Crazy Progression

I am so sorry for what you and your mom are dealing with Summer. I don’t think that the chemo caused increased growth. Data shows that old school platin based chemo rarely attains a response in melanoma and only occasionally can something of a response be gained with DTIC. So, I fear the growth you see is simply what melanoma can do un-checked. Have you attained any clinical trial options for your mom since your last post on that topic? Hang in there. Your support is more beneficial to your mom than it may seem. celeste

So sorry on the progression Summer. Just to say again, every study coordinator, director and PI I talked to, they all agreed that calling the department at the Institution that the Principal Investigator is at for any trial you are interested in, is the quickest way. Even if you get a gatekeeper like the operator, just say your mom is interested in screening for the clinical trial (NAME). They should be able to get you to the PI or to the study coordinator in charge of recruiting for the study and working with the patients. Also, many times these institutions have a clinical research page, just as an example, here is the example from my institution: https://umhealthresearch.org/ For pages like these, you can search on Melanoma, etc and then if you click on the link to each specific study, you will also get a contact us button that you can use which most likely goes to the study coordinating team. I think Ed sent you the links for the highly regarded institutions closest to you that are doing TIL, ACT, etc. Many hugs, good luck, thinking of your mom.