› Forums › Cutaneous Melanoma Community › Back pain
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Edwin.
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- September 25, 2019 at 3:17 am
Received 2d infusion of Opdivo today for stage 4 subcutaneous melanoma. After first infusion 28 days ago, no side effects except for exhaustion. Today, all blood work was good but a strange thing occurred 7 minutes into the treatment. I experienced excruciating low back pain. The extra sharp pain was constant and continued until a sedative and steroid were injected through my IV. After waiting about 30 minutes, the infusion
Continued, but at a slower rate. I can’t fully explain the severity of this pain. One nurse said she had been in the lab 11 years and never witnessed this. She later said it happens in 50% of infusions and later said 90@ of them. She didn’t know what to do and called for assistance. Four other nurses responded and seemed to understand what to do. I did completer the infusion. Next month (28 days) they will give me a prior dose of Benadryl and infuse at a slower rate. I am home now and feel well except for the always present exhaustion. One last note, the supervising nurse told my nurse that this was the second batch of Opdivo this afternoon that caused a severe reaction soon after the medicine was infused. Has anyone experienced this back pain during infusion?
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- September 25, 2019 at 6:04 pm
I had number 4 on Monday. They infused over 30 minutes with a 10 minute flush. No back pain while infusion was given. The exhaustion is a little worse but not debilitating. I was having polymyalgia rheumatica symptoms and was sent to a rheumatologist who prescribed 10 mg of prednisone. The only thing I have noticed after this round was blurry eyes the day after. It went away about 6 hours I got up. Hang in there! -
- September 27, 2019 at 2:48 am
This has not happened to me but the nurses at the clinic I go to have seen this happen. It is usually the 2nd or 3rd infusion about 10 minutes in. Those patients now take benadryl prior to going and the infusion is completed over a longer period of time. I hear the pain is excruciating. I hope the benadryl helps next time. -
- September 27, 2019 at 3:59 pm
StudioDad! Im glad to hear your settling in with your Opdivo! Youve come along way since the days of your Hesitation to start it!!…
Lower back pain? Sounds like your infusion chair, recliner or bed sucks! Being in an uncomfortable setting can trigger back pain but what do i know, im just a Melanoma stiff….hope it subsides, thats a bummer…
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