› Forums › General Melanoma Community › Does anyone have the chills with ipi
- This topic has 48 replies, 6 voices, and was last updated 13 years, 3 months ago by
yoopergirl.
- Post
-
- February 19, 2012 at 8:40 pm
I will be having my third infusion tomorrow and the past 2 days I have had the chills so bad, so am thinking is this due to the Yervoy or did I pick up a bug? Last night about 2 am I shook so bad from the chills that I woke up and took some tylenol and then about 4 am was sweeting so bad had to throw the blankets off, now has anyone had this?? I do have the itching I kinda hope this is just a bug. I will have my labs done before I see the doctor so I assume if it is anything that I should worry about it will show up then.
I will be having my third infusion tomorrow and the past 2 days I have had the chills so bad, so am thinking is this due to the Yervoy or did I pick up a bug? Last night about 2 am I shook so bad from the chills that I woke up and took some tylenol and then about 4 am was sweeting so bad had to throw the blankets off, now has anyone had this?? I do have the itching I kinda hope this is just a bug. I will have my labs done before I see the doctor so I assume if it is anything that I should worry about it will show up then. Thanks again, this board has given me so many answers and questions that I have written down for the doctor. yoopergirl
- Replies
-
-
- February 19, 2012 at 8:59 pm
My husband just had his third infusion. He has gotten chills a couple of times while we were sitting watching TV. This happened when he first sat down. I think his leather chair which is always cold doesn't help the feeling of coldness any. Today he mentioned that he has a very slight diarrhea problem. We'll call the doctor tomorrow as instructed.
He also developed Bell's palsy on the left side of his face but neither of the doctors are certain whether this is a side effect of ipi or just an unfortunate coincidence. The palsy developed after the first infusion and seems to be gradually going away. He hasn't had any itching as yet.
-
- February 19, 2012 at 8:59 pm
My husband just had his third infusion. He has gotten chills a couple of times while we were sitting watching TV. This happened when he first sat down. I think his leather chair which is always cold doesn't help the feeling of coldness any. Today he mentioned that he has a very slight diarrhea problem. We'll call the doctor tomorrow as instructed.
He also developed Bell's palsy on the left side of his face but neither of the doctors are certain whether this is a side effect of ipi or just an unfortunate coincidence. The palsy developed after the first infusion and seems to be gradually going away. He hasn't had any itching as yet.
-
- February 19, 2012 at 10:17 pm
That's very interesting about the Bell's palsy. Makes me wonder if the ipi is also causing his body to kill off Lyme Disease bacteria and this is some sort of residual effect from that. The Bell's palsy will go away and but most importantly, I hope it kick's melanoma's butt.
-
- February 19, 2012 at 10:17 pm
That's very interesting about the Bell's palsy. Makes me wonder if the ipi is also causing his body to kill off Lyme Disease bacteria and this is some sort of residual effect from that. The Bell's palsy will go away and but most importantly, I hope it kick's melanoma's butt.
-
- February 19, 2012 at 11:04 pm
Hmmm, that would not be my first guess but I'm not a doctor. Our hematologist told us that he reported it because it happened during the ipi treatment but it was the first case and he and the doctor at the Univ. of Washington thought it was probably coincidental. He also told us that the cause of Bell's isn't known.
We're hoping for some butt kicking too!
Sus
-
- February 19, 2012 at 11:04 pm
Hmmm, that would not be my first guess but I'm not a doctor. Our hematologist told us that he reported it because it happened during the ipi treatment but it was the first case and he and the doctor at the Univ. of Washington thought it was probably coincidental. He also told us that the cause of Bell's isn't known.
We're hoping for some butt kicking too!
Sus
-
- February 19, 2012 at 11:04 pm
Hmmm, that would not be my first guess but I'm not a doctor. Our hematologist told us that he reported it because it happened during the ipi treatment but it was the first case and he and the doctor at the Univ. of Washington thought it was probably coincidental. He also told us that the cause of Bell's isn't known.
We're hoping for some butt kicking too!
Sus
-
- February 19, 2012 at 10:17 pm
That's very interesting about the Bell's palsy. Makes me wonder if the ipi is also causing his body to kill off Lyme Disease bacteria and this is some sort of residual effect from that. The Bell's palsy will go away and but most importantly, I hope it kick's melanoma's butt.
-
- February 19, 2012 at 10:39 pm
Sorry to hear about the Palsy but that will go away. I started with my itching on the second infustion. I have also had some problem with diarrhea but not that bad to use immodenum, I am really hoping that I can have my 3rd treatment and that these chills won't hold it up. Pray that the ipi works for your husband too. yoopergirl
-
- February 19, 2012 at 10:39 pm
Sorry to hear about the Palsy but that will go away. I started with my itching on the second infustion. I have also had some problem with diarrhea but not that bad to use immodenum, I am really hoping that I can have my 3rd treatment and that these chills won't hold it up. Pray that the ipi works for your husband too. yoopergirl
-
- February 19, 2012 at 10:39 pm
Sorry to hear about the Palsy but that will go away. I started with my itching on the second infustion. I have also had some problem with diarrhea but not that bad to use immodenum, I am really hoping that I can have my 3rd treatment and that these chills won't hold it up. Pray that the ipi works for your husband too. yoopergirl
-
- February 19, 2012 at 8:59 pm
My husband just had his third infusion. He has gotten chills a couple of times while we were sitting watching TV. This happened when he first sat down. I think his leather chair which is always cold doesn't help the feeling of coldness any. Today he mentioned that he has a very slight diarrhea problem. We'll call the doctor tomorrow as instructed.
He also developed Bell's palsy on the left side of his face but neither of the doctors are certain whether this is a side effect of ipi or just an unfortunate coincidence. The palsy developed after the first infusion and seems to be gradually going away. He hasn't had any itching as yet.
-
- February 19, 2012 at 11:14 pm
SORRY i CAN'T HELP YOU WITH THE cHILLS PROBLEM SINCE i ONLY GOT MY FIRST iPPY TREATMENT LAST mONDAY..SO FAR..SO GOOD. i JUST WANTED TO WISH YOU GOOD LUCK FOR YOUR TREATMENT TOMORROW.tHIS FORUM HAS BEEN WONDERFUL FOR ME TOO.
jOAN (sorry.. I just saw my Caps were on)
-
- February 19, 2012 at 11:14 pm
SORRY i CAN'T HELP YOU WITH THE cHILLS PROBLEM SINCE i ONLY GOT MY FIRST iPPY TREATMENT LAST mONDAY..SO FAR..SO GOOD. i JUST WANTED TO WISH YOU GOOD LUCK FOR YOUR TREATMENT TOMORROW.tHIS FORUM HAS BEEN WONDERFUL FOR ME TOO.
jOAN (sorry.. I just saw my Caps were on)
-
- February 20, 2012 at 12:13 am
Hi Yoopergirl. I didn’t experience chills, and i’m not familiar with it as a side effect
I saw that you were having some diarrhea issues. I hope you’re feeling better. During my last visit with dr. Wolchok @ Sloan, i mentioned to him that some docs are still putting people on immodium and then systemic steriods for diarrhea (like Prednisone) If you experience diarrhea, you must call your doc, as it can lead to very serious issues. Right in the ipi literature, it says that more than 3-5 movements a day requires treatment with a steroid that works in the gut. It’s called Endocort EC. This way, we can avoid a systemic steroid, like prednisone, which can made us unable to continue ipi infusions. I told him that I used post about this a lot & that I felt like a broken record… He was/is one of the lead researchers responsible for bringing ipi to fruition and he asked me to please post again, so here it is. Also, a bland diet is recommended, and that helped me a lot. I know this doesn’t help your chills, but it was a good opportunity to put the info out there.
All the best,
karen -
- February 20, 2012 at 12:13 am
Hi Yoopergirl. I didn’t experience chills, and i’m not familiar with it as a side effect
I saw that you were having some diarrhea issues. I hope you’re feeling better. During my last visit with dr. Wolchok @ Sloan, i mentioned to him that some docs are still putting people on immodium and then systemic steriods for diarrhea (like Prednisone) If you experience diarrhea, you must call your doc, as it can lead to very serious issues. Right in the ipi literature, it says that more than 3-5 movements a day requires treatment with a steroid that works in the gut. It’s called Endocort EC. This way, we can avoid a systemic steroid, like prednisone, which can made us unable to continue ipi infusions. I told him that I used post about this a lot & that I felt like a broken record… He was/is one of the lead researchers responsible for bringing ipi to fruition and he asked me to please post again, so here it is. Also, a bland diet is recommended, and that helped me a lot. I know this doesn’t help your chills, but it was a good opportunity to put the info out there.
All the best,
karen -
- February 20, 2012 at 12:13 am
Hi Yoopergirl. I didn’t experience chills, and i’m not familiar with it as a side effect
I saw that you were having some diarrhea issues. I hope you’re feeling better. During my last visit with dr. Wolchok @ Sloan, i mentioned to him that some docs are still putting people on immodium and then systemic steriods for diarrhea (like Prednisone) If you experience diarrhea, you must call your doc, as it can lead to very serious issues. Right in the ipi literature, it says that more than 3-5 movements a day requires treatment with a steroid that works in the gut. It’s called Endocort EC. This way, we can avoid a systemic steroid, like prednisone, which can made us unable to continue ipi infusions. I told him that I used post about this a lot & that I felt like a broken record… He was/is one of the lead researchers responsible for bringing ipi to fruition and he asked me to please post again, so here it is. Also, a bland diet is recommended, and that helped me a lot. I know this doesn’t help your chills, but it was a good opportunity to put the info out there.
All the best,
karen -
- February 20, 2012 at 12:13 am
Hi Yoopergirl. I didn’t experience chills, and i’m not familiar with it as a side effect
I saw that you were having some diarrhea issues. I hope you’re feeling better. During my last visit with dr. Wolchok @ Sloan, i mentioned to him that some docs are still putting people on immodium and then systemic steriods for diarrhea (like Prednisone) If you experience diarrhea, you must call your doc, as it can lead to very serious issues. Right in the ipi literature, it says that more than 3-5 movements a day requires treatment with a steroid that works in the gut. It’s called Endocort EC. This way, we can avoid a systemic steroid, like prednisone, which can made us unable to continue ipi infusions. I told him that I used post about this a lot & that I felt like a broken record… He was/is one of the lead researchers responsible for bringing ipi to fruition and he asked me to please post again, so here it is. Also, a bland diet is recommended, and that helped me a lot. I know this doesn’t help your chills, but it was a good opportunity to put the info out there.
All the best,
karen -
- February 20, 2012 at 12:13 am
Hi Yoopergirl. I didn’t experience chills, and i’m not familiar with it as a side effect
I saw that you were having some diarrhea issues. I hope you’re feeling better. During my last visit with dr. Wolchok @ Sloan, i mentioned to him that some docs are still putting people on immodium and then systemic steriods for diarrhea (like Prednisone) If you experience diarrhea, you must call your doc, as it can lead to very serious issues. Right in the ipi literature, it says that more than 3-5 movements a day requires treatment with a steroid that works in the gut. It’s called Endocort EC. This way, we can avoid a systemic steroid, like prednisone, which can made us unable to continue ipi infusions. I told him that I used post about this a lot & that I felt like a broken record… He was/is one of the lead researchers responsible for bringing ipi to fruition and he asked me to please post again, so here it is. Also, a bland diet is recommended, and that helped me a lot. I know this doesn’t help your chills, but it was a good opportunity to put the info out there.
All the best,
karen -
- February 20, 2012 at 12:35 am
Karen.. I am new to the forum and just started Ippy on Monday.. so I am grateful to read your post..in case I get the big"D" I would hate to go on steroids as I am Diabetic..and they would really mess up my blood sugars..so thank you for your post.
Joan
-
- February 20, 2012 at 12:35 am
Karen.. I am new to the forum and just started Ippy on Monday.. so I am grateful to read your post..in case I get the big"D" I would hate to go on steroids as I am Diabetic..and they would really mess up my blood sugars..so thank you for your post.
Joan
-
- February 20, 2012 at 12:35 am
Karen.. I am new to the forum and just started Ippy on Monday.. so I am grateful to read your post..in case I get the big"D" I would hate to go on steroids as I am Diabetic..and they would really mess up my blood sugars..so thank you for your post.
Joan
-
- February 20, 2012 at 9:28 pm
I just got back from my 3rd treatment, my doctor said that I probably have a virus doesn't sound like it is from the ipi. I will keep that in mind about the Endocort EC since my doctor is not familiar with ipi, I am his first patient. I had to call the nurse on call at 1 am since I started running a fever and just felt horrible all over, took some tylenol and this morning no fever so they went ahead with the treatment. yoopergirl
-
- February 20, 2012 at 9:28 pm
I just got back from my 3rd treatment, my doctor said that I probably have a virus doesn't sound like it is from the ipi. I will keep that in mind about the Endocort EC since my doctor is not familiar with ipi, I am his first patient. I had to call the nurse on call at 1 am since I started running a fever and just felt horrible all over, took some tylenol and this morning no fever so they went ahead with the treatment. yoopergirl
-
- February 20, 2012 at 9:28 pm
I just got back from my 3rd treatment, my doctor said that I probably have a virus doesn't sound like it is from the ipi. I will keep that in mind about the Endocort EC since my doctor is not familiar with ipi, I am his first patient. I had to call the nurse on call at 1 am since I started running a fever and just felt horrible all over, took some tylenol and this morning no fever so they went ahead with the treatment. yoopergirl
-
- February 20, 2012 at 12:13 am
Hi Yoopergirl. I didn’t experience chills, and i’m not familiar with it as a side effect
I saw that you were having some diarrhea issues. I hope you’re feeling better. During my last visit with dr. Wolchok @ Sloan, i mentioned to him that some docs are still putting people on immodium and then systemic steriods for diarrhea (like Prednisone) If you experience diarrhea, you must call your doc, as it can lead to very serious issues. Right in the ipi literature, it says that more than 3-5 movements a day requires treatment with a steroid that works in the gut. It’s called Endocort EC. This way, we can avoid a systemic steroid, like prednisone, which can made us unable to continue ipi infusions. I told him that I used post about this a lot & that I felt like a broken record… He was/is one of the lead researchers responsible for bringing ipi to fruition and he asked me to please post again, so here it is. Also, a bland diet is recommended, and that helped me a lot. I know this doesn’t help your chills, but it was a good opportunity to put the info out there.
All the best,
karen
-
- February 19, 2012 at 11:14 pm
SORRY i CAN'T HELP YOU WITH THE cHILLS PROBLEM SINCE i ONLY GOT MY FIRST iPPY TREATMENT LAST mONDAY..SO FAR..SO GOOD. i JUST WANTED TO WISH YOU GOOD LUCK FOR YOUR TREATMENT TOMORROW.tHIS FORUM HAS BEEN WONDERFUL FOR ME TOO.
jOAN (sorry.. I just saw my Caps were on)
-
- February 20, 2012 at 3:07 pm
Hello,
My husband did have some chills and night sweats as well and it was attributed to the Ipi trial he is on. They left after a short time. Please tell your Dr. about them.
Judy (loving wife and caregiver of Gene Stage IV)
-
- February 20, 2012 at 11:55 pm
I just checked the Yervoy pamplet on line which lists all side effects, and they do list:
Tell your doctor immediately ifyou get any of these side effects. Donot try to treat your symptomswith other medicines.Common side effects (affects 1 to10 users in 100)-fever, shivering, lack of energy,
Since your doctor is not familiar w/Ipi, perhaps he should call BMS to check–I'm sure they have a nurse or doctor on call who's familiar with all the side-effects and what to do about them.
Be well,
karen
-
- February 20, 2012 at 11:55 pm
I just checked the Yervoy pamplet on line which lists all side effects, and they do list:
Tell your doctor immediately ifyou get any of these side effects. Donot try to treat your symptomswith other medicines.Common side effects (affects 1 to10 users in 100)-fever, shivering, lack of energy,
Since your doctor is not familiar w/Ipi, perhaps he should call BMS to check–I'm sure they have a nurse or doctor on call who's familiar with all the side-effects and what to do about them.
Be well,
karen
-
- February 22, 2012 at 1:46 am
I am not doing well at all, still have the chills and aches which my doctor thinks it is a virus I am not too sure about that now today have deleloped diarrhea, if this continues tomorrow will have to call the Oncologist nurse so she can ask the doctor what I should do. He did say to take the immodenum when I first saw him but maybe he changed his mind, if this is an isolated episode then the immodenum will work. I will relay some of the information that I saw on this site to him, maybe he will call another doctor to confer with. yoopergirl
-
- February 22, 2012 at 1:46 am
I am not doing well at all, still have the chills and aches which my doctor thinks it is a virus I am not too sure about that now today have deleloped diarrhea, if this continues tomorrow will have to call the Oncologist nurse so she can ask the doctor what I should do. He did say to take the immodenum when I first saw him but maybe he changed his mind, if this is an isolated episode then the immodenum will work. I will relay some of the information that I saw on this site to him, maybe he will call another doctor to confer with. yoopergirl
-
- February 22, 2012 at 1:46 am
I am not doing well at all, still have the chills and aches which my doctor thinks it is a virus I am not too sure about that now today have deleloped diarrhea, if this continues tomorrow will have to call the Oncologist nurse so she can ask the doctor what I should do. He did say to take the immodenum when I first saw him but maybe he changed his mind, if this is an isolated episode then the immodenum will work. I will relay some of the information that I saw on this site to him, maybe he will call another doctor to confer with. yoopergirl
-
- February 20, 2012 at 11:55 pm
I just checked the Yervoy pamplet on line which lists all side effects, and they do list:
Tell your doctor immediately ifyou get any of these side effects. Donot try to treat your symptomswith other medicines.Common side effects (affects 1 to10 users in 100)-fever, shivering, lack of energy,
Since your doctor is not familiar w/Ipi, perhaps he should call BMS to check–I'm sure they have a nurse or doctor on call who's familiar with all the side-effects and what to do about them.
Be well,
karen
-
- You must be logged in to reply to this topic.