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1 Week on Yervoy – Feeling spacey and slightly dizzy
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1 Week on Yervoy – Feeling spacey and slightly dizzy

› Forums › General Melanoma Community › 1 Week on Yervoy – Feeling spacey and slightly dizzy

  • Post
    • August 22, 2011 at 5:41 pm
    AlanM
    Participant

      I started Yervoy last week and up until today had not really felt any side effects other than an occasional "knot" in my stomach. Today my ability to concentrate has fallen off considerably and I am feeling slghtly dizzy. Has anyone on Yervoy had similar side effects? This is making work a challenge today!

      Alan

      I started Yervoy last week and up until today had not really felt any side effects other than an occasional "knot" in my stomach. Today my ability to concentrate has fallen off considerably and I am feeling slghtly dizzy. Has anyone on Yervoy had similar side effects? This is making work a challenge today!

      Alan

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    • Replies
        • August 22, 2011 at 7:02 pm
        Lisa13
        Participant

          Hi Alan,

          I began Yervoy as well (12 days ago) and havn't experienced any symptoms. I have read in my clinical trial package that being dizzy and forgetful can be a side effect in a smaller amount of people. There are common symptoms which are experienced by larger groups of people and then other random symptoms that affect 1% of people, so that could be you.  The only thing I've experienced is feeling hot at times, other than that, I've been told not to expect much until around 7 weeks (or after 2nd infusion). Everyone is different. TracyLee felt dizzy ipi, but I believe that was after Round 3.  Call your Dr if it becomes a concern as most symptoms need to be monitored.

          Best of luck – hope ipi is your magic bullet!

          Lisa – Stage 4 lung mets (ipi rookie)

          • August 22, 2011 at 7:02 pm
          Lisa13
          Participant

            Hi Alan,

            I began Yervoy as well (12 days ago) and havn't experienced any symptoms. I have read in my clinical trial package that being dizzy and forgetful can be a side effect in a smaller amount of people. There are common symptoms which are experienced by larger groups of people and then other random symptoms that affect 1% of people, so that could be you.  The only thing I've experienced is feeling hot at times, other than that, I've been told not to expect much until around 7 weeks (or after 2nd infusion). Everyone is different. TracyLee felt dizzy ipi, but I believe that was after Round 3.  Call your Dr if it becomes a concern as most symptoms need to be monitored.

            Best of luck – hope ipi is your magic bullet!

            Lisa – Stage 4 lung mets (ipi rookie)

            • August 22, 2011 at 10:47 pm
            AlanM
            Participant
              Thank you Lisa for your response. Just feeling “off” today and not sure if it is from the ipi or from the slight swelling I have from the brain met. I will monitor and report to Dr if it continues.

              Alan

              • August 22, 2011 at 10:47 pm
              AlanM
              Participant
                Thank you Lisa for your response. Just feeling “off” today and not sure if it is from the ipi or from the slight swelling I have from the brain met. I will monitor and report to Dr if it continues.

                Alan

                • August 22, 2011 at 11:00 pm
                AlanM
                Participant
                  Thank you Lisa for your response. Just feeling “off” today and not sure if it is from the ipi or from the slight swelling I have from the brain met. I will monitor and report to Dr if it continues.

                  Alan

                    • August 23, 2011 at 11:13 am
                    Lisa13
                    Participant

                      Hi Alan,

                      Sorry to hear you're feeling off, but it's likely the ipi.  I also know that ipi can cause glandular problems – like pituatary (brain) which can cause headaches, but I'm not sure these side effects would manifest in a week.

                      I'm glad you're going to monitor how you feel and let your Dr know.  I'm sending you best wishes and prayers for a complete response with ipi.

                      Lisa – Stage 4

                      • August 23, 2011 at 11:13 am
                      Lisa13
                      Participant

                        Hi Alan,

                        Sorry to hear you're feeling off, but it's likely the ipi.  I also know that ipi can cause glandular problems – like pituatary (brain) which can cause headaches, but I'm not sure these side effects would manifest in a week.

                        I'm glad you're going to monitor how you feel and let your Dr know.  I'm sending you best wishes and prayers for a complete response with ipi.

                        Lisa – Stage 4

                      • August 22, 2011 at 11:00 pm
                      AlanM
                      Participant
                        Thank you Lisa for your response. Just feeling “off” today and not sure if it is from the ipi or from the slight swelling I have from the brain met. I will monitor and report to Dr if it continues.

                        Alan

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