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2 yrs, brain mets
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2 yrs, brain mets

› Forums › General Melanoma Community › 2 yrs, brain mets

  • Post
    • March 18, 2014 at 12:31 pm
    kellygrl
    Participant
      Don’t lose hope!! My husband is gong on 2 yrs with 13 brain lesions. He had WBR when first diagnosed, didn’t week to respond, did great on Zelboraf for 14 mos, 8/13 had gamma knife on 5 tumors (they all responded), 11/13 on dabrafenib/Trametinib combo, 2/14 gamma on 4 more tumors and yesterday insurance just approved Yervoy in conjunction with combo! Dabradenib will shrink quick, Yervoy will give him the miles!! He is feeling great! Worst part about this whole ordeal has been steroids since 8/13 ugh….. this time the taper is going well, few rough patches in winter due to swelling, but so far so good this time!

      Hang in there and STAY STRONG!
      Kelly

    Viewing 11 reply threads
    • Replies
        • March 18, 2014 at 12:36 pm
        hbecker
        Participant

          Kelly, love your Positive Mental Attitude!! Thanks for posting – will be thinking of you.

          ~Hazel

          • March 18, 2014 at 12:36 pm
          hbecker
          Participant

            Kelly, love your Positive Mental Attitude!! Thanks for posting – will be thinking of you.

            ~Hazel

            • March 18, 2014 at 12:36 pm
            hbecker
            Participant

              Kelly, love your Positive Mental Attitude!! Thanks for posting – will be thinking of you.

              ~Hazel

                • March 22, 2014 at 10:57 am
                kellygrl
                Participant

                  Thanks Hazel! smiley

                  • March 22, 2014 at 10:57 am
                  kellygrl
                  Participant

                    Thanks Hazel! smiley

                    • March 22, 2014 at 10:57 am
                    kellygrl
                    Participant

                      Thanks Hazel! smiley

                      • March 22, 2014 at 10:59 am
                      kellygrl
                      Participant

                        Congrats on your husband NED!

                        • March 22, 2014 at 10:59 am
                        kellygrl
                        Participant

                          Congrats on your husband NED!

                          • March 22, 2014 at 10:59 am
                          kellygrl
                          Participant

                            Congrats on your husband NED!

                          • March 18, 2014 at 1:26 pm
                          Bubbles
                          Participant

                            That's great, Kelly!! Thanks for the update and so glad that things are looking up. I know this has been very difficult for you both. Glad too for the approval of the combo!! Wishing you both my best! Celeste

                            • March 18, 2014 at 1:26 pm
                            Bubbles
                            Participant

                              That's great, Kelly!! Thanks for the update and so glad that things are looking up. I know this has been very difficult for you both. Glad too for the approval of the combo!! Wishing you both my best! Celeste

                              • March 18, 2014 at 1:26 pm
                              Bubbles
                              Participant

                                That's great, Kelly!! Thanks for the update and so glad that things are looking up. I know this has been very difficult for you both. Glad too for the approval of the combo!! Wishing you both my best! Celeste

                                  • March 22, 2014 at 11:02 am
                                  kellygrl
                                  Participant

                                    Thanks Celeste! Congrats on your NED! Hope to join that club someday…..  he has beaten many odds so far… laugh

                                    • March 22, 2014 at 11:02 am
                                    kellygrl
                                    Participant

                                      Thanks Celeste! Congrats on your NED! Hope to join that club someday…..  he has beaten many odds so far… laugh

                                      • March 22, 2014 at 11:02 am
                                      kellygrl
                                      Participant

                                        Thanks Celeste! Congrats on your NED! Hope to join that club someday…..  he has beaten many odds so far… laugh

                                      • March 18, 2014 at 5:58 pm
                                      Brendan
                                      Participant

                                        Great news, Kelly.  Thanks for the update.  I agree about the steroids; they were rough on me as well.  Good luck to your husband on the combo.

                                        Brendan

                                          • March 22, 2014 at 11:11 am
                                          kellygrl
                                          Participant

                                            Poor guy worked out, was in great shape…. little skinny on Zelboraf…  then these evil steroids!! YES we are happy he is doing well, but he looks in the mirror and doesn't see himself, brings him down.  Fingers crossed this taper continues to go well and now that he is not an eating machine… lol ….  can get him back to a healthy diet!  Best of luck to you as well Brendan! 

                                            • March 22, 2014 at 11:11 am
                                            kellygrl
                                            Participant

                                              Poor guy worked out, was in great shape…. little skinny on Zelboraf…  then these evil steroids!! YES we are happy he is doing well, but he looks in the mirror and doesn't see himself, brings him down.  Fingers crossed this taper continues to go well and now that he is not an eating machine… lol ….  can get him back to a healthy diet!  Best of luck to you as well Brendan! 

                                              • March 22, 2014 at 11:11 am
                                              kellygrl
                                              Participant

                                                Poor guy worked out, was in great shape…. little skinny on Zelboraf…  then these evil steroids!! YES we are happy he is doing well, but he looks in the mirror and doesn't see himself, brings him down.  Fingers crossed this taper continues to go well and now that he is not an eating machine… lol ….  can get him back to a healthy diet!  Best of luck to you as well Brendan! 

                                              • March 18, 2014 at 5:58 pm
                                              Brendan
                                              Participant

                                                Great news, Kelly.  Thanks for the update.  I agree about the steroids; they were rough on me as well.  Good luck to your husband on the combo.

                                                Brendan

                                                • March 18, 2014 at 5:58 pm
                                                Brendan
                                                Participant

                                                  Great news, Kelly.  Thanks for the update.  I agree about the steroids; they were rough on me as well.  Good luck to your husband on the combo.

                                                  Brendan

                                                  • March 18, 2014 at 9:40 pm
                                                  Carole K
                                                  Participant

                                                    HI Kelly,

                                                    It is wonderful to hear a success story with all your husband has been through.  I am currently 12 yr. survivor after brain met. I was once very active here and trying to get the chat room going for all of you to meet and chat. It is a wonderful support.  Congratulations to your husband and pleae tell him I send him healing hugs and positive thoughts.  If I can be of any help please know I am here.  NEVER GIVE UP HOPE AND NEVER LOOK BACK. 

                                                    Love and Light

                                                    Carole

                                                      • March 22, 2014 at 11:15 am
                                                      kellygrl
                                                      Participant

                                                        That is amazing Carole!! Congrats to you! I am not active on here, I just check in once in awhile to see what's out there… etc..    I will send my husband your msg, thank you. 🙂 

                                                        • March 22, 2014 at 11:15 am
                                                        kellygrl
                                                        Participant

                                                          That is amazing Carole!! Congrats to you! I am not active on here, I just check in once in awhile to see what's out there… etc..    I will send my husband your msg, thank you. 🙂 

                                                          • March 22, 2014 at 11:15 am
                                                          kellygrl
                                                          Participant

                                                            That is amazing Carole!! Congrats to you! I am not active on here, I just check in once in awhile to see what's out there… etc..    I will send my husband your msg, thank you. 🙂 

                                                          • March 18, 2014 at 9:40 pm
                                                          Carole K
                                                          Participant

                                                            HI Kelly,

                                                            It is wonderful to hear a success story with all your husband has been through.  I am currently 12 yr. survivor after brain met. I was once very active here and trying to get the chat room going for all of you to meet and chat. It is a wonderful support.  Congratulations to your husband and pleae tell him I send him healing hugs and positive thoughts.  If I can be of any help please know I am here.  NEVER GIVE UP HOPE AND NEVER LOOK BACK. 

                                                            Love and Light

                                                            Carole

                                                            • March 18, 2014 at 9:40 pm
                                                            Carole K
                                                            Participant

                                                              HI Kelly,

                                                              It is wonderful to hear a success story with all your husband has been through.  I am currently 12 yr. survivor after brain met. I was once very active here and trying to get the chat room going for all of you to meet and chat. It is a wonderful support.  Congratulations to your husband and pleae tell him I send him healing hugs and positive thoughts.  If I can be of any help please know I am here.  NEVER GIVE UP HOPE AND NEVER LOOK BACK. 

                                                              Love and Light

                                                              Carole

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