5 days in MEK/TAF
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5 days in MEK/TAF

› Forums › General Melanoma Community › 5 days in MEK/TAF

  • Post
    • June 12, 2017 at 4:05 pm
    FaithRun
    Participant

      I am now 5 days in take Mek/Taf.  Aside from the headaches and body aches it has been working fantastic!  One of my most noticeable things was the reduction and dare I say, obliteration of the tumors on my scalp!  I had over 2 dozen nodules/tumors on my scalp and all of them are gone except just a little itty bitty bump where the largest one was.  The same for my arm pit and groin.  Although I can't see or feel inside of my bones, the bone pain is greatly lessened.  There are a lot of things that I could summise or guess, but so far I think it is working. 

      I did land myself in the hospital yesterday due to a fever and nasty headache.  This is a reminder to stay hydrated and even when you feel too horrible to eat and drink… do it anyway.  Due to the treatment my white blood cell count went down to 2.4.  Not great, but not bad enough to keep me in the hospital. 

       

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        • June 12, 2017 at 5:59 pm
        Ridingaroundwith27Jennifers
        Participant

          So glad this is working for you!  Also glad you are out of the hospital.  It's never a good time being there.  I hope you are feeling OK and that the treatment continues to bring good things to you.  Thanks for posting.  It is always nice to read good news.

          Best wishes to you.

          Jennifer

          • June 12, 2017 at 7:08 pm
          Prd10
          Participant

            Awesome news!  This was my experience as well.  I started about 10 days ago and also noticed a response within 5 days.  I failed two separate drugs previously so it was such a relief to have something work!  I got a really nasty head cold and took a two day break from the meds because I had a fever.  I've also noticed some head aches and have been gravitating towards caffeine way more than usual.  Can you describe your head aches?  Mine have been manageable with minimal Tylenol so I assumed they were part of the head cold, but also strange bc they radiated to the back of my head and neck.  Wondering if this was your experience?  

            Caitlin 

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