› Forums › General Melanoma Community › Annoying Donation Banner pop up
- This topic has 14 replies, 8 voices, and was last updated 7 years, 3 months ago by
SABKLYN.
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- January 23, 2018 at 12:56 pm
I agree with SABKLYN. This is the second time i've seen this complaint. I sure would not waste a second of time to post a complaint. This board is a great resource! I'm sure there are those that are happy to give some support ($$$$).
Battling stage 4 has given me the perspective not to get excited over these tiny things.
JUST LET IT ROLL OFF YOUR BACK!
Thank you to all that have gotten past a little pop-up and contributed valuable information!!!
LET IT JUST ROLL OFF YOUR BACK!
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- January 23, 2018 at 6:38 pm
I wish we could get rid of the"Anon button" and keep the "donate now" pop up!!!
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- January 24, 2018 at 2:42 pm
So everyone would get rid of their fake names, like Melanoma Joe, Bubbles? It is all about getting money!!! Not helping patients. So many folks use fake names what's the dif? Check out where these groups get money and where is the transparency. Check to see what salaries and how much goes to admin.
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- January 24, 2018 at 2:52 pm
Ed Williams to get rid of anon, then we would get rid of the posts here: for example Nemesis? Oldwife? Safklyn? AdrianC? you are the only one listing a real name. What is the differrence? Between those names and Anon? Do you really think people put out their real names on the internet?
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- January 24, 2018 at 3:17 pm
Hi Anon,
Since you keep calling out my "fake" name, when I am not connected to you or a particular post…I thought I'd give you a little intel!!!!!!!!!!!!!!!!!! My name is Helen Celeste Muller Morris. Everyone on this site can find that out along with my email and geographical address. I am 53 years old. I live in TN. I have two amazing adult children, a fabulous husband and a dog named Karma! AND….wait for it….BUBBLES is also my name!!!!!!!!!!!!!!! My husband has called me that for YEARS….due to my sweet, charming and ebullient personality!!! HA! Furthermore, when your nickname is attached to your REAL name (as I sign all my posts with "celeste" and have my blog link attached so that that there is NO confusion whatsoever in who I am or what I do!!!!!!!!!!!!!!!!!!) it is not the same as being "anon", now is it????? And if you are referring to me as a group? You are WRONG. I am no group. I am me. I have worked tirelessly to spread accurate, evidence based (with all sources sited), information and hope to melanoma patients and their families across the globe. I have no ads on my blog. I have had offers, and at this point could be making a fair amount of change from them, but I have declined. I have been invited to give paid interviews to a wide variety of companies….from makers of intralesionals, immunotherapy, as well as targeted therapy. I will not make money off the backs of my melanoma peeps. Hence forth, leave my name….ALL of them…out of your bitter weirdness. I do not have time or tolerance for your crap and accusations. If you have a problem with sites who take money and are sponsored by BMS, Amgen, Novartis, Merck, Genentech, etc…. http://melanomainternational.org/who-we-are/patrons-sponsors/#.Wmie0ainF3g ….I suggest you take it up with them.
Additionally, I write lots of things. I make lots of things. I do not use my blog or this site to sell them. Again, if you don't like commercialized web sites that claim to be helping melanoma patients (here's an example: https://melanomainternational.ecwid.com/) take it up with THEM. Quit yelling about folks on this forum. We are not paid. We all actually have melanoma or take care of a loved one who does.
By the way….before I could even get this posted…..another "anon" …now whether this is the same "anon" or a different one…who can tell???? Which is also part of the problem when some of the super kind, intelligent, and helpful folks on this board try to share real information. How do you know which "anon" you are responding to and how to reach out to them with information you find??? Whereas, even if the name used is clearly a "fake" one….at least if the person consistently calls themselves Humpty Dumpty you at least can attach their self described circumstance to them and find them again if there is a need. However, I digress. This response is primarily for the first "anon" after Ed's post.
But, to the later….yes…there are those who put their "REAL" name and information out there on the internet!!!! ME!!!! I ain't got nothing to hide. Helen Celeste Muller Morris, ADN, BSN, MSN, PNP-C, Stage IV melanoma patient, DOB 7/30/1964
Where is the transparency?????? Are you kidding???? Anything else you'd like to know??????????????????????????????????????
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- January 24, 2018 at 9:18 pm
There was a long and hard debate about the anon option way back when. It serves a specific purpose. When people know family members use a site but they want to ask a question in a more anonymous fashion – so as not to either clue in or worry a family member. Or when someone wants to ask a more sensitive question (either if they are known or unknown here), it gives a measure of anonymity when you can't tie a question to a known persona (whether the name is real or not). It is an attempt to be sensitive to all users who might not post a sensitive question otherwise. Anon's are still attached to a real account behind the scenes. Their info is just not displayed. I have to admit, I have used the anon button from time to time. I post so much and sometimes prefer not to have my name with every post. I'm not looking for feedback so anon is more harmless there. (We can agree to disagree :). I've also had emails from people who were afraid to ask their question here out in the open. So there is good intent even though it can be frustrating for the rest of us when there are just too many anons and you can't follow someone's story. For the most part, I'd encourage everyone to post without the anon button. It makes it easier for the rest to follow a coherent story of a single person and our replies can reflect that. Just my 2 cents. Jan (Janner)
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- January 24, 2018 at 10:25 pm
Like I've said before….if you want the banner to go away, donate money! If that doesn't work you have my most insincere apology Anon. Seriously, lighten up. I have been on this site for almost a year and have never been directly solicited for anything and yet this site provides an invaluable resource for all of us. This could be shocking but most non-profit sites solicit donations because its how they survive.
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- January 25, 2018 at 7:23 pm
So Bubbles you want transparency, you see it at MIF by the links you post. Here is where MRF gets their suppport:https://www.melanoma.org/sites/default/files/Corporate%20Sponsors%20and%20Partners%20web%20page%20%283%29.pdf
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- January 25, 2018 at 11:14 pm
Charity Navigator will give you all the info you need: https://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=10208
MRF has been nothing but the top resource for support and knowledge for me and many others. We all want melanoma to be a thing of the past… and in this world the only way to get there is through donations and other ways of funding… because this world doesn't spin without money unfortunately.
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- January 26, 2018 at 12:14 am
Sweetie. YOU are the person who wanted transparency and called my name (actually called out my "fake" name) on a post and topic I have NEVER made a comment on. I made clear the lack of funds/sponsorship I have vs other forums. I did not think I needed to give you "transparency" for the site you are ON as it is listed very clearly….very transparently….on the button that says "about us/corporate sponsors and partners". The lack of transparency lies in your title of anon. But, that's okay. I don't know who peed in your cornflakes, but I hope you feel better soon!!!
Bubbles!
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