› Forums › General Melanoma Community › newly diagnosed with melanoma ,please ,help!!!
- This topic has 27 replies, 6 voices, and was last updated 13 years, 3 months ago by
Lauri England.
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- February 10, 2012 at 2:21 pm
I am so glad I found this website. I was diagnosed with melanoma last month .I am 31 ,I still don't have children and I wanted a child. No looks like everything is ruined.. Please , answer if you know – do I have chanse to survive with 2 mm thick melanoma and Clark II , margins clear on my breast? I cannot sleep and I lost my hope.. I am in UK and doctor said I will have my Wide Excision and SNB only next month (they are busy0,so it will take 3 months since mole removed !!!!!!!
I am so glad I found this website. I was diagnosed with melanoma last month .I am 31 ,I still don't have children and I wanted a child. No looks like everything is ruined.. Please , answer if you know – do I have chanse to survive with 2 mm thick melanoma and Clark II , margins clear on my breast? I cannot sleep and I lost my hope.. I am in UK and doctor said I will have my Wide Excision and SNB only next month (they are busy0,so it will take 3 months since mole removed !!!!!!!
I do know Clark's not so popular now ,but anyyway it does mean something and I cannot understand how is it possible to have such thick tumor (2 mm) and only Clark level II?
Please ,colud you reply on my post with some information ,.
Thank you for beeing here and sharing your stories.
- Replies
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- February 10, 2012 at 2:33 pm
Yes! There are soooo many people here who are Stage III & IV and have been NED (no evidence of disease) for years. I am Stage IIIB. It sounds as if you might be Stage I or II. Survival rates are really good. Keep reading the posts–they'll make you feel better. Stay informed.
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- February 10, 2012 at 3:09 pm
My melanoma developed while I was doing IVF – with a lot of gormonal teraphy involved…
I just would like to say – unfortenately ,IVF can cause melanoma ,and I was not told about that before my treatment.
If someone will start IVF ,please , check you moles and be carefull
Unfortenately , I lost my child and I do have melanoma
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- February 10, 2012 at 3:09 pm
My melanoma developed while I was doing IVF – with a lot of gormonal teraphy involved…
I just would like to say – unfortenately ,IVF can cause melanoma ,and I was not told about that before my treatment.
If someone will start IVF ,please , check you moles and be carefull
Unfortenately , I lost my child and I do have melanoma
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- February 10, 2012 at 7:26 pm
I'm very sorry about the loss of your baby. Do they think IVF can be a cause because of the hormones used?
You had clear margins after your biopsy, which is really good and the tumor is gone. March is not very far away and I learned here that the surgery should be within 90 days.
There are a few of us here who just went through the wide excision and sentinel node surgeries and we received great results. My melanoma was on my upper arm/shoulder and my sentinel node was between my armpit and my breast. It was more than 5 weeks between my initial biopsy and the surgeries. You can see my pathology numbers in my profile if you want to compare them with yours.
I know this is a very scary time for you and you're grieving the loss of your child at the same time. The responses I received here helped me a lot.
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- February 10, 2012 at 7:26 pm
I'm very sorry about the loss of your baby. Do they think IVF can be a cause because of the hormones used?
You had clear margins after your biopsy, which is really good and the tumor is gone. March is not very far away and I learned here that the surgery should be within 90 days.
There are a few of us here who just went through the wide excision and sentinel node surgeries and we received great results. My melanoma was on my upper arm/shoulder and my sentinel node was between my armpit and my breast. It was more than 5 weeks between my initial biopsy and the surgeries. You can see my pathology numbers in my profile if you want to compare them with yours.
I know this is a very scary time for you and you're grieving the loss of your child at the same time. The responses I received here helped me a lot.
-
- February 10, 2012 at 7:26 pm
I'm very sorry about the loss of your baby. Do they think IVF can be a cause because of the hormones used?
You had clear margins after your biopsy, which is really good and the tumor is gone. March is not very far away and I learned here that the surgery should be within 90 days.
There are a few of us here who just went through the wide excision and sentinel node surgeries and we received great results. My melanoma was on my upper arm/shoulder and my sentinel node was between my armpit and my breast. It was more than 5 weeks between my initial biopsy and the surgeries. You can see my pathology numbers in my profile if you want to compare them with yours.
I know this is a very scary time for you and you're grieving the loss of your child at the same time. The responses I received here helped me a lot.
-
- February 10, 2012 at 3:09 pm
My melanoma developed while I was doing IVF – with a lot of gormonal teraphy involved…
I just would like to say – unfortenately ,IVF can cause melanoma ,and I was not told about that before my treatment.
If someone will start IVF ,please , check you moles and be carefull
Unfortenately , I lost my child and I do have melanoma
-
- February 10, 2012 at 2:33 pm
Yes! There are soooo many people here who are Stage III & IV and have been NED (no evidence of disease) for years. I am Stage IIIB. It sounds as if you might be Stage I or II. Survival rates are really good. Keep reading the posts–they'll make you feel better. Stay informed.
-
- February 10, 2012 at 2:33 pm
Yes! There are soooo many people here who are Stage III & IV and have been NED (no evidence of disease) for years. I am Stage IIIB. It sounds as if you might be Stage I or II. Survival rates are really good. Keep reading the posts–they'll make you feel better. Stay informed.
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- February 10, 2012 at 3:25 pm
Yes you can survive!! I understand how you feel, the stress and the devastation from this diagnosis can be overwhelming. My husband was diagnosed in Aug and I felt like our life was over, but you will eventually start to see that there are so many people that come out the other side of this and are just fine. They have children and live full happy lives. There are amazing doctors and new treatments coming out all the time. Stay strong, and try to stay positive, there are amazing people here at this site who have walked where you are walking and are here to help.
All the best to you!
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- February 10, 2012 at 3:25 pm
Yes you can survive!! I understand how you feel, the stress and the devastation from this diagnosis can be overwhelming. My husband was diagnosed in Aug and I felt like our life was over, but you will eventually start to see that there are so many people that come out the other side of this and are just fine. They have children and live full happy lives. There are amazing doctors and new treatments coming out all the time. Stay strong, and try to stay positive, there are amazing people here at this site who have walked where you are walking and are here to help.
All the best to you!
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- February 10, 2012 at 3:25 pm
Yes you can survive!! I understand how you feel, the stress and the devastation from this diagnosis can be overwhelming. My husband was diagnosed in Aug and I felt like our life was over, but you will eventually start to see that there are so many people that come out the other side of this and are just fine. They have children and live full happy lives. There are amazing doctors and new treatments coming out all the time. Stay strong, and try to stay positive, there are amazing people here at this site who have walked where you are walking and are here to help.
All the best to you!
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- February 11, 2012 at 12:00 am
Hi Natasha.
you've said nothing of the doctor's you're hooked up with, the region of the country you live in, etc….
There are plenty of really awesome resources out there, so please make use of this site. Study through, and examine what resources may be available near you.
I keep hearing more and more stories of people living much longer than they did in the "old days."
I was clark level IV when I was originally misdiagnosed in 1990. I've seldom heard of clarks level II getting back terminal news over the past few years.
Follow your doctor's protocols, stay on track, and get CONNECTED with good melanoma doctors.
-
- February 11, 2012 at 12:00 am
Hi Natasha.
you've said nothing of the doctor's you're hooked up with, the region of the country you live in, etc….
There are plenty of really awesome resources out there, so please make use of this site. Study through, and examine what resources may be available near you.
I keep hearing more and more stories of people living much longer than they did in the "old days."
I was clark level IV when I was originally misdiagnosed in 1990. I've seldom heard of clarks level II getting back terminal news over the past few years.
Follow your doctor's protocols, stay on track, and get CONNECTED with good melanoma doctors.
-
- February 11, 2012 at 11:05 am
Hi! Thank you for your reply and advise!
I am in UK , Cambridge , but I was diagnosed in Latvia last month.
All histology report seems to be very strange ,so I will wait for a second opinion here in UK
Do you mean you was misdiagnosed with Clark's level as well? And could please tell me which level you was if they say you are level 4?
In my case it is very odd to be 2mm breslow and clark II…
I heard a lot of good things about Adenbrooks hospital in Cambridge ,UK ,but things are sooo slow.It is take months to get appointment..
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- February 11, 2012 at 11:05 am
Hi! Thank you for your reply and advise!
I am in UK , Cambridge , but I was diagnosed in Latvia last month.
All histology report seems to be very strange ,so I will wait for a second opinion here in UK
Do you mean you was misdiagnosed with Clark's level as well? And could please tell me which level you was if they say you are level 4?
In my case it is very odd to be 2mm breslow and clark II…
I heard a lot of good things about Adenbrooks hospital in Cambridge ,UK ,but things are sooo slow.It is take months to get appointment..
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- February 12, 2012 at 3:15 am
Hi.
I don't know how, or why, but my 1990 mole resection came back as benign. As it was 2 weeks before my wedding, I was happy as a lark, and just went on with my life (the only reason I even went in there to get it looked at was to "do the responsible thing" for my wife's benefit. I never would've guessed in a 1000 years anything was really wrong. I had a really non-chalant attitude towards it– until 1997). In Novermber 2000, I confronted the doctor, with latest CT report in hand (headed for my 3rd surgery in 3 weeks, and already into the 3rd year of a 4 year cliinical drug trial protocol), and he was so freaked out, he pulled my biopsy slide, had it rechecked, and it was determined then that the original biopsy was misdiagnosed.
It was further determined that even if I had been properly diagnosed it would not have helped. There have been times that I've honestly wondered if he deliberately mis-diagnosed me to give me a fighting chance, knowing that the medical treatments in 1990 would most certainly have resulted in my death within the standard period– 1-3 years. I had already had the mole for 3-1/2 years, so it was pretty well advanced by then.
The 2000 pathology report says it was a clarks level 4.
As it's been so long since that, I remember the mole being huge, and raised a good 1/8" above my leg surface. I don't really remember much else, save that it was black, had reddish edges, and would grow a scale-like surface on it, which I'd peel rather regularly. I remember pinching, teasing, squeezing, etc….
It hurt too.
Well, as I've never been to Britain, I cannot comment on what/how/why of the way things go there. I'd be bugging them for it. CLII is a good thing, in that it's been caught so early, you have a much better chance beating this than had you waited.
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- February 12, 2012 at 3:15 am
Hi.
I don't know how, or why, but my 1990 mole resection came back as benign. As it was 2 weeks before my wedding, I was happy as a lark, and just went on with my life (the only reason I even went in there to get it looked at was to "do the responsible thing" for my wife's benefit. I never would've guessed in a 1000 years anything was really wrong. I had a really non-chalant attitude towards it– until 1997). In Novermber 2000, I confronted the doctor, with latest CT report in hand (headed for my 3rd surgery in 3 weeks, and already into the 3rd year of a 4 year cliinical drug trial protocol), and he was so freaked out, he pulled my biopsy slide, had it rechecked, and it was determined then that the original biopsy was misdiagnosed.
It was further determined that even if I had been properly diagnosed it would not have helped. There have been times that I've honestly wondered if he deliberately mis-diagnosed me to give me a fighting chance, knowing that the medical treatments in 1990 would most certainly have resulted in my death within the standard period– 1-3 years. I had already had the mole for 3-1/2 years, so it was pretty well advanced by then.
The 2000 pathology report says it was a clarks level 4.
As it's been so long since that, I remember the mole being huge, and raised a good 1/8" above my leg surface. I don't really remember much else, save that it was black, had reddish edges, and would grow a scale-like surface on it, which I'd peel rather regularly. I remember pinching, teasing, squeezing, etc….
It hurt too.
Well, as I've never been to Britain, I cannot comment on what/how/why of the way things go there. I'd be bugging them for it. CLII is a good thing, in that it's been caught so early, you have a much better chance beating this than had you waited.
-
- February 12, 2012 at 3:15 am
Hi.
I don't know how, or why, but my 1990 mole resection came back as benign. As it was 2 weeks before my wedding, I was happy as a lark, and just went on with my life (the only reason I even went in there to get it looked at was to "do the responsible thing" for my wife's benefit. I never would've guessed in a 1000 years anything was really wrong. I had a really non-chalant attitude towards it– until 1997). In Novermber 2000, I confronted the doctor, with latest CT report in hand (headed for my 3rd surgery in 3 weeks, and already into the 3rd year of a 4 year cliinical drug trial protocol), and he was so freaked out, he pulled my biopsy slide, had it rechecked, and it was determined then that the original biopsy was misdiagnosed.
It was further determined that even if I had been properly diagnosed it would not have helped. There have been times that I've honestly wondered if he deliberately mis-diagnosed me to give me a fighting chance, knowing that the medical treatments in 1990 would most certainly have resulted in my death within the standard period– 1-3 years. I had already had the mole for 3-1/2 years, so it was pretty well advanced by then.
The 2000 pathology report says it was a clarks level 4.
As it's been so long since that, I remember the mole being huge, and raised a good 1/8" above my leg surface. I don't really remember much else, save that it was black, had reddish edges, and would grow a scale-like surface on it, which I'd peel rather regularly. I remember pinching, teasing, squeezing, etc….
It hurt too.
Well, as I've never been to Britain, I cannot comment on what/how/why of the way things go there. I'd be bugging them for it. CLII is a good thing, in that it's been caught so early, you have a much better chance beating this than had you waited.
-
- February 11, 2012 at 11:05 am
Hi! Thank you for your reply and advise!
I am in UK , Cambridge , but I was diagnosed in Latvia last month.
All histology report seems to be very strange ,so I will wait for a second opinion here in UK
Do you mean you was misdiagnosed with Clark's level as well? And could please tell me which level you was if they say you are level 4?
In my case it is very odd to be 2mm breslow and clark II…
I heard a lot of good things about Adenbrooks hospital in Cambridge ,UK ,but things are sooo slow.It is take months to get appointment..
-
- February 11, 2012 at 12:00 am
Hi Natasha.
you've said nothing of the doctor's you're hooked up with, the region of the country you live in, etc….
There are plenty of really awesome resources out there, so please make use of this site. Study through, and examine what resources may be available near you.
I keep hearing more and more stories of people living much longer than they did in the "old days."
I was clark level IV when I was originally misdiagnosed in 1990. I've seldom heard of clarks level II getting back terminal news over the past few years.
Follow your doctor's protocols, stay on track, and get CONNECTED with good melanoma doctors.
-
- February 12, 2012 at 3:18 pm
No matter what the melanoma diagnosis is there is always chance of survival. I had a mole removed and SLB and 3 came back positive. I did almost a year of interferon and so far NED. Never lose hope. There are new drugs approved and knowledge of melanoma grows everyday. This is a great place to come for support as there are so many other people going throught the exact same thing as you and I. Hang in there and I know it is hard but try to stay positive and always hopeful and dont over worry.
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- February 12, 2012 at 3:18 pm
No matter what the melanoma diagnosis is there is always chance of survival. I had a mole removed and SLB and 3 came back positive. I did almost a year of interferon and so far NED. Never lose hope. There are new drugs approved and knowledge of melanoma grows everyday. This is a great place to come for support as there are so many other people going throught the exact same thing as you and I. Hang in there and I know it is hard but try to stay positive and always hopeful and dont over worry.
-
- February 12, 2012 at 3:18 pm
No matter what the melanoma diagnosis is there is always chance of survival. I had a mole removed and SLB and 3 came back positive. I did almost a year of interferon and so far NED. Never lose hope. There are new drugs approved and knowledge of melanoma grows everyday. This is a great place to come for support as there are so many other people going throught the exact same thing as you and I. Hang in there and I know it is hard but try to stay positive and always hopeful and dont over worry.
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Tagged: cutaneous melanoma
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