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Late Update

Forums General Melanoma Community Late Update

  • Post
    lll.ll.lll.ll.lll
    Participant
      So.. where did I leave off..

      Finally got my insurance and got to see some Drs.

      My primary got the ball rolling with finding out that I was just at stage 2 and it was just lateral, she got me a cat scan set up and a new appointment with a new dermo.

      The new dermo did a full check of my skin and took note to my lymph nodes being so enlarged. So much so she got my CAT scan changed to a PET scan and to see a surgeon after.

      I did my PET and went to see the oncologist. We went over the scan and he told me everything looked good but he was concerned about a spot on my lung right under my melanoma. He said he wanted to wait to see what it was like after the melanoma was out. When I asked about my lymph nodes being so enlarged he told me they were normal and that the mind is a very powerful thing LOL that being said I was late for my surgeon three floors down.

      My surgeon looked me over and started checking my lymph nodes.. starting under my armpit.. he said it was enlarged (even tho an oncologist said 20 min earlier they were fine) and wanted to do a sentinel node biopsy before surgery to see where it has spread.

      Last Wed I had my surgery scheduled and I went for my biopsy first thing and low and behold lymph nodes in my chest lit up. Mind you I’ve been now told by the original dermo that what I had going on had nothing to do with my melanoma (he wanted to remove it in office tho and my surgery was over two hours and I have an 8″ incision on my later) my primary had basicly told me I was a drug seeker cause my PET came back clean and there was no way I could have pain even tho my lymph nodes were so enlarged and an oncologist basicly tell me I was mental smh

      If I would have listened to any of the three I would have been butchered in a drs back room while this progressed inside of me.

      Since the surgery most if not all my nodes have gone done.. the pelvic pain.. lower chest pain.. groin pain.. all but gone..

      I’m FAR less knowledgeable than most in here on this but never let any Dr tell you what you feel or how you should feel..

      Thanks for reading

    Viewing 8 reply threads
    • Replies
        Bubbles
        Participant

          Hang in there, Adam. Sorry that you've had to, but glad you've pushed for answers this far.  Keep pushing!

          Yours, Celeste

          Bubbles
          Participant

            Hang in there, Adam. Sorry that you've had to, but glad you've pushed for answers this far.  Keep pushing!

            Yours, Celeste

            Bubbles
            Participant

              Hang in there, Adam. Sorry that you've had to, but glad you've pushed for answers this far.  Keep pushing!

              Yours, Celeste

              JerryfromFauq
              Participant

                Amazing how, inspite of our overactive minds, we knkow our bodies bettssser than many Doctors.  Keep beeing your own advocate!

                JerryfromFauq
                Participant

                  Amazing how, inspite of our overactive minds, we knkow our bodies bettssser than many Doctors.  Keep beeing your own advocate!

                  JerryfromFauq
                  Participant

                    Amazing how, inspite of our overactive minds, we knkow our bodies bettssser than many Doctors.  Keep beeing your own advocate!

                    Jahendry12
                    Participant

                      Good news Adam!  Been wondering how you were doing.  Glad you are feeling better. 

                      Thanks for the update. 

                      Jahendry12
                      Participant

                        Good news Adam!  Been wondering how you were doing.  Glad you are feeling better. 

                        Thanks for the update. 

                        Jahendry12
                        Participant

                          Good news Adam!  Been wondering how you were doing.  Glad you are feeling better. 

                          Thanks for the update. 

                      Viewing 8 reply threads
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