MRF-Logo2019-Horizontal-RGB
Adjuvant Nivo Dosage-Reference
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Adjuvant Nivo Dosage-Reference

› Forums › General Melanoma Community › Adjuvant Nivo Dosage-Reference

  • Post
    • October 4, 2019 at 10:09 am
    Affected
    Participant
      Hi Everyone,

      My husband began both his radiotherapy and immunotherapy yesterday. He had a parotid gland tumour resected with 2 lymph node involvement in July.
      Last week, I posted questions regarding the adjuvant nivo dosage he was to get, and the information I got from all those who posted greatly allayed my anxiety. Thank you once again.

      In case knowledge of my husband’s dose can serve as a reference to anyone looking for such information, his dosage is 3mg/kg. He is to get an infusion every 2 weeks for a year. He will also have daily radiotherapy for 6 weeks. I know it’s only day 2, but he slept well and has no visible side effects yet.

      Wishing everyone a good weekend.
      Affected

    Viewing 3 reply threads
    • Replies
        • October 4, 2019 at 4:43 pm
        MelanomaMike
        Participant
          YeeeeHa! Yaay! So glad hes in the fight with a Topline med now (along with his Radiotherapy) Opdivo for me had kept my lung tumors from growing! Its good stuff and youll see, his next few scans will prove its efficiency! Good news sis….
          • October 8, 2019 at 10:29 pm
          Marcyazh
          Participant
            Hi, my husband had a 4.5 cm parotid tumor removed 11/2018 with 1 lymph node involvement in the parotid. 6 weeks radiation and now still on Nivo every 2 weeks. Doing well, somewhat tired so I only give him one honey-do item,every weekend. He is still working as an engineer. The Ironwood cancer center wants him on 2 years of Nivo, although insurance is balking a bit still. They are good about getting things through so we will see. If he goes two years, he is opting to double the dose and go once a month since he has had no major side effects.

            Let’s keep in touch since our husbands basically have the same diagnoses. There is another man on this forum who has close to the same initial symptoms who has helped me but he was diagnosed some time back.

            • October 8, 2019 at 10:34 pm
            Marcyazh
            Participant
              Oh, BTW, my husband has had two sets of scans and is still NED. Although radiation was rough, most of his nerve functions have returned besides the permanent numbness in the ear and still radiating nerve pain sometimes. He can smile fine, although being an introverted engineer that never does happen a whole lot anyhow, lol. The radiotherapy gets worse after finishing for about 3 weeks, then things start to heal. Expect the nerve pain. I wish you the best

              Marcy

              • October 8, 2019 at 10:40 pm
              Marcyazh
              Participant
                Sorry I keep adding … but my husband also started Nivo and Radiation at the same time. His radiation oncologist recommended it, while his regular oncologist was hesitant but agreed to it.

                Marcy

            Viewing 3 reply threads
            • You must be logged in to reply to this topic.
            About the MRF Patient Forum

            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

            Popular Topics