…. 

      went to MDA for a follow up and the oncologist decided to remove my husband from keytruda without an indepth discussion and said the only other options were chemo and radiation….

      we were devasted and are gonig to another large cancer center for a 2nd opinion…. 

      has anyone else had platlet issues while on keytruda? and if so, did you oncologist pull the treatment? 

      god bless all of you….cancer sucks but we will beat it!

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    • Replies
        • January 8, 2017 at 4:33 am
        snow white
        Participant

          Wow!  They did this without ever discussing the pros and cons?  That seems strange.  Dad is on Opdivo and has low platelets, but the only thing that has been discussed is possibly postponing treatment until they come back up again.  Sounds like a second opinion is in order.

          Jen

          • January 8, 2017 at 4:33 am
          snow white
          Participant

            Wow!  They did this without ever discussing the pros and cons?  That seems strange.  Dad is on Opdivo and has low platelets, but the only thing that has been discussed is possibly postponing treatment until they come back up again.  Sounds like a second opinion is in order.

            Jen

            • January 8, 2017 at 4:33 am
            snow white
            Participant

              Wow!  They did this without ever discussing the pros and cons?  That seems strange.  Dad is on Opdivo and has low platelets, but the only thing that has been discussed is possibly postponing treatment until they come back up again.  Sounds like a second opinion is in order.

              Jen

              • January 8, 2017 at 12:33 pm
              maperny
              Participant

                This sounds very odd indeed.  So sorry for your frustration.  Which oncologist was this at MDA?  Very concerning.  He/she certainly should have taken the time to discuss this in depth and talk about clinical trials.  It is very rare for chemo to be offered except in very advanced cases to slow things down a bit when all else has failed.  This is all with only one 2mm met on lung?  BRAF positive or negative?

                • January 8, 2017 at 12:33 pm
                maperny
                Participant

                  This sounds very odd indeed.  So sorry for your frustration.  Which oncologist was this at MDA?  Very concerning.  He/she certainly should have taken the time to discuss this in depth and talk about clinical trials.  It is very rare for chemo to be offered except in very advanced cases to slow things down a bit when all else has failed.  This is all with only one 2mm met on lung?  BRAF positive or negative?

                  • January 8, 2017 at 12:33 pm
                  maperny
                  Participant

                    This sounds very odd indeed.  So sorry for your frustration.  Which oncologist was this at MDA?  Very concerning.  He/she certainly should have taken the time to discuss this in depth and talk about clinical trials.  It is very rare for chemo to be offered except in very advanced cases to slow things down a bit when all else has failed.  This is all with only one 2mm met on lung?  BRAF positive or negative?

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