The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Yervoy side effects

Forums General Melanoma Community Yervoy side effects

  • Post
    OB Mike
    Participant
      After 2 stomach resections I developed a new tumor in my abdomen. It is now quite large! I finished four doses of ippi in mid-April without any noticeable side effects… But now I seem to be having “minor” delayed effects?! Fatigue, lethargy, dehydration, low blood pressure, blood clotting DVT, mild diarrea and eye pain! I have had two blood transfusions and a hydration IV. I am on blood thinner shots, blood pressure meds and started narcotics for pain. So I guess my question is…

      After 2 stomach resections I developed a new tumor in my abdomen. It is now quite large! I finished four doses of ippi in mid-April without any noticeable side effects… But now I seem to be having “minor” delayed effects?! Fatigue, lethargy, dehydration, low blood pressure, blood clotting DVT, mild diarrea and eye pain! I have had two blood transfusions and a hydration IV. I am on blood thinner shots, blood pressure meds and started narcotics for pain. So I guess my question is… Can just the cancer cause all these effects and/ or is it the battle with the ippi, a sign that it may be working?

    Viewing 2 reply threads
    • Replies
        Tim–MRF
        Guest

          Mike:

          I can't speak to the symptoms you are seeing being delayed side effects, but from what I understand the intensity of side effects are not an indicator of response.  Side effects vary greatly from patient to patient, as to responses, but so far as I know the two are not connected for Yervoy patients.

           

          Tim–MRF

          Tim–MRF
          Guest

            Mike:

            I can't speak to the symptoms you are seeing being delayed side effects, but from what I understand the intensity of side effects are not an indicator of response.  Side effects vary greatly from patient to patient, as to responses, but so far as I know the two are not connected for Yervoy patients.

             

            Tim–MRF

            Tim–MRF
            Guest

              Mike:

              I can't speak to the symptoms you are seeing being delayed side effects, but from what I understand the intensity of side effects are not an indicator of response.  Side effects vary greatly from patient to patient, as to responses, but so far as I know the two are not connected for Yervoy patients.

               

              Tim–MRF

                emichaelward
                Participant

                  I finished the four yervoy infusions in February with mild fatigue and diarrhea .. Afterward the fatigue began to slowly worsen, and my speech and memory were affected. Turns out my immune system attached my pituitary gland swelling it (it's in the brain) which caused the speech/memory problem. But it also stopped providing the normal steroids and that caused the incredible fatigue. Oral steroids brought the levels back up and I feel great.

                   

                  Scans shows diminished tumors so all is well so far. 

                  emichaelward
                  Participant

                    I finished the four yervoy infusions in February with mild fatigue and diarrhea .. Afterward the fatigue began to slowly worsen, and my speech and memory were affected. Turns out my immune system attached my pituitary gland swelling it (it's in the brain) which caused the speech/memory problem. But it also stopped providing the normal steroids and that caused the incredible fatigue. Oral steroids brought the levels back up and I feel great.

                     

                    Scans shows diminished tumors so all is well so far. 

                    emichaelward
                    Participant

                      I finished the four yervoy infusions in February with mild fatigue and diarrhea .. Afterward the fatigue began to slowly worsen, and my speech and memory were affected. Turns out my immune system attached my pituitary gland swelling it (it's in the brain) which caused the speech/memory problem. But it also stopped providing the normal steroids and that caused the incredible fatigue. Oral steroids brought the levels back up and I feel great.

                       

                      Scans shows diminished tumors so all is well so far. 

                Viewing 2 reply threads
                • You must be logged in to reply to this topic.
                About the MRF Patient Forum

                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                Popular Topics