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A good news post – starting Peg tmrw
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A good news post – starting Peg tmrw

› Forums › General Melanoma Community › A good news post – starting Peg tmrw

  • Post
    • August 29, 2013 at 3:03 am
    bonusfries
    Participant

      My particulars are: 39 yr old, an 11 mm ulcerated primary with 5 mitosis rate. My WLE and SLB were both clean, as was my PET/CT. So when I was asked by my Onc whether to watch & wait, or undergo preventive treatment, of course I replied with "both".

       

      My particulars are: 39 yr old, an 11 mm ulcerated primary with 5 mitosis rate. My WLE and SLB were both clean, as was my PET/CT. So when I was asked by my Onc whether to watch & wait, or undergo preventive treatment, of course I replied with "both".

       

      I'm starting Peg alfa-2b tomorrow, and I'm excited. I know the numbers on its long term effectiveness don't really warrant such enthusiasm, but at least I get to do something proactive about this.. instead of just waiting and worrying and trying to live a normal life. It also helps that my employer gives us incredible flexibility when it comes to health issues like this, so if they are out there listening, I really appreciate it 😛

       

      I didn't see that many threads here about Peg experiences, so I will keep updating this as I progress through this year. Hopefully this is just one of many good news stories we'll read here over the next year.

       

      Cheers!

      Jeff

    Viewing 9 reply threads
    • Replies
        • August 29, 2013 at 11:02 am
        aldakota22
        Participant

          Keep the good posts comming.Need all the positive we can get.Beat the Beast.     Al

          • August 29, 2013 at 11:02 am
          aldakota22
          Participant

            Keep the good posts comming.Need all the positive we can get.Beat the Beast.     Al

            • August 29, 2013 at 11:02 am
            aldakota22
            Participant

              Keep the good posts comming.Need all the positive we can get.Beat the Beast.     Al

              • August 29, 2013 at 6:34 pm
              Cooper
              Participant

                I hate to be a downer, but I did regular interferon and then Peg-interferon.  Peg was much worse in side effects and I progressed on it.  It is very toxic and can leave permanent side effects as it did me.  Depression was really bad.  I'm sorry I did it.  Do some more research on it.  I think few do it because it means 5 years of being sick and it isn't proven to extend survival.

                • August 29, 2013 at 6:34 pm
                Cooper
                Participant

                  I hate to be a downer, but I did regular interferon and then Peg-interferon.  Peg was much worse in side effects and I progressed on it.  It is very toxic and can leave permanent side effects as it did me.  Depression was really bad.  I'm sorry I did it.  Do some more research on it.  I think few do it because it means 5 years of being sick and it isn't proven to extend survival.

                  • August 29, 2013 at 6:34 pm
                  Cooper
                  Participant

                    I hate to be a downer, but I did regular interferon and then Peg-interferon.  Peg was much worse in side effects and I progressed on it.  It is very toxic and can leave permanent side effects as it did me.  Depression was really bad.  I'm sorry I did it.  Do some more research on it.  I think few do it because it means 5 years of being sick and it isn't proven to extend survival.

                    • August 29, 2013 at 7:14 pm
                    Cooper
                    Participant

                      To all those who have been permanently injured by this drug – keep on speaking up. I was on treatment for 4 months in . I am still having the same problems . Luckily, I was approved for permanent disability from SSI, but I would rather have my life back.

                      • September 6, 2013 at 2:32 am
                      blden2186
                      Participant
                        Jeff I am starting PEG maintenance Sunday 9/8/2013 . I see a melanoma specialist who says reaction to this is very individualized. I handled the 20 tx induction phase pretty well so now I start the maintenance. Drink lots and lots of water. Do not let yourself get dehydrated or you will pay for it. Sleep when you need to – do not push your luck, just give into it. I walked a 10 k in Boulder CO this last Memorial Day and during the 5x a week induction phase I got tired getting dressed in the morning. Take care!
                        • September 6, 2013 at 2:32 am
                        blden2186
                        Participant
                          Jeff I am starting PEG maintenance Sunday 9/8/2013 . I see a melanoma specialist who says reaction to this is very individualized. I handled the 20 tx induction phase pretty well so now I start the maintenance. Drink lots and lots of water. Do not let yourself get dehydrated or you will pay for it. Sleep when you need to – do not push your luck, just give into it. I walked a 10 k in Boulder CO this last Memorial Day and during the 5x a week induction phase I got tired getting dressed in the morning. Take care!
                          • September 6, 2013 at 2:32 am
                          blden2186
                          Participant
                            Jeff I am starting PEG maintenance Sunday 9/8/2013 . I see a melanoma specialist who says reaction to this is very individualized. I handled the 20 tx induction phase pretty well so now I start the maintenance. Drink lots and lots of water. Do not let yourself get dehydrated or you will pay for it. Sleep when you need to – do not push your luck, just give into it. I walked a 10 k in Boulder CO this last Memorial Day and during the 5x a week induction phase I got tired getting dressed in the morning. Take care!
                            • August 29, 2013 at 7:14 pm
                            Cooper
                            Participant

                              To all those who have been permanently injured by this drug – keep on speaking up. I was on treatment for 4 months in . I am still having the same problems . Luckily, I was approved for permanent disability from SSI, but I would rather have my life back.

                              • August 29, 2013 at 7:14 pm
                              Cooper
                              Participant

                                To all those who have been permanently injured by this drug – keep on speaking up. I was on treatment for 4 months in . I am still having the same problems . Luckily, I was approved for permanent disability from SSI, but I would rather have my life back.

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