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scans bad

› Forums › General Melanoma Community › scans bad

  • Post
    • April 11, 2012 at 11:53 pm
    bikerwife
    Participant
      scans showed today that some sharnk some grew and some new ones. Dr doesn’t want to wait. For next scan wants to start zelboraf. Also going to do 5 radiation treatments on tumor under arm. I’m confused he said this scan would show growth before we had it. Says he’s afraid if he waits ippi might not work but even though we doing zelboraf ippi might still work.
      Feeling pretty bad at this point. Does any one know anything about zelboraf?

      I’m still prayi

      ng for God to open doors.

    Viewing 5 reply threads
    • Replies
        • April 12, 2012 at 1:02 am
        s Mom
        Participant

          Sorry to hear about those bad scans – hate this disease….

          My son started Zelboraf on March 30th after IL2 failed.   He was pretty sick (couldn't eat without throwing up, had trouble walking due to spine met, and was exhausted and sleeping a lot).  I think it is a miracle drug – he started feeling better right away.  He was playing baseball with his little boy 3 days after his first dose.  Minimal side effects.   Keep praying – those doors will open.

          Take care,

          Bridgette (Jeff's Mom)

          • April 12, 2012 at 1:02 am
          s Mom
          Participant

            Sorry to hear about those bad scans – hate this disease….

            My son started Zelboraf on March 30th after IL2 failed.   He was pretty sick (couldn't eat without throwing up, had trouble walking due to spine met, and was exhausted and sleeping a lot).  I think it is a miracle drug – he started feeling better right away.  He was playing baseball with his little boy 3 days after his first dose.  Minimal side effects.   Keep praying – those doors will open.

            Take care,

            Bridgette (Jeff's Mom)

            • April 12, 2012 at 1:02 am
            s Mom
            Participant

              Sorry to hear about those bad scans – hate this disease….

              My son started Zelboraf on March 30th after IL2 failed.   He was pretty sick (couldn't eat without throwing up, had trouble walking due to spine met, and was exhausted and sleeping a lot).  I think it is a miracle drug – he started feeling better right away.  He was playing baseball with his little boy 3 days after his first dose.  Minimal side effects.   Keep praying – those doors will open.

              Take care,

              Bridgette (Jeff's Mom)

                • April 12, 2012 at 1:39 am
                bikerwife
                Participant
                  Thank you for the encouraging words. God give miracles each day. Today just wasn’t our day and we press on till the next day. Ill keep praying for lynn and your family.
                  • April 12, 2012 at 1:39 am
                  bikerwife
                  Participant
                    Thank you for the encouraging words. God give miracles each day. Today just wasn’t our day and we press on till the next day. Ill keep praying for lynn and your family.
                    • April 12, 2012 at 1:39 am
                    bikerwife
                    Participant
                      Thank you for the encouraging words. God give miracles each day. Today just wasn’t our day and we press on till the next day. Ill keep praying for lynn and your family.
                      • April 12, 2012 at 1:54 am
                      deardad
                      Participant

                        Sorry to hear about husband.

                        Zelboraf works quickly and is a good option right now, in most people they have a partial response and the average durability is 6 months.

                        My dad is still on Zelboraf after 6 months but its starting to loose its effectiveness unfortunately so we need to look at another plan.

                        The key of this drug is that it can shrink tumors and give relief so if your oncologist is recommending it…go for it. In the meantime have another plan of attack.

                        All the best,

                        Nahmi from Melbourne

                        • April 12, 2012 at 1:54 am
                        deardad
                        Participant

                          Sorry to hear about husband.

                          Zelboraf works quickly and is a good option right now, in most people they have a partial response and the average durability is 6 months.

                          My dad is still on Zelboraf after 6 months but its starting to loose its effectiveness unfortunately so we need to look at another plan.

                          The key of this drug is that it can shrink tumors and give relief so if your oncologist is recommending it…go for it. In the meantime have another plan of attack.

                          All the best,

                          Nahmi from Melbourne

                          • April 12, 2012 at 1:54 am
                          deardad
                          Participant

                            Sorry to hear about husband.

                            Zelboraf works quickly and is a good option right now, in most people they have a partial response and the average durability is 6 months.

                            My dad is still on Zelboraf after 6 months but its starting to loose its effectiveness unfortunately so we need to look at another plan.

                            The key of this drug is that it can shrink tumors and give relief so if your oncologist is recommending it…go for it. In the meantime have another plan of attack.

                            All the best,

                            Nahmi from Melbourne

                            • April 12, 2012 at 3:12 am
                            24hourmom
                            Participant

                              My husband started zelboraf in September and  he had such wonderful shrinkage in all areas of tumor burden on his scan results in December that all of his doctors called it a miracle. The only effects he had was dry/itchy patches of skin, complete exhaustion and joint pain. The joint pain would move, it wasn't necessarily in the same places but just continually achey.

                              • April 12, 2012 at 3:12 am
                              24hourmom
                              Participant

                                My husband started zelboraf in September and  he had such wonderful shrinkage in all areas of tumor burden on his scan results in December that all of his doctors called it a miracle. The only effects he had was dry/itchy patches of skin, complete exhaustion and joint pain. The joint pain would move, it wasn't necessarily in the same places but just continually achey.

                                • April 12, 2012 at 3:12 am
                                24hourmom
                                Participant

                                  My husband started zelboraf in September and  he had such wonderful shrinkage in all areas of tumor burden on his scan results in December that all of his doctors called it a miracle. The only effects he had was dry/itchy patches of skin, complete exhaustion and joint pain. The joint pain would move, it wasn't necessarily in the same places but just continually achey.

                                • April 12, 2012 at 5:47 am
                                Ali
                                Participant

                                  I hope the ipi does kick in.  Prayers for you!

                                  Ali

                                  • April 12, 2012 at 5:47 am
                                  Ali
                                  Participant

                                    I hope the ipi does kick in.  Prayers for you!

                                    Ali

                                    • April 12, 2012 at 5:47 am
                                    Ali
                                    Participant

                                      I hope the ipi does kick in.  Prayers for you!

                                      Ali

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