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- This topic has 48 replies, 11 voices, and was last updated 13 years, 4 months ago by
CLPrice31.
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- December 31, 2011 at 3:49 am
Ok, I’m getting anxious about treatment! My appointment is Jan. 9th to go to UVA and talk to my doctor about starting Interferon. I don’t know how all stages work, all I know is at stage 3, they don’t give you many options! He said wait it out, which seems more like a death sentence to me! I could do a clinical trial, but who knows if they’ll work, so it didn’t take me long to choose the feron. I’ve decided interferon is too long, so now it’s the feron. Anywho, I have 12 months of it and I am aware of the blood tests and liver tests. But I do have concerns.For instance, will I go bald? I have a fairly lumpy head, and no one needs to be subjected to that! Am I going to be the only 25 year old I know with saggy skin from the freak weight loss I’ve heard about? I don’t need to look like I can jump off a roof and take flight. But the initial thought of weight loss doesn’t bother me! I’m a chunky monkey….so bring it on!
Yesterday I just had a baby melanoma (in situ) removed from my back. Smidge sore back there!
One more note! I can’t seem to figure out how to delete my first post since it caused a little…conflict. I would like to apologize to Tim, because I was being very irrational. I don’t like upsetting people. I simply took it the wrong way and flipped.
Well thanks for listening…or reading. Have a great New Years everyone and stay blessed!
Jaimy
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- December 31, 2011 at 7:05 am
If you want a post you made removed, email Shelby Moneer at : [email protected]
http://www.projectsinknowledge.com/init/G/1628/1628-Handbook.pdf
1628-Handbook-Side effect treatment/pdf Object
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- December 31, 2011 at 7:05 am
If you want a post you made removed, email Shelby Moneer at : [email protected]
http://www.projectsinknowledge.com/init/G/1628/1628-Handbook.pdf
1628-Handbook-Side effect treatment/pdf Object
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- December 31, 2011 at 7:05 am
If you want a post you made removed, email Shelby Moneer at : [email protected]
http://www.projectsinknowledge.com/init/G/1628/1628-Handbook.pdf
1628-Handbook-Side effect treatment/pdf Object
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- December 31, 2011 at 2:00 pm
Jaimy. Please don’t delete your first post, it brought up a healthy discussion. That’s all part of being in the melanoma family some topics make some folks uneasy, and we can all agree to disagree. Religion is obviously one of those topics, and I understand Tim’s point but plenty of people have asked for prayers on this site and most of us have felt honored to do just that. For those you don’t believe in prayer, that’s fine too, they hold people in positive thoughts. The bottom line is we are all in this unfortunate battle against melanoma together, and I am open to however people cope and get support!
In regard to interferon, my husband did the full year and had some hair thinning that slowed down after the first few months, most people didn’t even notice. He lost 30 to 40 pounds, and did look thin, but that was over the whole year, and he is a very careful eater. Do whatever you can to eat what tastes good, protein shakes helped him. You are young, so hopefully you will handle interferon fine, if it is too difficult you can always make the decision to stop and know that you gave it your best, we are here to support you! God bless, Valerie (Phil’s wife) -
- December 31, 2011 at 2:00 pm
Jaimy. Please don’t delete your first post, it brought up a healthy discussion. That’s all part of being in the melanoma family some topics make some folks uneasy, and we can all agree to disagree. Religion is obviously one of those topics, and I understand Tim’s point but plenty of people have asked for prayers on this site and most of us have felt honored to do just that. For those you don’t believe in prayer, that’s fine too, they hold people in positive thoughts. The bottom line is we are all in this unfortunate battle against melanoma together, and I am open to however people cope and get support!
In regard to interferon, my husband did the full year and had some hair thinning that slowed down after the first few months, most people didn’t even notice. He lost 30 to 40 pounds, and did look thin, but that was over the whole year, and he is a very careful eater. Do whatever you can to eat what tastes good, protein shakes helped him. You are young, so hopefully you will handle interferon fine, if it is too difficult you can always make the decision to stop and know that you gave it your best, we are here to support you! God bless, Valerie (Phil’s wife) -
- December 31, 2011 at 2:00 pm
Jaimy. Please don’t delete your first post, it brought up a healthy discussion. That’s all part of being in the melanoma family some topics make some folks uneasy, and we can all agree to disagree. Religion is obviously one of those topics, and I understand Tim’s point but plenty of people have asked for prayers on this site and most of us have felt honored to do just that. For those you don’t believe in prayer, that’s fine too, they hold people in positive thoughts. The bottom line is we are all in this unfortunate battle against melanoma together, and I am open to however people cope and get support!
In regard to interferon, my husband did the full year and had some hair thinning that slowed down after the first few months, most people didn’t even notice. He lost 30 to 40 pounds, and did look thin, but that was over the whole year, and he is a very careful eater. Do whatever you can to eat what tastes good, protein shakes helped him. You are young, so hopefully you will handle interferon fine, if it is too difficult you can always make the decision to stop and know that you gave it your best, we are here to support you! God bless, Valerie (Phil’s wife) -
- December 31, 2011 at 2:13 pm
Jaimy,
I know you are nervous about interferon. You should be I would think anyone not nervous about starting any cancer treatment would be more out of the norm. Everyone experiences different side effects. Some have very few others have to stop because of them. I was in between. I did a year in 09-10. I was unusual in that by about month 6 I had lost much of my hair. I had it cut in a short pixie that actually looked kind of cute when it filled in. I never shaved my head or lost all of my hair. Some have no problem with hair loss. I lost 40 pounds which wasn't a big deal because that put me at my goal weight. I promptly put it back on after getting my taste for food back! (well most of it anyhow) Fevers are probably a given with aches too, but mine were contolled with advil and tylenol. The IV's were the worst, but I worked through the 11 months of shots. I teach computer technology to high school junior and seniors and I will admit they didn't get the best of my ability that year, but we made it work.
I wish you all the best with this. I went in with the attitude that I would quit if it got too bad. Honestly I might have quit if it weren't for my husband and sister and parents and co-workers and children all cheering me on and begging me not to. By the way I'm very glad I stuck with it. I do have good memories of most of that year. My quality of life was only just a little less than normal. I even took my daughters to a Jonas Brothers concert during treatment!
I'll be praying that it goes easy for you. Just know you aren't alone through any of this.
Amy S. in Michigan
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- December 31, 2011 at 2:13 pm
Jaimy,
I know you are nervous about interferon. You should be I would think anyone not nervous about starting any cancer treatment would be more out of the norm. Everyone experiences different side effects. Some have very few others have to stop because of them. I was in between. I did a year in 09-10. I was unusual in that by about month 6 I had lost much of my hair. I had it cut in a short pixie that actually looked kind of cute when it filled in. I never shaved my head or lost all of my hair. Some have no problem with hair loss. I lost 40 pounds which wasn't a big deal because that put me at my goal weight. I promptly put it back on after getting my taste for food back! (well most of it anyhow) Fevers are probably a given with aches too, but mine were contolled with advil and tylenol. The IV's were the worst, but I worked through the 11 months of shots. I teach computer technology to high school junior and seniors and I will admit they didn't get the best of my ability that year, but we made it work.
I wish you all the best with this. I went in with the attitude that I would quit if it got too bad. Honestly I might have quit if it weren't for my husband and sister and parents and co-workers and children all cheering me on and begging me not to. By the way I'm very glad I stuck with it. I do have good memories of most of that year. My quality of life was only just a little less than normal. I even took my daughters to a Jonas Brothers concert during treatment!
I'll be praying that it goes easy for you. Just know you aren't alone through any of this.
Amy S. in Michigan
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- December 31, 2011 at 2:13 pm
Jaimy,
I know you are nervous about interferon. You should be I would think anyone not nervous about starting any cancer treatment would be more out of the norm. Everyone experiences different side effects. Some have very few others have to stop because of them. I was in between. I did a year in 09-10. I was unusual in that by about month 6 I had lost much of my hair. I had it cut in a short pixie that actually looked kind of cute when it filled in. I never shaved my head or lost all of my hair. Some have no problem with hair loss. I lost 40 pounds which wasn't a big deal because that put me at my goal weight. I promptly put it back on after getting my taste for food back! (well most of it anyhow) Fevers are probably a given with aches too, but mine were contolled with advil and tylenol. The IV's were the worst, but I worked through the 11 months of shots. I teach computer technology to high school junior and seniors and I will admit they didn't get the best of my ability that year, but we made it work.
I wish you all the best with this. I went in with the attitude that I would quit if it got too bad. Honestly I might have quit if it weren't for my husband and sister and parents and co-workers and children all cheering me on and begging me not to. By the way I'm very glad I stuck with it. I do have good memories of most of that year. My quality of life was only just a little less than normal. I even took my daughters to a Jonas Brothers concert during treatment!
I'll be praying that it goes easy for you. Just know you aren't alone through any of this.
Amy S. in Michigan
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- December 31, 2011 at 3:54 pm
Jaimy, agreed that options for stage 3 are very limited. Have you checked into the clinical trial e1609 which is interferon vs. Ipi? We were like you, not satisfied with the wait and see approach. Figured if interferon was our option why not try for the newest on the market. We got ipi. My husband has had two infusions of ipi so far. Praise be to God, no side effects. One of the best pieces of advice I have seen o here us, make a treatment choice that’s right for you and don’t look back! Here’s to a healthy new year filled with NED!!!!!! -
- December 31, 2011 at 3:54 pm
Jaimy, agreed that options for stage 3 are very limited. Have you checked into the clinical trial e1609 which is interferon vs. Ipi? We were like you, not satisfied with the wait and see approach. Figured if interferon was our option why not try for the newest on the market. We got ipi. My husband has had two infusions of ipi so far. Praise be to God, no side effects. One of the best pieces of advice I have seen o here us, make a treatment choice that’s right for you and don’t look back! Here’s to a healthy new year filled with NED!!!!!! -
- December 31, 2011 at 3:54 pm
Jaimy, agreed that options for stage 3 are very limited. Have you checked into the clinical trial e1609 which is interferon vs. Ipi? We were like you, not satisfied with the wait and see approach. Figured if interferon was our option why not try for the newest on the market. We got ipi. My husband has had two infusions of ipi so far. Praise be to God, no side effects. One of the best pieces of advice I have seen o here us, make a treatment choice that’s right for you and don’t look back! Here’s to a healthy new year filled with NED!!!!!! -
- December 31, 2011 at 6:21 pm
There is a ton of information on here about Interferon and peoples personal side effects. I have noticed that it seems the younger you are when you do it the better it is or less side effects……Maybe…. I am 37 now but when I did the treatment for 10 1/2 months I was 35 and turned 36. I did not do to well but it was do able for me and currently I am NED I think. So far anyway. There is a couple things that are being watched and I am scheduled for a PET scan on January 10 2012 and then I will know more. I will never regret doing the interferon. Good luck with your decision…
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- December 31, 2011 at 6:21 pm
There is a ton of information on here about Interferon and peoples personal side effects. I have noticed that it seems the younger you are when you do it the better it is or less side effects……Maybe…. I am 37 now but when I did the treatment for 10 1/2 months I was 35 and turned 36. I did not do to well but it was do able for me and currently I am NED I think. So far anyway. There is a couple things that are being watched and I am scheduled for a PET scan on January 10 2012 and then I will know more. I will never regret doing the interferon. Good luck with your decision…
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- December 31, 2011 at 6:21 pm
There is a ton of information on here about Interferon and peoples personal side effects. I have noticed that it seems the younger you are when you do it the better it is or less side effects……Maybe…. I am 37 now but when I did the treatment for 10 1/2 months I was 35 and turned 36. I did not do to well but it was do able for me and currently I am NED I think. So far anyway. There is a couple things that are being watched and I am scheduled for a PET scan on January 10 2012 and then I will know more. I will never regret doing the interferon. Good luck with your decision…
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- December 31, 2011 at 7:43 pm
Hello Jamie, I too am in the same shoes as you in several ways. I have a strong faith and also am about to start interferon soon. I am stage 3a. I am also anxious about the side affects and your post made me smile! I dont think you have anything to apologize about, but I guess there are rules to be followed. I am now dealing with a cellulitis that came out of nowhere. On antibiotics for 10days. I hope things go well with you during your treatment and I'll keep ya in my thoughts and prayers.
Kim
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- December 31, 2011 at 7:43 pm
Hello Jamie, I too am in the same shoes as you in several ways. I have a strong faith and also am about to start interferon soon. I am stage 3a. I am also anxious about the side affects and your post made me smile! I dont think you have anything to apologize about, but I guess there are rules to be followed. I am now dealing with a cellulitis that came out of nowhere. On antibiotics for 10days. I hope things go well with you during your treatment and I'll keep ya in my thoughts and prayers.
Kim
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- December 31, 2011 at 7:43 pm
Hello Jamie, I too am in the same shoes as you in several ways. I have a strong faith and also am about to start interferon soon. I am stage 3a. I am also anxious about the side affects and your post made me smile! I dont think you have anything to apologize about, but I guess there are rules to be followed. I am now dealing with a cellulitis that came out of nowhere. On antibiotics for 10days. I hope things go well with you during your treatment and I'll keep ya in my thoughts and prayers.
Kim
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- December 31, 2011 at 9:55 pm
Hello Jaimy,
I am stage 3B and have an appt at UVA on Jan 9 too. I will be there at 10am to see Dr Slingluff. Research and ask about any clinical trials that you may qualify for. I chose a vaccine trial over interferon but was prepared to do interferon if that was my only option. I did not like the "watch and wait" option at all. I am currently 18 months out from my diagnosis and still NED. I had CTs and MRIs this past week and all were clean. So I feel very blessed and ringing in the new year on a high note!! Best of luck and maybe we will cross paths. I live in Abingdon VA.
Michelle
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- December 31, 2011 at 9:55 pm
Hello Jaimy,
I am stage 3B and have an appt at UVA on Jan 9 too. I will be there at 10am to see Dr Slingluff. Research and ask about any clinical trials that you may qualify for. I chose a vaccine trial over interferon but was prepared to do interferon if that was my only option. I did not like the "watch and wait" option at all. I am currently 18 months out from my diagnosis and still NED. I had CTs and MRIs this past week and all were clean. So I feel very blessed and ringing in the new year on a high note!! Best of luck and maybe we will cross paths. I live in Abingdon VA.
Michelle
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- January 1, 2012 at 5:23 pm
Hi Jaimy,
Did they tell you which stage 3 you are? For example, I'm Stage 3c, unresectable (there is no option to remove my melanoma surgically, in my case due to its location and because I"m getting new little mels which are spreading away from the main area) so many more options were open to me, such as Yervoy and IL-2. Unfortunately, I have not had a total response to either one, but I'm positive one or both of them slowed down the spread.
I agree, there is a terrible dearth of treatments available for most state 3's. And even for 3C unresect., as it was left out of the Curetect Anti-PD1 trial that just opened, which my docs were hoping to get me into.
Take care,
karen
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- January 2, 2012 at 3:33 am
Hey Karen,No, no one has told me what sub stage I am. I imagine it’s a or b, because it hasn’t spread or started to spread. It’s just hanging out right now. And I’m more than ok with that. Also, someone mentioned doing a clinical trial? Personally I feel it’s too risky to try something that I may not even qualify for, so that’s a big reason why I chose interferon. Plus I’m such a type A person so having a set schedule for treatment didn’t bother me one bit! I know I will come out of this much stronger, and I will call my local oncologist tomorrow and see what exact stage I am in and update for y’all. Hope everyone had a great new years eve and day! I know I did!
Jaimy
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- January 2, 2012 at 3:33 am
Hey Karen,No, no one has told me what sub stage I am. I imagine it’s a or b, because it hasn’t spread or started to spread. It’s just hanging out right now. And I’m more than ok with that. Also, someone mentioned doing a clinical trial? Personally I feel it’s too risky to try something that I may not even qualify for, so that’s a big reason why I chose interferon. Plus I’m such a type A person so having a set schedule for treatment didn’t bother me one bit! I know I will come out of this much stronger, and I will call my local oncologist tomorrow and see what exact stage I am in and update for y’all. Hope everyone had a great new years eve and day! I know I did!
Jaimy
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- January 2, 2012 at 3:33 am
Hey Karen,No, no one has told me what sub stage I am. I imagine it’s a or b, because it hasn’t spread or started to spread. It’s just hanging out right now. And I’m more than ok with that. Also, someone mentioned doing a clinical trial? Personally I feel it’s too risky to try something that I may not even qualify for, so that’s a big reason why I chose interferon. Plus I’m such a type A person so having a set schedule for treatment didn’t bother me one bit! I know I will come out of this much stronger, and I will call my local oncologist tomorrow and see what exact stage I am in and update for y’all. Hope everyone had a great new years eve and day! I know I did!
Jaimy
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- January 1, 2012 at 5:23 pm
Hi Jaimy,
Did they tell you which stage 3 you are? For example, I'm Stage 3c, unresectable (there is no option to remove my melanoma surgically, in my case due to its location and because I"m getting new little mels which are spreading away from the main area) so many more options were open to me, such as Yervoy and IL-2. Unfortunately, I have not had a total response to either one, but I'm positive one or both of them slowed down the spread.
I agree, there is a terrible dearth of treatments available for most state 3's. And even for 3C unresect., as it was left out of the Curetect Anti-PD1 trial that just opened, which my docs were hoping to get me into.
Take care,
karen
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- January 1, 2012 at 5:23 pm
Hi Jaimy,
Did they tell you which stage 3 you are? For example, I'm Stage 3c, unresectable (there is no option to remove my melanoma surgically, in my case due to its location and because I"m getting new little mels which are spreading away from the main area) so many more options were open to me, such as Yervoy and IL-2. Unfortunately, I have not had a total response to either one, but I'm positive one or both of them slowed down the spread.
I agree, there is a terrible dearth of treatments available for most state 3's. And even for 3C unresect., as it was left out of the Curetect Anti-PD1 trial that just opened, which my docs were hoping to get me into.
Take care,
karen
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- January 2, 2012 at 3:26 am
Hey Michelle,I’m seeing Dr. Grosh at 3pm. So we may have to wait a bit to cross paths! I’m down in Vinton, just outside of Roanoke. I’m ready to start this already so it can end sooner! And what on earth does NED mean? Thanks to you and everyone for being awesome!
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- January 2, 2012 at 1:40 pm
NED is "No evidence of Disease". There is no proof of disease at the time but when they look at scans they cannot see. It's the best we can have when we have melanoma.
You commented that you don't know the stage of 3. It's based on how many malignant lymph nodes or intransit disease which is 3B.
It sounds like your oncologist is not a melanoma specialist. Until my most recent progression with a brain met I traveled for a mel specialist and also had a local oncologist. There are other options posibilities besides interfuron. It's your choice but you need to know all of the options in the beginning.
If you do go with the interfuron talk to your Dr about starting with antidepressent before you begin during this treatment.
Linda
Stage IV since July 06 Scans tomorrow , brain met is shrinking, weaning off from steroids
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- January 2, 2012 at 4:51 pm
I have a melanoma specialist at UVA, and my local oncologist here about 20 minutes from me. I’m actually on 2 anti+depressants already, so I think that will be fine. I’m taking 40mg of celexa and 300mg of welbutrin. I’ll take a look at other options, just to see. 🙂 Good luck with those scans! PET scans are the worst for me! I’m a bit claustrophobic lol. Keep shrinking the brain met!God bless,
Jaimy -
- January 2, 2012 at 4:51 pm
I have a melanoma specialist at UVA, and my local oncologist here about 20 minutes from me. I’m actually on 2 anti+depressants already, so I think that will be fine. I’m taking 40mg of celexa and 300mg of welbutrin. I’ll take a look at other options, just to see. 🙂 Good luck with those scans! PET scans are the worst for me! I’m a bit claustrophobic lol. Keep shrinking the brain met!God bless,
Jaimy -
- January 2, 2012 at 4:51 pm
I have a melanoma specialist at UVA, and my local oncologist here about 20 minutes from me. I’m actually on 2 anti+depressants already, so I think that will be fine. I’m taking 40mg of celexa and 300mg of welbutrin. I’ll take a look at other options, just to see. 🙂 Good luck with those scans! PET scans are the worst for me! I’m a bit claustrophobic lol. Keep shrinking the brain met!God bless,
Jaimy -
- January 2, 2012 at 1:40 pm
NED is "No evidence of Disease". There is no proof of disease at the time but when they look at scans they cannot see. It's the best we can have when we have melanoma.
You commented that you don't know the stage of 3. It's based on how many malignant lymph nodes or intransit disease which is 3B.
It sounds like your oncologist is not a melanoma specialist. Until my most recent progression with a brain met I traveled for a mel specialist and also had a local oncologist. There are other options posibilities besides interfuron. It's your choice but you need to know all of the options in the beginning.
If you do go with the interfuron talk to your Dr about starting with antidepressent before you begin during this treatment.
Linda
Stage IV since July 06 Scans tomorrow , brain met is shrinking, weaning off from steroids
-
- January 2, 2012 at 1:40 pm
NED is "No evidence of Disease". There is no proof of disease at the time but when they look at scans they cannot see. It's the best we can have when we have melanoma.
You commented that you don't know the stage of 3. It's based on how many malignant lymph nodes or intransit disease which is 3B.
It sounds like your oncologist is not a melanoma specialist. Until my most recent progression with a brain met I traveled for a mel specialist and also had a local oncologist. There are other options posibilities besides interfuron. It's your choice but you need to know all of the options in the beginning.
If you do go with the interfuron talk to your Dr about starting with antidepressent before you begin during this treatment.
Linda
Stage IV since July 06 Scans tomorrow , brain met is shrinking, weaning off from steroids
-
- January 2, 2012 at 3:26 am
Hey Michelle,I’m seeing Dr. Grosh at 3pm. So we may have to wait a bit to cross paths! I’m down in Vinton, just outside of Roanoke. I’m ready to start this already so it can end sooner! And what on earth does NED mean? Thanks to you and everyone for being awesome!
-
- January 2, 2012 at 3:26 am
Hey Michelle,I’m seeing Dr. Grosh at 3pm. So we may have to wait a bit to cross paths! I’m down in Vinton, just outside of Roanoke. I’m ready to start this already so it can end sooner! And what on earth does NED mean? Thanks to you and everyone for being awesome!
-
- December 31, 2011 at 9:55 pm
Hello Jaimy,
I am stage 3B and have an appt at UVA on Jan 9 too. I will be there at 10am to see Dr Slingluff. Research and ask about any clinical trials that you may qualify for. I chose a vaccine trial over interferon but was prepared to do interferon if that was my only option. I did not like the "watch and wait" option at all. I am currently 18 months out from my diagnosis and still NED. I had CTs and MRIs this past week and all were clean. So I feel very blessed and ringing in the new year on a high note!! Best of luck and maybe we will cross paths. I live in Abingdon VA.
Michelle
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- January 6, 2012 at 1:41 am
Hi Jaimy,
I am 24, stage III, and I love in Roanoke!!! I would love to meet up with you and chat if you are ever interested. Please feel free to email me or contact me!
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- January 6, 2012 at 2:41 am
No way! Yeah we should hang out! Dr. Curri did my surgery on my arm! And Dr. Evans is so nice, he’s funny if you get him talking about his brother! I will have to message you my facebook so we can talk! So have you started treatment yet? I’m so excited that we live so close. -
- January 6, 2012 at 2:41 am
No way! Yeah we should hang out! Dr. Curri did my surgery on my arm! And Dr. Evans is so nice, he’s funny if you get him talking about his brother! I will have to message you my facebook so we can talk! So have you started treatment yet? I’m so excited that we live so close. -
- January 6, 2012 at 2:41 am
No way! Yeah we should hang out! Dr. Curri did my surgery on my arm! And Dr. Evans is so nice, he’s funny if you get him talking about his brother! I will have to message you my facebook so we can talk! So have you started treatment yet? I’m so excited that we live so close. -
- January 6, 2012 at 2:59 am
After my initial surgery and meetings with Dr. Curri, I decided to go to Memorial Sloan Kettering Cancer Center in NYC. Because I had lymph nodes positive in multiple lymph node basins, I was in a hurry to find a melanoma specialist. My family lives on the Eastern Shore of Virginia so NYC is only 5 hours away compared to 4 hours at UVA. I had 2 full lymph node dissections in February and began the ipi/placebo trial in May. Phew. What a year. My one year anniversary is on Tuesday. I can't wait to meet you! What a small world.
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- January 6, 2012 at 2:59 am
After my initial surgery and meetings with Dr. Curri, I decided to go to Memorial Sloan Kettering Cancer Center in NYC. Because I had lymph nodes positive in multiple lymph node basins, I was in a hurry to find a melanoma specialist. My family lives on the Eastern Shore of Virginia so NYC is only 5 hours away compared to 4 hours at UVA. I had 2 full lymph node dissections in February and began the ipi/placebo trial in May. Phew. What a year. My one year anniversary is on Tuesday. I can't wait to meet you! What a small world.
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- January 6, 2012 at 2:59 am
After my initial surgery and meetings with Dr. Curri, I decided to go to Memorial Sloan Kettering Cancer Center in NYC. Because I had lymph nodes positive in multiple lymph node basins, I was in a hurry to find a melanoma specialist. My family lives on the Eastern Shore of Virginia so NYC is only 5 hours away compared to 4 hours at UVA. I had 2 full lymph node dissections in February and began the ipi/placebo trial in May. Phew. What a year. My one year anniversary is on Tuesday. I can't wait to meet you! What a small world.
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