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Amelanotic Melanoma

Forums Cutaneous Melanoma Community Amelanotic Melanoma

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    heathcott
    Participant
      I was diagnosed with stage one amelanotic melanoma in March of 2018. Since then, I have had 102 biopsies. The results of those biopsies range from normal to stage one melanoma. Very few of the biopsies have been normal moles. Most are either moderately/severely dypslastic and two have actually been melanoma’s. All of the biopsies have been on tiny red spots that do not fit the typical profile of a melanoma mole. In fact, every dermatologist I have visited have made the statement that they would not have removed any of these spots because they do not look suspicious and they do not fit typical profile of a melanoma. These spots are all over my body. They call it eruptive melanocytic nevi of the skin. I have been a patient at MD Anderson since June of 2018. Each time I go to MD Anderson they advise me that they have never seen a case like mine before. They have no idea what is causing the eruption of melanocytic nevi’s therefore, they have no idea how to treat it. They have presented my case to many conferences at MD Anderson but the response is always the same. . I absolutely love MD Anderson. They have been so good to me. However, I know I cannot be the only person who has ever experienced this. I am looking for a second opinion. Do you have any recommendations of other research hospitals that specialize in this type of melanoma?
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