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Yervoy & pituitary problems??
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Yervoy & pituitary problems??

› Forums › General Melanoma Community › Yervoy & pituitary problems??

  • Post
    • October 23, 2012 at 1:37 am
    awillett1991
    Participant
      Literally JUST finishing my 2nd dose of IPI and got scheduled for a brain MRI Thursday and extra labs to check pituitary due to extremely low (.03)!! TSH and very minor headache. Cortisol and Total T4 are completely normal. My doc actually called my labs”wacky”. Talking about steroids again although I just got off these for stopping Zel. Can anyone shed any light on this? If you have pituitary problems and need steroids can you continue on Yervoy??

      Thanks!!

      Literally JUST finishing my 2nd dose of IPI and got scheduled for a brain MRI Thursday and extra labs to check pituitary due to extremely low (.03)!! TSH and very minor headache. Cortisol and Total T4 are completely normal. My doc actually called my labs”wacky”. Talking about steroids again although I just got off these for stopping Zel. Can anyone shed any light on this? If you have pituitary problems and need steroids can you continue on Yervoy??

      Thanks!!

    Viewing 8 reply threads
    • Replies
        • October 23, 2012 at 1:14 pm
        Gene_S
        Participant

          My husbands body quit producing prednisone.  So he is on a low dose prednisone of 7.5 mg a day which is the amount a body normally produces and he is still on yervoy.  He is in a clinical trial for 19 months now.  Maybe this is what they are talking about for you.

          Judy (loving wife of Gene Stage IV but presently NED)

            • October 23, 2012 at 5:46 pm
            awillett1991
            Participant
              Thanks Judy. This Yervoy stuff is all new to me. I’m glad to know you can be on steroids and still have a great response.

              Amy

              • October 23, 2012 at 5:46 pm
              awillett1991
              Participant
                Thanks Judy. This Yervoy stuff is all new to me. I’m glad to know you can be on steroids and still have a great response.

                Amy

                • October 23, 2012 at 7:32 pm
                NYKaren
                Participant

                  Hi there.  I believe that the Yervoy literature states that one can be on on steroids at 7.5 mg/day or less and remain on Yervoy.

                  I  had a terrible case of colitis as side effect of Yervoy, and as a result of steroids developed adrenal insufficiency.  Had to go BACK on steroids to get rid of that.  The colitis came after my 3rd infusion…there was no 4th!

                  Good luck and let us know how you're doing.

                  karen

                  • October 23, 2012 at 7:32 pm
                  NYKaren
                  Participant

                    Hi there.  I believe that the Yervoy literature states that one can be on on steroids at 7.5 mg/day or less and remain on Yervoy.

                    I  had a terrible case of colitis as side effect of Yervoy, and as a result of steroids developed adrenal insufficiency.  Had to go BACK on steroids to get rid of that.  The colitis came after my 3rd infusion…there was no 4th!

                    Good luck and let us know how you're doing.

                    karen

                    • October 23, 2012 at 10:37 pm
                    awillett1991
                    Participant
                      Thanks Karen. My doc’s plan for me is 3.. Maybe 4 infusions depending on how it goes, so we’ll just have to see. 🙂
                      • October 23, 2012 at 10:37 pm
                      awillett1991
                      Participant
                        Thanks Karen. My doc’s plan for me is 3.. Maybe 4 infusions depending on how it goes, so we’ll just have to see. 🙂
                        • October 23, 2012 at 10:37 pm
                        awillett1991
                        Participant
                          Thanks Karen. My doc’s plan for me is 3.. Maybe 4 infusions depending on how it goes, so we’ll just have to see. 🙂
                          • October 23, 2012 at 7:32 pm
                          NYKaren
                          Participant

                            Hi there.  I believe that the Yervoy literature states that one can be on on steroids at 7.5 mg/day or less and remain on Yervoy.

                            I  had a terrible case of colitis as side effect of Yervoy, and as a result of steroids developed adrenal insufficiency.  Had to go BACK on steroids to get rid of that.  The colitis came after my 3rd infusion…there was no 4th!

                            Good luck and let us know how you're doing.

                            karen

                            • October 23, 2012 at 5:46 pm
                            awillett1991
                            Participant
                              Thanks Judy. This Yervoy stuff is all new to me. I’m glad to know you can be on steroids and still have a great response.

                              Amy

                              • October 24, 2012 at 12:06 am
                              Gene_S
                              Participant

                                My husband had the initial 4 infusion and he has had another infusion every 12 weeks since completeing the initial 4.  That is the clinical trial he is on.  The ones after the inital 12 are called  maintenance doses and he also get GMCSF shots 2 weeks on and 1 week off of the shots since he began March 2011.

                                • October 24, 2012 at 12:06 am
                                Gene_S
                                Participant

                                  My husband had the initial 4 infusion and he has had another infusion every 12 weeks since completeing the initial 4.  That is the clinical trial he is on.  The ones after the inital 12 are called  maintenance doses and he also get GMCSF shots 2 weeks on and 1 week off of the shots since he began March 2011.

                                  • November 8, 2012 at 1:10 pm
                                  clientcommon
                                  Participant

                                    You need to visit some experience doctor so they will take care of this and this is normal case for now.

                                    http://www.promos10.com

                                    • November 8, 2012 at 1:10 pm
                                    clientcommon
                                    Participant

                                      You need to visit some experience doctor so they will take care of this and this is normal case for now.

                                      http://www.promos10.com

                                      • November 8, 2012 at 1:10 pm
                                      clientcommon
                                      Participant

                                        You need to visit some experience doctor so they will take care of this and this is normal case for now.

                                        http://www.promos10.com

                                        • October 24, 2012 at 12:06 am
                                        Gene_S
                                        Participant

                                          My husband had the initial 4 infusion and he has had another infusion every 12 weeks since completeing the initial 4.  That is the clinical trial he is on.  The ones after the inital 12 are called  maintenance doses and he also get GMCSF shots 2 weeks on and 1 week off of the shots since he began March 2011.

                                        • October 23, 2012 at 1:14 pm
                                        Gene_S
                                        Participant

                                          My husbands body quit producing prednisone.  So he is on a low dose prednisone of 7.5 mg a day which is the amount a body normally produces and he is still on yervoy.  He is in a clinical trial for 19 months now.  Maybe this is what they are talking about for you.

                                          Judy (loving wife of Gene Stage IV but presently NED)

                                          • October 23, 2012 at 1:14 pm
                                          Gene_S
                                          Participant

                                            My husbands body quit producing prednisone.  So he is on a low dose prednisone of 7.5 mg a day which is the amount a body normally produces and he is still on yervoy.  He is in a clinical trial for 19 months now.  Maybe this is what they are talking about for you.

                                            Judy (loving wife of Gene Stage IV but presently NED)

                                            • November 28, 2012 at 6:48 am
                                            jupeter41
                                            Participant

                                              YERVOY can cause serious side effects in many parts of your body which can lead to death. These side effects are most likely to begin during treatment; however, side effects can show up months after your last infusion.

                                              submersible pressure transmitter

                                              • November 28, 2012 at 6:48 am
                                              jupeter41
                                              Participant

                                                YERVOY can cause serious side effects in many parts of your body which can lead to death. These side effects are most likely to begin during treatment; however, side effects can show up months after your last infusion.

                                                submersible pressure transmitter

                                                • November 28, 2012 at 6:48 am
                                                jupeter41
                                                Participant

                                                  YERVOY can cause serious side effects in many parts of your body which can lead to death. These side effects are most likely to begin during treatment; however, side effects can show up months after your last infusion.

                                                  submersible pressure transmitter

                                                  • November 29, 2012 at 9:32 am
                                                  clientcommon
                                                  Participant

                                                    Melanoma, or skin cancer, can be deadly, particularly if it isn’t caught early.

                                                    http://www.isshicare.com

                                                    • November 29, 2012 at 9:32 am
                                                    clientcommon
                                                    Participant

                                                      Melanoma, or skin cancer, can be deadly, particularly if it isn’t caught early.

                                                      http://www.isshicare.com

                                                        • December 18, 2012 at 6:08 am
                                                        tuneseo
                                                        Participant

                                                          These type of diseases are taking more days to cure and not sure when can stop such disease so on time care is important.

                                                          payroll compliance software

                                                          • December 18, 2012 at 6:08 am
                                                          tuneseo
                                                          Participant

                                                            These type of diseases are taking more days to cure and not sure when can stop such disease so on time care is important.

                                                            payroll compliance software

                                                            • December 18, 2012 at 6:08 am
                                                            tuneseo
                                                            Participant

                                                              These type of diseases are taking more days to cure and not sure when can stop such disease so on time care is important.

                                                              payroll compliance software

                                                            • November 29, 2012 at 9:32 am
                                                            clientcommon
                                                            Participant

                                                              Melanoma, or skin cancer, can be deadly, particularly if it isn’t caught early.

                                                              http://www.isshicare.com

                                                          Viewing 8 reply threads
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