Had my monthly oncologist visit this am. He said my 5th petscan shows all the tumors are shrank, the latest new one is 'non measurable!"
Brief history, stage 4 metastatic melanoma! Diagnosis a little over a year ago, starting with xray that showed lung mass, the ct scan, then petscan which showed 7 tumors throughout glowing. Armpit, groin, chest, lung mass, node by pancreas. And one on lower back to right and above waist. MRI clear. I had 3 of the 4 combo treatments, yervoy/opdivo. Then liver enzymes toxic. 5 months of prednisone, then started 1mg of opdivo maintenance which is a very low dose. First time my dr prescribed such a low dose. He was concerned with the side effects.
Wow i thinlk we can say i am NED! Thank you Lord! And thank you Immunotherapy. And thank you all for sharing on this forum and helping me and others on this journery. I recently read on this forum about someone who was NED who developed pancreatitis on maintenance treatment. So i know i am not healed, and the beast can raise his ugly head again. But for now I am good! Still have wiped out thyroid, on 125mg of synthroid now. I take glucosamine chondrotite for my osteoarthritis. I had it before but now it's worse. Will be glass when weather warms up and i can get my water aerobics going again.
Every Dr appt i tell Mr Wang, Kaiser Woodland hIlls, someting that i learned from this forum. I think I am education him lol!
Thank you all for your support and advise. And am happy to shre how it helped me. It was because of this forum I knew that 3 of the 4 combo treatment was ok. That the enegizer bunny kept working anyways. And what to do for my rashes/hives. It has really helped. God Bless you all, Sharon
PS My neighbor said it was my daughters dog that cured me ha! 3 yr old Sadie, labradoodle who won't leave my side. I live in a studio by Michele and she shares her dog with me.
.
