Another Craniotomy & Gamma Knife

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Another Craniotomy & Gamma Knife

This topic has 3 replies, 3 voices, and was last updated 7 years, 1 month ago by cjm22.

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- April 5, 2018 at 1:09 pm
- Quote
marta010
Participant
Hi All – After two years of relative calm, my husband, Larry, had his 3rd crainiotomy to remove a previously gamma knifed brain met that decided to act up. He will have his 5th gamma knife procedure next week to the tumor cavity. In addition, he has an infusion of Keytruda scheduled for Monday. I hope we're not opening pandora's box of side effects as he did have a brain edema flare 2 years ago also while on Keytruda. He discontinued Keytruda at that time and has been on Tafinlar. At this time, he does not have any other known brain mets (will be checked again during the pre-gamma MRI) and minimal stable tumor activity in his neck and portacaval lymph nodes. We're really hoping that Keytruda mops up the residual activity in his lymph nodes and prevents new brain mets. This has been a long journey – just passed the 6 year mark since initial diagonsis – and I always appreciate the knowledge and wisdom shared by the participants of this forum. Wishing all of you the best possible outcomes.

Ann

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Replies

- - April 5, 2018 at 2:35 pm
  - Quote
  Bubbles
  Participant
  So sorry you and Larry must deal with one more thing!!! But, it sounds like you and his docs are on top of everything!! No words of wisdom, other than hang in there….as I know you will.
  
  I do have this… While Pandora's box was filled with many terrors….it did contain this as well:
  
  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/01/part-2-ratties-and-hope.html
  
  May you be blessed with many, many dragonflies!!! love, c
  - April 5, 2018 at 5:22 pm
    
    Quote
    marta010
    Participant
    
    Thanks, Celeste – I find your blog and advice to be very heartening and enlightning! Larry didn't have too many issues with the first go around with Keytruda so keeping our fingers crossed that the 2nd times a charm. At least we're better equipped to recognize when something just doesn't seem right – at least I hope we are! Sometimes calamity sneaks up on us!
    
    Ann
- - April 5, 2018 at 8:39 pm
  - Quote
  cjm22
  Participant
  Go Larry go!!! I am so happy to hear you and your hubby have enjoyed 6 years, here's to many more to come 🙂

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