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New with a few questions Stage 2

Forums Cutaneous Melanoma Community New with a few questions Stage 2

  • Post
    amandamini
    Participant

      Hi all,

       

      Hi all,

       

      I was diagnosed with stage 2 Melanoma Oct. 2012.   I gave birth to a beautiful and heathy baby girl in May of this year.  During this pregnancy my husband saw a mole on my back and asked me how long I have had it.  I looked in the mirror and thought huh?  I don't recall seeing it before.  But maybe I just never noticed it. After all it is on my back. That was it.   Strange how unconcerned I was.  I was not educated on skin cancer at all!  I finally decided to make an appointment to get it checked out.  The Derm did the biopsy and a week later got the diagnoses.  So here I am…  Terrified for myself and my family.

       Tomorrow I am going into surgery to have the SNB and the excision. This week they did a Lymphoscintogram and located the sentinal node or I should say nodes as it went to 2 places.  Both my arm pits.  My first question is how is it staged when they do not know if it has spread?  When the Derm.  called me he said that it was 1.00mm which is stage 2.  Everything I have read indicates to me that it really has not been staged yet.  Also he referred me to a plastic surgeon.  Should I go to an oncologist?  Also diet-  I have read a lot about vegan diets and how it can help your body fight cancer.  I would love to hear any and all thoughts on this.

      I would love to hear your stories as well!

      Amanda

    Viewing 14 reply threads
    • Replies
        dellriol
        Participant

          Does your report say Breslow stage 2? That is different than stage 2. Those two get confused alot by newly diagnosed people.  I think they won't know actual stage til after your surgery tomorrow.  So get through tomorrow. This can be some scary stuff, especially when you have small chidren.  But take a breath and TRY not to worry too much until you have those  results.  (I know that's impossible, but try)  One thing I've learned from my experience is that you have to find out exactly what you have before you can decide what to do.  I'll say prayers for you tonight that your outcome will be good.

          As to diet, most diet info I've seen from cancer society promotes a balanced diet, with a variety of fruits and veggies. 

          dellriol
          Participant

            Does your report say Breslow stage 2? That is different than stage 2. Those two get confused alot by newly diagnosed people.  I think they won't know actual stage til after your surgery tomorrow.  So get through tomorrow. This can be some scary stuff, especially when you have small chidren.  But take a breath and TRY not to worry too much until you have those  results.  (I know that's impossible, but try)  One thing I've learned from my experience is that you have to find out exactly what you have before you can decide what to do.  I'll say prayers for you tonight that your outcome will be good.

            As to diet, most diet info I've seen from cancer society promotes a balanced diet, with a variety of fruits and veggies. 

            dellriol
            Participant

              Does your report say Breslow stage 2? That is different than stage 2. Those two get confused alot by newly diagnosed people.  I think they won't know actual stage til after your surgery tomorrow.  So get through tomorrow. This can be some scary stuff, especially when you have small chidren.  But take a breath and TRY not to worry too much until you have those  results.  (I know that's impossible, but try)  One thing I've learned from my experience is that you have to find out exactly what you have before you can decide what to do.  I'll say prayers for you tonight that your outcome will be good.

              As to diet, most diet info I've seen from cancer society promotes a balanced diet, with a variety of fruits and veggies. 

              Janner
              Participant

                You get an initial staging based on the depth and other aspects of the lesion.  Then you may be restaged if the SNB is positive.  The second staging is for indication of spread.  You don't say if your lesion was ulcerated.  Basically, in order for a 1mm lesion to be stage II, it would have to be ulcerated.  This is a pathological description.  If it is not ulcerated, this is a stage I lesion.  If it has ulceration, it is stage IIA.  Getting a copy of your pathology report can give you all the information you need, and it's a good thing to have for your own files.

                You should be seeing a surgical oncologist to do the SNB.  There may be some plastic surgeons trained in doing the SNB, but you want someone who knows their stuff.  If your SNB is negative, there's not a whole lot an oncologist can do for you.  If it is positive, you definitely want to be working with a melanoma specialist if at all possible.

                As for diet, I've seen all extremes on this site over the years.  I've never seen any indication that diet alone can cure/prevent cancer.  Many people change their diet because it gives them a sense of control over a disease where we have no control.  If it makes you feel more empowered, certainly diet change is something you can do.  But I wouldn't expect a vegan diet to change your ultimate outcome.  

                Good luck on your surgeries!

                Janner

                Janner
                Participant

                  You get an initial staging based on the depth and other aspects of the lesion.  Then you may be restaged if the SNB is positive.  The second staging is for indication of spread.  You don't say if your lesion was ulcerated.  Basically, in order for a 1mm lesion to be stage II, it would have to be ulcerated.  This is a pathological description.  If it is not ulcerated, this is a stage I lesion.  If it has ulceration, it is stage IIA.  Getting a copy of your pathology report can give you all the information you need, and it's a good thing to have for your own files.

                  You should be seeing a surgical oncologist to do the SNB.  There may be some plastic surgeons trained in doing the SNB, but you want someone who knows their stuff.  If your SNB is negative, there's not a whole lot an oncologist can do for you.  If it is positive, you definitely want to be working with a melanoma specialist if at all possible.

                  As for diet, I've seen all extremes on this site over the years.  I've never seen any indication that diet alone can cure/prevent cancer.  Many people change their diet because it gives them a sense of control over a disease where we have no control.  If it makes you feel more empowered, certainly diet change is something you can do.  But I wouldn't expect a vegan diet to change your ultimate outcome.  

                  Good luck on your surgeries!

                  Janner

                    POW
                    Participant

                      I agree with Janner– you are most probably a Stage I or just possibly a Stage IIA. In either case, you caught it early and your prognosis is excellent. My hat is off to your wonderful husband for noticing and calling your attention to this "strange" mole. He probably saved your life! Give him a big hug and a kiss for me. 

                      POW
                      Participant

                        I agree with Janner– you are most probably a Stage I or just possibly a Stage IIA. In either case, you caught it early and your prognosis is excellent. My hat is off to your wonderful husband for noticing and calling your attention to this "strange" mole. He probably saved your life! Give him a big hug and a kiss for me. 

                        POW
                        Participant

                          I agree with Janner– you are most probably a Stage I or just possibly a Stage IIA. In either case, you caught it early and your prognosis is excellent. My hat is off to your wonderful husband for noticing and calling your attention to this "strange" mole. He probably saved your life! Give him a big hug and a kiss for me. 

                        Janner
                        Participant

                          You get an initial staging based on the depth and other aspects of the lesion.  Then you may be restaged if the SNB is positive.  The second staging is for indication of spread.  You don't say if your lesion was ulcerated.  Basically, in order for a 1mm lesion to be stage II, it would have to be ulcerated.  This is a pathological description.  If it is not ulcerated, this is a stage I lesion.  If it has ulceration, it is stage IIA.  Getting a copy of your pathology report can give you all the information you need, and it's a good thing to have for your own files.

                          You should be seeing a surgical oncologist to do the SNB.  There may be some plastic surgeons trained in doing the SNB, but you want someone who knows their stuff.  If your SNB is negative, there's not a whole lot an oncologist can do for you.  If it is positive, you definitely want to be working with a melanoma specialist if at all possible.

                          As for diet, I've seen all extremes on this site over the years.  I've never seen any indication that diet alone can cure/prevent cancer.  Many people change their diet because it gives them a sense of control over a disease where we have no control.  If it makes you feel more empowered, certainly diet change is something you can do.  But I wouldn't expect a vegan diet to change your ultimate outcome.  

                          Good luck on your surgeries!

                          Janner

                          mel123
                          Participant

                            Hi, I am so sorry you're going through this, especially with a little baby to take care of! Hopefully your lymph node biopsy will come back negative, and this will be the last you have to deal with, aside from frequent check ups. I just wanted to share a little bit about my personal experience, just in case you unfortunately encounter the same thing I did. My SNB came back negative in July 2011, and I continued with my 3 month dermatologist checkups, but no one really told me I needed to have follow up tests done or see an oncologist until one year later, when my derm felt a mass in my lymph nodes. After scans and a biopsy, it was discovered that the melanoma had spread, and I had my lymph nodes under my left arm removed in August 2012. I don't say that to scare you or make you more anxious than you already are, but I can't help but wonder if she would have told me I needed any of these scans or appointments with oncologists if she hadn't felt that mass (I changed dermatologists after that, because that was the final straw of a long line of issues I'd had with that practice). I had asked my surgeon about follow ups, and he seemed unconcerned, but I never did ask the dermatologist, and although I feel like it was their responsbility to tell me what my follow up care was, I still should have asked, and the outcome probably wouldn't have changed, but at least I would have been informed and more prepared. I really thought I was in the clear as long as no new primary melanomas showed up (I didn't do much research until after my lymph nodes were removed). So don't be afraid to ask questions and push for answers!!

                            Also, on the diet part, I believe that the healthier your body is, the better able you will be to fight off any disease. It's no guarantee, just like drug treatment, but it most certainly can't hurt to add more fruits & veggies to your diet! I actually just got a blendtec blender so I can juice greens, to add a little more nutrients to my diet. But I also just ate some halloween candy, so you know, it's all about balance ๐Ÿ™‚

                            You are probably having surgery or you're recovering right now, so best wishes for a speedy recovery and some good results! Take advantage of having your husband and family/friends taking care of you!

                             

                            Melissa

                            mel123
                            Participant

                              Hi, I am so sorry you're going through this, especially with a little baby to take care of! Hopefully your lymph node biopsy will come back negative, and this will be the last you have to deal with, aside from frequent check ups. I just wanted to share a little bit about my personal experience, just in case you unfortunately encounter the same thing I did. My SNB came back negative in July 2011, and I continued with my 3 month dermatologist checkups, but no one really told me I needed to have follow up tests done or see an oncologist until one year later, when my derm felt a mass in my lymph nodes. After scans and a biopsy, it was discovered that the melanoma had spread, and I had my lymph nodes under my left arm removed in August 2012. I don't say that to scare you or make you more anxious than you already are, but I can't help but wonder if she would have told me I needed any of these scans or appointments with oncologists if she hadn't felt that mass (I changed dermatologists after that, because that was the final straw of a long line of issues I'd had with that practice). I had asked my surgeon about follow ups, and he seemed unconcerned, but I never did ask the dermatologist, and although I feel like it was their responsbility to tell me what my follow up care was, I still should have asked, and the outcome probably wouldn't have changed, but at least I would have been informed and more prepared. I really thought I was in the clear as long as no new primary melanomas showed up (I didn't do much research until after my lymph nodes were removed). So don't be afraid to ask questions and push for answers!!

                              Also, on the diet part, I believe that the healthier your body is, the better able you will be to fight off any disease. It's no guarantee, just like drug treatment, but it most certainly can't hurt to add more fruits & veggies to your diet! I actually just got a blendtec blender so I can juice greens, to add a little more nutrients to my diet. But I also just ate some halloween candy, so you know, it's all about balance ๐Ÿ™‚

                              You are probably having surgery or you're recovering right now, so best wishes for a speedy recovery and some good results! Take advantage of having your husband and family/friends taking care of you!

                               

                              Melissa

                              mel123
                              Participant

                                Hi, I am so sorry you're going through this, especially with a little baby to take care of! Hopefully your lymph node biopsy will come back negative, and this will be the last you have to deal with, aside from frequent check ups. I just wanted to share a little bit about my personal experience, just in case you unfortunately encounter the same thing I did. My SNB came back negative in July 2011, and I continued with my 3 month dermatologist checkups, but no one really told me I needed to have follow up tests done or see an oncologist until one year later, when my derm felt a mass in my lymph nodes. After scans and a biopsy, it was discovered that the melanoma had spread, and I had my lymph nodes under my left arm removed in August 2012. I don't say that to scare you or make you more anxious than you already are, but I can't help but wonder if she would have told me I needed any of these scans or appointments with oncologists if she hadn't felt that mass (I changed dermatologists after that, because that was the final straw of a long line of issues I'd had with that practice). I had asked my surgeon about follow ups, and he seemed unconcerned, but I never did ask the dermatologist, and although I feel like it was their responsbility to tell me what my follow up care was, I still should have asked, and the outcome probably wouldn't have changed, but at least I would have been informed and more prepared. I really thought I was in the clear as long as no new primary melanomas showed up (I didn't do much research until after my lymph nodes were removed). So don't be afraid to ask questions and push for answers!!

                                Also, on the diet part, I believe that the healthier your body is, the better able you will be to fight off any disease. It's no guarantee, just like drug treatment, but it most certainly can't hurt to add more fruits & veggies to your diet! I actually just got a blendtec blender so I can juice greens, to add a little more nutrients to my diet. But I also just ate some halloween candy, so you know, it's all about balance ๐Ÿ™‚

                                You are probably having surgery or you're recovering right now, so best wishes for a speedy recovery and some good results! Take advantage of having your husband and family/friends taking care of you!

                                 

                                Melissa

                                JC
                                Participant

                                  If Stage I, they usually don't do scans unless there are symptoms, etc… 

                                  JC
                                  Participant

                                    If Stage I, they usually don't do scans unless there are symptoms, etc… 

                                    JC
                                    Participant

                                      If Stage I, they usually don't do scans unless there are symptoms, etc… 

                                      amandamini
                                      Participant
                                        Thanks to all that responded. My SNB came back clear!! I have a follow up on Wed. I am going to request a copy of the path report and ask all my questions then. Thanks again!!!
                                        amandamini
                                        Participant
                                          Thanks to all that responded. My SNB came back clear!! I have a follow up on Wed. I am going to request a copy of the path report and ask all my questions then. Thanks again!!!
                                          amandamini
                                          Participant
                                            Thanks to all that responded. My SNB came back clear!! I have a follow up on Wed. I am going to request a copy of the path report and ask all my questions then. Thanks again!!!
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