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36 week scan results on Clinical Trial with Ipi (Yervoy) and GMCSF
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36 week scan results on Clinical Trial with Ipi (Yervoy) and GMCSF

› Forums › Caregiver Community › 36 week scan results on Clinical Trial with Ipi (Yervoy) and GMCSF

  • Post
    • November 12, 2011 at 3:26 pm
    Gene_S
    Participant

      Gene had his 36 week scans and we got the great results of over 63% regression with some lesions being totally gone.  He is on the maintenance phase of the Ipi and gets infusions every 12 weeks after the initial 4 infusions  while taking the GMCSF self injections for 14 days then 7 off the entire time.

      Here's to hoping for NED sometime in the near future.

      In November 2010 he was diagnosed Stage IV and things were looking pretty bleak and now we can see the light at the end of the tunnel.

      Gene had his 36 week scans and we got the great results of over 63% regression with some lesions being totally gone.  He is on the maintenance phase of the Ipi and gets infusions every 12 weeks after the initial 4 infusions  while taking the GMCSF self injections for 14 days then 7 off the entire time.

      Here's to hoping for NED sometime in the near future.

      In November 2010 he was diagnosed Stage IV and things were looking pretty bleak and now we can see the light at the end of the tunnel.

      Here's hoping this helps someone else see the glimmer of hope with this drug and that it will give others hope in there medications as well.  I hope the other warriors of this disease can continue to fight and beat it.

      Judy (loving wife and caregiver of Gene)

    Viewing 17 reply threads
    • Replies
        • November 12, 2011 at 4:29 pm
        triciad
        Participant

          This is WONDERFUL news!  I am so happy for both of you and pray for Gene's continued success!

          Tricia

          • November 12, 2011 at 4:29 pm
          triciad
          Participant

            This is WONDERFUL news!  I am so happy for both of you and pray for Gene's continued success!

            Tricia

            • November 12, 2011 at 4:29 pm
            triciad
            Participant

              This is WONDERFUL news!  I am so happy for both of you and pray for Gene's continued success!

              Tricia

              • November 13, 2011 at 3:29 am
              ad2424
              Participant

                Hi Judy

                I hope to one day be in a position to see regression. When reading your post, I was wondering who gave you a figure of 63%? I am an accountant and so I get hung up on numbers. 63% is so precise. Thanks.

                 

                Steven

                  • November 13, 2011 at 1:53 pm
                  Gene_S
                  Participant

                    Hello Steven,

                    The Dr. takes the measurements of all the tumors everytime a scan is done and from the beginning in March until now the percentage is over 63% regression.  Some have totally disappeared while others internally are moving more slowly.  The one pressing on the spine up at the first few vertebre and that was inoperable is totally gone.  Gene is also on the 10mg/kg dosage Clinical Trial and is in the maintenance meaning he got the first 4 treatments every 3 weeks and now he gets a treatment every 12 weeks.

                    I hope this helps.

                    Judy

                    • November 13, 2011 at 1:53 pm
                    Gene_S
                    Participant

                      Hello Steven,

                      The Dr. takes the measurements of all the tumors everytime a scan is done and from the beginning in March until now the percentage is over 63% regression.  Some have totally disappeared while others internally are moving more slowly.  The one pressing on the spine up at the first few vertebre and that was inoperable is totally gone.  Gene is also on the 10mg/kg dosage Clinical Trial and is in the maintenance meaning he got the first 4 treatments every 3 weeks and now he gets a treatment every 12 weeks.

                      I hope this helps.

                      Judy

                      • November 13, 2011 at 1:53 pm
                      Gene_S
                      Participant

                        Hello Steven,

                        The Dr. takes the measurements of all the tumors everytime a scan is done and from the beginning in March until now the percentage is over 63% regression.  Some have totally disappeared while others internally are moving more slowly.  The one pressing on the spine up at the first few vertebre and that was inoperable is totally gone.  Gene is also on the 10mg/kg dosage Clinical Trial and is in the maintenance meaning he got the first 4 treatments every 3 weeks and now he gets a treatment every 12 weeks.

                        I hope this helps.

                        Judy

                      • November 13, 2011 at 3:29 am
                      ad2424
                      Participant

                        Hi Judy

                        I hope to one day be in a position to see regression. When reading your post, I was wondering who gave you a figure of 63%? I am an accountant and so I get hung up on numbers. 63% is so precise. Thanks.

                         

                        Steven

                        • November 13, 2011 at 3:29 am
                        ad2424
                        Participant

                          Hi Judy

                          I hope to one day be in a position to see regression. When reading your post, I was wondering who gave you a figure of 63%? I am an accountant and so I get hung up on numbers. 63% is so precise. Thanks.

                           

                          Steven

                          • November 13, 2011 at 3:36 am
                          momof2kids
                          Participant

                            This is great news to hear as a fellow IPI / Yervoy with my 1st scans coming up…SO NERVOUS.

                             

                            Hope it continues to go well for you guys!

                              • November 13, 2011 at 1:54 pm
                              Gene_S
                              Participant

                                I hope all goes well for you and that you also have success.

                                • November 13, 2011 at 1:54 pm
                                Gene_S
                                Participant

                                  I hope all goes well for you and that you also have success.

                                  • November 13, 2011 at 1:54 pm
                                  Gene_S
                                  Participant

                                    I hope all goes well for you and that you also have success.

                                  • November 13, 2011 at 3:36 am
                                  momof2kids
                                  Participant

                                    This is great news to hear as a fellow IPI / Yervoy with my 1st scans coming up…SO NERVOUS.

                                     

                                    Hope it continues to go well for you guys!

                                    • November 13, 2011 at 3:36 am
                                    momof2kids
                                    Participant

                                      This is great news to hear as a fellow IPI / Yervoy with my 1st scans coming up…SO NERVOUS.

                                       

                                      Hope it continues to go well for you guys!

                                      • November 13, 2011 at 3:49 am
                                      FormerCaregiver
                                      Participant

                                        Judy, this is great news!  I think that Yervoy and GM-CSF (Leukine) make an interesting combination. There are good reasons to hope that they will continue to be effective.

                                        Take care

                                        Frank from Australia

                                          • November 13, 2011 at 5:25 pm
                                          NYKaren
                                          Participant

                                            Judy, fantastic news!

                                            I'm so happy for Gene and his wonderful caregiver.

                                            Be well,

                                            kare

                                            • November 13, 2011 at 5:25 pm
                                            NYKaren
                                            Participant

                                              Judy, fantastic news!

                                              I'm so happy for Gene and his wonderful caregiver.

                                              Be well,

                                              kare

                                              • November 13, 2011 at 5:25 pm
                                              NYKaren
                                              Participant

                                                Judy, fantastic news!

                                                I'm so happy for Gene and his wonderful caregiver.

                                                Be well,

                                                kare

                                              • November 13, 2011 at 3:49 am
                                              FormerCaregiver
                                              Participant

                                                Judy, this is great news!  I think that Yervoy and GM-CSF (Leukine) make an interesting combination. There are good reasons to hope that they will continue to be effective.

                                                Take care

                                                Frank from Australia

                                                • November 13, 2011 at 3:49 am
                                                FormerCaregiver
                                                Participant

                                                  Judy, this is great news!  I think that Yervoy and GM-CSF (Leukine) make an interesting combination. There are good reasons to hope that they will continue to be effective.

                                                  Take care

                                                  Frank from Australia

                                                  • November 13, 2011 at 10:38 pm
                                                  MariaH
                                                  Participant

                                                    Congratulations to the both of you.  It is so wonderful hearing good news!

                                                    • November 13, 2011 at 10:38 pm
                                                    MariaH
                                                    Participant

                                                      Congratulations to the both of you.  It is so wonderful hearing good news!

                                                      • November 13, 2011 at 10:38 pm
                                                      MariaH
                                                      Participant

                                                        Congratulations to the both of you.  It is so wonderful hearing good news!

                                                        • November 14, 2011 at 2:00 pm
                                                        Gene_S
                                                        Participant

                                                          Thank you all for your kind words.

                                                          • November 14, 2011 at 2:00 pm
                                                          Gene_S
                                                          Participant

                                                            Thank you all for your kind words.

                                                            • November 14, 2011 at 2:00 pm
                                                            Gene_S
                                                            Participant

                                                              Thank you all for your kind words.

                                                          Viewing 17 reply threads

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