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Looking for hope I guess

Forums Cutaneous Melanoma Community Looking for hope I guess

  • Post
    Becky_wilko
    Participant

      Hello, my names Becky. I’m 34 years old, yesterday after an anxious 3 months finally got a diagnosis of Superficial Spreading melanoma Stage 2A. 

      In December (2 months after giving birth to my son) I found a new black raised pimple. It resembled a blood blister. I saw my dermatologist immediately who with no concern said it was a traumatised angioma. Feeling reassured I went away enjoyed Christmas, then into January kept taking photos of the mole on my lower back. At the beginning of Feb I rang my derms secretary, she liaised with Derm who wouldn’t see me until beginning of March, I said it’s doubled in size. But no concern. In the end, a day or so later I rang again, begging to be seen. She said send me a photo and I’ll show a different dermatologist in the morning. 

      He said the same, it must have just been traumatised more so, he said he was almost tempted to stick a needle in to show me, but got my anxiety will arrange biopsy. 3 days later, another Derm removed mole. He said with 30 yrs experience him and another dr said, it’s a haemangioma, there will be nothing to worry about. 

      I felt a bit silly but relieved. Until the secretary rang me Tuesday saying could I come in Thursday first thing. 

      i begged for the result over the phone, but insisted it was procedure. 

       

      So as id felt in my gut for so long, I finally have my diagnosis. They’re insisting the got it all with clear margins. 

      Breslow thickness 1.8mm, no ulceration, mitonic rate 4,

      im going in a couple weeks for WLE and SNB. 

      As I’m sure most are, I’m petrified. Concerned about the high mitonic rate. 

      Does anyone know more about the mitonic rate, do you this is highly likely it’s spread to my lymph nodes. 

      lymph nodes felt normal. They tell me I’m lucky. All clear margins. 

      I’m just so worried, my husband is undergoing a craniotomy for a grade 2 tumour recurrence. Next Tuesday. 

      I don’t think I can take much more

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    • Replies
        swalters1038
        Participant

          HI Becky,

          I can tell you my 2018 was a year to forget.  My wife had a miscarriage at 12 weeks,  I lost my dad to pancreatic cancer, and my wife lost her mom to pancreatic cancer.  Somewhere in the middle of that I was diagnosed at 35 with stage 3c malignant melanoma.  I had surgery, radiaiton, and currently undergoing adjuvant therapy.

          Its hard not to think life is just continually hammering you, but also somewhere in the middle of all that we also got preganant again.  We welcomed a beautiful baby girl to our family 3 short weeks ago.  Stay positive and just keeping one foot in front of the other.

          I can't speak to your patholgoy report as mine was originally misdiagnosed as an atypical spitz nevus.

          DZnDef
          Participant

            Hi Becky,

            My situation is entirely different than yours except for the terrifying part when you’re told you have cancer.  I think the first few months were the hardest in trying to wrap my head around that concept.  But with time, it actually got easier.  I realized that whatever the future might hold, I am alive today and I’m going to celebrate that rather than worry about tomorrow.  The only thing that stresses me out these days is making treatment decisions.  One day at a time.  You are alive today.  Odds are good you’ll be alive tomorrow.  Go with that.

            Cheers!

            Maggie

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