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Second Yervoy treatment done..
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Second Yervoy treatment done..

› Forums › General Melanoma Community › Second Yervoy treatment done..

  • Post
    • July 3, 2014 at 7:52 pm
    Ginger8888
    Participant

      I just finished my second treatment of Yervoy today, hoping i handle it as well as i did the first round..Anyone have any advise? Currently stage 3C

    Viewing 8 reply threads
    • Replies
        • July 3, 2014 at 11:33 pm
        Happy_girl
        Participant

          I don't have any advice, but I hope it went well for you!

          • July 3, 2014 at 11:33 pm
          Happy_girl
          Participant

            I don't have any advice, but I hope it went well for you!

            • July 3, 2014 at 11:33 pm
            Happy_girl
            Participant

              I don't have any advice, but I hope it went well for you!

              • July 4, 2014 at 12:13 am
              LuckyMan51
              Participant

                Hi,

                I have had two series of Yervoy infusions about 1.5 yrs apart. My insurance signed off on the second series of infusions after a recurrance of a right temporal lobe lesion had me in for a surgical resection. I guess given that the pathology report had showed that 90% of the removed tumor was already dead the read was that the first infusion had had some positive response. No perfect science yet re dosage but in my stage IV metasticised case I had SRS radiation zapping done as well on both occasions. The only personal advice I would offer would be to keep an abnormally close on your intestinal system and let the Dr know if anything out of the ordinary. It did give me pause for thought, but I got over it quick,  when his PA said she was more interested in my bowel movements than anybody else on the planet. She was very clear that if alerted early to anything amiss there was a good chance they can prescribe steroids and the like to get early control on anything that might be developing. I did have some overall skin itching but found an over the counter benedryl type drug the Dr mentioning helpful for me. All in all my Yervoy treatment was pretty easy and from the stats it's seems that the majority of users are able to tolerate it pretty well. I do wish you the best of luck and hope you have a nice non eventful yet full response.  

                • July 4, 2014 at 12:13 am
                LuckyMan51
                Participant

                  Hi,

                  I have had two series of Yervoy infusions about 1.5 yrs apart. My insurance signed off on the second series of infusions after a recurrance of a right temporal lobe lesion had me in for a surgical resection. I guess given that the pathology report had showed that 90% of the removed tumor was already dead the read was that the first infusion had had some positive response. No perfect science yet re dosage but in my stage IV metasticised case I had SRS radiation zapping done as well on both occasions. The only personal advice I would offer would be to keep an abnormally close on your intestinal system and let the Dr know if anything out of the ordinary. It did give me pause for thought, but I got over it quick,  when his PA said she was more interested in my bowel movements than anybody else on the planet. She was very clear that if alerted early to anything amiss there was a good chance they can prescribe steroids and the like to get early control on anything that might be developing. I did have some overall skin itching but found an over the counter benedryl type drug the Dr mentioning helpful for me. All in all my Yervoy treatment was pretty easy and from the stats it's seems that the majority of users are able to tolerate it pretty well. I do wish you the best of luck and hope you have a nice non eventful yet full response.  

                    • July 4, 2014 at 12:39 am
                    Ginger8888
                    Participant

                      Thank you so much, i did the 30 day hd interferon with no side effects but it didn't work so hoping this one does.I will be on top of any changes, thanks..

                      • July 4, 2014 at 12:39 am
                      Ginger8888
                      Participant

                        Thank you so much, i did the 30 day hd interferon with no side effects but it didn't work so hoping this one does.I will be on top of any changes, thanks..

                        • July 4, 2014 at 12:39 am
                        Ginger8888
                        Participant

                          Thank you so much, i did the 30 day hd interferon with no side effects but it didn't work so hoping this one does.I will be on top of any changes, thanks..

                        • July 4, 2014 at 12:13 am
                        LuckyMan51
                        Participant

                          Hi,

                          I have had two series of Yervoy infusions about 1.5 yrs apart. My insurance signed off on the second series of infusions after a recurrance of a right temporal lobe lesion had me in for a surgical resection. I guess given that the pathology report had showed that 90% of the removed tumor was already dead the read was that the first infusion had had some positive response. No perfect science yet re dosage but in my stage IV metasticised case I had SRS radiation zapping done as well on both occasions. The only personal advice I would offer would be to keep an abnormally close on your intestinal system and let the Dr know if anything out of the ordinary. It did give me pause for thought, but I got over it quick,  when his PA said she was more interested in my bowel movements than anybody else on the planet. She was very clear that if alerted early to anything amiss there was a good chance they can prescribe steroids and the like to get early control on anything that might be developing. I did have some overall skin itching but found an over the counter benedryl type drug the Dr mentioning helpful for me. All in all my Yervoy treatment was pretty easy and from the stats it's seems that the majority of users are able to tolerate it pretty well. I do wish you the best of luck and hope you have a nice non eventful yet full response.  

                          • July 4, 2014 at 11:02 am
                          Rod
                          Participant

                            I took the high does yervoy treatments and ny best advice is to not wait to report any side effects that you have to your Dr.

                            Rod

                            • July 4, 2014 at 11:02 am
                            Rod
                            Participant

                              I took the high does yervoy treatments and ny best advice is to not wait to report any side effects that you have to your Dr.

                              Rod

                                • July 4, 2014 at 11:25 pm
                                jogo
                                Participant

                                  Same for the lower dose (3 mg/Kg body mass).  Report ANY side effect ASAP!  Reread the protocol; just about everything possible is listed.  Some effects may take longer, even after treatments have stopped.  It's important for you and for the trial that these effects are reported.  You won't be brushed off or ignored.

                                  • July 4, 2014 at 11:25 pm
                                  jogo
                                  Participant

                                    Same for the lower dose (3 mg/Kg body mass).  Report ANY side effect ASAP!  Reread the protocol; just about everything possible is listed.  Some effects may take longer, even after treatments have stopped.  It's important for you and for the trial that these effects are reported.  You won't be brushed off or ignored.

                                    • July 5, 2014 at 4:47 am
                                    Ginger8888
                                    Participant

                                      Thank you, so far so good and i hope it continues like this…My Dr made it very clear to report anything different so i will be caling them when and if they start..

                                      • July 5, 2014 at 4:47 am
                                      Ginger8888
                                      Participant

                                        Thank you, so far so good and i hope it continues like this…My Dr made it very clear to report anything different so i will be caling them when and if they start..

                                        • July 5, 2014 at 4:47 am
                                        Ginger8888
                                        Participant

                                          Thank you, so far so good and i hope it continues like this…My Dr made it very clear to report anything different so i will be caling them when and if they start..

                                          • July 4, 2014 at 11:25 pm
                                          jogo
                                          Participant

                                            Same for the lower dose (3 mg/Kg body mass).  Report ANY side effect ASAP!  Reread the protocol; just about everything possible is listed.  Some effects may take longer, even after treatments have stopped.  It's important for you and for the trial that these effects are reported.  You won't be brushed off or ignored.

                                          • July 4, 2014 at 11:02 am
                                          Rod
                                          Participant

                                            I took the high does yervoy treatments and ny best advice is to not wait to report any side effects that you have to your Dr.

                                            Rod

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