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Another good scan
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Another good scan

› Forums › General Melanoma Community › Another good scan

  • Post
    • December 13, 2012 at 3:12 am
    Lisa – Aust
    Participant

      Hi Everyone,

      Hi Everyone,

      I read everybody's posts regularly, but dont often post myself. Just an update on my hubby Craig who progressed to stage four 2 years ago (1 Dec 2010), after being stage three for about 3 years. Latest set of scans are clear after having been on Z (GSK phase 3) for 96 weeks. Hopefully this provides some hope to those newly diagnosed and starting Z – I know everyone wont have such a response, but I find it so encouraging that some people CAN have this response. It is a nice relief to be able to look forward to chrissy and our upcoming 1 year wedding anniversary 🙂

      Wishing everyone a happy and healthy Christmas, all the way from sunny Perth

      Lisa

      xx

    Viewing 11 reply threads
    • Replies
        • December 13, 2012 at 4:04 am
        POW
        Participant

          Thanks for sharing the good news about Craig. It really is nice to know that people do have a sustained (perhaps even  permanent?) response to Zelboraf. Merry Christmas and Happy Anniversary!

          • December 13, 2012 at 4:04 am
          POW
          Participant

            Thanks for sharing the good news about Craig. It really is nice to know that people do have a sustained (perhaps even  permanent?) response to Zelboraf. Merry Christmas and Happy Anniversary!

            • December 13, 2012 at 4:04 am
            POW
            Participant

              Thanks for sharing the good news about Craig. It really is nice to know that people do have a sustained (perhaps even  permanent?) response to Zelboraf. Merry Christmas and Happy Anniversary!

              • December 13, 2012 at 8:51 am
              James from Sydney
              Participant

                Hey Lisa,  best wishes to you and Craig on your Anniversary  i am so happy for both of you. Keep up the good news!

                James

                • December 13, 2012 at 8:51 am
                James from Sydney
                Participant

                  Hey Lisa,  best wishes to you and Craig on your Anniversary  i am so happy for both of you. Keep up the good news!

                  James

                    • December 13, 2012 at 6:19 pm
                    NYKaren
                    Participant

                      Great news, Lisa. 

                      Happy Anniversary, and continued good wishes for positive response.

                      Karen

                      • December 13, 2012 at 6:19 pm
                      NYKaren
                      Participant

                        Great news, Lisa. 

                        Happy Anniversary, and continued good wishes for positive response.

                        Karen

                        • December 13, 2012 at 6:26 pm
                        NYKaren
                        Participant

                          Lisa, I forgot to ask, is the dose that Craig is on the same as what's on the market?

                          thanks,

                          karen

                          • December 13, 2012 at 6:26 pm
                          NYKaren
                          Participant

                            Lisa, I forgot to ask, is the dose that Craig is on the same as what's on the market?

                            thanks,

                            karen

                            • December 14, 2012 at 12:53 pm
                            Lisa – Aust
                            Participant

                              Hi Karen,

                              Craig is on 2 x 75 mg tablets twice daily – im not sure about what is on the market??

                              Thanks for the wishes 🙂

                              • December 14, 2012 at 12:53 pm
                              Lisa – Aust
                              Participant

                                Hi Karen,

                                Craig is on 2 x 75 mg tablets twice daily – im not sure about what is on the market??

                                Thanks for the wishes 🙂

                                • December 14, 2012 at 12:53 pm
                                Lisa – Aust
                                Participant

                                  Hi Karen,

                                  Craig is on 2 x 75 mg tablets twice daily – im not sure about what is on the market??

                                  Thanks for the wishes 🙂

                                  • December 13, 2012 at 6:26 pm
                                  NYKaren
                                  Participant

                                    Lisa, I forgot to ask, is the dose that Craig is on the same as what's on the market?

                                    thanks,

                                    karen

                                    • December 13, 2012 at 6:26 pm
                                    NYKaren
                                    Participant

                                      Lisa, I forgot to ask, is the dose that Craig is on the same as what's on the market?

                                      thanks,

                                      karen

                                      • December 13, 2012 at 6:26 pm
                                      NYKaren
                                      Participant

                                        Lisa, I forgot to ask, is the dose that Craig is on the same as what's on the market?

                                        thanks,

                                        karen

                                        • December 13, 2012 at 6:26 pm
                                        NYKaren
                                        Participant

                                          Lisa, I forgot to ask, is the dose that Craig is on the same as what's on the market?

                                          thanks,

                                          karen

                                          • December 13, 2012 at 6:19 pm
                                          NYKaren
                                          Participant

                                            Great news, Lisa. 

                                            Happy Anniversary, and continued good wishes for positive response.

                                            Karen

                                            • December 14, 2012 at 12:50 pm
                                            Lisa – Aust
                                            Participant

                                              Hi James,

                                              I think of you often, and hope that you and your family are going ok. Thanks for the wishes, we have been so lucky with Craigs response, and are grateful everyday.

                                              Take care 🙂

                                              • December 14, 2012 at 12:50 pm
                                              Lisa – Aust
                                              Participant

                                                Hi James,

                                                I think of you often, and hope that you and your family are going ok. Thanks for the wishes, we have been so lucky with Craigs response, and are grateful everyday.

                                                Take care 🙂

                                                • December 14, 2012 at 12:50 pm
                                                Lisa – Aust
                                                Participant

                                                  Hi James,

                                                  I think of you often, and hope that you and your family are going ok. Thanks for the wishes, we have been so lucky with Craigs response, and are grateful everyday.

                                                  Take care 🙂

                                                • December 13, 2012 at 8:51 am
                                                James from Sydney
                                                Participant

                                                  Hey Lisa,  best wishes to you and Craig on your Anniversary  i am so happy for both of you. Keep up the good news!

                                                  James

                                                  • December 14, 2012 at 2:19 am
                                                  AllyNTAus
                                                  Participant

                                                    Thanks for posting yet another inspiring message Lisa, wonderful to hear that Craig is still going so well.

                                                    I am not yet to 12 months on the GSK BRAF inhibitor, but I am told I am now past the statistical median of progression-free survival, so I am dearly hoping that I will be another like Craig who extends the stats! I have only 3 remaining clinically significant lymph nodes as at my November scan, next scan in January, after which I will actually be in Perth for a few days as part of a big road trip to see lots of family and friends scattered around the country.

                                                    Wishing you a wonderful Christmas and fantastic wedding anniversary.

                                                    Ally

                                                    • December 14, 2012 at 2:19 am
                                                    AllyNTAus
                                                    Participant

                                                      Thanks for posting yet another inspiring message Lisa, wonderful to hear that Craig is still going so well.

                                                      I am not yet to 12 months on the GSK BRAF inhibitor, but I am told I am now past the statistical median of progression-free survival, so I am dearly hoping that I will be another like Craig who extends the stats! I have only 3 remaining clinically significant lymph nodes as at my November scan, next scan in January, after which I will actually be in Perth for a few days as part of a big road trip to see lots of family and friends scattered around the country.

                                                      Wishing you a wonderful Christmas and fantastic wedding anniversary.

                                                      Ally

                                                        • December 14, 2012 at 7:07 am
                                                        deardad
                                                        Participant

                                                          Hi great news about Craig…..it's such a relief to hear those words and encouraging for others living with this disease. Take care and happy wedding anniversary!!

                                                          x Nahmi

                                                          • December 14, 2012 at 7:07 am
                                                          deardad
                                                          Participant

                                                            Hi great news about Craig…..it's such a relief to hear those words and encouraging for others living with this disease. Take care and happy wedding anniversary!!

                                                            x Nahmi

                                                            • December 14, 2012 at 7:07 am
                                                            deardad
                                                            Participant

                                                              Hi great news about Craig…..it's such a relief to hear those words and encouraging for others living with this disease. Take care and happy wedding anniversary!!

                                                              x Nahmi

                                                              • December 14, 2012 at 1:03 pm
                                                              Lisa – Aust
                                                              Participant

                                                                Hi Nahmi,

                                                                Thanks for your message, I hope you are doing ok. Its a huge relief for us too when we get those results. The longer we go, the more stressful it is, as I guess we know at 'some' point, it will be back. But at the same time, we are very grateful, and will keep riding the wave as long as possible!

                                                                Merry Christmas xx

                                                                • December 14, 2012 at 1:03 pm
                                                                Lisa – Aust
                                                                Participant

                                                                  Hi Nahmi,

                                                                  Thanks for your message, I hope you are doing ok. Its a huge relief for us too when we get those results. The longer we go, the more stressful it is, as I guess we know at 'some' point, it will be back. But at the same time, we are very grateful, and will keep riding the wave as long as possible!

                                                                  Merry Christmas xx

                                                                  • December 14, 2012 at 1:03 pm
                                                                  Lisa – Aust
                                                                  Participant

                                                                    Hi Nahmi,

                                                                    Thanks for your message, I hope you are doing ok. Its a huge relief for us too when we get those results. The longer we go, the more stressful it is, as I guess we know at 'some' point, it will be back. But at the same time, we are very grateful, and will keep riding the wave as long as possible!

                                                                    Merry Christmas xx

                                                                    • December 14, 2012 at 1:00 pm
                                                                    Lisa – Aust
                                                                    Participant

                                                                      Hi Ally,

                                                                      Great to hear that you are also having excellent results with Z! You have to think with the amazing response many people have, 'they' are onto something! Hopefully unlocking the rest of it VERY soon 🙂

                                                                      Have a great trip and enjoy Perth. Im not sure if you have had any contact with Clint Heal from Melanoma WA, but he is a great person to get in contact with if you have time while you are here. His details are on the melanomawa website. Very inspirational and supportive. He runs a support group down here, ususally on a Thurs evening – you never know, it might coincide with your trip.

                                                                      Merry Xmas to you too

                                                                      Lisa

                                                                      • December 14, 2012 at 1:00 pm
                                                                      Lisa – Aust
                                                                      Participant

                                                                        Hi Ally,

                                                                        Great to hear that you are also having excellent results with Z! You have to think with the amazing response many people have, 'they' are onto something! Hopefully unlocking the rest of it VERY soon 🙂

                                                                        Have a great trip and enjoy Perth. Im not sure if you have had any contact with Clint Heal from Melanoma WA, but he is a great person to get in contact with if you have time while you are here. His details are on the melanomawa website. Very inspirational and supportive. He runs a support group down here, ususally on a Thurs evening – you never know, it might coincide with your trip.

                                                                        Merry Xmas to you too

                                                                        Lisa

                                                                        • December 14, 2012 at 1:00 pm
                                                                        Lisa – Aust
                                                                        Participant

                                                                          Hi Ally,

                                                                          Great to hear that you are also having excellent results with Z! You have to think with the amazing response many people have, 'they' are onto something! Hopefully unlocking the rest of it VERY soon 🙂

                                                                          Have a great trip and enjoy Perth. Im not sure if you have had any contact with Clint Heal from Melanoma WA, but he is a great person to get in contact with if you have time while you are here. His details are on the melanomawa website. Very inspirational and supportive. He runs a support group down here, ususally on a Thurs evening – you never know, it might coincide with your trip.

                                                                          Merry Xmas to you too

                                                                          Lisa

                                                                        • December 14, 2012 at 2:19 am
                                                                        AllyNTAus
                                                                        Participant

                                                                          Thanks for posting yet another inspiring message Lisa, wonderful to hear that Craig is still going so well.

                                                                          I am not yet to 12 months on the GSK BRAF inhibitor, but I am told I am now past the statistical median of progression-free survival, so I am dearly hoping that I will be another like Craig who extends the stats! I have only 3 remaining clinically significant lymph nodes as at my November scan, next scan in January, after which I will actually be in Perth for a few days as part of a big road trip to see lots of family and friends scattered around the country.

                                                                          Wishing you a wonderful Christmas and fantastic wedding anniversary.

                                                                          Ally

                                                                          • December 14, 2012 at 2:06 pm
                                                                          SidneyGracie
                                                                          Participant

                                                                            Thank you for the inspiring news about Zelboraf and durability.  Craigs dosage seems so low compared to my husbands which is 4 – 240 mg pills twice a day.  Merry Christmas!

                                                                              • December 17, 2012 at 7:40 am
                                                                              Lisa – Aust
                                                                              Participant

                                                                                Hi,

                                                                                Yeah, this might be because they are different trials – is your husband on the Roche trial?

                                                                                Slight differences as far as I know, but all hopefully doing the same thing!

                                                                                Thanks for your reply, have a great Chrissy

                                                                                Lisa+

                                                                                • December 17, 2012 at 7:40 am
                                                                                Lisa – Aust
                                                                                Participant

                                                                                  Hi,

                                                                                  Yeah, this might be because they are different trials – is your husband on the Roche trial?

                                                                                  Slight differences as far as I know, but all hopefully doing the same thing!

                                                                                  Thanks for your reply, have a great Chrissy

                                                                                  Lisa+

                                                                                  • December 17, 2012 at 7:40 am
                                                                                  Lisa – Aust
                                                                                  Participant

                                                                                    Hi,

                                                                                    Yeah, this might be because they are different trials – is your husband on the Roche trial?

                                                                                    Slight differences as far as I know, but all hopefully doing the same thing!

                                                                                    Thanks for your reply, have a great Chrissy

                                                                                    Lisa+

                                                                                  • December 14, 2012 at 2:06 pm
                                                                                  SidneyGracie
                                                                                  Participant

                                                                                    Thank you for the inspiring news about Zelboraf and durability.  Craigs dosage seems so low compared to my husbands which is 4 – 240 mg pills twice a day.  Merry Christmas!

                                                                                    • December 14, 2012 at 2:06 pm
                                                                                    SidneyGracie
                                                                                    Participant

                                                                                      Thank you for the inspiring news about Zelboraf and durability.  Craigs dosage seems so low compared to my husbands which is 4 – 240 mg pills twice a day.  Merry Christmas!

                                                                                  Viewing 11 reply threads
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