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Early Christmas for me
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Early Christmas for me

› Forums › General Melanoma Community › Early Christmas for me

  • Post
    • December 21, 2013 at 12:15 am
    Richard_K
    Participant

      For those of you familiar with me, you know I have been on Zelboraf for quite some time and that over the past fifteen months or so, I have had issues with my bilirubin being high.  At my six week NYU check-up this week, the bilirubin count came back quite low.

      When I came home from NYU the mailman had delivered the news from my recent colonoscopy  – no problem, repeat in five years.

      Today I met with my urologist about last week’s prostate biopsy (third biopsy since diagnosis) – prostate cancer – NED!

    Viewing 11 reply threads
    • Replies
        • December 21, 2013 at 2:51 am
        awillett1991
        Participant

          Wonderful news!  Merry Christmas!

          Amy

          • December 21, 2013 at 2:51 am
          awillett1991
          Participant

            Wonderful news!  Merry Christmas!

            Amy

            • December 21, 2013 at 2:51 am
            awillett1991
            Participant

              Wonderful news!  Merry Christmas!

              Amy

              • December 21, 2013 at 4:56 am
              BrianP
              Participant

                Incredible!  Very happy for you.  I'm not familiar with your prostrate side of the house.  I'm sure you have attacked that separately from your mel but do they think the mel treatment is also helping on that front as well?  Enjoy your Christmas.  I don't know what's left for Santa to bring you!

                Brian

                  • December 22, 2013 at 2:57 pm
                  Richard_K
                  Participant

                    Brian,

                    When prostate was diagnosed in August 2011, I made the decision to watch and wait with no treatment.

                    I have not been able to find any links of prostate cancer and vemurafenib, and that will be a question for my melanoma oncologist when I tell her about this on Monday.  My urologist has not seen any cases where it is gone without any prostate specific treatment and plans to bring up at an upcoming urogoly conference.

                    • December 22, 2013 at 2:57 pm
                    Richard_K
                    Participant

                      Brian,

                      When prostate was diagnosed in August 2011, I made the decision to watch and wait with no treatment.

                      I have not been able to find any links of prostate cancer and vemurafenib, and that will be a question for my melanoma oncologist when I tell her about this on Monday.  My urologist has not seen any cases where it is gone without any prostate specific treatment and plans to bring up at an upcoming urogoly conference.

                      • December 22, 2013 at 2:57 pm
                      Richard_K
                      Participant

                        Brian,

                        When prostate was diagnosed in August 2011, I made the decision to watch and wait with no treatment.

                        I have not been able to find any links of prostate cancer and vemurafenib, and that will be a question for my melanoma oncologist when I tell her about this on Monday.  My urologist has not seen any cases where it is gone without any prostate specific treatment and plans to bring up at an upcoming urogoly conference.

                      • December 21, 2013 at 4:56 am
                      BrianP
                      Participant

                        Incredible!  Very happy for you.  I'm not familiar with your prostrate side of the house.  I'm sure you have attacked that separately from your mel but do they think the mel treatment is also helping on that front as well?  Enjoy your Christmas.  I don't know what's left for Santa to bring you!

                        Brian

                        • December 21, 2013 at 4:56 am
                        BrianP
                        Participant

                          Incredible!  Very happy for you.  I'm not familiar with your prostrate side of the house.  I'm sure you have attacked that separately from your mel but do they think the mel treatment is also helping on that front as well?  Enjoy your Christmas.  I don't know what's left for Santa to bring you!

                          Brian

                          • December 21, 2013 at 5:09 pm
                          Kellie-T
                          Participant

                            Hi Dick,

                             

                            It's Kellie. I'm so glad to hear of your news. I must say it's quite the torch you hold for us being so far out on treatment and remaining NED! You keep my hope in full swing anytime I have doubts. I too have been taking Z for about 22 months. Scans in October (my three year mark from reoccurrence) remain NED. Six week labs just completed which also remain great. I watched Barbara Walters most fascinating people the other day and Robin Roberts made a profound statement that I think we all can relate to (not a direct quote but to this effect), "my fear comes from my past, my future is unknown, I am learning every day to live in my present and enjoy what I have today."

                            Hope you have a great holiday and safe and Happy New Year!

                             

                            Kellie

                              • December 22, 2013 at 2:59 pm
                              Richard_K
                              Participant

                                Kellie,

                                Good to hear, keep it going.

                                • December 22, 2013 at 2:59 pm
                                Richard_K
                                Participant

                                  Kellie,

                                  Good to hear, keep it going.

                                  • December 22, 2013 at 10:36 pm
                                  NYKaren
                                  Participant

                                    Dick,

                                    Fantastic news. I'm going this Friday, 12/27 at 9: am. Dr. P said that if you, Al and I come together, she'll bake cookies for us.  What do you say?  Seriously, I''m so happy for you. 

                                    Enjoy!

                                    karen

                                    • December 22, 2013 at 10:36 pm
                                    NYKaren
                                    Participant

                                      Dick,

                                      Fantastic news. I'm going this Friday, 12/27 at 9: am. Dr. P said that if you, Al and I come together, she'll bake cookies for us.  What do you say?  Seriously, I''m so happy for you. 

                                      Enjoy!

                                      karen

                                      • December 22, 2013 at 11:57 pm
                                      Richard_K
                                      Participant

                                        I'm game.  We need to sign Al up.  I understand Dr. P is quite a baker.

                                        • December 22, 2013 at 11:57 pm
                                        Richard_K
                                        Participant

                                          I'm game.  We need to sign Al up.  I understand Dr. P is quite a baker.

                                          • December 22, 2013 at 11:57 pm
                                          Richard_K
                                          Participant

                                            I'm game.  We need to sign Al up.  I understand Dr. P is quite a baker.

                                            • December 22, 2013 at 10:36 pm
                                            NYKaren
                                            Participant

                                              Dick,

                                              Fantastic news. I'm going this Friday, 12/27 at 9: am. Dr. P said that if you, Al and I come together, she'll bake cookies for us.  What do you say?  Seriously, I''m so happy for you. 

                                              Enjoy!

                                              karen

                                              • December 22, 2013 at 2:59 pm
                                              Richard_K
                                              Participant

                                                Kellie,

                                                Good to hear, keep it going.

                                              • December 21, 2013 at 5:09 pm
                                              Kellie-T
                                              Participant

                                                Hi Dick,

                                                 

                                                It's Kellie. I'm so glad to hear of your news. I must say it's quite the torch you hold for us being so far out on treatment and remaining NED! You keep my hope in full swing anytime I have doubts. I too have been taking Z for about 22 months. Scans in October (my three year mark from reoccurrence) remain NED. Six week labs just completed which also remain great. I watched Barbara Walters most fascinating people the other day and Robin Roberts made a profound statement that I think we all can relate to (not a direct quote but to this effect), "my fear comes from my past, my future is unknown, I am learning every day to live in my present and enjoy what I have today."

                                                Hope you have a great holiday and safe and Happy New Year!

                                                 

                                                Kellie

                                                • December 21, 2013 at 5:09 pm
                                                Kellie-T
                                                Participant

                                                  Hi Dick,

                                                   

                                                  It's Kellie. I'm so glad to hear of your news. I must say it's quite the torch you hold for us being so far out on treatment and remaining NED! You keep my hope in full swing anytime I have doubts. I too have been taking Z for about 22 months. Scans in October (my three year mark from reoccurrence) remain NED. Six week labs just completed which also remain great. I watched Barbara Walters most fascinating people the other day and Robin Roberts made a profound statement that I think we all can relate to (not a direct quote but to this effect), "my fear comes from my past, my future is unknown, I am learning every day to live in my present and enjoy what I have today."

                                                  Hope you have a great holiday and safe and Happy New Year!

                                                   

                                                  Kellie

                                                  • January 10, 2014 at 3:51 pm
                                                  Tina D
                                                  Participant

                                                    Soemhow I missed this update when you posted. Great news and I am so happy to hear it! Congratulations on the good reports and all the best to you in this new year 🙂

                                                    Tina

                                                    • January 10, 2014 at 3:51 pm
                                                    Tina D
                                                    Participant

                                                      Soemhow I missed this update when you posted. Great news and I am so happy to hear it! Congratulations on the good reports and all the best to you in this new year 🙂

                                                      Tina

                                                      • January 10, 2014 at 3:51 pm
                                                      Tina D
                                                      Participant

                                                        Soemhow I missed this update when you posted. Great news and I am so happy to hear it! Congratulations on the good reports and all the best to you in this new year 🙂

                                                        Tina

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