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Looking at New Trial VS Standard Treatment
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Looking at New Trial VS Standard Treatment

› Forums › General Melanoma Community › Looking at New Trial VS Standard Treatment

  • Post
    • May 3, 2018 at 2:07 pm
    Nick C
    Participant

      Since my last clinical trial didn't work, its time to look at my options:

      Ipilimumab + EZH2 Inhibitor on a clinical trial

      Ipilimumab alone (standard care)

      Single Agent ERK Inhibitor on clinical trial

      I have avoided Ipi since it was first offered to me three years ago. Went on Keytruda as a standard treatment January 2017. Had early success, but then new areas showed up. Went on a Keytruda + trial drug in December, but still showed progression after four months.

      That brings me back to Ipi. In consultation with my Onc, he felt the if I'm going to be on Ipi why not add a little something. The trial is four Ipi treatments every three weeks and taking three trial pills daily. My hesitation for Ipi are side effects. I have had no side effects with Keytruda.  There won't be an opening in the trial until later this month and I have to wait 28 days before starting a new trial. So last Saturday I retired. That also gives me time to go on vacation (Is it still a vacation when you are retired?) To bad I can't wait until January…if I'm going to feel crappy, might as well be during the winter.

      In the meantime, I can go back on my supplements and keep my immune system at full strength. I think there is also a "Honey Do" list wating for me.

      Nick

       

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        • May 3, 2018 at 3:35 pm
        Threefitty
        Participant

          I think when you get a solid answer on the existence of that alleged Honeydo list, you will be able to answer your own question about post-retirement vacations being vacations. Congrats.

          I vote with your Onc. I base my opinion on no personal experience or special knowledge whatsoever and also would add a hint of tabasco if it might help. Good luck.

            • May 4, 2018 at 5:42 pm
            Nick C
            Participant

              I'm starting to settle into my "new normal". The list is divided into major and minor. Probably should get the majors out of the way before I start my next treatment.

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