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2nd Petscan Report-(Praise Report!)
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2nd Petscan Report-(Praise Report!)

› Forums › Cutaneous Melanoma Community › 2nd Petscan Report-(Praise Report!)

  • Post
    • September 19, 2017 at 12:11 am
    Sharon93065
    Participant

      I went today to get my Petscan results, worrying about the 6 tumors in my body and wondering what further treatments I would have.  Currently my liver panel is high and I am on Prednisone 100mg a day.
      In a nutshell: I typed this with the highlights of the actual report.
      I have a Praise Report: Since cancer cells are metabolically more active, they use more glucose (and FDG) and "light up" on the scan as abnormal activity. FDG shows the tumors. 
      Chest: subcentimeter lymph node is LESS PROMINENT IN SIZE. . Previously noted intense FDG activity in left paraoesophageal lymph node IS NO LONGER CLEARLY VISUALIZED without any focal abnormal FDG activity noted.
      There is centrilobular emphysematous changes noted.  The Irregular opacity in the medial proximal left lower lobe with focal intense FDG activity is nearly RESOLVED WITHOUT ANY ABNORMAL FDG ACTIVITY.
      The irregular opacity in the medial proximal left lower lobe with focal intense FDG activity IS NEARLY RESOLVED WITHOUT ANY ABNORMAL FDG  ACTIVITY.  There is residual pleural-based nodularity in the left lower lung base measuring 1.5 x 2.0cm with faint FDG activity PREVIOUSLY measuring approx. 2.9 X 2.4 CM.
      The previously noted right anterior mesenteric nodule, peripancreatic lymph node, and right anterior pelvis along the anterior abdominal wall ARE NO LONGER VISUALIZED. 
      Large focus in the right paraspinal mass within the erector spinae muscle is NO LONGER MEASURABLE WITH FAINT RESIDUAL ACTIVITY of 1.6, previously with intense activity measuring 5/2 X 3.4cm.
      THERE IS MARKEDLY FAVORABLE RESPONSE TO INTERVAL THERAPY WITH POSSIBLY MINIMAL RESIDUAL ACTIVE MALIGNANCY REMAINING!!!!
      Dr. said now the priority is to get my liver numbers normal.  They have stayed high over a week now.  Then let my body get to normal.  Another Petscan in a couple of months.  And my daughter who has the memory said he said I would not need to start on any Opdivo maintenance unless there was a change!!  Thank you God!
      Sharon
       

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    • Replies
        • September 19, 2017 at 3:16 am
        Mark_DC
        Participant

          Well done Sharon. You are very lucky, great news. I think the liver numbers will soon come down too!

            • September 19, 2017 at 4:29 am
            Sharon93065
            Participant

              I am very very lucky, didn't have the flu like symptoms others have, just the ezcema, and fatigue.  Crankiness from being tired and Prednisone.  I also cut out all sugar and carbs 1st of April.  In 4 months lost 20 lbs, to starve tumors (chubby to start with) and with the Prednisone I have been able not to gain it back which has been my worry. 

            • September 19, 2017 at 4:27 am
            Sharon93065
            Participant

              Forgot to mention received 3 of the 4 Opdivo/Yervoy treatments.  4th cancelled due to liver panel.

              Also Dr called tonight to tell me to increase my thyroid to 75 mg.  I am so tired all the time, it's the liver and the thyroid.  Gut it's the happy price to pay. 

               

              • September 19, 2017 at 10:58 pm
              Ridingaroundwith27Jennifers
              Participant

                Congratulations.  When my liver numbers were high due to ipi/nivo combo and we tried to taper the prednisone the liver numbers would elevate as the prednisone went down so they would bump it back up.  Finally they put me on cellcept which brought down the AST and ALT.  This allowed me to taper the prednisone and then get off the cellcept.  This might be a way for you to get off the prednisone.  Good wishes to you.

                Jennifer

                  • September 20, 2017 at 5:56 am
                  Sharon93065
                  Participant

                    Hi Jennifer, you mentioned that before and twice now i've asked him about it.  and he said it was primarily used in tansplant patients.  He did mention another medication i don't remember what or if he said what it was as to not keep me on the Prednisone, in the meantime i get my blood tested twice a week.  And he put me on  a 3rd thryoid pill, 75mg daily.  Thank you for advise, keept it coming.  Feeling very happy right now, walked into Dr worrying about not getting maintenance Opdvio, walking out not need it for awhile, new Petscn in a couple of months and give my body a rest. Keep  your posts coming, they are helpful.  I do realize the Beast can raise it's ugly head somewhere else later but for not….

                    Sharon

                     

                    • September 20, 2017 at 5:56 am
                    Sharon93065
                    Participant

                       I mean but for now…

                    • September 20, 2017 at 4:16 pm
                    sister of patient
                    Participant

                      Excellent report Sharon – I'm so pleased for you!! May the next be even better! Best wishes.

                      Barb

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