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Anesthesia and surgery questions

Forums General Melanoma Community Anesthesia and surgery questions

  • Post
    WithinMySkin
    Participant

      Hello all my fellow fighters! I feel as though we've had some seriously tough times lately. Reading through the board can be so difficult some days because my heart hurts when there is bad news. I know the flood of emotions that you all go through, and I'm right there with you. The stress, the anxiety…I've been there, and I will be back there soon with my next scan in October (fingers crossed for good news!) But I wish I could reach out and hug every single one of you who are going through a tough time right now!

       
      So I started thinking. How can I help? How can I make this situation better? I know a lot about my own anxieties, but how can I help other people feel less anxious about what we're all going though?
       
      Then it dawned on me. I have worked for almost a decade in the operating room as a neurophysiologist and an anesthetist. That's what I really know best, and for most people surgery is terrifying, even though it's really quite normal for me. So let's start there.
       
      What scares you the most about surgery? What do you wish you knew about general anesthesia or the O.R. that would help calm your nerves? What questions can I answer for you all? How can I help?
       
      *Please refrain from asking questions specific to your condition. I don't know everything and I'm not your doc, but I'm always here to give you an internet hug! And if you don't want to post here, you can always reach me at my blog.
       
      Hope all is going well in your battle and keep fighting!
      Lauren
       
    Viewing 26 reply threads
    • Replies
        stars
        Participant

          What a lovely gesture! I don't have a question for you, but thank you for your kind offer!

          stars
          Participant

            What a lovely gesture! I don't have a question for you, but thank you for your kind offer!

              WithinMySkin
              Participant

                Thanks, Anon – if you ever have a question, I'm here for you!

                WithinMySkin
                Participant

                  Thanks, Anon – if you ever have a question, I'm here for you!

                  gregor913
                  Participant
                    Have a question. How did they determine your in situ was intransit. Im going through the same thing right now . thanx
                    gregor913
                    Participant
                      Have a question. How did they determine your in situ was intransit. Im going through the same thing right now . thanx
                      gregor913
                      Participant
                        Have a question. How did they determine your in situ was intransit. Im going through the same thing right now . thanx
                        WithinMySkin
                        Participant

                          Thanks, Anon – if you ever have a question, I'm here for you!

                        stars
                        Participant

                          What a lovely gesture! I don't have a question for you, but thank you for your kind offer!

                          Jubes
                          Participant

                            Hi lauren

                            im sure you make a huge difference to so many ppl. And thanks for your offer. 

                            I  just wanted to let you know what a difference caring medical staff like you make. 

                            When first diagnosed with stage 4, I was really frightened and had to have a bronchoscope  and an image guided lung biopsy…. Awake!

                            the doctor was just so professional but the thing that made it bearable was the nurse who assisted …she was like an angel… So kind, she held my hand and encouraged me and gave me instructions and did not leave me for a second. She was so kind and gentle. It's my overriding memory of what otherwise was not too pleasant

                            so a big internet hug back to you and thank you from us all 

                            Anne-Louise 

                             

                            Jubes
                            Participant

                              Hi lauren

                              im sure you make a huge difference to so many ppl. And thanks for your offer. 

                              I  just wanted to let you know what a difference caring medical staff like you make. 

                              When first diagnosed with stage 4, I was really frightened and had to have a bronchoscope  and an image guided lung biopsy…. Awake!

                              the doctor was just so professional but the thing that made it bearable was the nurse who assisted …she was like an angel… So kind, she held my hand and encouraged me and gave me instructions and did not leave me for a second. She was so kind and gentle. It's my overriding memory of what otherwise was not too pleasant

                              so a big internet hug back to you and thank you from us all 

                              Anne-Louise 

                               

                                WithinMySkin
                                Participant

                                  Oh my goodness, Anne-Louise! How awful to go through that awake – I'm gagging just thinking about it! I'm so glad that you had an amazing nurse to help you through that. I always think that in the world of healthcare, nurses make the world go 'round! Wishing you all the best in your battle!

                                  WithinMySkin
                                  Participant

                                    Oh my goodness, Anne-Louise! How awful to go through that awake – I'm gagging just thinking about it! I'm so glad that you had an amazing nurse to help you through that. I always think that in the world of healthcare, nurses make the world go 'round! Wishing you all the best in your battle!

                                    WithinMySkin
                                    Participant

                                      Oh my goodness, Anne-Louise! How awful to go through that awake – I'm gagging just thinking about it! I'm so glad that you had an amazing nurse to help you through that. I always think that in the world of healthcare, nurses make the world go 'round! Wishing you all the best in your battle!

                                    Jubes
                                    Participant

                                      Hi lauren

                                      im sure you make a huge difference to so many ppl. And thanks for your offer. 

                                      I  just wanted to let you know what a difference caring medical staff like you make. 

                                      When first diagnosed with stage 4, I was really frightened and had to have a bronchoscope  and an image guided lung biopsy…. Awake!

                                      the doctor was just so professional but the thing that made it bearable was the nurse who assisted …she was like an angel… So kind, she held my hand and encouraged me and gave me instructions and did not leave me for a second. She was so kind and gentle. It's my overriding memory of what otherwise was not too pleasant

                                      so a big internet hug back to you and thank you from us all 

                                      Anne-Louise 

                                       

                                      Fen
                                      Participant

                                        thank you, Lauren, and i do have a question.  How long does it take for the general anesthetic to clear out?  What variables affect this process?   Is ketamine being used more frequently?

                                        thx

                                        fen

                                        Fen
                                        Participant

                                          thank you, Lauren, and i do have a question.  How long does it take for the general anesthetic to clear out?  What variables affect this process?   Is ketamine being used more frequently?

                                          thx

                                          fen

                                            WithinMySkin
                                            Participant

                                              Hi Fen! Good questions! General anesthesia, in a normal person, can take around 24-48 hours to clear out of your system. In older people or people with kidney or liver damage, this can of course be longer…sometimes up to a week or so. There are so many variables that go into this, and every body is different, so unfortunately there is no way to tell beforehand how long it will take. Ketamine has come slightly out of favor in terms of anesthestics and tends to be used mostly in the outpatient side of surgery and with children. But this is also dependant on what anesthesiologist you have. If you want to know before your surgery, you can always ask the anesthesia team – they would be happy to tell you what anesthestics they will use! 

                                              All the best!

                                              Lauren

                                              WithinMySkin
                                              Participant

                                                Hi Fen! Good questions! General anesthesia, in a normal person, can take around 24-48 hours to clear out of your system. In older people or people with kidney or liver damage, this can of course be longer…sometimes up to a week or so. There are so many variables that go into this, and every body is different, so unfortunately there is no way to tell beforehand how long it will take. Ketamine has come slightly out of favor in terms of anesthestics and tends to be used mostly in the outpatient side of surgery and with children. But this is also dependant on what anesthesiologist you have. If you want to know before your surgery, you can always ask the anesthesia team – they would be happy to tell you what anesthestics they will use! 

                                                All the best!

                                                Lauren

                                                WithinMySkin
                                                Participant

                                                  Hi Fen! Good questions! General anesthesia, in a normal person, can take around 24-48 hours to clear out of your system. In older people or people with kidney or liver damage, this can of course be longer…sometimes up to a week or so. There are so many variables that go into this, and every body is different, so unfortunately there is no way to tell beforehand how long it will take. Ketamine has come slightly out of favor in terms of anesthestics and tends to be used mostly in the outpatient side of surgery and with children. But this is also dependant on what anesthesiologist you have. If you want to know before your surgery, you can always ask the anesthesia team – they would be happy to tell you what anesthestics they will use! 

                                                  All the best!

                                                  Lauren

                                                  Fen
                                                  Participant

                                                    Thanks again!

                                                    Fen
                                                    Participant

                                                      Thanks again!

                                                      Fen
                                                      Participant

                                                        Thanks again!

                                                      Fen
                                                      Participant

                                                        thank you, Lauren, and i do have a question.  How long does it take for the general anesthetic to clear out?  What variables affect this process?   Is ketamine being used more frequently?

                                                        thx

                                                        fen

                                                        jbronicki
                                                        Participant

                                                          Hi Lauren,

                                                          this is fabulous!  I'm not the melanoma patient, my husband is, but I'm a naturally curious person so here is my question from my own anxieties:  Does anesthesia affect blood pressure and is it more dangerous for those who have naturally low bp (mine runs around 90/60)?.  I had this anxiety when I had a c-section and they told me the spinal/epi could potentially drop my bp even lower.  I just kept staring at the monitor and waiting for the alarm to go off!

                                                          I'm naturally anxious and the first time I was put under in my early 20's I was so worried about not waking up, the doctor said when I was coming out I muttered, "I'm alive!".  🙂

                                                          thanks so much for what you are doing!

                                                          Best,

                                                          Jackie

                                                          jbronicki
                                                          Participant

                                                            Hi Lauren,

                                                            this is fabulous!  I'm not the melanoma patient, my husband is, but I'm a naturally curious person so here is my question from my own anxieties:  Does anesthesia affect blood pressure and is it more dangerous for those who have naturally low bp (mine runs around 90/60)?.  I had this anxiety when I had a c-section and they told me the spinal/epi could potentially drop my bp even lower.  I just kept staring at the monitor and waiting for the alarm to go off!

                                                            I'm naturally anxious and the first time I was put under in my early 20's I was so worried about not waking up, the doctor said when I was coming out I muttered, "I'm alive!".  🙂

                                                            thanks so much for what you are doing!

                                                            Best,

                                                            Jackie

                                                              WithinMySkin
                                                              Participant

                                                                Hi Jackie! I'm so glad that caregivers are here on this board – I couldn't have gone through this without my husband by my side! Your husband is blessed to have your love and support! 

                                                                For your questions, yes, general and spinal anesthesia naturally lower your blood pressure. This change isn't dangerous, though, because the anesthesia team can easily control your blood pressure through different medications that they ALWAYS have handy, and they are CONSTANTLY watching you like a hawk! However, the general rule of thumb isn't controlling the number, but the range. So if you naturally have a lower blood pressure (as you clearly do) your body can easily handle a 10-20% increase or decrease. Just as your blood pressure and heart rate decrease when you're sleeping and increase when you're working out, the anesthetist will allow your blood pressure to vary within a normal range specific to you. If you have high blood pressure, the same thing applies because your body is naturally accustomed to that range. The anesthesia team will taylor their approach to each person based on their normal blood pressure, so nothing to worry about! 

                                                                A lot of people have a fear of not waking up from general anesthesia. This is VERY common, I think because it's so unnatural to be forced into an artificial sleep. Just like getting on a plane, you have to trust the team (or the pilot) to get you through a time where you have no control. An anesthesiologist I trained with used to say, "anesthesia is safer than your car ride to the hospital" and this is so true! Having control of the situation does not always mean it's safer. Even though you are asleep and unaware, you are still you…your heart is still beating and your brain is still working, and you have a whole team of people keeping you safe through the entire process! Millions of people have surgery every year, and the anesthestic medications we use now are incredibly safe. 

                                                                If you have any more questions, I'm happy to help! Best wishes to you and your husband!

                                                                Lauren

                                                                WithinMySkin
                                                                Participant

                                                                  Hi Jackie! I'm so glad that caregivers are here on this board – I couldn't have gone through this without my husband by my side! Your husband is blessed to have your love and support! 

                                                                  For your questions, yes, general and spinal anesthesia naturally lower your blood pressure. This change isn't dangerous, though, because the anesthesia team can easily control your blood pressure through different medications that they ALWAYS have handy, and they are CONSTANTLY watching you like a hawk! However, the general rule of thumb isn't controlling the number, but the range. So if you naturally have a lower blood pressure (as you clearly do) your body can easily handle a 10-20% increase or decrease. Just as your blood pressure and heart rate decrease when you're sleeping and increase when you're working out, the anesthetist will allow your blood pressure to vary within a normal range specific to you. If you have high blood pressure, the same thing applies because your body is naturally accustomed to that range. The anesthesia team will taylor their approach to each person based on their normal blood pressure, so nothing to worry about! 

                                                                  A lot of people have a fear of not waking up from general anesthesia. This is VERY common, I think because it's so unnatural to be forced into an artificial sleep. Just like getting on a plane, you have to trust the team (or the pilot) to get you through a time where you have no control. An anesthesiologist I trained with used to say, "anesthesia is safer than your car ride to the hospital" and this is so true! Having control of the situation does not always mean it's safer. Even though you are asleep and unaware, you are still you…your heart is still beating and your brain is still working, and you have a whole team of people keeping you safe through the entire process! Millions of people have surgery every year, and the anesthestic medications we use now are incredibly safe. 

                                                                  If you have any more questions, I'm happy to help! Best wishes to you and your husband!

                                                                  Lauren

                                                                  WithinMySkin
                                                                  Participant

                                                                    Hi Jackie! I'm so glad that caregivers are here on this board – I couldn't have gone through this without my husband by my side! Your husband is blessed to have your love and support! 

                                                                    For your questions, yes, general and spinal anesthesia naturally lower your blood pressure. This change isn't dangerous, though, because the anesthesia team can easily control your blood pressure through different medications that they ALWAYS have handy, and they are CONSTANTLY watching you like a hawk! However, the general rule of thumb isn't controlling the number, but the range. So if you naturally have a lower blood pressure (as you clearly do) your body can easily handle a 10-20% increase or decrease. Just as your blood pressure and heart rate decrease when you're sleeping and increase when you're working out, the anesthetist will allow your blood pressure to vary within a normal range specific to you. If you have high blood pressure, the same thing applies because your body is naturally accustomed to that range. The anesthesia team will taylor their approach to each person based on their normal blood pressure, so nothing to worry about! 

                                                                    A lot of people have a fear of not waking up from general anesthesia. This is VERY common, I think because it's so unnatural to be forced into an artificial sleep. Just like getting on a plane, you have to trust the team (or the pilot) to get you through a time where you have no control. An anesthesiologist I trained with used to say, "anesthesia is safer than your car ride to the hospital" and this is so true! Having control of the situation does not always mean it's safer. Even though you are asleep and unaware, you are still you…your heart is still beating and your brain is still working, and you have a whole team of people keeping you safe through the entire process! Millions of people have surgery every year, and the anesthestic medications we use now are incredibly safe. 

                                                                    If you have any more questions, I'm happy to help! Best wishes to you and your husband!

                                                                    Lauren

                                                                    jbronicki
                                                                    Participant

                                                                      Ditto what Gary (Polymath) said!  Thank you for the answer, you explained it better then anyone has to me previously.  Makes total sense!  You clear explanation is invaluable in this intense medical world! 

                                                                      jbronicki
                                                                      Participant

                                                                        Ditto what Gary (Polymath) said!  Thank you for the answer, you explained it better then anyone has to me previously.  Makes total sense!  You clear explanation is invaluable in this intense medical world! 

                                                                        jbronicki
                                                                        Participant

                                                                          Ditto what Gary (Polymath) said!  Thank you for the answer, you explained it better then anyone has to me previously.  Makes total sense!  You clear explanation is invaluable in this intense medical world! 

                                                                        jbronicki
                                                                        Participant

                                                                          Hi Lauren,

                                                                          this is fabulous!  I'm not the melanoma patient, my husband is, but I'm a naturally curious person so here is my question from my own anxieties:  Does anesthesia affect blood pressure and is it more dangerous for those who have naturally low bp (mine runs around 90/60)?.  I had this anxiety when I had a c-section and they told me the spinal/epi could potentially drop my bp even lower.  I just kept staring at the monitor and waiting for the alarm to go off!

                                                                          I'm naturally anxious and the first time I was put under in my early 20's I was so worried about not waking up, the doctor said when I was coming out I muttered, "I'm alive!".  🙂

                                                                          thanks so much for what you are doing!

                                                                          Best,

                                                                          Jackie

                                                                          Polymath
                                                                          Participant

                                                                            Hi Lauren,

                                                                            I just want to also add a word of thanks for your soothing tone, and supportive information.  I figure I sound like a broken record sometimes, as I have focused on the difference in the "'fight".  Those in treatment, and suffering go through so many emotions, and while we are fighting the disease, we often turn the battle on ourselves, through endless worry, stress, and scanxiety.  I am certain this is unhealthy and only furthers the vicious cycle of illness.  I thank those here who offer scientific evidence, or point to useful videos, or publications to get answers, and those who just share stories of what worked for them, in order to help ease the worry and keep the focus on finding a way to heal, both body and mind.

                                                                            Gary

                                                                            Polymath
                                                                            Participant

                                                                              Hi Lauren,

                                                                              I just want to also add a word of thanks for your soothing tone, and supportive information.  I figure I sound like a broken record sometimes, as I have focused on the difference in the "'fight".  Those in treatment, and suffering go through so many emotions, and while we are fighting the disease, we often turn the battle on ourselves, through endless worry, stress, and scanxiety.  I am certain this is unhealthy and only furthers the vicious cycle of illness.  I thank those here who offer scientific evidence, or point to useful videos, or publications to get answers, and those who just share stories of what worked for them, in order to help ease the worry and keep the focus on finding a way to heal, both body and mind.

                                                                              Gary

                                                                              Polymath
                                                                              Participant

                                                                                Hi Lauren,

                                                                                I just want to also add a word of thanks for your soothing tone, and supportive information.  I figure I sound like a broken record sometimes, as I have focused on the difference in the "'fight".  Those in treatment, and suffering go through so many emotions, and while we are fighting the disease, we often turn the battle on ourselves, through endless worry, stress, and scanxiety.  I am certain this is unhealthy and only furthers the vicious cycle of illness.  I thank those here who offer scientific evidence, or point to useful videos, or publications to get answers, and those who just share stories of what worked for them, in order to help ease the worry and keep the focus on finding a way to heal, both body and mind.

                                                                                Gary

                                                                                  WithinMySkin
                                                                                  Participant

                                                                                    Hi Gary! 

                                                                                    Don't ever feel like you're a broken record – I think what you say is always thoughtful and full of insight. After lots of introspection, I find that my own anxiety stems from the unknown, and I try to educate myself to ease that anxiety. My desire for everyone on this board is to be educated in their treatment options and do what is best for them. We all have our own journey to make, and knowing and understanding the path that we're on can help guide our way even on the darkest day. We have to live with our choices, so we should all make them count through fully understanding what we are choosing. Our minds can be our greatest tool or our worst enemy…I hope to encourage the former rather than the latter. 

                                                                                    Sending nothing but the best to you way out west!

                                                                                    Lauren

                                                                                     

                                                                                    WithinMySkin
                                                                                    Participant

                                                                                      Hi Gary! 

                                                                                      Don't ever feel like you're a broken record – I think what you say is always thoughtful and full of insight. After lots of introspection, I find that my own anxiety stems from the unknown, and I try to educate myself to ease that anxiety. My desire for everyone on this board is to be educated in their treatment options and do what is best for them. We all have our own journey to make, and knowing and understanding the path that we're on can help guide our way even on the darkest day. We have to live with our choices, so we should all make them count through fully understanding what we are choosing. Our minds can be our greatest tool or our worst enemy…I hope to encourage the former rather than the latter. 

                                                                                      Sending nothing but the best to you way out west!

                                                                                      Lauren

                                                                                       

                                                                                      WithinMySkin
                                                                                      Participant

                                                                                        Hi Gary! 

                                                                                        Don't ever feel like you're a broken record – I think what you say is always thoughtful and full of insight. After lots of introspection, I find that my own anxiety stems from the unknown, and I try to educate myself to ease that anxiety. My desire for everyone on this board is to be educated in their treatment options and do what is best for them. We all have our own journey to make, and knowing and understanding the path that we're on can help guide our way even on the darkest day. We have to live with our choices, so we should all make them count through fully understanding what we are choosing. Our minds can be our greatest tool or our worst enemy…I hope to encourage the former rather than the latter. 

                                                                                        Sending nothing but the best to you way out west!

                                                                                        Lauren

                                                                                         

                                                                                      Hukill
                                                                                      Participant

                                                                                        Don't know if you can answer this or not but I had 5 surguries for melanoma on my head under general and after 2 of them when I woke up in the recovery room I was naked. I question the dr but never got an answer.

                                                                                        Hukill
                                                                                        Participant

                                                                                          Don't know if you can answer this or not but I had 5 surguries for melanoma on my head under general and after 2 of them when I woke up in the recovery room I was naked. I question the dr but never got an answer.

                                                                                          Hukill
                                                                                          Participant

                                                                                            Don't know if you can answer this or not but I had 5 surguries for melanoma on my head under general and after 2 of them when I woke up in the recovery room I was naked. I question the dr but never got an answer.

                                                                                              WithinMySkin
                                                                                              Participant

                                                                                                Hi Hukill! Hmmm you didn't have a Johnny on after surgery? I can't say for sure, but my best guess is that you probably took it off yourself while waking up. I know this sounds weird! But many people are agitated when they wake up from surgery…trying to roll over to get comfortable or scratching like crazy from the narcotics given to them so that they don't feel pain. The snap closures on the shoulders of a gown (or Johnny, as we call them) are the only thing holding it on you, and they are incredibly easy to unsnap. All of this usually happens while you are still super groggy, so you don't remember it. I have had patients who have ripped their Johnny off "magic mike" style upon waking up…And if the gown hits the ground, there is no "2 second" rule. Into the laundry it goes! 

                                                                                                So I'm sure it was very surprising to you, but I can assure you it's not that uncommon!

                                                                                                All the best,

                                                                                                Lauren

                                                                                                WithinMySkin
                                                                                                Participant

                                                                                                  Hi Hukill! Hmmm you didn't have a Johnny on after surgery? I can't say for sure, but my best guess is that you probably took it off yourself while waking up. I know this sounds weird! But many people are agitated when they wake up from surgery…trying to roll over to get comfortable or scratching like crazy from the narcotics given to them so that they don't feel pain. The snap closures on the shoulders of a gown (or Johnny, as we call them) are the only thing holding it on you, and they are incredibly easy to unsnap. All of this usually happens while you are still super groggy, so you don't remember it. I have had patients who have ripped their Johnny off "magic mike" style upon waking up…And if the gown hits the ground, there is no "2 second" rule. Into the laundry it goes! 

                                                                                                  So I'm sure it was very surprising to you, but I can assure you it's not that uncommon!

                                                                                                  All the best,

                                                                                                  Lauren

                                                                                                  WithinMySkin
                                                                                                  Participant

                                                                                                    Hi Hukill! Hmmm you didn't have a Johnny on after surgery? I can't say for sure, but my best guess is that you probably took it off yourself while waking up. I know this sounds weird! But many people are agitated when they wake up from surgery…trying to roll over to get comfortable or scratching like crazy from the narcotics given to them so that they don't feel pain. The snap closures on the shoulders of a gown (or Johnny, as we call them) are the only thing holding it on you, and they are incredibly easy to unsnap. All of this usually happens while you are still super groggy, so you don't remember it. I have had patients who have ripped their Johnny off "magic mike" style upon waking up…And if the gown hits the ground, there is no "2 second" rule. Into the laundry it goes! 

                                                                                                    So I'm sure it was very surprising to you, but I can assure you it's not that uncommon!

                                                                                                    All the best,

                                                                                                    Lauren

                                                                                                  David McCaw
                                                                                                  Participant

                                                                                                    Hello Lauren,

                                                                                                    I was at a hospital for 10 hours yesterday for a scheduled clnd left groin,  pelvis and in-transit melanoma surgery. Unfortunately the surgery was canceled because the patient before me took 2.5 hous to accept the general anesthesia.  My questions,1) how does this happen,  I thought i went out in seconds during my first  surgery?  I am okay, it will be rescheduled soon, at least no changes in size of my macro melanoma enlarged lymph node (~ 3 cm ).. Also Two other fun questions below

                                                                                                    2)  why do we need to limit alcohol consumption the days before,  is it that the GA and pain drugs attack the liver more and the ETOH might weaken it before?

                                                                                                    3) My surgeon stated that being under general anesthesia for 3 hours is like running 1 or2 marathons,  what are you thoughts for for active people to taper, i.e. less active,  before operation and recover better 

                                                                                                    Thanks,

                                                                                                    David

                                                                                                    David McCaw
                                                                                                    Participant

                                                                                                      Hello Lauren,

                                                                                                      I was at a hospital for 10 hours yesterday for a scheduled clnd left groin,  pelvis and in-transit melanoma surgery. Unfortunately the surgery was canceled because the patient before me took 2.5 hous to accept the general anesthesia.  My questions,1) how does this happen,  I thought i went out in seconds during my first  surgery?  I am okay, it will be rescheduled soon, at least no changes in size of my macro melanoma enlarged lymph node (~ 3 cm ).. Also Two other fun questions below

                                                                                                      2)  why do we need to limit alcohol consumption the days before,  is it that the GA and pain drugs attack the liver more and the ETOH might weaken it before?

                                                                                                      3) My surgeon stated that being under general anesthesia for 3 hours is like running 1 or2 marathons,  what are you thoughts for for active people to taper, i.e. less active,  before operation and recover better 

                                                                                                      Thanks,

                                                                                                      David

                                                                                                      David McCaw
                                                                                                      Participant

                                                                                                        Hello Lauren,

                                                                                                        I was at a hospital for 10 hours yesterday for a scheduled clnd left groin,  pelvis and in-transit melanoma surgery. Unfortunately the surgery was canceled because the patient before me took 2.5 hous to accept the general anesthesia.  My questions,1) how does this happen,  I thought i went out in seconds during my first  surgery?  I am okay, it will be rescheduled soon, at least no changes in size of my macro melanoma enlarged lymph node (~ 3 cm ).. Also Two other fun questions below

                                                                                                        2)  why do we need to limit alcohol consumption the days before,  is it that the GA and pain drugs attack the liver more and the ETOH might weaken it before?

                                                                                                        3) My surgeon stated that being under general anesthesia for 3 hours is like running 1 or2 marathons,  what are you thoughts for for active people to taper, i.e. less active,  before operation and recover better 

                                                                                                        Thanks,

                                                                                                        David

                                                                                                          WithinMySkin
                                                                                                          Participant

                                                                                                            Hi David! I'm so terribly sorry that you had to go through all that waiting to have your surgery cancel! That's incredibly frustrating!! There are many things that go into the induction, or beginning, stages of anesthesia that it's hard to answer your question. Breathing tubes, additional IVs, special IVs called 'central lines', and urinary catheters (depending on the type of procedure) have to be placed immediately after the beginning of general anesthesia to keep the patient safe, and all of these things can take time. I wish I could answer this question more specifically for you, but unfortunately with this situation I can't without more specifics! 

                                                                                                            Your liver does the major work of processing the medications for general anesthesia. Alcohol and other drugs are also processed by the liver, and to make sure your liver is in tip top shape, it is best to take it easy for the day or two before surgery. If you DO use drugs or alcohol, it is ALWAYS best to let your anesthesiologist know, and be honest about the amount that you use! This probably doesn't apply to you, but many people try to hide the amount of alcohol or other recreational drugs they use due to stigma or addiction or embarrassment. We are not there to judge you, we aren't the cops, and we won't turn you in, but this makes a HUGE difference in the amount of medications we need to give to keep you safely asleep. So yes, take it easy on alcohol before surgery, and ALWAYS be honest with your anesthesia team! 

                                                                                                            Being under general anesthesia is like running a marathon as you will be WHOOPED afterwards! If you are an active person in general, this means you will likely heal faster (hooray!) Just like taking it easy on your liver the day or two before surgery, if you are super duper active, it would probably be best to take it easy on working out before surgery. This helps you to get rehydrated and your muscles to heal. Also, please take it easy AFTER surgery. Don't push yourself to get back to working out as soon as possible…follow what your doctor says about physical activity while healing.

                                                                                                            Hoping you get in for your surgery quickly, and hoping all goes smoothly the next time around!

                                                                                                            Lauren 

                                                                                                            WithinMySkin
                                                                                                            Participant

                                                                                                              Hi David! I'm so terribly sorry that you had to go through all that waiting to have your surgery cancel! That's incredibly frustrating!! There are many things that go into the induction, or beginning, stages of anesthesia that it's hard to answer your question. Breathing tubes, additional IVs, special IVs called 'central lines', and urinary catheters (depending on the type of procedure) have to be placed immediately after the beginning of general anesthesia to keep the patient safe, and all of these things can take time. I wish I could answer this question more specifically for you, but unfortunately with this situation I can't without more specifics! 

                                                                                                              Your liver does the major work of processing the medications for general anesthesia. Alcohol and other drugs are also processed by the liver, and to make sure your liver is in tip top shape, it is best to take it easy for the day or two before surgery. If you DO use drugs or alcohol, it is ALWAYS best to let your anesthesiologist know, and be honest about the amount that you use! This probably doesn't apply to you, but many people try to hide the amount of alcohol or other recreational drugs they use due to stigma or addiction or embarrassment. We are not there to judge you, we aren't the cops, and we won't turn you in, but this makes a HUGE difference in the amount of medications we need to give to keep you safely asleep. So yes, take it easy on alcohol before surgery, and ALWAYS be honest with your anesthesia team! 

                                                                                                              Being under general anesthesia is like running a marathon as you will be WHOOPED afterwards! If you are an active person in general, this means you will likely heal faster (hooray!) Just like taking it easy on your liver the day or two before surgery, if you are super duper active, it would probably be best to take it easy on working out before surgery. This helps you to get rehydrated and your muscles to heal. Also, please take it easy AFTER surgery. Don't push yourself to get back to working out as soon as possible…follow what your doctor says about physical activity while healing.

                                                                                                              Hoping you get in for your surgery quickly, and hoping all goes smoothly the next time around!

                                                                                                              Lauren 

                                                                                                              WithinMySkin
                                                                                                              Participant

                                                                                                                Hi David! I'm so terribly sorry that you had to go through all that waiting to have your surgery cancel! That's incredibly frustrating!! There are many things that go into the induction, or beginning, stages of anesthesia that it's hard to answer your question. Breathing tubes, additional IVs, special IVs called 'central lines', and urinary catheters (depending on the type of procedure) have to be placed immediately after the beginning of general anesthesia to keep the patient safe, and all of these things can take time. I wish I could answer this question more specifically for you, but unfortunately with this situation I can't without more specifics! 

                                                                                                                Your liver does the major work of processing the medications for general anesthesia. Alcohol and other drugs are also processed by the liver, and to make sure your liver is in tip top shape, it is best to take it easy for the day or two before surgery. If you DO use drugs or alcohol, it is ALWAYS best to let your anesthesiologist know, and be honest about the amount that you use! This probably doesn't apply to you, but many people try to hide the amount of alcohol or other recreational drugs they use due to stigma or addiction or embarrassment. We are not there to judge you, we aren't the cops, and we won't turn you in, but this makes a HUGE difference in the amount of medications we need to give to keep you safely asleep. So yes, take it easy on alcohol before surgery, and ALWAYS be honest with your anesthesia team! 

                                                                                                                Being under general anesthesia is like running a marathon as you will be WHOOPED afterwards! If you are an active person in general, this means you will likely heal faster (hooray!) Just like taking it easy on your liver the day or two before surgery, if you are super duper active, it would probably be best to take it easy on working out before surgery. This helps you to get rehydrated and your muscles to heal. Also, please take it easy AFTER surgery. Don't push yourself to get back to working out as soon as possible…follow what your doctor says about physical activity while healing.

                                                                                                                Hoping you get in for your surgery quickly, and hoping all goes smoothly the next time around!

                                                                                                                Lauren 

                                                                                                                David McCaw
                                                                                                                Participant

                                                                                                                  Thanks Lauren,  time for a beer and run. next surgery sept. 29 re clnd groin &  pelvis

                                                                                                                  David McCaw
                                                                                                                  Participant

                                                                                                                    Thanks Lauren,  time for a beer and run. next surgery sept. 29 re clnd groin &  pelvis

                                                                                                                    David McCaw
                                                                                                                    Participant

                                                                                                                      Thanks Lauren,  time for a beer and run. next surgery sept. 29 re clnd groin &  pelvis

                                                                                                                    Janner
                                                                                                                    Participant

                                                                                                                      Do you over medicated red heads?  Supposedly, they need 20% more anesthesia.  Redheads are probably quite prevalent on this forum.  And do you listen when a patient says they typically need more anesthesia upfront?  Having woken up mid-stream during several procedures, it has been a problem for me which makes me even more hesitant to go under again..  And one that I feel isn't taken seriously.  My experiences were over ten years ago and we all know meds change, but I still feel like my concerns haven't been taken seriously.  When you have a professional apologize after the fact that they didn't take your concern seriously (after you wake up mid procedure and speak to them), it kind of kills the trust. Other procedure I woke up gagging with a bronchoscope down my throat. Speaking wasn't possible.  This was after I had warned the anesthetist of my earlier experience.

                                                                                                                      Same with nausea drugs.  Recent surgery (gastro) with an admonition not to throw up has me extremely sick.  Any new nausea drugs on the horizon for those of us who really don't tolerate this crap?  Nausea, rigors and the like really suck added to the surgery insult to our bodies.  Sorry for the rant but I'm sure I'm not the only one with bad experiences.

                                                                                                                      Janner
                                                                                                                      Participant

                                                                                                                        Do you over medicated red heads?  Supposedly, they need 20% more anesthesia.  Redheads are probably quite prevalent on this forum.  And do you listen when a patient says they typically need more anesthesia upfront?  Having woken up mid-stream during several procedures, it has been a problem for me which makes me even more hesitant to go under again..  And one that I feel isn't taken seriously.  My experiences were over ten years ago and we all know meds change, but I still feel like my concerns haven't been taken seriously.  When you have a professional apologize after the fact that they didn't take your concern seriously (after you wake up mid procedure and speak to them), it kind of kills the trust. Other procedure I woke up gagging with a bronchoscope down my throat. Speaking wasn't possible.  This was after I had warned the anesthetist of my earlier experience.

                                                                                                                        Same with nausea drugs.  Recent surgery (gastro) with an admonition not to throw up has me extremely sick.  Any new nausea drugs on the horizon for those of us who really don't tolerate this crap?  Nausea, rigors and the like really suck added to the surgery insult to our bodies.  Sorry for the rant but I'm sure I'm not the only one with bad experiences.

                                                                                                                        Janner
                                                                                                                        Participant

                                                                                                                          Do you over medicated red heads?  Supposedly, they need 20% more anesthesia.  Redheads are probably quite prevalent on this forum.  And do you listen when a patient says they typically need more anesthesia upfront?  Having woken up mid-stream during several procedures, it has been a problem for me which makes me even more hesitant to go under again..  And one that I feel isn't taken seriously.  My experiences were over ten years ago and we all know meds change, but I still feel like my concerns haven't been taken seriously.  When you have a professional apologize after the fact that they didn't take your concern seriously (after you wake up mid procedure and speak to them), it kind of kills the trust. Other procedure I woke up gagging with a bronchoscope down my throat. Speaking wasn't possible.  This was after I had warned the anesthetist of my earlier experience.

                                                                                                                          Same with nausea drugs.  Recent surgery (gastro) with an admonition not to throw up has me extremely sick.  Any new nausea drugs on the horizon for those of us who really don't tolerate this crap?  Nausea, rigors and the like really suck added to the surgery insult to our bodies.  Sorry for the rant but I'm sure I'm not the only one with bad experiences.

                                                                                                                            WithinMySkin
                                                                                                                            Participant

                                                                                                                              Hi Anon. I'm terribly sorry about your previous experiences. I can't fix what has already happened, but please accept my deepest sympathy and a huge apology hug. 

                                                                                                                              Yes, there are likely many redheads on this forum. I myself am a redhead. And in some cases, redheads DO need more anesthesia, but this is not a hard and fast rule. For example, I'm a lightweight when it comes to anesthesia and pain medication, but I tend to need more numbing medication (like novicaine) at the dentist. You are clearly in the camp where you need more anesthesia, and your concerns are completely warranted and should be taken very seriously.

                                                                                                                              My biggest suggestion would be to INSIST that the whole anesthesia team know about your difficulties with anesthesia in the past. In your pre-surgery meeting with the anesthesia team, tell everyone multiple times. Be insistent, and tell your WHOLE story. Make sure that EVERYONE knows that you remember waking up in your procedures, and you're scared of this happening again. Let them know about the anesthesiologist APPOLOGIZING to you afterwards on that occasion (this is a big deal, so it will catch their attention!) Communicating this clearly is the only way to make sure that your anesthesia team listens. I know this is incredibly difficult, but you have to strongly advocate for yourself, as no one else can do this but you.  

                                                                                                                              There are lots of new nausea drugs out there that can help with that aspect, and when used in combination with older drugs, can even prevent nausea. Let the anesthesia team know that you have PONV (post-op nausea and vomiting) and they will work on giving you the best cocktail to prevent this from occurring. 

                                                                                                                              Again, I'm terribly sorry that you had bad experiences in the past. Every body is unique, and yours even more so. No anesthesia team purposefully means to cause you anguish…they are there to do quite the opposite. So speak up and make yourself be heard – advocate strongly for yourself before your next surgery, and hopefully this can be prevented in the future.

                                                                                                                              Wishing you all the best,

                                                                                                                              Lauren 

                                                                                                                              WithinMySkin
                                                                                                                              Participant

                                                                                                                                Hi Anon. I'm terribly sorry about your previous experiences. I can't fix what has already happened, but please accept my deepest sympathy and a huge apology hug. 

                                                                                                                                Yes, there are likely many redheads on this forum. I myself am a redhead. And in some cases, redheads DO need more anesthesia, but this is not a hard and fast rule. For example, I'm a lightweight when it comes to anesthesia and pain medication, but I tend to need more numbing medication (like novicaine) at the dentist. You are clearly in the camp where you need more anesthesia, and your concerns are completely warranted and should be taken very seriously.

                                                                                                                                My biggest suggestion would be to INSIST that the whole anesthesia team know about your difficulties with anesthesia in the past. In your pre-surgery meeting with the anesthesia team, tell everyone multiple times. Be insistent, and tell your WHOLE story. Make sure that EVERYONE knows that you remember waking up in your procedures, and you're scared of this happening again. Let them know about the anesthesiologist APPOLOGIZING to you afterwards on that occasion (this is a big deal, so it will catch their attention!) Communicating this clearly is the only way to make sure that your anesthesia team listens. I know this is incredibly difficult, but you have to strongly advocate for yourself, as no one else can do this but you.  

                                                                                                                                There are lots of new nausea drugs out there that can help with that aspect, and when used in combination with older drugs, can even prevent nausea. Let the anesthesia team know that you have PONV (post-op nausea and vomiting) and they will work on giving you the best cocktail to prevent this from occurring. 

                                                                                                                                Again, I'm terribly sorry that you had bad experiences in the past. Every body is unique, and yours even more so. No anesthesia team purposefully means to cause you anguish…they are there to do quite the opposite. So speak up and make yourself be heard – advocate strongly for yourself before your next surgery, and hopefully this can be prevented in the future.

                                                                                                                                Wishing you all the best,

                                                                                                                                Lauren 

                                                                                                                                WithinMySkin
                                                                                                                                Participant

                                                                                                                                  Hi Anon. I'm terribly sorry about your previous experiences. I can't fix what has already happened, but please accept my deepest sympathy and a huge apology hug. 

                                                                                                                                  Yes, there are likely many redheads on this forum. I myself am a redhead. And in some cases, redheads DO need more anesthesia, but this is not a hard and fast rule. For example, I'm a lightweight when it comes to anesthesia and pain medication, but I tend to need more numbing medication (like novicaine) at the dentist. You are clearly in the camp where you need more anesthesia, and your concerns are completely warranted and should be taken very seriously.

                                                                                                                                  My biggest suggestion would be to INSIST that the whole anesthesia team know about your difficulties with anesthesia in the past. In your pre-surgery meeting with the anesthesia team, tell everyone multiple times. Be insistent, and tell your WHOLE story. Make sure that EVERYONE knows that you remember waking up in your procedures, and you're scared of this happening again. Let them know about the anesthesiologist APPOLOGIZING to you afterwards on that occasion (this is a big deal, so it will catch their attention!) Communicating this clearly is the only way to make sure that your anesthesia team listens. I know this is incredibly difficult, but you have to strongly advocate for yourself, as no one else can do this but you.  

                                                                                                                                  There are lots of new nausea drugs out there that can help with that aspect, and when used in combination with older drugs, can even prevent nausea. Let the anesthesia team know that you have PONV (post-op nausea and vomiting) and they will work on giving you the best cocktail to prevent this from occurring. 

                                                                                                                                  Again, I'm terribly sorry that you had bad experiences in the past. Every body is unique, and yours even more so. No anesthesia team purposefully means to cause you anguish…they are there to do quite the opposite. So speak up and make yourself be heard – advocate strongly for yourself before your next surgery, and hopefully this can be prevented in the future.

                                                                                                                                  Wishing you all the best,

                                                                                                                                  Lauren 

                                                                                                                                  Janner
                                                                                                                                  Participant

                                                                                                                                    Thanks, Lauren.  I think you hit upon my frustration.  I DO tell them my issues but don't feel I've been taken seriously.  And I'm not someone who meekly tells my story. I ALWAYS bring it up because it is the worst thing for me.   I tend to need more local anesth for derm stuff (keep that cautery probe away from me!) but haven't had that issue at the dentist.  Interesting.  High pain tolerance, low nausea tolerance.  When your not a medical prof, I think some teams think you exaggerate and that's not me.  Appreciate your willingness to help, it's just a bit of a sore spot with me and I read your post at a weak moment. blush

                                                                                                                                    WithinMySkin
                                                                                                                                    Participant
                                                                                                                                      Hello again Anon. I can’t seem to get your situation off my mind since you posted. I completely feel your pain, and I’ve thought up a “script” so you can get your point across before your next procedure.

                                                                                                                                      “My main concern is staying asleep during this procedure. I’ve been told by anesthesiologists in past that I need more anesthesia than most people because I’ve woken up during previous surgeries. I told this to the anesthesiologist before my ____ surgery, and I STILL woke up in the middle of the procedure. I was terrified and the anesthesiologist actually apologized to me afterwards. This has been traumatic and I’m scared this will happen again.”

                                                                                                                                      Try and keep to the facts and don’t say things like “nobody listens to me” or “I have to have more anesthesia.” Though this is CLEARLY true, no one in the healthcare field likes to be told that they suck and if you demand more anesthesia, many providers will think you’re a drug seeker. Saying that you’ve been “told in the past” BY anesthesia personnel will make them listen.

                                                                                                                                      You should also mention that you’ve been told that you have “severe PONV” (literally spelled out with the letters P.O.N.V). This will also perk their ears if you use this phrase and they will do everything they can to prevent the nausea associated with general anesthesia.

                                                                                                                                      Hoping this never happens to you again and wishing you health and happiness.

                                                                                                                                      jennunicorn
                                                                                                                                      Participant

                                                                                                                                        Wanted to say thanks for putting the PONV out there. I have always had terrible vomiting after general anesthesia, only been under twice in my life before being diagnosed with melanoma. So, when it was time for my WLE and SLNB, I told the anesthesiologist that I will absolutely vomit, he promised to give me a lighter dose, not full general, and said "there's no way you will get sick with this light dose". So, I was partially awake, in and out of sleep during the surgery, which was fine with me, drugged up enough not to scare me. Then, when it was over and I was recovering in the bed, the nurse looked at me and knew to grab a bag right away because BOOM, full force vomiting. The nurses gave me anti-nausea drugs in my IV, but must have been too late because it didn't help at all. They all seemed pretty shocked too, since they knew I didn't get general anesthesia and I guess it's pretty rare to be so sick with such mild anesthesia? I kind of wanted to see the anesthesiologist again and say "you were wrong buddy"..

                                                                                                                                        So, if I ever need surgery again, I will keep those four letters in mind. Thanks Lauren!

                                                                                                                                        jennunicorn
                                                                                                                                        Participant

                                                                                                                                          Wanted to say thanks for putting the PONV out there. I have always had terrible vomiting after general anesthesia, only been under twice in my life before being diagnosed with melanoma. So, when it was time for my WLE and SLNB, I told the anesthesiologist that I will absolutely vomit, he promised to give me a lighter dose, not full general, and said "there's no way you will get sick with this light dose". So, I was partially awake, in and out of sleep during the surgery, which was fine with me, drugged up enough not to scare me. Then, when it was over and I was recovering in the bed, the nurse looked at me and knew to grab a bag right away because BOOM, full force vomiting. The nurses gave me anti-nausea drugs in my IV, but must have been too late because it didn't help at all. They all seemed pretty shocked too, since they knew I didn't get general anesthesia and I guess it's pretty rare to be so sick with such mild anesthesia? I kind of wanted to see the anesthesiologist again and say "you were wrong buddy"..

                                                                                                                                          So, if I ever need surgery again, I will keep those four letters in mind. Thanks Lauren!

                                                                                                                                          jennunicorn
                                                                                                                                          Participant

                                                                                                                                            Wanted to say thanks for putting the PONV out there. I have always had terrible vomiting after general anesthesia, only been under twice in my life before being diagnosed with melanoma. So, when it was time for my WLE and SLNB, I told the anesthesiologist that I will absolutely vomit, he promised to give me a lighter dose, not full general, and said "there's no way you will get sick with this light dose". So, I was partially awake, in and out of sleep during the surgery, which was fine with me, drugged up enough not to scare me. Then, when it was over and I was recovering in the bed, the nurse looked at me and knew to grab a bag right away because BOOM, full force vomiting. The nurses gave me anti-nausea drugs in my IV, but must have been too late because it didn't help at all. They all seemed pretty shocked too, since they knew I didn't get general anesthesia and I guess it's pretty rare to be so sick with such mild anesthesia? I kind of wanted to see the anesthesiologist again and say "you were wrong buddy"..

                                                                                                                                            So, if I ever need surgery again, I will keep those four letters in mind. Thanks Lauren!

                                                                                                                                            WithinMySkin
                                                                                                                                            Participant
                                                                                                                                              Hey Jenn! Yes, ABSOLUTELY being sick after surgery really sucks!! There are certain people who are more prone to it (young, female, nonsmokers having surgery in/near/around the GI and female reproductive systems) and once you’ve had it, you’re MUCH more likely to have it again! Sounds like you had a light version of what we call “twilight” anesthesia, which is usually given for colonoscopies, and the medications we give through your IV don’t TEND to cause nausea…But there are definitely exceptions (lucky you, huh!?) So one thing to consider…do you get car/sea sick? If so, there’s a patch that they can put behind your ear BEFORE anesthesia that may help with the sickness. It’s called a “scope” patch (short for scopolamine) that many people use to prevent sea sickness on cruises and such. If you’ve ever had sea sickness or used this patch in the past, def mention it (and your history of severe PONV!) next time to the anesthesia team. It’s miserable to be sick, so hoping this helps prevent it next time around!!

                                                                                                                                              All the best!
                                                                                                                                              Lauren

                                                                                                                                              WithinMySkin
                                                                                                                                              Participant
                                                                                                                                                Hey Jenn! Yes, ABSOLUTELY being sick after surgery really sucks!! There are certain people who are more prone to it (young, female, nonsmokers having surgery in/near/around the GI and female reproductive systems) and once you’ve had it, you’re MUCH more likely to have it again! Sounds like you had a light version of what we call “twilight” anesthesia, which is usually given for colonoscopies, and the medications we give through your IV don’t TEND to cause nausea…But there are definitely exceptions (lucky you, huh!?) So one thing to consider…do you get car/sea sick? If so, there’s a patch that they can put behind your ear BEFORE anesthesia that may help with the sickness. It’s called a “scope” patch (short for scopolamine) that many people use to prevent sea sickness on cruises and such. If you’ve ever had sea sickness or used this patch in the past, def mention it (and your history of severe PONV!) next time to the anesthesia team. It’s miserable to be sick, so hoping this helps prevent it next time around!!

                                                                                                                                                All the best!
                                                                                                                                                Lauren

                                                                                                                                                jennunicorn
                                                                                                                                                Participant

                                                                                                                                                  Yes, I do get seasick! Thanks so much for the tip! 

                                                                                                                                                  jennunicorn
                                                                                                                                                  Participant

                                                                                                                                                    Yes, I do get seasick! Thanks so much for the tip! 

                                                                                                                                                    jennunicorn
                                                                                                                                                    Participant

                                                                                                                                                      Yes, I do get seasick! Thanks so much for the tip! 

                                                                                                                                                      WithinMySkin
                                                                                                                                                      Participant
                                                                                                                                                        Hey Jenn! Yes, ABSOLUTELY being sick after surgery really sucks!! There are certain people who are more prone to it (young, female, nonsmokers having surgery in/near/around the GI and female reproductive systems) and once you’ve had it, you’re MUCH more likely to have it again! Sounds like you had a light version of what we call “twilight” anesthesia, which is usually given for colonoscopies, and the medications we give through your IV don’t TEND to cause nausea…But there are definitely exceptions (lucky you, huh!?) So one thing to consider…do you get car/sea sick? If so, there’s a patch that they can put behind your ear BEFORE anesthesia that may help with the sickness. It’s called a “scope” patch (short for scopolamine) that many people use to prevent sea sickness on cruises and such. If you’ve ever had sea sickness or used this patch in the past, def mention it (and your history of severe PONV!) next time to the anesthesia team. It’s miserable to be sick, so hoping this helps prevent it next time around!!

                                                                                                                                                        All the best!
                                                                                                                                                        Lauren

                                                                                                                                                        WithinMySkin
                                                                                                                                                        Participant
                                                                                                                                                          Hello again Anon. I can’t seem to get your situation off my mind since you posted. I completely feel your pain, and I’ve thought up a “script” so you can get your point across before your next procedure.

                                                                                                                                                          “My main concern is staying asleep during this procedure. I’ve been told by anesthesiologists in past that I need more anesthesia than most people because I’ve woken up during previous surgeries. I told this to the anesthesiologist before my ____ surgery, and I STILL woke up in the middle of the procedure. I was terrified and the anesthesiologist actually apologized to me afterwards. This has been traumatic and I’m scared this will happen again.”

                                                                                                                                                          Try and keep to the facts and don’t say things like “nobody listens to me” or “I have to have more anesthesia.” Though this is CLEARLY true, no one in the healthcare field likes to be told that they suck and if you demand more anesthesia, many providers will think you’re a drug seeker. Saying that you’ve been “told in the past” BY anesthesia personnel will make them listen.

                                                                                                                                                          You should also mention that you’ve been told that you have “severe PONV” (literally spelled out with the letters P.O.N.V). This will also perk their ears if you use this phrase and they will do everything they can to prevent the nausea associated with general anesthesia.

                                                                                                                                                          Hoping this never happens to you again and wishing you health and happiness.

                                                                                                                                                          WithinMySkin
                                                                                                                                                          Participant
                                                                                                                                                            Hello again Anon. I can’t seem to get your situation off my mind since you posted. I completely feel your pain, and I’ve thought up a “script” so you can get your point across before your next procedure.

                                                                                                                                                            “My main concern is staying asleep during this procedure. I’ve been told by anesthesiologists in past that I need more anesthesia than most people because I’ve woken up during previous surgeries. I told this to the anesthesiologist before my ____ surgery, and I STILL woke up in the middle of the procedure. I was terrified and the anesthesiologist actually apologized to me afterwards. This has been traumatic and I’m scared this will happen again.”

                                                                                                                                                            Try and keep to the facts and don’t say things like “nobody listens to me” or “I have to have more anesthesia.” Though this is CLEARLY true, no one in the healthcare field likes to be told that they suck and if you demand more anesthesia, many providers will think you’re a drug seeker. Saying that you’ve been “told in the past” BY anesthesia personnel will make them listen.

                                                                                                                                                            You should also mention that you’ve been told that you have “severe PONV” (literally spelled out with the letters P.O.N.V). This will also perk their ears if you use this phrase and they will do everything they can to prevent the nausea associated with general anesthesia.

                                                                                                                                                            Hoping this never happens to you again and wishing you health and happiness.

                                                                                                                                                            Janner
                                                                                                                                                            Participant

                                                                                                                                                              Thanks, Lauren.  I think you hit upon my frustration.  I DO tell them my issues but don't feel I've been taken seriously.  And I'm not someone who meekly tells my story. I ALWAYS bring it up because it is the worst thing for me.   I tend to need more local anesth for derm stuff (keep that cautery probe away from me!) but haven't had that issue at the dentist.  Interesting.  High pain tolerance, low nausea tolerance.  When your not a medical prof, I think some teams think you exaggerate and that's not me.  Appreciate your willingness to help, it's just a bit of a sore spot with me and I read your post at a weak moment. blush

                                                                                                                                                              Janner
                                                                                                                                                              Participant

                                                                                                                                                                Thanks, Lauren.  I think you hit upon my frustration.  I DO tell them my issues but don't feel I've been taken seriously.  And I'm not someone who meekly tells my story. I ALWAYS bring it up because it is the worst thing for me.   I tend to need more local anesth for derm stuff (keep that cautery probe away from me!) but haven't had that issue at the dentist.  Interesting.  High pain tolerance, low nausea tolerance.  When your not a medical prof, I think some teams think you exaggerate and that's not me.  Appreciate your willingness to help, it's just a bit of a sore spot with me and I read your post at a weak moment. blush

                                                                                                                                                              spiderman
                                                                                                                                                              Participant

                                                                                                                                                                Interesting thread Lauren. I have a couple of questions if you don’t mind. First let me set the stage by going through my general anesthesia history.

                                                                                                                                                                In the 80’s I had two rather lengthy surgeries under general anesthesia (2+ hours, 6+hours). In both cases I was totally out with zero recollection of the surgeries when I came to.

                                                                                                                                                                In the 90s I also had two surgeries under general, but both were shorter (around an hour) and in both cases I was not completely out. It sounds like I got the “twilight” treatment. The first surgery wasn’t too bad, but I was a little surprised when I wasn’t totally out and it was a little bit uncomfortable. The second surgery turned out to be for removal of a schwannoma in my left axilla. I’m not sure you are familiar with schwannoma tumors, but they are masses formed in the nerve sheathing. Not only was I not totally under, but there apparently wasn’t enough local anesthesia to block the pain. I remember excruciating pain and my arm flying all over the place as they pressed on the nerves. Of course I was in the in between state of feeling all the discomfort but not conscious enough to do anything about it. Had I been able to I would have punched the surgeon in the face with my good arm.

                                                                                                                                                                My most recent surgery was last year for the melanoma lesion removal (with skin graft) and sentinel node removal. I was very worried about the same “twilight” situation. To my delight I was totally under with no recollection of anything. This was about a 2 hour surgery.

                                                                                                                                                                I also recently had a colonoscopy, which is super short in duration, but I again was totally out. That really surprised me.

                                                                                                                                                                So my questions are:

                                                                                                                                                                Is the “twilight” decision based on surgery duration and/or surgery complexity?

                                                                                                                                                                Can I request to be put totally under even if it is a shorter and less complex surgery?

                                                                                                                                                                I have had zero issues with nausea or any other ill effects from anesthesia, so for me the deeper the better after that one horrible experience. In their defense, it was not known ahead of time as to what type of mass it was, so I suppose they may not have anticipated the difficulty of the situation.

                                                                                                                                                                I guess that raises one more question. If the situation turns out to be more difficult than originally anticipated, can the anesthesia be adjusted to compensate or are there pre surgery setup decisions that prohibit going deeper on the fly (i.e. breathing tubes, etc.)?

                                                                                                                                                                Thanks

                                                                                                                                                                 
                                                                                                                                                                 

                                                                                                                                                                spiderman
                                                                                                                                                                Participant

                                                                                                                                                                  Interesting thread Lauren. I have a couple of questions if you don’t mind. First let me set the stage by going through my general anesthesia history.

                                                                                                                                                                  In the 80’s I had two rather lengthy surgeries under general anesthesia (2+ hours, 6+hours). In both cases I was totally out with zero recollection of the surgeries when I came to.

                                                                                                                                                                  In the 90s I also had two surgeries under general, but both were shorter (around an hour) and in both cases I was not completely out. It sounds like I got the “twilight” treatment. The first surgery wasn’t too bad, but I was a little surprised when I wasn’t totally out and it was a little bit uncomfortable. The second surgery turned out to be for removal of a schwannoma in my left axilla. I’m not sure you are familiar with schwannoma tumors, but they are masses formed in the nerve sheathing. Not only was I not totally under, but there apparently wasn’t enough local anesthesia to block the pain. I remember excruciating pain and my arm flying all over the place as they pressed on the nerves. Of course I was in the in between state of feeling all the discomfort but not conscious enough to do anything about it. Had I been able to I would have punched the surgeon in the face with my good arm.

                                                                                                                                                                  My most recent surgery was last year for the melanoma lesion removal (with skin graft) and sentinel node removal. I was very worried about the same “twilight” situation. To my delight I was totally under with no recollection of anything. This was about a 2 hour surgery.

                                                                                                                                                                  I also recently had a colonoscopy, which is super short in duration, but I again was totally out. That really surprised me.

                                                                                                                                                                  So my questions are:

                                                                                                                                                                  Is the “twilight” decision based on surgery duration and/or surgery complexity?

                                                                                                                                                                  Can I request to be put totally under even if it is a shorter and less complex surgery?

                                                                                                                                                                  I have had zero issues with nausea or any other ill effects from anesthesia, so for me the deeper the better after that one horrible experience. In their defense, it was not known ahead of time as to what type of mass it was, so I suppose they may not have anticipated the difficulty of the situation.

                                                                                                                                                                  I guess that raises one more question. If the situation turns out to be more difficult than originally anticipated, can the anesthesia be adjusted to compensate or are there pre surgery setup decisions that prohibit going deeper on the fly (i.e. breathing tubes, etc.)?

                                                                                                                                                                  Thanks

                                                                                                                                                                   
                                                                                                                                                                   

                                                                                                                                                                  spiderman
                                                                                                                                                                  Participant

                                                                                                                                                                    Interesting thread Lauren. I have a couple of questions if you don’t mind. First let me set the stage by going through my general anesthesia history.

                                                                                                                                                                    In the 80’s I had two rather lengthy surgeries under general anesthesia (2+ hours, 6+hours). In both cases I was totally out with zero recollection of the surgeries when I came to.

                                                                                                                                                                    In the 90s I also had two surgeries under general, but both were shorter (around an hour) and in both cases I was not completely out. It sounds like I got the “twilight” treatment. The first surgery wasn’t too bad, but I was a little surprised when I wasn’t totally out and it was a little bit uncomfortable. The second surgery turned out to be for removal of a schwannoma in my left axilla. I’m not sure you are familiar with schwannoma tumors, but they are masses formed in the nerve sheathing. Not only was I not totally under, but there apparently wasn’t enough local anesthesia to block the pain. I remember excruciating pain and my arm flying all over the place as they pressed on the nerves. Of course I was in the in between state of feeling all the discomfort but not conscious enough to do anything about it. Had I been able to I would have punched the surgeon in the face with my good arm.

                                                                                                                                                                    My most recent surgery was last year for the melanoma lesion removal (with skin graft) and sentinel node removal. I was very worried about the same “twilight” situation. To my delight I was totally under with no recollection of anything. This was about a 2 hour surgery.

                                                                                                                                                                    I also recently had a colonoscopy, which is super short in duration, but I again was totally out. That really surprised me.

                                                                                                                                                                    So my questions are:

                                                                                                                                                                    Is the “twilight” decision based on surgery duration and/or surgery complexity?

                                                                                                                                                                    Can I request to be put totally under even if it is a shorter and less complex surgery?

                                                                                                                                                                    I have had zero issues with nausea or any other ill effects from anesthesia, so for me the deeper the better after that one horrible experience. In their defense, it was not known ahead of time as to what type of mass it was, so I suppose they may not have anticipated the difficulty of the situation.

                                                                                                                                                                    I guess that raises one more question. If the situation turns out to be more difficult than originally anticipated, can the anesthesia be adjusted to compensate or are there pre surgery setup decisions that prohibit going deeper on the fly (i.e. breathing tubes, etc.)?

                                                                                                                                                                    Thanks

                                                                                                                                                                     
                                                                                                                                                                     

                                                                                                                                                                      WithinMySkin
                                                                                                                                                                      Participant
                                                                                                                                                                        Hi Spiderman – good questions. And to answer all of them, I’d say yes, yes, and yes! There are tons of things that go into the decision for what type of anesthesia to give. As you said, time and complexity make a difference, as do the health of the patient and what they can handle. Jennunicorn mentioned earlier that she had a “twilight” anesthesia when most people would have general anesthesia, in hopes of preventing nausea. The anesthesia team decided (based on her past experiences and health status) the best anesthetic based on the circumstances. It didn’t quite end up preventing the nausea as planned, as Jenn can attest to (so sorry, Jenn!) but they used all the info they had to make a plan of action.

                                                                                                                                                                        You can always request to be “put totally under” but your anesthesia team may not always agree with that decision. Twilight anesthesia also does not always guarantee that you’ll feel or be aware of the procedure. For example, I can almost guarantee your colonoscopy was done under “twilight” and not under general anesthesia. Even if you don’t remember a thing, there are certain things that have to happen (ie breathing tube) to classify as general anesthesia, and that almost never happens in a colonoscopy. These things take time and put you under greater risk than twilight anesthesia, so you can always ask for general, but the anesthesia team may not want to add that risk to a simple procedure.

                                                                                                                                                                        Your third question – absolutely. The anesthesia team has to do everything they can to keep you safe. Many times the anesthesia options or possibilities of changing plans are discussed before the surgery if there is any chance of it happening to help prepare everyone involved. And many times the anesthesia team relies on the surgeons to make this call (since we can’t see all of what’s going on in there). If the surgery becomes more complex like in your schwannoma surgery, the surgeon has to communicate this to the anesthesia team, and we take it from there. There’s always lots of teamwork and communication involved with a change of plans, but it’s completely possible.

                                                                                                                                                                        I’m so sorry this situation happened to you in the past. Before future procedures, definitely bring up your past experiences with the anesthesia team, and let them know how uncomfortable it was for you. They always aim to keep you comfortable and safe, and the more they know about your history, the better they can make your experiences.

                                                                                                                                                                        All the best,
                                                                                                                                                                        Lauren

                                                                                                                                                                        WithinMySkin
                                                                                                                                                                        Participant
                                                                                                                                                                          Hi Spiderman – good questions. And to answer all of them, I’d say yes, yes, and yes! There are tons of things that go into the decision for what type of anesthesia to give. As you said, time and complexity make a difference, as do the health of the patient and what they can handle. Jennunicorn mentioned earlier that she had a “twilight” anesthesia when most people would have general anesthesia, in hopes of preventing nausea. The anesthesia team decided (based on her past experiences and health status) the best anesthetic based on the circumstances. It didn’t quite end up preventing the nausea as planned, as Jenn can attest to (so sorry, Jenn!) but they used all the info they had to make a plan of action.

                                                                                                                                                                          You can always request to be “put totally under” but your anesthesia team may not always agree with that decision. Twilight anesthesia also does not always guarantee that you’ll feel or be aware of the procedure. For example, I can almost guarantee your colonoscopy was done under “twilight” and not under general anesthesia. Even if you don’t remember a thing, there are certain things that have to happen (ie breathing tube) to classify as general anesthesia, and that almost never happens in a colonoscopy. These things take time and put you under greater risk than twilight anesthesia, so you can always ask for general, but the anesthesia team may not want to add that risk to a simple procedure.

                                                                                                                                                                          Your third question – absolutely. The anesthesia team has to do everything they can to keep you safe. Many times the anesthesia options or possibilities of changing plans are discussed before the surgery if there is any chance of it happening to help prepare everyone involved. And many times the anesthesia team relies on the surgeons to make this call (since we can’t see all of what’s going on in there). If the surgery becomes more complex like in your schwannoma surgery, the surgeon has to communicate this to the anesthesia team, and we take it from there. There’s always lots of teamwork and communication involved with a change of plans, but it’s completely possible.

                                                                                                                                                                          I’m so sorry this situation happened to you in the past. Before future procedures, definitely bring up your past experiences with the anesthesia team, and let them know how uncomfortable it was for you. They always aim to keep you comfortable and safe, and the more they know about your history, the better they can make your experiences.

                                                                                                                                                                          All the best,
                                                                                                                                                                          Lauren

                                                                                                                                                                          WithinMySkin
                                                                                                                                                                          Participant
                                                                                                                                                                            Hi Spiderman – good questions. And to answer all of them, I’d say yes, yes, and yes! There are tons of things that go into the decision for what type of anesthesia to give. As you said, time and complexity make a difference, as do the health of the patient and what they can handle. Jennunicorn mentioned earlier that she had a “twilight” anesthesia when most people would have general anesthesia, in hopes of preventing nausea. The anesthesia team decided (based on her past experiences and health status) the best anesthetic based on the circumstances. It didn’t quite end up preventing the nausea as planned, as Jenn can attest to (so sorry, Jenn!) but they used all the info they had to make a plan of action.

                                                                                                                                                                            You can always request to be “put totally under” but your anesthesia team may not always agree with that decision. Twilight anesthesia also does not always guarantee that you’ll feel or be aware of the procedure. For example, I can almost guarantee your colonoscopy was done under “twilight” and not under general anesthesia. Even if you don’t remember a thing, there are certain things that have to happen (ie breathing tube) to classify as general anesthesia, and that almost never happens in a colonoscopy. These things take time and put you under greater risk than twilight anesthesia, so you can always ask for general, but the anesthesia team may not want to add that risk to a simple procedure.

                                                                                                                                                                            Your third question – absolutely. The anesthesia team has to do everything they can to keep you safe. Many times the anesthesia options or possibilities of changing plans are discussed before the surgery if there is any chance of it happening to help prepare everyone involved. And many times the anesthesia team relies on the surgeons to make this call (since we can’t see all of what’s going on in there). If the surgery becomes more complex like in your schwannoma surgery, the surgeon has to communicate this to the anesthesia team, and we take it from there. There’s always lots of teamwork and communication involved with a change of plans, but it’s completely possible.

                                                                                                                                                                            I’m so sorry this situation happened to you in the past. Before future procedures, definitely bring up your past experiences with the anesthesia team, and let them know how uncomfortable it was for you. They always aim to keep you comfortable and safe, and the more they know about your history, the better they can make your experiences.

                                                                                                                                                                            All the best,
                                                                                                                                                                            Lauren

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