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7 months of heck
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7 months of heck

› Forums › General Melanoma Community › 7 months of heck

  • Post
    • June 19, 2016 at 4:52 pm
    Dachipmunk1
    Participant
      LONG story back in august of last year I went to my derm for a full body six month check up, I go every six months because i work out doors and it helps me check areas i may have missed everthing looked good he resceduled for my next six months begining in november i was taking a shower i noticed invetween mt toes was bleeding it was a mole my gp did a full excision and rechecked my body said it was nothing thinks i just rubed it open came back benign… right after thanksgiving i took my shirt off and noticed blood on my neck got a mirror out infront of my other mirror and noticed another bleeding mole on my neck i placed a bandaid on the torn open skin and called my gp that monday,the bandaid caused an reaction to my skin all over the back my my neck doctor looked at my neck said he didnt see anything suspicious give it a week or so to heal up and call him back…so instead i called my dermotoligest sceduled an apointment and told her what happened she looked at it noticed my full body check up 29th of aug just under 4 months ago and said it was nothing I told her i wanted a biopsy, she got pissed [guess she was busy] and did a biopsy and she burned it shut biopsy results came back ulcerated compound or interdermiss almost impossible to tell but no atypia cells in sample but has deeper margins if reocures reexcision my be relevent…. this worried my so i went back, she was pissy again said there was nothing she could do it was benign, so i request a second doctor, he read the patholigy and did a wider deeper excision noted the previous one and had them compared, new one came back no nuvis identified skin clear margins compared to sample a nothing found he said no cancer there yah go so i noted my swollen lympnodes in my neck he gave me an anti biotic nothing happened so back to my gp told him what happend he felt my nodes said give them a few weeks reactive to the biopsys they never went down now he sent my to a ENT told him what happened he sent me for a neck ct with contrast no tumors found but 4 swollen lympnodes largest being 1.6cm he was not conserned but ct caught a massive sinus infection he gave me ciprofloxan for 4 weeks to see if it would help never helped now to sinus surgery.. all i wanted was a node biopsy …..so he did a fn biopsy and sinus surgery benign needle sinus surgery did nothing for my nodes now im getting gut pains by my liver blood in my stool swollen nodes by my groin full blood work ultra sound on liver kidneys panc and gall bladder unremarkable full blood work 10 times everything great still having pain and blood full abdominal ct was done unremarkable also doctor starting to think im crazy so i requested a full node biopsy on my neck three nodes were removed all came back benign i now have three more nodes poping up by groin still have visable blood in stool dark red and constant headaches doctors think im crazy i been sick for months they just did a endoscopy all clear on biopsys mild gastritis im confused and scared doctors dont take me serious and more nodes poping up idk what to do
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    • Replies
        • June 19, 2016 at 5:49 pm
        jennunicorn
        Participant

          I am sorry you've been going through a hell of a time. I am not sure what anyone here can tell you, you don't have melanoma, so that's good. There aren't any doctors here that can give you any advice other than what you've had done, you've had extensive scans and bloodwork already. But, since this is a melanoma forum, there probably won't be much help for you here either. My layperson's advice would be to change your diet, try things like taking out gluten, sugar, alcohol, sodium (at different times, for at least 30 days to feel results), sometimes these things just come down to what we're putting in our bodies and our bodies not being happy about it. Hope you start feeling better soon. 

          • June 19, 2016 at 5:49 pm
          jennunicorn
          Participant

            I am sorry you've been going through a hell of a time. I am not sure what anyone here can tell you, you don't have melanoma, so that's good. There aren't any doctors here that can give you any advice other than what you've had done, you've had extensive scans and bloodwork already. But, since this is a melanoma forum, there probably won't be much help for you here either. My layperson's advice would be to change your diet, try things like taking out gluten, sugar, alcohol, sodium (at different times, for at least 30 days to feel results), sometimes these things just come down to what we're putting in our bodies and our bodies not being happy about it. Hope you start feeling better soon. 

            • June 19, 2016 at 5:49 pm
            jennunicorn
            Participant

              I am sorry you've been going through a hell of a time. I am not sure what anyone here can tell you, you don't have melanoma, so that's good. There aren't any doctors here that can give you any advice other than what you've had done, you've had extensive scans and bloodwork already. But, since this is a melanoma forum, there probably won't be much help for you here either. My layperson's advice would be to change your diet, try things like taking out gluten, sugar, alcohol, sodium (at different times, for at least 30 days to feel results), sometimes these things just come down to what we're putting in our bodies and our bodies not being happy about it. Hope you start feeling better soon. 

                • June 19, 2016 at 7:15 pm
                DZnDef
                Participant

                  I agree with Jenn.  A change in diet could make a huge difference.  I know it is frustrating to not feel like yourself and then to not have doctors take your symptoms seriously.  This could be your body telling you that you need to make some changes before something more serious develops.  While this link does not address your symptoms, it does show that lifestyle changes may reverse at least one serious degenerative disease, it may improve health in other ways.  I hope you find answers to your health problems soon and good health soon to follow.

                  http://abc7news.com/health/non-drug-treatment-may-reverse-alzheimers/336963/

                  • June 19, 2016 at 7:15 pm
                  DZnDef
                  Participant

                    I agree with Jenn.  A change in diet could make a huge difference.  I know it is frustrating to not feel like yourself and then to not have doctors take your symptoms seriously.  This could be your body telling you that you need to make some changes before something more serious develops.  While this link does not address your symptoms, it does show that lifestyle changes may reverse at least one serious degenerative disease, it may improve health in other ways.  I hope you find answers to your health problems soon and good health soon to follow.

                    http://abc7news.com/health/non-drug-treatment-may-reverse-alzheimers/336963/

                    • June 19, 2016 at 7:15 pm
                    DZnDef
                    Participant

                      I agree with Jenn.  A change in diet could make a huge difference.  I know it is frustrating to not feel like yourself and then to not have doctors take your symptoms seriously.  This could be your body telling you that you need to make some changes before something more serious develops.  While this link does not address your symptoms, it does show that lifestyle changes may reverse at least one serious degenerative disease, it may improve health in other ways.  I hope you find answers to your health problems soon and good health soon to follow.

                      http://abc7news.com/health/non-drug-treatment-may-reverse-alzheimers/336963/

                      • June 19, 2016 at 9:42 pm
                      Dachipmunk1
                      Participant
                        Sorry for the blah post earlier, im a pretty healthy 29 year old male about 165lbs 5′ 8′. So doctors dont take me serious, I am kinda convinced my derm botched my first biopsy by not cutting deep enuff and carterising it shut, they think if it was somthing i would have been spoted in auguest or novermber by my derm or gp, and lympnode would have had cancer in it,idk just worried that somthing was missed because she was in a rush
                        • June 19, 2016 at 9:42 pm
                        Dachipmunk1
                        Participant
                          Sorry for the blah post earlier, im a pretty healthy 29 year old male about 165lbs 5′ 8′. So doctors dont take me serious, I am kinda convinced my derm botched my first biopsy by not cutting deep enuff and carterising it shut, they think if it was somthing i would have been spoted in auguest or novermber by my derm or gp, and lympnode would have had cancer in it,idk just worried that somthing was missed because she was in a rush
                          • June 19, 2016 at 9:42 pm
                          Dachipmunk1
                          Participant
                            Sorry for the blah post earlier, im a pretty healthy 29 year old male about 165lbs 5′ 8′. So doctors dont take me serious, I am kinda convinced my derm botched my first biopsy by not cutting deep enuff and carterising it shut, they think if it was somthing i would have been spoted in auguest or novermber by my derm or gp, and lympnode would have had cancer in it,idk just worried that somthing was missed because she was in a rush
                            • June 19, 2016 at 10:39 pm
                            jennunicorn
                            Participant

                              I am also 29, I totally understand the feeling of doctors not taking us seriously because we are suppose to be healthy. But, they are correct that if you did have melanoma and it spread, it would have shown up in your lymph node biopsies and there would only be lymph nodes swollen in only one area usually. It also would have shown up in your mole biopsies, doesn't matter how deep the biopsy was, if there was melanoma cells it would have been seen in pathology. Try not to stress about it too much, worrying about something that you don't have doesn't help anything. You've been smart to be aware of skin changes, keep that up, get a new dermatologist if you're not happy with the way yours operates.

                              • June 19, 2016 at 10:39 pm
                              jennunicorn
                              Participant

                                I am also 29, I totally understand the feeling of doctors not taking us seriously because we are suppose to be healthy. But, they are correct that if you did have melanoma and it spread, it would have shown up in your lymph node biopsies and there would only be lymph nodes swollen in only one area usually. It also would have shown up in your mole biopsies, doesn't matter how deep the biopsy was, if there was melanoma cells it would have been seen in pathology. Try not to stress about it too much, worrying about something that you don't have doesn't help anything. You've been smart to be aware of skin changes, keep that up, get a new dermatologist if you're not happy with the way yours operates.

                                • June 19, 2016 at 10:39 pm
                                jennunicorn
                                Participant

                                  I am also 29, I totally understand the feeling of doctors not taking us seriously because we are suppose to be healthy. But, they are correct that if you did have melanoma and it spread, it would have shown up in your lymph node biopsies and there would only be lymph nodes swollen in only one area usually. It also would have shown up in your mole biopsies, doesn't matter how deep the biopsy was, if there was melanoma cells it would have been seen in pathology. Try not to stress about it too much, worrying about something that you don't have doesn't help anything. You've been smart to be aware of skin changes, keep that up, get a new dermatologist if you're not happy with the way yours operates.

                                  • June 19, 2016 at 11:11 pm
                                  Dachipmunk1
                                  Participant
                                    Thanks, Jenn this site is great, only thing that scared me to death was, syptoms after new syptoms i been very cautious with skin checks, i had a mole on my neck when i was 22 that had to be recuts and removed after a biopsy, it was beningn but was mild atypia i believe i caught it extreamly earlie and she bumped me to every 6 months since 2009 i hope all goes well for you all and if I ever need this board its still around I lost my buddy to melenoma he was 34, he fought it for 4 years until he lost his battle thats wgat i think is always on the back of my mind
                                    • June 19, 2016 at 11:11 pm
                                    Dachipmunk1
                                    Participant
                                      Thanks, Jenn this site is great, only thing that scared me to death was, syptoms after new syptoms i been very cautious with skin checks, i had a mole on my neck when i was 22 that had to be recuts and removed after a biopsy, it was beningn but was mild atypia i believe i caught it extreamly earlie and she bumped me to every 6 months since 2009 i hope all goes well for you all and if I ever need this board its still around I lost my buddy to melenoma he was 34, he fought it for 4 years until he lost his battle thats wgat i think is always on the back of my mind
                                      • June 19, 2016 at 11:11 pm
                                      Dachipmunk1
                                      Participant
                                        Thanks, Jenn this site is great, only thing that scared me to death was, syptoms after new syptoms i been very cautious with skin checks, i had a mole on my neck when i was 22 that had to be recuts and removed after a biopsy, it was beningn but was mild atypia i believe i caught it extreamly earlie and she bumped me to every 6 months since 2009 i hope all goes well for you all and if I ever need this board its still around I lost my buddy to melenoma he was 34, he fought it for 4 years until he lost his battle thats wgat i think is always on the back of my mind
                                        • June 19, 2016 at 11:20 pm
                                        jennunicorn
                                        Participant

                                          I am so sorry you lost your friend to this crappy disease. I know a lot of my friends have gotten skin checks and biopsies in light of my diagnosis. Hope everything works out for you and you never have to deal with melanoma!

                                          • June 19, 2016 at 11:20 pm
                                          jennunicorn
                                          Participant

                                            I am so sorry you lost your friend to this crappy disease. I know a lot of my friends have gotten skin checks and biopsies in light of my diagnosis. Hope everything works out for you and you never have to deal with melanoma!

                                            • June 19, 2016 at 11:20 pm
                                            jennunicorn
                                            Participant

                                              I am so sorry you lost your friend to this crappy disease. I know a lot of my friends have gotten skin checks and biopsies in light of my diagnosis. Hope everything works out for you and you never have to deal with melanoma!

                                              • June 19, 2016 at 11:35 pm
                                              Dachipmunk1
                                              Participant
                                                Same to you jen I will update if anything turns up wish you NED I will pray for you and others
                                                • June 19, 2016 at 11:35 pm
                                                Dachipmunk1
                                                Participant
                                                  Same to you jen I will update if anything turns up wish you NED I will pray for you and others
                                                  • June 19, 2016 at 11:35 pm
                                                  Dachipmunk1
                                                  Participant
                                                    Same to you jen I will update if anything turns up wish you NED I will pray for you and others
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