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Bone mets and vemurafenib
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Bone mets and vemurafenib

› Forums › General Melanoma Community › Bone mets and vemurafenib

  • Post
    • February 17, 2014 at 4:32 pm
    mark1101
    Participant

      So most of my mets are all on bone.  I have qualified for a trial which tests the sequencing of Vemurafenib with IL-2.  I have begun to experience some pain in lower back and shoulder-upper arm where scans showed some of the mets set up shop.  My question for anyone with experience is what can I expect regarding relief of this pain from Vemurafenib?  Or will I likely have to get into the IL-2 before this might occur?  Finally…in the meantime are there things I can do to mitigate the pain I am experiencing?

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    • Replies
        • February 17, 2014 at 7:05 pm
        Mat
        Participant

          Mark, in January 2013, I started to get pain in my left wrist.  This was actually my first symptom of metastasis  (bone met) following 10 years after stage I.  Of course, I didn't recognize it at the time, particularly since I was able to get some relief by icing my wrist and wearing a brace (the ultimate relief was provided by radiation).  My point being that you might try ice and a brace or other support in the short term.  Will not nullify the pain, but it helps for a time.  I'm assuming that your trial will not permit you to get the bone mets radiated (which, of course is a much better solution than ice)?  Lastly, Tafinlar works on bone mets (albeit more slowly than others), so zel may as well.  Best of luck with the trial.

          • February 17, 2014 at 7:05 pm
          Mat
          Participant

            Mark, in January 2013, I started to get pain in my left wrist.  This was actually my first symptom of metastasis  (bone met) following 10 years after stage I.  Of course, I didn't recognize it at the time, particularly since I was able to get some relief by icing my wrist and wearing a brace (the ultimate relief was provided by radiation).  My point being that you might try ice and a brace or other support in the short term.  Will not nullify the pain, but it helps for a time.  I'm assuming that your trial will not permit you to get the bone mets radiated (which, of course is a much better solution than ice)?  Lastly, Tafinlar works on bone mets (albeit more slowly than others), so zel may as well.  Best of luck with the trial.

            • February 17, 2014 at 7:05 pm
            Mat
            Participant

              Mark, in January 2013, I started to get pain in my left wrist.  This was actually my first symptom of metastasis  (bone met) following 10 years after stage I.  Of course, I didn't recognize it at the time, particularly since I was able to get some relief by icing my wrist and wearing a brace (the ultimate relief was provided by radiation).  My point being that you might try ice and a brace or other support in the short term.  Will not nullify the pain, but it helps for a time.  I'm assuming that your trial will not permit you to get the bone mets radiated (which, of course is a much better solution than ice)?  Lastly, Tafinlar works on bone mets (albeit more slowly than others), so zel may as well.  Best of luck with the trial.

              • February 22, 2014 at 4:23 am
              Bubbles
              Participant

                Hey Mark,

                I have no answers or any real help to offer.  But I did want you to know that I think of you everyday and was wondering how you are.  Yours, Celeste

                • February 22, 2014 at 4:23 am
                Bubbles
                Participant

                  Hey Mark,

                  I have no answers or any real help to offer.  But I did want you to know that I think of you everyday and was wondering how you are.  Yours, Celeste

                  • February 22, 2014 at 4:23 am
                  Bubbles
                  Participant

                    Hey Mark,

                    I have no answers or any real help to offer.  But I did want you to know that I think of you everyday and was wondering how you are.  Yours, Celeste

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