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12 Years NED today after BRAIN MET
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12 Years NED today after BRAIN MET

› Forums › General Melanoma Community › 12 Years NED today after BRAIN MET

  • Post
    • January 31, 2013 at 3:43 am
    Carole K
    Participant

      Hi Everyone,

      For all intents I am concisdered to be an OLD TIMER on the board eventough I rarely post anymore.  I am still NED after a brain met for which I had surgery 12 years ago today at NYU Medical Center in NYC.  I am still amazed and every day I wake up and say IT'S A BEAUTIFUL DAY, I OPENED MY EYES TODAY. NO matter the storm, the rain in my life or with the weather I still find many blessings.

      Hi Everyone,

      For all intents I am concisdered to be an OLD TIMER on the board eventough I rarely post anymore.  I am still NED after a brain met for which I had surgery 12 years ago today at NYU Medical Center in NYC.  I am still amazed and every day I wake up and say IT'S A BEAUTIFUL DAY, I OPENED MY EYES TODAY. NO matter the storm, the rain in my life or with the weather I still find many blessings.

      We all know the diagnosis of Brain Met is considered a death sentemce.  I was petrified until my oncoldogst said.. Carole, noone can tell you where the statistics come from , nor nos they wre arrived at or how old they are. YOU ARE AN INDIVIDUAL AND YOU ARE DIFGFERENT FROM EVERYONE ELSE.  Those words stuc with me and still do to this day, 

      I have been blessed to see both of my daughters married and three incredible grandchildren brought into the world and a fourth one on the way and a hopefully a fith one by the end of the year. What more could I ask for.  I spend so much time with my grandchidlren who make me smile and at times make me cry wiht a big kiss or a cry as I leave and say goodbye.  Wow.. I wouldn't  trade it for anything in the world.  No amoung of money could buy this happiness. 

      To each and everyone of you on this journey, take a deep breath, try to find the gifts, there are many and yet at times I know how difficult it is to find them. the past 12 years have not been easy in many ways,.  I have lost far too  many loved ones, far too many Melanoma Patients I have connected with, a huge financial loss and at the same time I have witnessed two daughers being married, three grandhcidren being born, I have built a new house, I have traveled far and wide to meet so many of you , WE have shared laughter, tears and joy and I am so eternally gratefull to each and everyone who havr crossed my ;path.  You have brought me smiles, joys and laughtert at the times I have needed it most. You have brought me sanity in those times of insanity. You have brought me hope in times of Fear,Laughter in times of sorrw and most of all Love and Light I will teasure forever.

      ONE NIGHT AT A PARTY MY DAUGHTERS HAD THE SONG   YOU ARE SIMPLY THE BEST, BETTER THAN ALL THE REST playerd for me. I  dediacate this song to all of you.  HANG TOUGH.. NEVER EVER EVER GIVE UP HOPE.  and To each and everyone of you I dedicate my song to my daughters.  Celine Dion  BECAUSE YOU LOVED ME.  Many years ago I also dedicated that song to two people I met on MPIP who are a huge part of my life to this day… Chip and Bonnie whose strngth and courage helped me through the most difficult time of my life. Despite the fact they were in the mdst of a very diffcult time of their own they were ther then and continue to be with me today.. 12 years later. Thang you All.

      Love and Ligth

      Carole K

      IF I CAN BE OF ANY HELP EM AIL ME ATmm [email protected]  

      LOVE AND LIGHT

      CAROLE

    Viewing 11 reply threads
    • Replies
        • January 31, 2013 at 5:40 pm
        MiamiAllen
        Participant

          Carole  You are truly one magnificant person and a great spokesperson for Melanoma. I'll never forget you coming over to Dallas to meet me and we spent the night together. "But in different bedrooms" I got the Barbie Dol Room and you got the Race cars, at Barbie's house in Eulas. Thanks for all you have done for the Melanom community and mostly the hope and inspiration you have given me. Im glad that you have your daughters and grand children to cherish while you are here    Love Ya Lady Allen Carr Stage IV NED

          • January 31, 2013 at 5:40 pm
          MiamiAllen
          Participant

            Carole  You are truly one magnificant person and a great spokesperson for Melanoma. I'll never forget you coming over to Dallas to meet me and we spent the night together. "But in different bedrooms" I got the Barbie Dol Room and you got the Race cars, at Barbie's house in Eulas. Thanks for all you have done for the Melanom community and mostly the hope and inspiration you have given me. Im glad that you have your daughters and grand children to cherish while you are here    Love Ya Lady Allen Carr Stage IV NED

            • January 31, 2013 at 5:40 pm
            MiamiAllen
            Participant

              Carole  You are truly one magnificant person and a great spokesperson for Melanoma. I'll never forget you coming over to Dallas to meet me and we spent the night together. "But in different bedrooms" I got the Barbie Dol Room and you got the Race cars, at Barbie's house in Eulas. Thanks for all you have done for the Melanom community and mostly the hope and inspiration you have given me. Im glad that you have your daughters and grand children to cherish while you are here    Love Ya Lady Allen Carr Stage IV NED

              • January 31, 2013 at 8:42 pm
              Swanee
              Participant

                Hi Carole,

                Have tried to email you but without success.  Would you please email me as I have some questions for you regarding your treatments.     

                [email protected]

                 

                Thanks!

                • January 31, 2013 at 8:42 pm
                Swanee
                Participant

                  Hi Carole,

                  Have tried to email you but without success.  Would you please email me as I have some questions for you regarding your treatments.     

                  [email protected]

                   

                  Thanks!

                  • January 31, 2013 at 8:42 pm
                  Swanee
                  Participant

                    Hi Carole,

                    Have tried to email you but without success.  Would you please email me as I have some questions for you regarding your treatments.     

                    [email protected]

                     

                    Thanks!

                    • January 31, 2013 at 10:12 pm
                    jag
                    Participant

                      Carole, 

                      I can't thank you enough for being a brain metastases survivor from melanoma.  I didn't know of anybody who survived when their melanoma spread to the brain.  But when I got it, I searched and searched and searched through all of the patnets, found you contacted you.  I finally met somebody who had made it to the other side and was living a normal life.  Just knowing you were out there gave me a ton of hope.  

                      kind regards

                      John

                      p.s. no matter how bad the day is going, I always say "At least you aren't going to have another brain surgery today".   Then the dust settles and I just keep plodding along until I get through it.  

                      • January 31, 2013 at 10:12 pm
                      jag
                      Participant

                        Carole, 

                        I can't thank you enough for being a brain metastases survivor from melanoma.  I didn't know of anybody who survived when their melanoma spread to the brain.  But when I got it, I searched and searched and searched through all of the patnets, found you contacted you.  I finally met somebody who had made it to the other side and was living a normal life.  Just knowing you were out there gave me a ton of hope.  

                        kind regards

                        John

                        p.s. no matter how bad the day is going, I always say "At least you aren't going to have another brain surgery today".   Then the dust settles and I just keep plodding along until I get through it.  

                        • January 31, 2013 at 10:12 pm
                        jag
                        Participant

                          Carole, 

                          I can't thank you enough for being a brain metastases survivor from melanoma.  I didn't know of anybody who survived when their melanoma spread to the brain.  But when I got it, I searched and searched and searched through all of the patnets, found you contacted you.  I finally met somebody who had made it to the other side and was living a normal life.  Just knowing you were out there gave me a ton of hope.  

                          kind regards

                          John

                          p.s. no matter how bad the day is going, I always say "At least you aren't going to have another brain surgery today".   Then the dust settles and I just keep plodding along until I get through it.  

                          • February 1, 2013 at 2:37 am
                          awillett1991
                          Participant
                            Thanks Carole – I needed this! So much bad news on here lately.
                            • February 1, 2013 at 2:37 am
                            awillett1991
                            Participant
                              Thanks Carole – I needed this! So much bad news on here lately.
                              • February 1, 2013 at 2:37 am
                              awillett1991
                              Participant
                                Thanks Carole – I needed this! So much bad news on here lately.
                            Viewing 11 reply threads
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