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Anti-PD1 trials
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Anti-PD1 trials

› Forums › General Melanoma Community › Anti-PD1 trials

  • Post
    • February 13, 2013 at 6:44 pm
    dian in spokane
    Participant

      can anyone tell me where they are doing anti pd1 trials? I'm willing to travel some, but I'd prefer something on the western side of the US.

       

      thanks,

       

      dian in spokane

      can anyone tell me where they are doing anti pd1 trials? I'm willing to travel some, but I'd prefer something on the western side of the US.

       

      thanks,

       

      dian in spokane

    Viewing 2 reply threads
    • Replies
        • February 13, 2013 at 9:30 pm
        mbaelaporte
        Participant

          Anti – PD1 clinical trial  ;  Vannak Cheng  ; U of W ;  Seattle Care Alliance  ;  206 288 7219

          I just came aboard here to see what others have to say about this therapy – and I just received paperwork to review for consideration of this trial

          All the best

          • February 13, 2013 at 9:30 pm
          mbaelaporte
          Participant

            Anti – PD1 clinical trial  ;  Vannak Cheng  ; U of W ;  Seattle Care Alliance  ;  206 288 7219

            I just came aboard here to see what others have to say about this therapy – and I just received paperwork to review for consideration of this trial

            All the best

            • February 13, 2013 at 9:30 pm
            mbaelaporte
            Participant

              Anti – PD1 clinical trial  ;  Vannak Cheng  ; U of W ;  Seattle Care Alliance  ;  206 288 7219

              I just came aboard here to see what others have to say about this therapy – and I just received paperwork to review for consideration of this trial

              All the best

                • February 14, 2013 at 3:02 pm
                dian in spokane
                Participant

                  hmmm.. I am looking at a DIFFERENT (I think) anti pd1 trial at SCCA, lead investigator is Dr. Chow. I don't think I found yours during my search ( I don't seem to have the numbers handy) The one I am looking at uses the anti pd 1 drug in combo with IL 21

                   

                  Is that the same one you are looking at?

                   

                  thanks,

                  dian

                  • February 14, 2013 at 3:02 pm
                  dian in spokane
                  Participant

                    hmmm.. I am looking at a DIFFERENT (I think) anti pd1 trial at SCCA, lead investigator is Dr. Chow. I don't think I found yours during my search ( I don't seem to have the numbers handy) The one I am looking at uses the anti pd 1 drug in combo with IL 21

                     

                    Is that the same one you are looking at?

                     

                    thanks,

                    dian

                    • February 14, 2013 at 3:02 pm
                    dian in spokane
                    Participant

                      hmmm.. I am looking at a DIFFERENT (I think) anti pd1 trial at SCCA, lead investigator is Dr. Chow. I don't think I found yours during my search ( I don't seem to have the numbers handy) The one I am looking at uses the anti pd 1 drug in combo with IL 21

                       

                      Is that the same one you are looking at?

                       

                      thanks,

                      dian

                      • February 14, 2013 at 4:58 pm
                      killmel
                      Participant

                        yes

                        • February 14, 2013 at 4:58 pm
                        killmel
                        Participant

                          yes

                          • February 14, 2013 at 4:58 pm
                          killmel
                          Participant

                            yes

                            • February 14, 2013 at 9:50 pm
                            dian in spokane
                            Participant

                              I think there's a waiting list for that trial

                              • February 14, 2013 at 9:50 pm
                              dian in spokane
                              Participant

                                I think there's a waiting list for that trial

                                • February 14, 2013 at 9:50 pm
                                dian in spokane
                                Participant

                                  I think there's a waiting list for that trial

                                  • February 14, 2013 at 10:23 pm
                                  mbaelaporte
                                  Participant

                                    Hello  dian…the trial you are refering to appears to be a different trial ( and one I will look into )

                                    The one I'm refering to is not in combo ;  just the Anti PD1 and Dr. Chow does not show on the prospectus.

                                    The  trial is protocol   #BMS CA209-038  and the info in prior post mentions other essentials.

                                       After responding to your post & completing my reading of prospectus I called the Coordinator and he said one of the requirements is that one's insurance co. has knowledge & supports the trial aspect –  he had already made the call to my co. and they denied coverage & do not participate in trials – especially at stage one.  My needle phobic self had been considering all the testing , scans and biopsies etc. ( and potential efficacy ) and hadn't even considered possibilty of not being accepted – quite a blow.

                                      Without my even notifying my oncologist she had heard the unfortunate news & mailed me a message that sounded kind of closed also ( and very considerate ).  This morning was very full getting my daughter off to midwife school in El Paso so in time I will pursue & ask of different avenues – if one can participate if self financed to receiving help from foundations that might participate in the founding of good medicine.  Can't help but think this may be a common problem both for patients & drug companies involved in trials & hopefully there are organizations ready to step up & support this research –  think I will post a query  of this very subject.

                                      For all readers I am one who has been through BRAF therapy in trial phase and through two treatments ( four infusions in three months / treatment )  about 7,8 months apart of Yervoy – any questions?  ask away

                                    All the best,  john

                                    • February 14, 2013 at 10:23 pm
                                    mbaelaporte
                                    Participant

                                      Hello  dian…the trial you are refering to appears to be a different trial ( and one I will look into )

                                      The one I'm refering to is not in combo ;  just the Anti PD1 and Dr. Chow does not show on the prospectus.

                                      The  trial is protocol   #BMS CA209-038  and the info in prior post mentions other essentials.

                                         After responding to your post & completing my reading of prospectus I called the Coordinator and he said one of the requirements is that one's insurance co. has knowledge & supports the trial aspect –  he had already made the call to my co. and they denied coverage & do not participate in trials – especially at stage one.  My needle phobic self had been considering all the testing , scans and biopsies etc. ( and potential efficacy ) and hadn't even considered possibilty of not being accepted – quite a blow.

                                        Without my even notifying my oncologist she had heard the unfortunate news & mailed me a message that sounded kind of closed also ( and very considerate ).  This morning was very full getting my daughter off to midwife school in El Paso so in time I will pursue & ask of different avenues – if one can participate if self financed to receiving help from foundations that might participate in the founding of good medicine.  Can't help but think this may be a common problem both for patients & drug companies involved in trials & hopefully there are organizations ready to step up & support this research –  think I will post a query  of this very subject.

                                        For all readers I am one who has been through BRAF therapy in trial phase and through two treatments ( four infusions in three months / treatment )  about 7,8 months apart of Yervoy – any questions?  ask away

                                      All the best,  john

                                      • February 14, 2013 at 10:23 pm
                                      mbaelaporte
                                      Participant

                                        Hello  dian…the trial you are refering to appears to be a different trial ( and one I will look into )

                                        The one I'm refering to is not in combo ;  just the Anti PD1 and Dr. Chow does not show on the prospectus.

                                        The  trial is protocol   #BMS CA209-038  and the info in prior post mentions other essentials.

                                           After responding to your post & completing my reading of prospectus I called the Coordinator and he said one of the requirements is that one's insurance co. has knowledge & supports the trial aspect –  he had already made the call to my co. and they denied coverage & do not participate in trials – especially at stage one.  My needle phobic self had been considering all the testing , scans and biopsies etc. ( and potential efficacy ) and hadn't even considered possibilty of not being accepted – quite a blow.

                                          Without my even notifying my oncologist she had heard the unfortunate news & mailed me a message that sounded kind of closed also ( and very considerate ).  This morning was very full getting my daughter off to midwife school in El Paso so in time I will pursue & ask of different avenues – if one can participate if self financed to receiving help from foundations that might participate in the founding of good medicine.  Can't help but think this may be a common problem both for patients & drug companies involved in trials & hopefully there are organizations ready to step up & support this research –  think I will post a query  of this very subject.

                                          For all readers I am one who has been through BRAF therapy in trial phase and through two treatments ( four infusions in three months / treatment )  about 7,8 months apart of Yervoy – any questions?  ask away

                                        All the best,  john

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