Adrenal issue
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Adrenal issue

› Forums › General Melanoma Community › Adrenal issue

  • Post
    • March 8, 2018 at 12:49 am
    Coconnor16
    Participant

      Just had my 3rd ACHT with cortisol test and my readings were faintly readable . Has anyone else been dealing with this issue and what are the side effects ? I’ve been told I will have a adrenal replacement therapy the rest of my life. I don’t mine it but really don’t want to keep taking pills forever??

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    • Replies
        • March 8, 2018 at 1:40 am
        Johnjk04
        Participant

          Sorry to hear of your adrenal issues but hopefully you will knock the melanoma out of your life. I was on the ippi / novo combo and lost my adrenal, pituitary and thyroid glands. So I have to take a pill each day but I do not mind it because I've been NED for 5.5 years. The big picture is get rid of the cancer and one pill each day won't be so bad.

            • March 8, 2018 at 1:59 am
            Bubbles
            Participant

              You go, John!!  You rock!  c

            • March 8, 2018 at 5:47 am
            casagrayson
            Participant

              You can't live without the right levels of cortisol.  Those steroids you are taking will keep you alive.  Be thankful you have them!

              • March 8, 2018 at 1:27 pm
              marta010
              Participant

                Hi – my husband had the same issue and takes Levothryroxine, hydrocortisone and testosterone.  It's a small price to pay for beating melanoma.  Make sure you're working with an endocrinologist who is familiar with the side effects of immunotherapy. 

                Ann

                  • March 20, 2018 at 11:36 pm
                  Coconnor16
                  Participant

                    Thanks I have a good team here in NJ . All are part of Hackensack meridian/memorial Sloan Kettering partnership. 

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