MRF-Logo2019-Horizontal-RGB
Staycation for me after Ipi/nivo round 2
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Staycation for me after Ipi/nivo round 2

› Forums › General Melanoma Community › Staycation for me after Ipi/nivo round 2

  • Post
    • August 12, 2019 at 6:20 pm
    NewEra
    Participant
      You know the symptoms – colitis that can’t be controlled with the prednisone and Imodium .

      Within two to three hours of eating I got rid of just about everything. Fever-spiking to 102 and down as low as 95.5 Sent Me to the ER and I was admitted. GI teams are looking to see if something more then symptom management is required

      I plan to refuse the next combo, and go to Nivo only when they clear me for continued treatment.

      Anyone else experience this?

    Viewing 1 reply thread
    • Replies
        • August 12, 2019 at 7:35 pm
        Edwin
        Participant
          After my 1st ipi + nivo immunotherapy, I had very bad diarrhea and lost too much weight. 3 weeks and 6 weeks later I received only nivo. I received my 2nd ipi + nivo immunotherapy 9 weeks after my 1st one. My oncologist cut my dose of ipi by 50% for my 2nd, 3rd and 4th infusions of ip + nivo.
          • August 12, 2019 at 8:25 pm
          MelanomaMike
          Participant
            Aaaaah! I feel so bad for you NewEra! I was VERY fortunate to not get Colitis after any of the 3 meds, Pembro, Ipi or Nivo, and you all know what happened to me after my first infusion of Ipi/Nivo! 6 days after i began a week & a half (about 10 days) of ZERO appitite, severe vomiting, pounding head when i got up or down, i even went to the ER and they didnt know what to do, my wife actually saved my misery! She brought home dome Megace (Megestrol) appitite stimulant, shes a care giver & the old man “Max” said Go ahead! Anything for Mike! (He was so cool bless his heart, RIP 2018) within 24hrs i was eating again & all symptoms stopped. Afterwards, an Endocrinologist revealed i do not produce Cortisol anylonger, that Yervoy knocked that out of me! After that downfall, i went on to complete the next 3 combos…
            Well, hopefully you can get back on track, Colitis is no joke, just Opdivo may be the way to go…
        Viewing 1 reply thread
        • You must be logged in to reply to this topic.
        About the MRF Patient Forum

        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

        Popular Topics