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Update on Ezio
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Update on Ezio

› Forums › General Melanoma Community › Update on Ezio

  • Post
    • October 4, 2018 at 10:24 am
    Elizabeth123
    Participant

      Hello all

       

      We spoke with the doctor yesterday,  Ezio's MRI of the brain showed significant progression. They will do no more radiation.  And we currently are on hold with our pembro/ipi treatments.  It's a watch and wait. With supportive care,  either the combo will kick in and start to shrink the tumours or it will progress and it's over.  This doesn't sound good. 

      Holding out for a miracle 

       

      elizabeth

    Viewing 4 reply threads
    • Replies
        • October 4, 2018 at 12:23 pm
        marta010
        Participant

          Elizabeth – I'm so sorry about the news on Ezio's status.  I hope the combo kicks in.  Keeping you in my prayers.

          Ann

          • October 4, 2018 at 1:27 pm
          KellyH
          Participant

            Elizabeth I am so so sorry to hear this news. I was hoping the doctors would be able to do more for Ezio once he was admitted. hopefully the combo will kick in soon!!!!! We are all praying for you and Ezio!!!!!! 

            Kelly 🙁

            • October 4, 2018 at 9:54 pm
            MelanomaMike
            Participant
              Damnit! Shoot! Sorry, iv been following Ezio’s latest health condition (as you know), why the stopping of the combo? Is he having side effects they cannot treat? This Melanoma crap is really really, REALLY starting to piss me off! Please let me (us) know ok?
                • October 5, 2018 at 11:09 am
                Elizabeth123
                Participant

                  There holding the immunothearpy treatments right now,   They said it could be life threatening with so much brain swelling,   The other thing is we started seeing a full body rash and diarrhea now too. So side effects are now showing up.  It's a wait and see right now.  

                  • October 6, 2018 at 3:55 pm
                  MelanomaMike
                  Participant
                    Okay, im glad i saw this post, i looked at the other one concerning Ez & his progress, this one of course more current date.
                    Like i said, COMON YERVOY! DO YOUR MAGIC ON EZIO’s BRAIN TUMORS! Can i ask Elizabeth, how old is Ezio?
                    • October 6, 2018 at 6:55 pm
                    Elizabeth123
                    Participant

                      Hi Mike 

                      Ezio is 52 year old,  and boy are we having a ruff week. ,  he is in the hospital, semi  awake. , fade in and out.      We definitely have side effects.  Rash , and sweating like crazy.   We just need the yervoy to do its magic on those brain mets.   

                       

                      Elizabeth

                      • October 8, 2018 at 7:05 pm
                      MelanomaMike
                      Participant
                        Hi Elizabeth, oh good! Hes “young!” Thats a good thing thats also going for him, i mean, thats what was explained to me last year befor i started Immunal Therapies and possible surgery, the younger, healthier our bodys are of course the better we can recover or maintain “stability” through any treatments that come our way. Ill be 50 in December so, im right behind Ezio! God i hope he pulls out of this & can go back home to continue therapy!
                        I go see yet “another” now “3rd” opinion Onco this Wed, then next week have my consultation with my Lung Surgeon to discuss our War Plan for my removal of my Right Lower Lobe of my lung, thats where the Mel Monster 5.4cm resides & has resisted all “fire power” to date, Keytruda, Yervoy & Opdivo…
                        Im rootin for Ezio! Stay strong sis, stay strong…
                      • October 4, 2018 at 10:03 pm
                      bjeans
                      Participant

                        I’m so terribly sorry you are both going through this – and hope the immunotherapy kicks in with all my heart. 

                        Beth 

                        • October 4, 2018 at 11:35 pm
                        lkb
                        Participant

                          Hope, hope, hoping!

                      Viewing 4 reply threads
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