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Zelbroaf benefit short lived
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Zelbroaf benefit short lived

› Forums › General Melanoma Community › Zelbroaf benefit short lived

  • Post
    • September 12, 2012 at 10:00 pm
    Erinmay22
    Participant
      In May we found a small spot on small intestine. Started zelboraf end of may. Scans in July showed shrinkage. Scans done Monday show growth again. I wasn’t surprised since my stomach had been having issues. So plan is to do surgery to just cut it out (which I wanted originally anyway). And start ipi on Tuesday.

      So it’s been a rough week. To top it off my poor dog Dublin got hit by a car while we were crossing the street on Monday night. He’s ok. Just a messed up back foot. Poor guy.

      Not looking forward to intestine surgery… But feel much more comfortable just having the spot cut out! I told my doctor my mom is still hoping its just parasites I picked up in Thailand .

      Cheers!
      Erin

    Viewing 20 reply threads
    • Replies
        • September 12, 2012 at 11:03 pm
        gabsound
        Participant
          Erin,

          Good luck with the surgery. I’m with you on just “cut it out”. I hope they can completely excise it and that you have a smooth recovery.

          Julie in las Vegas

          • September 12, 2012 at 11:03 pm
          gabsound
          Participant
            Erin,

            Good luck with the surgery. I’m with you on just “cut it out”. I hope they can completely excise it and that you have a smooth recovery.

            Julie in las Vegas

            • September 12, 2012 at 11:03 pm
            gabsound
            Participant
              Erin,

              Good luck with the surgery. I’m with you on just “cut it out”. I hope they can completely excise it and that you have a smooth recovery.

              Julie in las Vegas

              • September 12, 2012 at 11:04 pm
              s Mom
              Participant

                Dear Erin,

                I'll be praying for you – keep us informed and I hope Ippi works after the surgery 🙂  Keep fighting!!

                Jeff's Mom (Bridgette)

                  • September 12, 2012 at 11:07 pm
                  deardad
                  Participant

                    Sorry to hear that Zel has stopped. All the best with your surgery and hope that IPI can clean up the rest. Ali from Australia posted a really positive result from IPI recently.

                    Sorry about your dog too, how stressful.

                    Nahmi

                    • September 12, 2012 at 11:07 pm
                    deardad
                    Participant

                      Sorry to hear that Zel has stopped. All the best with your surgery and hope that IPI can clean up the rest. Ali from Australia posted a really positive result from IPI recently.

                      Sorry about your dog too, how stressful.

                      Nahmi

                      • September 12, 2012 at 11:07 pm
                      deardad
                      Participant

                        Sorry to hear that Zel has stopped. All the best with your surgery and hope that IPI can clean up the rest. Ali from Australia posted a really positive result from IPI recently.

                        Sorry about your dog too, how stressful.

                        Nahmi

                      • September 12, 2012 at 11:04 pm
                      s Mom
                      Participant

                        Dear Erin,

                        I'll be praying for you – keep us informed and I hope Ippi works after the surgery 🙂  Keep fighting!!

                        Jeff's Mom (Bridgette)

                        • September 12, 2012 at 11:04 pm
                        s Mom
                        Participant

                          Dear Erin,

                          I'll be praying for you – keep us informed and I hope Ippi works after the surgery 🙂  Keep fighting!!

                          Jeff's Mom (Bridgette)

                          • September 12, 2012 at 11:50 pm
                          vivian
                          Participant

                            Erin,

                            I will be thinking about you with the surgery and the Ipi.  So sorry the zel stopped working, but I am positive your docs at Sloan know what they are doing and cutting it out sounds great.  (Although I really like your mom's theory of a Thai parasite instead of melanoma!)  Please keep us posted as you go through this next stage of treatment.  I will be holding you in the light.  

                            Lear

                            • September 12, 2012 at 11:50 pm
                            vivian
                            Participant

                              Erin,

                              I will be thinking about you with the surgery and the Ipi.  So sorry the zel stopped working, but I am positive your docs at Sloan know what they are doing and cutting it out sounds great.  (Although I really like your mom's theory of a Thai parasite instead of melanoma!)  Please keep us posted as you go through this next stage of treatment.  I will be holding you in the light.  

                              Lear

                              • September 12, 2012 at 11:50 pm
                              vivian
                              Participant

                                Erin,

                                I will be thinking about you with the surgery and the Ipi.  So sorry the zel stopped working, but I am positive your docs at Sloan know what they are doing and cutting it out sounds great.  (Although I really like your mom's theory of a Thai parasite instead of melanoma!)  Please keep us posted as you go through this next stage of treatment.  I will be holding you in the light.  

                                Lear

                                • September 13, 2012 at 12:10 am
                                awillett1991
                                Participant
                                  Erin – so sorry to hear this news. I see my onc on Monday for results of a follow up CT, my PET showed continued shrinkage in my heart tumor but multiple new lymph nodes lighting up in my chest/abdomen. Also switching to IPI. Are you really doing surgery one day then IPI the next?? Ypu go girl! My doc said I would need a couple weeks off Zel which I am not happy about. Best of luck to you!!

                                  Amy

                                  • September 13, 2012 at 12:10 am
                                  awillett1991
                                  Participant
                                    Erin – so sorry to hear this news. I see my onc on Monday for results of a follow up CT, my PET showed continued shrinkage in my heart tumor but multiple new lymph nodes lighting up in my chest/abdomen. Also switching to IPI. Are you really doing surgery one day then IPI the next?? Ypu go girl! My doc said I would need a couple weeks off Zel which I am not happy about. Best of luck to you!!

                                    Amy

                                    • September 13, 2012 at 12:10 am
                                    awillett1991
                                    Participant
                                      Erin – so sorry to hear this news. I see my onc on Monday for results of a follow up CT, my PET showed continued shrinkage in my heart tumor but multiple new lymph nodes lighting up in my chest/abdomen. Also switching to IPI. Are you really doing surgery one day then IPI the next?? Ypu go girl! My doc said I would need a couple weeks off Zel which I am not happy about. Best of luck to you!!

                                      Amy

                                      • September 13, 2012 at 12:24 am
                                      aldakota22
                                      Participant

                                        Bad break with the"Z".See where it was a hard week for you.Praying that the weeks ahead only get better and better for you.Beat the Best.  Al

                                        • September 13, 2012 at 12:24 am
                                        aldakota22
                                        Participant

                                          Bad break with the"Z".See where it was a hard week for you.Praying that the weeks ahead only get better and better for you.Beat the Best.  Al

                                          • September 13, 2012 at 12:24 am
                                          aldakota22
                                          Participant

                                            Bad break with the"Z".See where it was a hard week for you.Praying that the weeks ahead only get better and better for you.Beat the Best.  Al

                                            • September 13, 2012 at 12:42 am
                                            Tina D
                                            Participant

                                              Erin,

                                              I am sorry to hear that… I agree that the parasite theory is  one that sounds good to me too! I have to say that having the mel surgically removed just always seems to feel better. Coming out of the OR knowing it is gone. I am surprised they are starting the ipi right after surgery!We will look forward to hearing of your good progress. Praying for you with the upcoming surgery…

                                              Tina

                                                • September 13, 2012 at 1:13 am
                                                Erinmay22
                                                Participant
                                                  Thanks everyone. Oh sorry for confusion. I am pretty tough, but not that tough., Surgery hasn’t been scheduled yet. I meet with the surgeon Monday. In the meantime we are going to start ipi.

                                                  I don’t think surgery will be fun at all but peace of mind will be better!

                                                  Stay tuned! Will know more about surgery after I have my appointment Monday!

                                                  • September 13, 2012 at 1:13 am
                                                  Erinmay22
                                                  Participant
                                                    Thanks everyone. Oh sorry for confusion. I am pretty tough, but not that tough., Surgery hasn’t been scheduled yet. I meet with the surgeon Monday. In the meantime we are going to start ipi.

                                                    I don’t think surgery will be fun at all but peace of mind will be better!

                                                    Stay tuned! Will know more about surgery after I have my appointment Monday!

                                                    • September 13, 2012 at 1:13 am
                                                    Erinmay22
                                                    Participant
                                                      Thanks everyone. Oh sorry for confusion. I am pretty tough, but not that tough., Surgery hasn’t been scheduled yet. I meet with the surgeon Monday. In the meantime we are going to start ipi.

                                                      I don’t think surgery will be fun at all but peace of mind will be better!

                                                      Stay tuned! Will know more about surgery after I have my appointment Monday!

                                                    • September 13, 2012 at 12:42 am
                                                    Tina D
                                                    Participant

                                                      Erin,

                                                      I am sorry to hear that… I agree that the parasite theory is  one that sounds good to me too! I have to say that having the mel surgically removed just always seems to feel better. Coming out of the OR knowing it is gone. I am surprised they are starting the ipi right after surgery!We will look forward to hearing of your good progress. Praying for you with the upcoming surgery…

                                                      Tina

                                                      • September 13, 2012 at 12:42 am
                                                      Tina D
                                                      Participant

                                                        Erin,

                                                        I am sorry to hear that… I agree that the parasite theory is  one that sounds good to me too! I have to say that having the mel surgically removed just always seems to feel better. Coming out of the OR knowing it is gone. I am surprised they are starting the ipi right after surgery!We will look forward to hearing of your good progress. Praying for you with the upcoming surgery…

                                                        Tina

                                                        • September 14, 2012 at 6:12 pm
                                                        dellriol
                                                        Participant

                                                          Sorry to hearabout your whole week. Good luck with your surgery.

                                                          • September 14, 2012 at 6:12 pm
                                                          dellriol
                                                          Participant

                                                            Sorry to hearabout your whole week. Good luck with your surgery.

                                                            • September 14, 2012 at 6:12 pm
                                                            dellriol
                                                            Participant

                                                              Sorry to hearabout your whole week. Good luck with your surgery.

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