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3 Years NED
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3 Years NED

› Forums › General Melanoma Community › 3 Years NED

  • Post
    • October 10, 2015 at 4:57 pm
    Gene_S
    Participant

      My husbands journey with melanoma started in Jan. 2008, had 4 surgeries and was watching and waiting until he became Stage IV in Oct. 2010. His SLN came back negative and he had his WLE on Feb. 14, 2008.   Mets in the Liver, Lungs and an unresectable putting pressure on the C1-C2 Cervical spine and 4 sub q's by Mar. 2011.  The unresectable would have left him a paraplegic if they did surgery.

      Started a clinical trial in March 2011 on Ipi (10 mg/kg) and GM-CSF.  Did the 4 infustions of Ipi in 12 weeks and doing daily injections of GM-CSF for 14 days and then no injections for 7 days.  Watched the sub q's shrink and it was amazing.  Took photos with a nickel so you had something to compare them with.  Went on maintenance dosing every 12 weeks for the Ipi and the whole time doing the GM-CSF on for 14 and off for 7.  In October of 2012 he became NED.  Remained on the trial on maintenance doses until Dec. 2013 and them quit taking the Ipi and the GM-CSF.

      We are so very happy that he has remained NED (no evidence of disease).  If you would like to read more about his journey then check out his profile.

      Judy (loving wife of Gene Stage IV and now NED)

    Viewing 23 reply threads
    • Replies
        • October 10, 2015 at 7:29 pm
        Tracy Seattle
        Participant

          Congratulations!!  What a blessing!!  Love all the stories of victory!

           

          • October 10, 2015 at 7:29 pm
          Tracy Seattle
          Participant

            Congratulations!!  What a blessing!!  Love all the stories of victory!

             

            • October 10, 2015 at 7:29 pm
            Tracy Seattle
            Participant

              Congratulations!!  What a blessing!!  Love all the stories of victory!

               

              • October 10, 2015 at 9:13 pm
              arthurjedi007
              Participant

                That's awesome : )

                Artie

                • October 10, 2015 at 9:13 pm
                arthurjedi007
                Participant

                  That's awesome : )

                  Artie

                  • October 10, 2015 at 9:13 pm
                  arthurjedi007
                  Participant

                    That's awesome : )

                    Artie

                    • October 11, 2015 at 6:07 am
                    Marianne quinn
                    Participant

                      Great news. My hubby is 18 months NED after 10 mg ipi. Your story was just what we needed during the darkest times. Thanks. Marianne 

                      • October 11, 2015 at 6:07 am
                      Marianne quinn
                      Participant

                        Great news. My hubby is 18 months NED after 10 mg ipi. Your story was just what we needed during the darkest times. Thanks. Marianne 

                        • October 11, 2015 at 6:07 am
                        Marianne quinn
                        Participant

                          Great news. My hubby is 18 months NED after 10 mg ipi. Your story was just what we needed during the darkest times. Thanks. Marianne 

                          • October 11, 2015 at 6:57 am
                          stars
                          Participant

                            Judy – thank you so much for updating – I love to hear good news! All the best to you both,

                            STars

                            • October 11, 2015 at 6:57 am
                            stars
                            Participant

                              Judy – thank you so much for updating – I love to hear good news! All the best to you both,

                              STars

                              • October 11, 2015 at 6:57 am
                              stars
                              Participant

                                Judy – thank you so much for updating – I love to hear good news! All the best to you both,

                                STars

                                • October 11, 2015 at 6:35 pm
                                jbronicki
                                Participant

                                  Always wonderful to read about the good stuff!  So glad for you and your husband!

                                  • October 11, 2015 at 6:35 pm
                                  jbronicki
                                  Participant

                                    Always wonderful to read about the good stuff!  So glad for you and your husband!

                                    • October 11, 2015 at 6:35 pm
                                    jbronicki
                                    Participant

                                      Always wonderful to read about the good stuff!  So glad for you and your husband!

                                      • October 11, 2015 at 8:53 pm
                                      Gwen in Maine
                                      Participant

                                        That's so wonderful! Thanks for sharing.

                                        Gwen

                                        • October 11, 2015 at 8:53 pm
                                        Gwen in Maine
                                        Participant

                                          That's so wonderful! Thanks for sharing.

                                          Gwen

                                          • October 11, 2015 at 8:53 pm
                                          Gwen in Maine
                                          Participant

                                            That's so wonderful! Thanks for sharing.

                                            Gwen

                                            • October 12, 2015 at 2:49 am
                                            DZnDef
                                            Participant

                                              Excellent news Judy & Gene!  I hope we continue to get the exact same update from you over and over and over again!

                                              • October 12, 2015 at 2:49 am
                                              DZnDef
                                              Participant

                                                Excellent news Judy & Gene!  I hope we continue to get the exact same update from you over and over and over again!

                                                • October 12, 2015 at 2:49 am
                                                DZnDef
                                                Participant

                                                  Excellent news Judy & Gene!  I hope we continue to get the exact same update from you over and over and over again!

                                                  • October 12, 2015 at 10:58 pm
                                                  Bubbles
                                                  Participant

                                                    Wonderful!  Gene's rattie contribution is greater than his own success as such combo's as his are currently among the forefront of research with amazing potential for so many others.  Thanks for a gift beyond compare, we are forever in debt to folks willing to participate in trial research, and thanks for sharing the continuing good news.  Wishing you both my best.  Celeste

                                                    • October 12, 2015 at 10:58 pm
                                                    Bubbles
                                                    Participant

                                                      Wonderful!  Gene's rattie contribution is greater than his own success as such combo's as his are currently among the forefront of research with amazing potential for so many others.  Thanks for a gift beyond compare, we are forever in debt to folks willing to participate in trial research, and thanks for sharing the continuing good news.  Wishing you both my best.  Celeste

                                                      • October 12, 2015 at 10:58 pm
                                                      Bubbles
                                                      Participant

                                                        Wonderful!  Gene's rattie contribution is greater than his own success as such combo's as his are currently among the forefront of research with amazing potential for so many others.  Thanks for a gift beyond compare, we are forever in debt to folks willing to participate in trial research, and thanks for sharing the continuing good news.  Wishing you both my best.  Celeste

                                                    Viewing 23 reply threads
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