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9 months NED

Forums General Melanoma Community 9 months NED

  • Post
    WithinMySkin
    Participant

      Hi fellow warriors!

      This Easter, while being with friends and family, I began thinking of this family. I hope all the classic voices are hanging tough, and a “howdy-do” to the new names here. I pop in every once in a while to read, but I haven’t been posting. But today, I really wanted to reach out to everyone.

      Last week was my 2 year anniversary of my diagnosis – stage 3B. Many of you will remember my battle as I progressed to 3C with in-transits and a CLND of my left groin. 8/30 nodes positive, one “grossly positive with extracapsular extension”. I changed my diet, my lifestyle, moved cross country for treatment, and was still progressing. I tried Interferon and still had another in-transit. And then I went on the Ipi/nivo combo, which created severe side effects and I had to stop after only 2 infusions. I haven’t had any other treatment since.

      BUT IT WORKED! My last scans few scans have come back squeaky clean and I’ve been bumped to 6 month checkups. I’ve never been so happy to be ignored!

      I know everyone on here is battling – for themselves or for a loved one. And I urge you to keep up that battle. Easter is a symbol of spring, of life, of rejuvenation. Of rising up and rising above. Believe in yourself and rise above this awful disease.

      Every side effect I had and every lifestyle change I made was worth every moment I have outside of the hospital now. I cannot encourage you all enough to do what is best for YOU. Find a doctor you trust. Forge your own path. This is your journey, no one else has to walk in your shoes. Heck, I quit my job and moved cross country to see a doctor I trust. My parents were furious. But looking back, it saved my life.

      This is an amazing family. You guys saw me through some tough times. And I want to thank you from the bottom of melanoma-free heart. And to all of those people still battling – KEEP FIGHTING!!! We’re all here for you. So lots of internet hugs to everyone today!! If you ever want a pen pal, or to vent about melanoma, or just want to check in, you can reach me on my blog — http://www.withinmyskin.com

      Lauren

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    • Replies
        jennunicorn
        Participant

          So happy to hear from you Lauren and congrats on continued NED status!! I'm planning on hearing those letters myself after my next scan in June.. Ipi/Nivo is a butt kicker! Happy Easter!

            DocPain
            Participant

              Good news. I'm struggling with the side effects of treatment and it's encouraging to know there is light at the end of the tunnel. Thank you!

              WithinMySkin
              Participant

                There's ALWAYS light at the end of the tunnel. Always. So keep your head up and keep on going!!

                WithinMySkin
                Participant

                  Thanks, Jenn! Glad to see you're doing well after your stint with the combo – it really IS a butt-kicker!

                Cindyco
                Participant

                  Thank you for sharing! Love hearing good news.

                    WithinMySkin
                    Participant

                      Seeing good news was always uplifting to me when I was going through treatment, too!

                    AliCat61
                    Participant

                      Lauren thank you so much for taking the time to share that wonderful news! It is so encouraging to all of us who are in the midst of the battle. We appreciate it!

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