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Bringing everyone up to date. I had biopsy April 14, then Biopsy April 24, sent to MD Anderson May 26th of 2014. Came home, Biospy June 20th here at home (with home being south alabama). I live in a small town that is approxiately 20 to 30 minutes from Gulf Shores, Al. Had a pet scan July 23, saw my doctor yesterday. Being sent for a Bone density test. The findings on Pet scan states: Metastatic disease suspected in the left symphysis pubis and right mid femur. (2) Activity with the right chest compatibile with recent surgery as well as midline abdominal pelvic incision. So bone test, then back to see Doctor to discuss clincial trail, wich Yervoy was discussed. I have that BRAF gene, and that could mean a combo of drugs. I have already told doctor that when I do the medicine, for them to go ahead and put port in, I only have one vein that can be used due to lymph nodes missing from my right one. I was stuck three times Wednesday befind finding my vein for the pet scan, (veins deep) and small in hand, they blow. Stuck twice onThursday at Doctors office, then the vein qit giving that blood they wanted.
I keep my head up, and I still have a strong faith in God and believe in him. I know that is where my strength comes from in handling this situation. So any infromation someone might have that can help me make a good deciision on medicine or treatment will be benefitul.
Iam now considered Stage IV MIB for Melanoma, I have had no kind of treatment and been battling since august 2011.
robbie
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Joe, I am sorry it took me so long to answer, I have had problems with this site, logging on. today I reset my password and hopefully that will fix the problem. I had a PET scan back in March of 2014 that showed three hots spots. That sent me in for a biospy april 14, a right lung biospy april 23, 2014. Then after I recouped from surgery, was sent to Md anderson May 27th. At that time I was told Stage 4 M1B Melanoma, the Doctor out there did a ct scan,( the Doctor out at MD anderson only gave me 6 months to live, but I am believing for a miracle at this point in my life) which showed either a mass and lymph node near my uretha. He wanted to do the biospy out there, but said I could do the biospy at home. I chose to come home. I was tired and wore out due to the fact the hotel room bed felt like I was sleeping on a rocks. (My sister went with me).
Came home and June 20th had that biospy, it was a lymphnode near my urethea. My first PET scan after all of the surgiers, was on July 23rd, 2014. According to this one, it showed a abnormal place in the left public area, and the right femoral. I am waiting for Doctors office to call me to schedule a bone scan. I have called at least three times since my doctor wanted me to have this test. He said we would procede from here.
At this point in time, I am tired of waiting on docors .
Robbie
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Joe, I am sorry it took me so long to answer, I have had problems with this site, logging on. today I reset my password and hopefully that will fix the problem. I had a PET scan back in March of 2014 that showed three hots spots. That sent me in for a biospy april 14, a right lung biospy april 23, 2014. Then after I recouped from surgery, was sent to Md anderson May 27th. At that time I was told Stage 4 M1B Melanoma, the Doctor out there did a ct scan,( the Doctor out at MD anderson only gave me 6 months to live, but I am believing for a miracle at this point in my life) which showed either a mass and lymph node near my uretha. He wanted to do the biospy out there, but said I could do the biospy at home. I chose to come home. I was tired and wore out due to the fact the hotel room bed felt like I was sleeping on a rocks. (My sister went with me).
Came home and June 20th had that biospy, it was a lymphnode near my urethea. My first PET scan after all of the surgiers, was on July 23rd, 2014. According to this one, it showed a abnormal place in the left public area, and the right femoral. I am waiting for Doctors office to call me to schedule a bone scan. I have called at least three times since my doctor wanted me to have this test. He said we would procede from here.
At this point in time, I am tired of waiting on docors .
Robbie
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Joe, I am sorry it took me so long to answer, I have had problems with this site, logging on. today I reset my password and hopefully that will fix the problem. I had a PET scan back in March of 2014 that showed three hots spots. That sent me in for a biospy april 14, a right lung biospy april 23, 2014. Then after I recouped from surgery, was sent to Md anderson May 27th. At that time I was told Stage 4 M1B Melanoma, the Doctor out there did a ct scan,( the Doctor out at MD anderson only gave me 6 months to live, but I am believing for a miracle at this point in my life) which showed either a mass and lymph node near my uretha. He wanted to do the biospy out there, but said I could do the biospy at home. I chose to come home. I was tired and wore out due to the fact the hotel room bed felt like I was sleeping on a rocks. (My sister went with me).
Came home and June 20th had that biospy, it was a lymphnode near my urethea. My first PET scan after all of the surgiers, was on July 23rd, 2014. According to this one, it showed a abnormal place in the left public area, and the right femoral. I am waiting for Doctors office to call me to schedule a bone scan. I have called at least three times since my doctor wanted me to have this test. He said we would procede from here.
At this point in time, I am tired of waiting on docors .
Robbie
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