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newly diagnosed with melanoma ,please ,help!!!

Forums General Melanoma Community newly diagnosed with melanoma ,please ,help!!!

  • Post
    natasha
    Participant

      I am so glad I found this website. I was diagnosed with melanoma last month .I am 31 ,I still don't have children and I wanted a child. No looks like everything is ruined.. Please , answer if you know – do I have chanse to survive with 2 mm thick melanoma and Clark II , margins clear on my breast? I cannot sleep and I lost my hope..  I am in UK and doctor said I will have my Wide Excision and SNB only next month (they are busy0,so it will take 3 months since mole removed !!!!!!!

      I am so glad I found this website. I was diagnosed with melanoma last month .I am 31 ,I still don't have children and I wanted a child. No looks like everything is ruined.. Please , answer if you know – do I have chanse to survive with 2 mm thick melanoma and Clark II , margins clear on my breast? I cannot sleep and I lost my hope..  I am in UK and doctor said I will have my Wide Excision and SNB only next month (they are busy0,so it will take 3 months since mole removed !!!!!!!

      I do know Clark's not so popular now ,but anyyway it does mean something and I cannot understand how is it possible to have such thick tumor (2 mm) and only  Clark level II?

      Please ,colud you reply on my post with some information ,.

      Thank you for beeing here and sharing your stories.

    Viewing 11 reply threads
    • Replies
        kjkaralekas
        Participant

          Yes! There are soooo many people here who are Stage III & IV and have been NED (no evidence of disease) for years. I am Stage IIIB. It sounds as if you might be Stage I or II. Survival rates are really good. Keep reading the posts–they'll make you feel better. Stay informed.

            natasha
            Participant

              Thank you for your reply !! It gives me hope ! Can I ask you –  how long it should take between diagnoses and Wide excion + SNB? My doctor is in UK ,Adenbrooks Hospital in Cambridge

              Thanks

              God Bless You

              natasha
              Participant

                Thank you for your reply !! It gives me hope ! Can I ask you –  how long it should take between diagnoses and Wide excion + SNB? My doctor is in UK ,Adenbrooks Hospital in Cambridge

                Thanks

                God Bless You

                natasha
                Participant

                  My melanoma developed while I was doing IVF – with a lot of gormonal teraphy involved…

                  I just would like to say – unfortenately ,IVF can cause melanoma ,and I was not told about that before my treatment.

                  If someone will start IVF ,please ,  check you moles and be carefull

                  Unfortenately , I lost my child and I do have melanoma 

                  natasha
                  Participant

                    My melanoma developed while I was doing IVF – with a lot of gormonal teraphy involved…

                    I just would like to say – unfortenately ,IVF can cause melanoma ,and I was not told about that before my treatment.

                    If someone will start IVF ,please ,  check you moles and be carefull

                    Unfortenately , I lost my child and I do have melanoma 

                    Minnesota
                    Participant

                      I'm very sorry about the loss of your baby. Do they think IVF can be a cause because of the hormones used?

                      You had clear margins after your biopsy, which is really good and the tumor is gone. March is not very far away and I learned here that the surgery should be within 90 days.

                      There are a few of us here who just went through the wide excision and sentinel node surgeries and we received great results. My melanoma was on my upper arm/shoulder and my sentinel node was between my armpit and my breast. It was more than 5 weeks between my initial biopsy and the surgeries. You can see my pathology numbers in my profile if you want to compare them with yours.

                      I know this is a very scary time for you and you're grieving the loss of your child at the same time. The responses I received here helped me a lot. 

                      Minnesota
                      Participant

                        I'm very sorry about the loss of your baby. Do they think IVF can be a cause because of the hormones used?

                        You had clear margins after your biopsy, which is really good and the tumor is gone. March is not very far away and I learned here that the surgery should be within 90 days.

                        There are a few of us here who just went through the wide excision and sentinel node surgeries and we received great results. My melanoma was on my upper arm/shoulder and my sentinel node was between my armpit and my breast. It was more than 5 weeks between my initial biopsy and the surgeries. You can see my pathology numbers in my profile if you want to compare them with yours.

                        I know this is a very scary time for you and you're grieving the loss of your child at the same time. The responses I received here helped me a lot. 

                        Minnesota
                        Participant

                          I'm very sorry about the loss of your baby. Do they think IVF can be a cause because of the hormones used?

                          You had clear margins after your biopsy, which is really good and the tumor is gone. March is not very far away and I learned here that the surgery should be within 90 days.

                          There are a few of us here who just went through the wide excision and sentinel node surgeries and we received great results. My melanoma was on my upper arm/shoulder and my sentinel node was between my armpit and my breast. It was more than 5 weeks between my initial biopsy and the surgeries. You can see my pathology numbers in my profile if you want to compare them with yours.

                          I know this is a very scary time for you and you're grieving the loss of your child at the same time. The responses I received here helped me a lot. 

                          natasha
                          Participant

                            My melanoma developed while I was doing IVF – with a lot of gormonal teraphy involved…

                            I just would like to say – unfortenately ,IVF can cause melanoma ,and I was not told about that before my treatment.

                            If someone will start IVF ,please ,  check you moles and be carefull

                            Unfortenately , I lost my child and I do have melanoma 

                            natasha
                            Participant

                              Thank you for your reply !! It gives me hope ! Can I ask you –  how long it should take between diagnoses and Wide excion + SNB? My doctor is in UK ,Adenbrooks Hospital in Cambridge

                              Thanks

                              God Bless You

                            kjkaralekas
                            Participant

                              Yes! There are soooo many people here who are Stage III & IV and have been NED (no evidence of disease) for years. I am Stage IIIB. It sounds as if you might be Stage I or II. Survival rates are really good. Keep reading the posts–they'll make you feel better. Stay informed.

                              kjkaralekas
                              Participant

                                Yes! There are soooo many people here who are Stage III & IV and have been NED (no evidence of disease) for years. I am Stage IIIB. It sounds as if you might be Stage I or II. Survival rates are really good. Keep reading the posts–they'll make you feel better. Stay informed.

                                samcanada
                                Participant

                                  Yes you can survive!! I understand how you feel, the stress and the devastation from this diagnosis can be overwhelming. My husband was diagnosed in Aug and I felt like our life was over, but you will eventually start to see that there are so many people that come out the other side of this and are just fine. They have children and live full happy lives. There are amazing doctors and new treatments coming out all the time. Stay strong, and try to stay positive, there are amazing people here at this site who have walked where you are walking and are here to help.

                                  All the best to you!

                                  samcanada
                                  Participant

                                    Yes you can survive!! I understand how you feel, the stress and the devastation from this diagnosis can be overwhelming. My husband was diagnosed in Aug and I felt like our life was over, but you will eventually start to see that there are so many people that come out the other side of this and are just fine. They have children and live full happy lives. There are amazing doctors and new treatments coming out all the time. Stay strong, and try to stay positive, there are amazing people here at this site who have walked where you are walking and are here to help.

                                    All the best to you!

                                    samcanada
                                    Participant

                                      Yes you can survive!! I understand how you feel, the stress and the devastation from this diagnosis can be overwhelming. My husband was diagnosed in Aug and I felt like our life was over, but you will eventually start to see that there are so many people that come out the other side of this and are just fine. They have children and live full happy lives. There are amazing doctors and new treatments coming out all the time. Stay strong, and try to stay positive, there are amazing people here at this site who have walked where you are walking and are here to help.

                                      All the best to you!

                                      SteveBMe
                                      Participant

                                        Hi Natasha.

                                        you've said nothing of the doctor's you're hooked up with, the region of the country you live in, etc….

                                        There are plenty of really awesome resources out there, so please make use of this site. Study through, and examine what resources may be available near you.

                                        I keep hearing more and more stories of people living much longer than they did in the "old days."

                                        I was clark level IV when I was originally misdiagnosed in 1990. I've seldom heard of clarks level II getting back terminal news over the past few years.

                                        Follow your doctor's protocols, stay on track, and get CONNECTED with good melanoma doctors.

                                        SteveBMe
                                        Participant

                                          Hi Natasha.

                                          you've said nothing of the doctor's you're hooked up with, the region of the country you live in, etc….

                                          There are plenty of really awesome resources out there, so please make use of this site. Study through, and examine what resources may be available near you.

                                          I keep hearing more and more stories of people living much longer than they did in the "old days."

                                          I was clark level IV when I was originally misdiagnosed in 1990. I've seldom heard of clarks level II getting back terminal news over the past few years.

                                          Follow your doctor's protocols, stay on track, and get CONNECTED with good melanoma doctors.

                                            natasha
                                            Participant

                                              Hi! Thank you for your reply and advise!

                                              I am in UK , Cambridge , but I was diagnosed in Latvia last month.

                                              All histology report seems to be very strange ,so I will wait for a second opinion here in UK

                                              Do you mean you was misdiagnosed with Clark's level as well? And could please tell me which level you was if they say you are level 4?

                                              In my case it is very odd to be 2mm breslow and clark II…

                                              I heard a lot of good things about Adenbrooks hospital in Cambridge ,UK ,but things are sooo slow.It is take months to get appointment..

                                              natasha
                                              Participant

                                                Hi! Thank you for your reply and advise!

                                                I am in UK , Cambridge , but I was diagnosed in Latvia last month.

                                                All histology report seems to be very strange ,so I will wait for a second opinion here in UK

                                                Do you mean you was misdiagnosed with Clark's level as well? And could please tell me which level you was if they say you are level 4?

                                                In my case it is very odd to be 2mm breslow and clark II…

                                                I heard a lot of good things about Adenbrooks hospital in Cambridge ,UK ,but things are sooo slow.It is take months to get appointment..

                                                SteveBMe
                                                Participant

                                                  Hi.

                                                  I don't know how, or why, but my 1990 mole resection came back as benign. As it was 2 weeks before my wedding, I was happy as a lark, and just went on with my life (the only reason I even went in there to get it looked at was to "do the responsible thing" for my wife's benefit. I never would've guessed in a 1000 years anything was really wrong. I had a really non-chalant attitude towards it– until 1997). In Novermber 2000, I confronted the doctor, with latest CT report in hand (headed for my 3rd surgery in 3 weeks, and already into the 3rd year of a 4 year cliinical drug trial protocol), and he was so freaked out, he pulled my biopsy slide, had it rechecked, and it was determined then that the original biopsy was misdiagnosed.

                                                  It was further determined that even if I had been properly diagnosed it would not have helped. There have been times that I've honestly wondered if he deliberately mis-diagnosed me to give me a fighting chance, knowing that the medical treatments in 1990 would most certainly have resulted in my death within the standard period– 1-3 years. I had already had the mole for 3-1/2 years, so it was pretty well advanced by then.

                                                  The 2000 pathology report says it was a clarks level 4.

                                                  As it's been so long since that, I remember the mole being huge, and raised a good 1/8" above my leg surface. I don't really remember much else, save that it was black, had reddish edges, and would grow a scale-like surface on it, which I'd peel rather regularly. I remember pinching, teasing, squeezing, etc….

                                                  It hurt too.

                                                  Well, as I've never been to Britain, I cannot comment on what/how/why of the way things go there. I'd be bugging them for it. CLII is a good thing, in that it's been caught so early, you have a much better chance beating this than had you waited.

                                                  SteveBMe
                                                  Participant

                                                    Hi.

                                                    I don't know how, or why, but my 1990 mole resection came back as benign. As it was 2 weeks before my wedding, I was happy as a lark, and just went on with my life (the only reason I even went in there to get it looked at was to "do the responsible thing" for my wife's benefit. I never would've guessed in a 1000 years anything was really wrong. I had a really non-chalant attitude towards it– until 1997). In Novermber 2000, I confronted the doctor, with latest CT report in hand (headed for my 3rd surgery in 3 weeks, and already into the 3rd year of a 4 year cliinical drug trial protocol), and he was so freaked out, he pulled my biopsy slide, had it rechecked, and it was determined then that the original biopsy was misdiagnosed.

                                                    It was further determined that even if I had been properly diagnosed it would not have helped. There have been times that I've honestly wondered if he deliberately mis-diagnosed me to give me a fighting chance, knowing that the medical treatments in 1990 would most certainly have resulted in my death within the standard period– 1-3 years. I had already had the mole for 3-1/2 years, so it was pretty well advanced by then.

                                                    The 2000 pathology report says it was a clarks level 4.

                                                    As it's been so long since that, I remember the mole being huge, and raised a good 1/8" above my leg surface. I don't really remember much else, save that it was black, had reddish edges, and would grow a scale-like surface on it, which I'd peel rather regularly. I remember pinching, teasing, squeezing, etc….

                                                    It hurt too.

                                                    Well, as I've never been to Britain, I cannot comment on what/how/why of the way things go there. I'd be bugging them for it. CLII is a good thing, in that it's been caught so early, you have a much better chance beating this than had you waited.

                                                    SteveBMe
                                                    Participant

                                                      Hi.

                                                      I don't know how, or why, but my 1990 mole resection came back as benign. As it was 2 weeks before my wedding, I was happy as a lark, and just went on with my life (the only reason I even went in there to get it looked at was to "do the responsible thing" for my wife's benefit. I never would've guessed in a 1000 years anything was really wrong. I had a really non-chalant attitude towards it– until 1997). In Novermber 2000, I confronted the doctor, with latest CT report in hand (headed for my 3rd surgery in 3 weeks, and already into the 3rd year of a 4 year cliinical drug trial protocol), and he was so freaked out, he pulled my biopsy slide, had it rechecked, and it was determined then that the original biopsy was misdiagnosed.

                                                      It was further determined that even if I had been properly diagnosed it would not have helped. There have been times that I've honestly wondered if he deliberately mis-diagnosed me to give me a fighting chance, knowing that the medical treatments in 1990 would most certainly have resulted in my death within the standard period– 1-3 years. I had already had the mole for 3-1/2 years, so it was pretty well advanced by then.

                                                      The 2000 pathology report says it was a clarks level 4.

                                                      As it's been so long since that, I remember the mole being huge, and raised a good 1/8" above my leg surface. I don't really remember much else, save that it was black, had reddish edges, and would grow a scale-like surface on it, which I'd peel rather regularly. I remember pinching, teasing, squeezing, etc….

                                                      It hurt too.

                                                      Well, as I've never been to Britain, I cannot comment on what/how/why of the way things go there. I'd be bugging them for it. CLII is a good thing, in that it's been caught so early, you have a much better chance beating this than had you waited.

                                                      natasha
                                                      Participant

                                                        Hi! Thank you for your reply and advise!

                                                        I am in UK , Cambridge , but I was diagnosed in Latvia last month.

                                                        All histology report seems to be very strange ,so I will wait for a second opinion here in UK

                                                        Do you mean you was misdiagnosed with Clark's level as well? And could please tell me which level you was if they say you are level 4?

                                                        In my case it is very odd to be 2mm breslow and clark II…

                                                        I heard a lot of good things about Adenbrooks hospital in Cambridge ,UK ,but things are sooo slow.It is take months to get appointment..

                                                      SteveBMe
                                                      Participant

                                                        Hi Natasha.

                                                        you've said nothing of the doctor's you're hooked up with, the region of the country you live in, etc….

                                                        There are plenty of really awesome resources out there, so please make use of this site. Study through, and examine what resources may be available near you.

                                                        I keep hearing more and more stories of people living much longer than they did in the "old days."

                                                        I was clark level IV when I was originally misdiagnosed in 1990. I've seldom heard of clarks level II getting back terminal news over the past few years.

                                                        Follow your doctor's protocols, stay on track, and get CONNECTED with good melanoma doctors.

                                                        Lauri England
                                                        Participant

                                                          No matter what the melanoma diagnosis is there is always chance of survival.  I had a mole removed and SLB and 3 came back positive.  I did almost a year of interferon and so far NED.  Never lose hope.  There are new drugs approved and knowledge of melanoma grows everyday.  This is a great place to come for support as there are so many other people going throught the exact same thing as you and I.  Hang in there and I know it is hard but try to stay positive and always hopeful and dont over worry.

                                                          Lauri England
                                                          Participant

                                                            No matter what the melanoma diagnosis is there is always chance of survival.  I had a mole removed and SLB and 3 came back positive.  I did almost a year of interferon and so far NED.  Never lose hope.  There are new drugs approved and knowledge of melanoma grows everyday.  This is a great place to come for support as there are so many other people going throught the exact same thing as you and I.  Hang in there and I know it is hard but try to stay positive and always hopeful and dont over worry.

                                                            Lauri England
                                                            Participant

                                                              No matter what the melanoma diagnosis is there is always chance of survival.  I had a mole removed and SLB and 3 came back positive.  I did almost a year of interferon and so far NED.  Never lose hope.  There are new drugs approved and knowledge of melanoma grows everyday.  This is a great place to come for support as there are so many other people going throught the exact same thing as you and I.  Hang in there and I know it is hard but try to stay positive and always hopeful and dont over worry.

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