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Help Please, worried sick!!

Forums General Melanoma Community Help Please, worried sick!!

  • Post
    eturner
    Participant

      Hi guys this is my first time posting so here goes… My husband has stage 4 in his bones and lungs. He has been on Mekinist and Tafinar for a little over two months, its really seems to be helping greatly. The problem is for the past week my husband seems "different" as in very moody, angry. I told him that maybe we could talk to his doctor about this and he was very adamant that I was not to talk to the doctor about his moods, Needless to say I'm very worried. He wants very much for these drugs to work well and for as long as possible, my fear is that he will not tell me when he thinks it is no longer working as his cancer is aggressive when not being treated. Does anyone have any advice or input as to what is going on (is it side effects or could it be the cancer)??!!

    Viewing 14 reply threads
    • Replies
        Tim–MRF
        Guest

          As you know, dealing with cancer involves a great deal of stress, and stress can cause mood swings.

          We also know that some cancer drugs can affect mood. Moodiness and anger are not listed as side effects of this drug combination, but headaches and tiredness are.  I have heard of others who felt that these kinds of drugs affected their mood.

          I am not a doctor, but doubt that the moodiness is caused by the cancer itself.

          It is important to report these kinds of things to the treatment team.  They have an impact on quality of life and may have an impact on compliance with the treatment schedule.  Some patients, and your husband may be one, are reluctant to talk to their doctor about things like this because they are afraid they will be taken off the drug that is keeping them alive. Almost always the opposite is true–failure to address symptoms makes it more likely that you won't be able to stay on the drug.

          If your husband persists in his reluctance to be forthcoming with the doctor you may want to talk with a counselor on how to manage your part of the situation–how do you navigate the conflict between what you feel is right and what your husband is adamant about doing.  This same person may have some guidance on how to deal with the moods.

          I remember about three years ago on this site a person wrote that they were leaving their spouse (who was on a different drug) because they could no longer stand the anger and had become afraid for the safety of their children. The situation was similar–the patient's personality had changed radically but they refused to seek help or report the problem to the doctor.  You certainly don't want things to progress that far!

          Tim–MRF

           

           

           

          Tim–MRF
          Guest

            As you know, dealing with cancer involves a great deal of stress, and stress can cause mood swings.

            We also know that some cancer drugs can affect mood. Moodiness and anger are not listed as side effects of this drug combination, but headaches and tiredness are.  I have heard of others who felt that these kinds of drugs affected their mood.

            I am not a doctor, but doubt that the moodiness is caused by the cancer itself.

            It is important to report these kinds of things to the treatment team.  They have an impact on quality of life and may have an impact on compliance with the treatment schedule.  Some patients, and your husband may be one, are reluctant to talk to their doctor about things like this because they are afraid they will be taken off the drug that is keeping them alive. Almost always the opposite is true–failure to address symptoms makes it more likely that you won't be able to stay on the drug.

            If your husband persists in his reluctance to be forthcoming with the doctor you may want to talk with a counselor on how to manage your part of the situation–how do you navigate the conflict between what you feel is right and what your husband is adamant about doing.  This same person may have some guidance on how to deal with the moods.

            I remember about three years ago on this site a person wrote that they were leaving their spouse (who was on a different drug) because they could no longer stand the anger and had become afraid for the safety of their children. The situation was similar–the patient's personality had changed radically but they refused to seek help or report the problem to the doctor.  You certainly don't want things to progress that far!

            Tim–MRF

             

             

             

            Tim–MRF
            Guest

              As you know, dealing with cancer involves a great deal of stress, and stress can cause mood swings.

              We also know that some cancer drugs can affect mood. Moodiness and anger are not listed as side effects of this drug combination, but headaches and tiredness are.  I have heard of others who felt that these kinds of drugs affected their mood.

              I am not a doctor, but doubt that the moodiness is caused by the cancer itself.

              It is important to report these kinds of things to the treatment team.  They have an impact on quality of life and may have an impact on compliance with the treatment schedule.  Some patients, and your husband may be one, are reluctant to talk to their doctor about things like this because they are afraid they will be taken off the drug that is keeping them alive. Almost always the opposite is true–failure to address symptoms makes it more likely that you won't be able to stay on the drug.

              If your husband persists in his reluctance to be forthcoming with the doctor you may want to talk with a counselor on how to manage your part of the situation–how do you navigate the conflict between what you feel is right and what your husband is adamant about doing.  This same person may have some guidance on how to deal with the moods.

              I remember about three years ago on this site a person wrote that they were leaving their spouse (who was on a different drug) because they could no longer stand the anger and had become afraid for the safety of their children. The situation was similar–the patient's personality had changed radically but they refused to seek help or report the problem to the doctor.  You certainly don't want things to progress that far!

              Tim–MRF

               

               

               

              arthurjedi007
              Participant

                Is he on other medications besided Tafinlar and Mekinist?

                If not then as a person who got hit with stage 4 last June I would say your husband is struggling to cope with this nightmare. I say that because I've been and sometimes still am moody, angry and more. Maybe if there is a local cancer support group or if he wants to talk to others here that are going through the same nightmare.

                As far as knowing when the drugs quit working the doctor will take care of that with regular scans. I dunno if all doctors scan the same but mine is pretty much every 8 weeks or so.

                 

                arthurjedi007
                Participant

                  Is he on other medications besided Tafinlar and Mekinist?

                  If not then as a person who got hit with stage 4 last June I would say your husband is struggling to cope with this nightmare. I say that because I've been and sometimes still am moody, angry and more. Maybe if there is a local cancer support group or if he wants to talk to others here that are going through the same nightmare.

                  As far as knowing when the drugs quit working the doctor will take care of that with regular scans. I dunno if all doctors scan the same but mine is pretty much every 8 weeks or so.

                   

                    eturner
                    Participant

                      He last had scans on April the 30th, Dr stated that cancer in spine and hip was stable ans so were his two lung nodes there  was however an area in pelvis that will be watched on next scan. He has not had a MRI of head for some time now and he has had mets in his skull that were hit with tomo radiation therepy. At this time he is no longer taking his pain meds as he says he feels better and does not need them dispite having a broken tailbone. Thanks guys for taking time to answer my questions ๐Ÿ™‚

                      eturner
                      Participant

                        He last had scans on April the 30th, Dr stated that cancer in spine and hip was stable ans so were his two lung nodes there  was however an area in pelvis that will be watched on next scan. He has not had a MRI of head for some time now and he has had mets in his skull that were hit with tomo radiation therepy. At this time he is no longer taking his pain meds as he says he feels better and does not need them dispite having a broken tailbone. Thanks guys for taking time to answer my questions ๐Ÿ™‚

                        eturner
                        Participant

                          He last had scans on April the 30th, Dr stated that cancer in spine and hip was stable ans so were his two lung nodes there  was however an area in pelvis that will be watched on next scan. He has not had a MRI of head for some time now and he has had mets in his skull that were hit with tomo radiation therepy. At this time he is no longer taking his pain meds as he says he feels better and does not need them dispite having a broken tailbone. Thanks guys for taking time to answer my questions ๐Ÿ™‚

                        arthurjedi007
                        Participant

                          Is he on other medications besided Tafinlar and Mekinist?

                          If not then as a person who got hit with stage 4 last June I would say your husband is struggling to cope with this nightmare. I say that because I've been and sometimes still am moody, angry and more. Maybe if there is a local cancer support group or if he wants to talk to others here that are going through the same nightmare.

                          As far as knowing when the drugs quit working the doctor will take care of that with regular scans. I dunno if all doctors scan the same but mine is pretty much every 8 weeks or so.

                           

                          dhrahn
                          Participant

                            I don't know if it is the right thing to do but anytime my husband didn't want to tell the Dr. and it got to the point I felt it was an issue, I told the doctor.  Maybe you could email the doctor with your concerns and why? Then maybe the doctor can bring it up?  My husband adrenals failed from ippi and that caused him to be terribly irritable….   Sometimes other meds he may be taking, or maybe depression?  It can be so many different things…    Best of luck!

                            dhrahn
                            Participant

                              I don't know if it is the right thing to do but anytime my husband didn't want to tell the Dr. and it got to the point I felt it was an issue, I told the doctor.  Maybe you could email the doctor with your concerns and why? Then maybe the doctor can bring it up?  My husband adrenals failed from ippi and that caused him to be terribly irritable….   Sometimes other meds he may be taking, or maybe depression?  It can be so many different things…    Best of luck!

                              dhrahn
                              Participant

                                I don't know if it is the right thing to do but anytime my husband didn't want to tell the Dr. and it got to the point I felt it was an issue, I told the doctor.  Maybe you could email the doctor with your concerns and why? Then maybe the doctor can bring it up?  My husband adrenals failed from ippi and that caused him to be terribly irritable….   Sometimes other meds he may be taking, or maybe depression?  It can be so many different things…    Best of luck!

                                JerryfromFauq
                                Participant

                                  I go along with keeping the Oncologists informed of all effects ones body and mind is experiencing.  I tell my Onc and often tell him that I just want him sto know, but that will lset him knmkow where I am within the coming time.   He then tells me what he considers should OR could be do ne.  I make Most final decisions, but have seen so many physicl and mental side effects in this journey that kknow our minds can do things to us that we don't always see clearly.  You can always try tellings him what the effects on you are and the problems you are having and that talking with the Onc will help YOUR mind.  The caregiver must lso be taken care of, not just the melanoma patient.

                                   

                                  JerryfromFauq
                                  Participant

                                    I go along with keeping the Oncologists informed of all effects ones body and mind is experiencing.  I tell my Onc and often tell him that I just want him sto know, but that will lset him knmkow where I am within the coming time.   He then tells me what he considers should OR could be do ne.  I make Most final decisions, but have seen so many physicl and mental side effects in this journey that kknow our minds can do things to us that we don't always see clearly.  You can always try tellings him what the effects on you are and the problems you are having and that talking with the Onc will help YOUR mind.  The caregiver must lso be taken care of, not just the melanoma patient.

                                     

                                    JerryfromFauq
                                    Participant

                                      I go along with keeping the Oncologists informed of all effects ones body and mind is experiencing.  I tell my Onc and often tell him that I just want him sto know, but that will lset him knmkow where I am within the coming time.   He then tells me what he considers should OR could be do ne.  I make Most final decisions, but have seen so many physicl and mental side effects in this journey that kknow our minds can do things to us that we don't always see clearly.  You can always try tellings him what the effects on you are and the problems you are having and that talking with the Onc will help YOUR mind.  The caregiver must lso be taken care of, not just the melanoma patient.

                                       

                                      Kim K
                                      Participant

                                        Not to be a downer, but don't forget to mention mood swings because it may indicate brain mets as well.  Hope it is only due to the situation or meds.  Hang tough, but tell the doctor.

                                        Kim K
                                        Participant

                                          Not to be a downer, but don't forget to mention mood swings because it may indicate brain mets as well.  Hope it is only due to the situation or meds.  Hang tough, but tell the doctor.

                                          Kim K
                                          Participant

                                            Not to be a downer, but don't forget to mention mood swings because it may indicate brain mets as well.  Hope it is only due to the situation or meds.  Hang tough, but tell the doctor.

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