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melanoma stage 3

Forums General Melanoma Community melanoma stage 3

  • Post
    jyaukey
    Participant

      My wife has stage 3 melanoma which has been excised and has had a sentinel removed which was positive. She also had a PET scan and brain MRI which were negative. Her surgeon is proposing a radical lymph dissection of the lymph nodes surrounding the sentinel. Has anyone skipped the lymph node dissection surgery and gone straight to a non surgical solution like interferron? Did this approach work for you?

    Viewing 17 reply threads
    • Replies
        secondhalf
        Participant

          My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

          Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

          We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

          I wish you the best in your decision making.

           

           

            Annalive
            Participant

              I had a re-occurance of melanoma in left axillary after 20 years of  cancer free.  After 2 years of alternative treatments I did have the tumor removed.  The doc wanted to do a full lymphnode dissection.  I did not want this and asked him to remove what he could see or feel as diseased tissue.  He reluctantly agreed.  He ended up removing 12 lymphnodes, 7 of which were positive.  I based my decision not to have full dissection on the following paper;

               http://www.hindawi.com/journals/isrn.surgery/2013/382138/      .

              As it turns out I did have a distance occurance 1 year after surgery which I am now dealing with.

              I was and still am content with my decision. Don't feel that leaving some nodes in caused mets.  These decisions so personal.  I agree with the above post… I am Living with Melanoma.  I wish you well in tyour journey.Ann

              Annalive
              Participant

                I had a re-occurance of melanoma in left axillary after 20 years of  cancer free.  After 2 years of alternative treatments I did have the tumor removed.  The doc wanted to do a full lymphnode dissection.  I did not want this and asked him to remove what he could see or feel as diseased tissue.  He reluctantly agreed.  He ended up removing 12 lymphnodes, 7 of which were positive.  I based my decision not to have full dissection on the following paper;

                 http://www.hindawi.com/journals/isrn.surgery/2013/382138/      .

                As it turns out I did have a distance occurance 1 year after surgery which I am now dealing with.

                I was and still am content with my decision. Don't feel that leaving some nodes in caused mets.  These decisions so personal.  I agree with the above post… I am Living with Melanoma.  I wish you well in tyour journey.Ann

                Annalive
                Participant

                  I had a re-occurance of melanoma in left axillary after 20 years of  cancer free.  After 2 years of alternative treatments I did have the tumor removed.  The doc wanted to do a full lymphnode dissection.  I did not want this and asked him to remove what he could see or feel as diseased tissue.  He reluctantly agreed.  He ended up removing 12 lymphnodes, 7 of which were positive.  I based my decision not to have full dissection on the following paper;

                   http://www.hindawi.com/journals/isrn.surgery/2013/382138/      .

                  As it turns out I did have a distance occurance 1 year after surgery which I am now dealing with.

                  I was and still am content with my decision. Don't feel that leaving some nodes in caused mets.  These decisions so personal.  I agree with the above post… I am Living with Melanoma.  I wish you well in tyour journey.Ann

                secondhalf
                Participant

                  My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

                  Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

                  We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

                  I wish you the best in your decision making.

                   

                   

                  secondhalf
                  Participant

                    My husband has Stage 3 melanoma and  decided not to have the radical lymph node dissection.  He received low dose radiation for 20 days followed by a year of Interferon and tolerated is well – he continued to work full time and had little energy for much of  anything else.  He had a recurrence 3 months after finishing Interferon.  The new tumor was removed and he is still Stage 3 with clear PET and MRI scans.

                    Once we got over the shock and anger of the diagnosis we decided to live life with joy and not let melanoma run our lives.  We think of it as LIVING with melanoma.  

                    We just passed our second anniversary of finding that egg size lump  in his armpit.  Current treatment is watch and wait, vigilant skin checks for lumps and moles, and thinking about  what Plan C will be if an unresectable growth is found.

                    I wish you the best in your decision making.

                     

                     

                    Colleen66
                    Participant

                      I was in your exact position.  SLN positive.  I chose a surface node removal.  They removed 7 nodes.  1 additional with micromets.  Did 1 month of HD Inteferon.  Almost two years out now and NED.  I still developed lymphedema in my leg but more than happy to live with it.  

                      Good luck with your decision.

                      Colleen

                      Colleen66
                      Participant

                        I was in your exact position.  SLN positive.  I chose a surface node removal.  They removed 7 nodes.  1 additional with micromets.  Did 1 month of HD Inteferon.  Almost two years out now and NED.  I still developed lymphedema in my leg but more than happy to live with it.  

                        Good luck with your decision.

                        Colleen

                        Colleen66
                        Participant

                          I was in your exact position.  SLN positive.  I chose a surface node removal.  They removed 7 nodes.  1 additional with micromets.  Did 1 month of HD Inteferon.  Almost two years out now and NED.  I still developed lymphedema in my leg but more than happy to live with it.  

                          Good luck with your decision.

                          Colleen

                          Linny
                          Participant

                            I was in a similar situation that your wife is in. I had a lymph node in my armpit in which some atypical cells were found. A local surgeon recommended getting it removed. Good thing it was removed because those atypical cells turned out to be melanoma. No mole was ever found. I got a CAT scan at the local hospital, which ended up being clear.

                            The local surgeon referred me to Johns Hopkins where I was seen by one of their dermatologists. (He found nothing on ny skin either, BTW.) He had told me that the next step would be to have the rest of the lymph nodes removed from that armpit. I had asked him if that was necessary because the CAT scan was clear. He claimed there still could be atypical cells lurking there and it was best to take all the left axillary nodes out and find out how many other nodes were affected, if any. Only AFTER that surgery would they be able to give me my treatment options. 

                            Now, based on what I've learned from my oncologist, this forum, and MIF's forum is that Interferon does not have a high efficacy rate and is becoming "old school". I think the efficacy rate is around 5%. So, given that, it's not a very good non-surgical option.

                            The only way you can be certain you will have gotten rid of the melanoma from the lymph node basin is to go ahead with the surgery. And once the surgery is complete, the oncologist will discuss your options with you. Hopefully, your wife's oncologist is someone who specializes in melanoma.

                             

                            Linny
                            Participant

                              I was in a similar situation that your wife is in. I had a lymph node in my armpit in which some atypical cells were found. A local surgeon recommended getting it removed. Good thing it was removed because those atypical cells turned out to be melanoma. No mole was ever found. I got a CAT scan at the local hospital, which ended up being clear.

                              The local surgeon referred me to Johns Hopkins where I was seen by one of their dermatologists. (He found nothing on ny skin either, BTW.) He had told me that the next step would be to have the rest of the lymph nodes removed from that armpit. I had asked him if that was necessary because the CAT scan was clear. He claimed there still could be atypical cells lurking there and it was best to take all the left axillary nodes out and find out how many other nodes were affected, if any. Only AFTER that surgery would they be able to give me my treatment options. 

                              Now, based on what I've learned from my oncologist, this forum, and MIF's forum is that Interferon does not have a high efficacy rate and is becoming "old school". I think the efficacy rate is around 5%. So, given that, it's not a very good non-surgical option.

                              The only way you can be certain you will have gotten rid of the melanoma from the lymph node basin is to go ahead with the surgery. And once the surgery is complete, the oncologist will discuss your options with you. Hopefully, your wife's oncologist is someone who specializes in melanoma.

                               

                              Linny
                              Participant

                                I was in a similar situation that your wife is in. I had a lymph node in my armpit in which some atypical cells were found. A local surgeon recommended getting it removed. Good thing it was removed because those atypical cells turned out to be melanoma. No mole was ever found. I got a CAT scan at the local hospital, which ended up being clear.

                                The local surgeon referred me to Johns Hopkins where I was seen by one of their dermatologists. (He found nothing on ny skin either, BTW.) He had told me that the next step would be to have the rest of the lymph nodes removed from that armpit. I had asked him if that was necessary because the CAT scan was clear. He claimed there still could be atypical cells lurking there and it was best to take all the left axillary nodes out and find out how many other nodes were affected, if any. Only AFTER that surgery would they be able to give me my treatment options. 

                                Now, based on what I've learned from my oncologist, this forum, and MIF's forum is that Interferon does not have a high efficacy rate and is becoming "old school". I think the efficacy rate is around 5%. So, given that, it's not a very good non-surgical option.

                                The only way you can be certain you will have gotten rid of the melanoma from the lymph node basin is to go ahead with the surgery. And once the surgery is complete, the oncologist will discuss your options with you. Hopefully, your wife's oncologist is someone who specializes in melanoma.

                                 

                                Ginger8888
                                Participant

                                  I am stage 3 C and had a neck dissection with positive nodes, i do not regret the surgery because there could be more involved than expected..I did the 30 HD interferon and it did not work for me, i am now doing my last infusion of Yervoy on wed, scans after that..Good luck..

                                  Ginger8888
                                  Participant

                                    I am stage 3 C and had a neck dissection with positive nodes, i do not regret the surgery because there could be more involved than expected..I did the 30 HD interferon and it did not work for me, i am now doing my last infusion of Yervoy on wed, scans after that..Good luck..

                                    Ginger8888
                                    Participant

                                      I am stage 3 C and had a neck dissection with positive nodes, i do not regret the surgery because there could be more involved than expected..I did the 30 HD interferon and it did not work for me, i am now doing my last infusion of Yervoy on wed, scans after that..Good luck..

                                      duncan_aus
                                      Participant

                                        I had the armpit clearance done after finding an egg sized tumor in my armpit.. and a primary tumor on my forearm (angry red patch, not at all classic melanoma).. pathology says the primary tumor was recessing.

                                        The armpit clearance was aggressive 37 nodes removed. 1 positive. I recovered well. I have slightly reduced movement in my arm (and with stretching I think I could get rid of that). I have lost all sensation in my armpit and the back of arm above the elbow. I did sufffer some lymphadema early on but that has cleared as well. I dont sweat in that armpit anymore.

                                        I didn't hesitate to get that surgery, the downside has been minimal.

                                          duncan_aus
                                          Participant

                                            Also.. I had 20 radiation treatments to the armpit following surgery.. and then 4 weeks of the high dose interferon.

                                            duncan_aus
                                            Participant

                                              Also.. I had 20 radiation treatments to the armpit following surgery.. and then 4 weeks of the high dose interferon.

                                              duncan_aus
                                              Participant

                                                Also.. I had 20 radiation treatments to the armpit following surgery.. and then 4 weeks of the high dose interferon.

                                              duncan_aus
                                              Participant

                                                I had the armpit clearance done after finding an egg sized tumor in my armpit.. and a primary tumor on my forearm (angry red patch, not at all classic melanoma).. pathology says the primary tumor was recessing.

                                                The armpit clearance was aggressive 37 nodes removed. 1 positive. I recovered well. I have slightly reduced movement in my arm (and with stretching I think I could get rid of that). I have lost all sensation in my armpit and the back of arm above the elbow. I did sufffer some lymphadema early on but that has cleared as well. I dont sweat in that armpit anymore.

                                                I didn't hesitate to get that surgery, the downside has been minimal.

                                                duncan_aus
                                                Participant

                                                  I had the armpit clearance done after finding an egg sized tumor in my armpit.. and a primary tumor on my forearm (angry red patch, not at all classic melanoma).. pathology says the primary tumor was recessing.

                                                  The armpit clearance was aggressive 37 nodes removed. 1 positive. I recovered well. I have slightly reduced movement in my arm (and with stretching I think I could get rid of that). I have lost all sensation in my armpit and the back of arm above the elbow. I did sufffer some lymphadema early on but that has cleared as well. I dont sweat in that armpit anymore.

                                                  I didn't hesitate to get that surgery, the downside has been minimal.

                                                  JerryfromFauq
                                                  Participant

                                                    While I will agree that ALL melanoma cancer cells in the lymph nodes will be removed by a complete removal of the entire lymph node basin, I have problems believing that leaving a clear path for an cells left in the tissue to go up thru the lymph channels until the lymph fluid empties  into the blood supply insures that there are NO cancer cells in the body. 

                                                        i would rather have a second lymph node operation, if some nodes are left and trap some more cancer cells trying to get up the channels.   
                                                    I prefer to keep the cells as fr as possible from my blood supply.  There are clinical trials trying to determine whether total or partial  removal gives the best statistical results. 

                                                    Just my opinion as a melanoma patient!

                                                     

                                                    JerryfromFauq
                                                    Participant

                                                      While I will agree that ALL melanoma cancer cells in the lymph nodes will be removed by a complete removal of the entire lymph node basin, I have problems believing that leaving a clear path for an cells left in the tissue to go up thru the lymph channels until the lymph fluid empties  into the blood supply insures that there are NO cancer cells in the body. 

                                                          i would rather have a second lymph node operation, if some nodes are left and trap some more cancer cells trying to get up the channels.   
                                                      I prefer to keep the cells as fr as possible from my blood supply.  There are clinical trials trying to determine whether total or partial  removal gives the best statistical results. 

                                                      Just my opinion as a melanoma patient!

                                                       

                                                      JerryfromFauq
                                                      Participant

                                                        While I will agree that ALL melanoma cancer cells in the lymph nodes will be removed by a complete removal of the entire lymph node basin, I have problems believing that leaving a clear path for an cells left in the tissue to go up thru the lymph channels until the lymph fluid empties  into the blood supply insures that there are NO cancer cells in the body. 

                                                            i would rather have a second lymph node operation, if some nodes are left and trap some more cancer cells trying to get up the channels.   
                                                        I prefer to keep the cells as fr as possible from my blood supply.  There are clinical trials trying to determine whether total or partial  removal gives the best statistical results. 

                                                        Just my opinion as a melanoma patient!

                                                         

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