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Jim Stynes

Forums General Melanoma Community Jim Stynes

  • Post
    deardad
    Participant

      To the international community on here you may not know Jim Stynes and he wasn't as far as I know I member on this board.

      He fought this disease (stage 4) for nearly 3 years using his high profile as a Australian rules footballer to educate others. He passed away this morning, he was 45yrs old.

      From what I understand he had numerous brain surgeries and in the end was on a antiPD1 trial here in Melbourne which was very new at the time – Nov 2011.

      Another brave warrior lost.

      To the international community on here you may not know Jim Stynes and he wasn't as far as I know I member on this board.

      He fought this disease (stage 4) for nearly 3 years using his high profile as a Australian rules footballer to educate others. He passed away this morning, he was 45yrs old.

      From what I understand he had numerous brain surgeries and in the end was on a antiPD1 trial here in Melbourne which was very new at the time – Nov 2011.

      Another brave warrior lost.

    Viewing 14 reply threads
    • Replies
        aldakota22
        Participant

          Very sorry to hear that news,Must have been a real fighter.Cared for people and wanted to see that others do not get the BIG "C".  Rest in Peace.  Al

          aldakota22
          Participant

            Very sorry to hear that news,Must have been a real fighter.Cared for people and wanted to see that others do not get the BIG "C".  Rest in Peace.  Al

            aldakota22
            Participant

              Very sorry to hear that news,Must have been a real fighter.Cared for people and wanted to see that others do not get the BIG "C".  Rest in Peace.  Al

              FormerCaregiver
              Participant

                I am deeply saddened to read this news. Jim Stynes was an exemplary melanoma warrior and a truly outstanding person.

                My thoughts and prayers are with his family and friends.

                Frank from Australia

                FormerCaregiver
                Participant

                  I am deeply saddened to read this news. Jim Stynes was an exemplary melanoma warrior and a truly outstanding person.

                  My thoughts and prayers are with his family and friends.

                  Frank from Australia

                  FormerCaregiver
                  Participant

                    I am deeply saddened to read this news. Jim Stynes was an exemplary melanoma warrior and a truly outstanding person.

                    My thoughts and prayers are with his family and friends.

                    Frank from Australia

                    AlisonC
                    Participant

                      I just opened The Age online and saw the headlines after reading your post 🙁  I've been following his story and he's been every bit as inspirational with the melanoma as he was with his football career.  I feel so much for his wife and young children.  Such a loss…..

                      AlisonC

                      Stage IIB

                      NED since 2001

                      AlisonC
                      Participant

                        I just opened The Age online and saw the headlines after reading your post 🙁  I've been following his story and he's been every bit as inspirational with the melanoma as he was with his football career.  I feel so much for his wife and young children.  Such a loss…..

                        AlisonC

                        Stage IIB

                        NED since 2001

                        AlisonC
                        Participant

                          I just opened The Age online and saw the headlines after reading your post 🙁  I've been following his story and he's been every bit as inspirational with the melanoma as he was with his football career.  I feel so much for his wife and young children.  Such a loss…..

                          AlisonC

                          Stage IIB

                          NED since 2001

                          benp
                          Participant

                            Very sad news indeed. He seemed to be doing very well given his situation a couple of years ago. He was a true fighter, and a public ambassador against this disease in Australia. A very sad and public reminder about the nature of this disease.

                            benp
                            Participant

                              Very sad news indeed. He seemed to be doing very well given his situation a couple of years ago. He was a true fighter, and a public ambassador against this disease in Australia. A very sad and public reminder about the nature of this disease.

                              benp
                              Participant

                                Very sad news indeed. He seemed to be doing very well given his situation a couple of years ago. He was a true fighter, and a public ambassador against this disease in Australia. A very sad and public reminder about the nature of this disease.

                                Kris Oz
                                Participant

                                  Very, very sad.

                                  It was strange that nowhere was it mentioned that he had melanoma (today was reported brain cancer) but reading between the lines it was clear that it was (but only to those who would know – "lump found on back").  He was very high profile about his fight and it would've been good if it was put out there that it was "just skin cancer".

                                  Feel for his family.

                                    deardad
                                    Participant

                                      I must admit I found that strange too. 

                                      deardad
                                      Participant

                                        I must admit I found that strange too. 

                                        deardad
                                        Participant

                                          I must admit I found that strange too. 

                                          benp
                                          Participant

                                            I did think find this strange too. Perhaps the editors didn't want to confuse people by saying it was melanoma, as it is a common misconception that you can just "cut it out and move along" which seems to persist. Those delightful Wes Bonny melanoma ads on tv (in Aus) do seem to be changing that though. 

                                            deardad
                                            Participant

                                              Perhaps thats true….yes I must admit that ad is very confronting…as this disease is.

                                              I do wonder….why they don't show real lesions that are melanoma in ads so people are aware of what to look for. I know when my dad was diagnosed I searched for picutures and was so surprised how some looked….like nothing at all. And in the case of my dad, his nodular form of the disease grew in an old age spot which was dark brown, itchy and growing and his GP just fobbed it off as nothing! It was only when he returned from holidays OS that it was bleeding and I demanded he get it cut out. Mind you he never showed this spot to me before. Most people do not know what to look for and the misdiagnosis of GPs seems to also be a major problem with early detection of this disease. My dad was not a sun worshipper, in fact he worked in doors all his life. 

                                              Just my two bobs worth…

                                              Nahmi

                                              benp
                                              Participant

                                                I totally agree. Mine was very similar. A nodular melanoma on my scalp that I thought nothing of until it started to bleed, and even then it took me a couple of weeks to get it checked out. It looked nothing like my conception of a melanoma.  I do think there should be more public information about what to look for etc. If I had have been more educated, I may have been more alert and perhaps would not be in the situation I find myself in. Only myself to blame though.

                                                LeanneM
                                                Participant

                                                  I agree too. I think it was shameful the way (presumably) the family did not publicise the melanoma. Given his high profile, it's undoubted that a few lives would have beens saved over the last few years. It's confusing and disappointing that such a great man seemed to let the melanoma cause down by keeping it under wraps. Like I said, at least in Victoria lives would have been saved had he and his family come out and told the public about the cause of his illness. It puts a shameful perspective on a great life as far as I'm concerned. Nothing like the grace of Amy, who used her illness to educate, and save lives in the process before the disease took her too young.

                                                  LeanneM
                                                  Participant

                                                    I agree too. I think it was shameful the way (presumably) the family did not publicise the melanoma. Given his high profile, it's undoubted that a few lives would have beens saved over the last few years. It's confusing and disappointing that such a great man seemed to let the melanoma cause down by keeping it under wraps. Like I said, at least in Victoria lives would have been saved had he and his family come out and told the public about the cause of his illness. It puts a shameful perspective on a great life as far as I'm concerned. Nothing like the grace of Amy, who used her illness to educate, and save lives in the process before the disease took her too young.

                                                    LeanneM
                                                    Participant

                                                      I agree too. I think it was shameful the way (presumably) the family did not publicise the melanoma. Given his high profile, it's undoubted that a few lives would have beens saved over the last few years. It's confusing and disappointing that such a great man seemed to let the melanoma cause down by keeping it under wraps. Like I said, at least in Victoria lives would have been saved had he and his family come out and told the public about the cause of his illness. It puts a shameful perspective on a great life as far as I'm concerned. Nothing like the grace of Amy, who used her illness to educate, and save lives in the process before the disease took her too young.

                                                      benp
                                                      Participant

                                                        I totally agree. Mine was very similar. A nodular melanoma on my scalp that I thought nothing of until it started to bleed, and even then it took me a couple of weeks to get it checked out. It looked nothing like my conception of a melanoma.  I do think there should be more public information about what to look for etc. If I had have been more educated, I may have been more alert and perhaps would not be in the situation I find myself in. Only myself to blame though.

                                                        benp
                                                        Participant

                                                          I totally agree. Mine was very similar. A nodular melanoma on my scalp that I thought nothing of until it started to bleed, and even then it took me a couple of weeks to get it checked out. It looked nothing like my conception of a melanoma.  I do think there should be more public information about what to look for etc. If I had have been more educated, I may have been more alert and perhaps would not be in the situation I find myself in. Only myself to blame though.

                                                          deardad
                                                          Participant

                                                            Perhaps thats true….yes I must admit that ad is very confronting…as this disease is.

                                                            I do wonder….why they don't show real lesions that are melanoma in ads so people are aware of what to look for. I know when my dad was diagnosed I searched for picutures and was so surprised how some looked….like nothing at all. And in the case of my dad, his nodular form of the disease grew in an old age spot which was dark brown, itchy and growing and his GP just fobbed it off as nothing! It was only when he returned from holidays OS that it was bleeding and I demanded he get it cut out. Mind you he never showed this spot to me before. Most people do not know what to look for and the misdiagnosis of GPs seems to also be a major problem with early detection of this disease. My dad was not a sun worshipper, in fact he worked in doors all his life. 

                                                            Just my two bobs worth…

                                                            Nahmi

                                                            deardad
                                                            Participant

                                                              Perhaps thats true….yes I must admit that ad is very confronting…as this disease is.

                                                              I do wonder….why they don't show real lesions that are melanoma in ads so people are aware of what to look for. I know when my dad was diagnosed I searched for picutures and was so surprised how some looked….like nothing at all. And in the case of my dad, his nodular form of the disease grew in an old age spot which was dark brown, itchy and growing and his GP just fobbed it off as nothing! It was only when he returned from holidays OS that it was bleeding and I demanded he get it cut out. Mind you he never showed this spot to me before. Most people do not know what to look for and the misdiagnosis of GPs seems to also be a major problem with early detection of this disease. My dad was not a sun worshipper, in fact he worked in doors all his life. 

                                                              Just my two bobs worth…

                                                              Nahmi

                                                              benp
                                                              Participant

                                                                I did think find this strange too. Perhaps the editors didn't want to confuse people by saying it was melanoma, as it is a common misconception that you can just "cut it out and move along" which seems to persist. Those delightful Wes Bonny melanoma ads on tv (in Aus) do seem to be changing that though. 

                                                                benp
                                                                Participant

                                                                  I did think find this strange too. Perhaps the editors didn't want to confuse people by saying it was melanoma, as it is a common misconception that you can just "cut it out and move along" which seems to persist. Those delightful Wes Bonny melanoma ads on tv (in Aus) do seem to be changing that though. 

                                                                Kris Oz
                                                                Participant

                                                                  Very, very sad.

                                                                  It was strange that nowhere was it mentioned that he had melanoma (today was reported brain cancer) but reading between the lines it was clear that it was (but only to those who would know – "lump found on back").  He was very high profile about his fight and it would've been good if it was put out there that it was "just skin cancer".

                                                                  Feel for his family.

                                                                  Kris Oz
                                                                  Participant

                                                                    Very, very sad.

                                                                    It was strange that nowhere was it mentioned that he had melanoma (today was reported brain cancer) but reading between the lines it was clear that it was (but only to those who would know – "lump found on back").  He was very high profile about his fight and it would've been good if it was put out there that it was "just skin cancer".

                                                                    Feel for his family.

                                                                Viewing 14 reply threads
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