Hi, I just started to read this forum recently.
My father has started his terrible journey in Sept 2011 when they found out a melanoma in his thigh. That was already stage 3, not sure about the specification. After different treatments and surgery to remove linphs he has got satellite melanoma all over the leg. Obviously, the leg became bigger and bigger during the period.
From January 2013 to November 2013 he has been part of the sperimentation of a new drug, the project was callend PRAME. We did not see any relevant benefit and that's the reason he left for starting Yervoy, in January 2014.
In the process of going from local melanoma to satellites they moved him from stage 3 to 4, and that was right during the PRAME therapy. In our country Yervoy is given just to stage 4 patients.
He has been able to have the first three sessions and then, in April 2014, just went down. He collapsed being in and out from hospital with infections, inflammations, pain. Doctors told us was a reaction and probably an intoxication from Yervoy. Recently, just a month ago he was again in hospital with very high fever, nausea, diaorrhea, confusion.
Doctors told us that he is in a terminally ill stage where they are not able to do any prediction. His blood has a very high LDH value and the forecast is to have blood cancer and perhaps mets on linphs and brain. He is literally under palliatives and he is not eating, so skinny and pallid. Most of the day just sleeps and his voice his so low and innocent, like his behaviour, since he is not clearly aware of the situation. He cannot have TC or radio because he is too weak, at least they say.
I am feeling so bad, do not know what to do and what to think. I am very confused because everything went so fast and now I am stuck with this situation. What do you think? Do you have any experience at all with this particular aspect of illness?
Thank you all…
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